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Old 08-06-2003, 09:30 PM   #1
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Percussionist HB User
Wink heh sorry another question

...Percussion ended in July...ever since then my pain has gone from 5 to like 8-9...The vigerous usage...and keeping busy is that really helping like the doctor keeps telling me. It's like my cure..And now it's over Im in like grr pain. It's weird but kinda cool that my favorite hobby lesses my pain even though I push and struggle to use my left wrist...I use heat rub for it all the time before performing oddly it calms it down a "bit" and allows me to play like 10 minutes... but 10 minutes is like 10hrs ..

SO the question is... Does activity and usage of the effected limb lesson spreading or pain level. Im not sure what it is but my body pushes to it's highest limits and goes on to letting me play but boy DO I PAY FOR IT!!
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Old 08-06-2003, 09:44 PM   #2
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cattys HB User
Talking

Never be sorry to ask a question here. That is why we are here. So you go ahead and ask away.lol

to be truthfull on your question. When I use my arm alot I am in severe pain. even the littlest things will send me through the foof.

That is fantastic that you are able to continue playing like you do. Maybe it is because you are keeping your mind and body busy doing something you really enjoy that the pain is the furthest from your mind.

Using the RSD limb all the time is good .It keeps it mobile so you have less chance of loosing use of your arm. This is what me dr. said anyway, so I use mine as much as possible. If I go even a couple hours without using my hand I can start to feel it stiffen up.

Always remember you are not alone in this. We are always here.

cattys

[This message has been edited by cattys (edited 08-06-2003).]

 
Old 08-06-2003, 11:05 PM   #3
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AngeInBoston HB User
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Hi Percussionist

I think what you're finding is that playing your music is actually Physical Therapy for your bad hand, even though it hurts, you're keeping it limber enough so it is not starting to atrophy!

Joey's Dr. told him to keep working and walking on his foot as MUCH as possible, even though it is "Counter-Intuitive" (My favorite new phrase! ) But he's not getting the REAL Physical Therapy I think he needs, and his foot is looking like it IS starting to atrophy because he doesn't really walk on it the way he should...he just hobbles on his heel, instead of 'rolling' through the toes.

PLEASE grab this bull by the horns, and do as much research on this as you can, so YOU will be educated and know what to say to your Dr, and what kind of treatment you want! You really should NOT be suffering in silence like you are!! There are treatments and medications out there that can help to relieve your pain, and possibly put it into remission! (Starting with the Blocks!) Also, do you have a Paraffin Wax bath for your hand? Alot of posters here love them!

If you do not like your Dr, then find another one....it's very common to keep searching out new Dr.s and new treatments. Do you go to a Pain Management Center to see a Pain Dr.? (Usually Anesthesiologists, and they do the nerve blocks) That's where you need to be! And you do need to be brutally honest about exactly what you're feeling, physically AND emotionally...and the more informed you are, the more control you have and the more empowered you will feel.

Good luck, let us know how you're doing!
~Ange

 
Old 08-07-2003, 11:05 PM   #4
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Hey Perc Ditto what Ange said, good advice. How long have you had RSD? At least since March from when you joined here. You ought to come more often. It really helps to talk with people, it makes you feel less alone, and you can learn so much from people who've been there. It's nice to make friends too, everyone here is so caring.

My doc always told me to use my hand as much as I feel I am able to, but not to over-do it, and only I can tell what I can do or not (gee, thanks doc, lol). He knows I do physical therapy at home to keep the muscles from atrophying, and it's working for me, so he's fine with that.

Today I asked him if I should use my hand or not since it's so much better after the epi infusion I just had, cause I am so afraid to aggravate the nerve and start up the bad pain again, and he told me that sometimes usage makes the pain just stop, which in severe cases I just can't see that happening, but I'm about half way into remission (I think), from the epi infusion, so maybe he meant that for me.

Before the infusion, using my hand made the pain so much worse. It's really bad to favor it too much though. I know that's hard to do when it hurts so bad though. It's a vicious cycle.

Please come back more often, and I hope you get some relief from your pain soon.
Cathy


 
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