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Old 09-08-2003, 07:16 AM   #1
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Post symptoms of rsd in layman's terms

People with rsd suffer from many types of pain including:

1. Allodynia is pain that is provoked by a stmulus that doesn't usually cause pain.
2. Hyperesthesia is when the patient has an icreased sensitivity to any stimulus that causes pain especially pressure and touch. This can be so severe that the patient may become preoccupied with protecting the limb from even the slightest touch

3. Hyperpathia occurs when the threshold to pain is increased but once the pain is felt it is much more intense than it should be and will continue even when the stimulus is removed.

Tropic changes are skin changes. They may include:
color changes (red, blue, or pale skin); the appearance of tight and shiny skin; hair growth;hair may become thin and sparse or thick and coarse; nails may become rigid, coarse and often quite long because of the pain invovled in cutting them; skin may become thin and is prone to all kinds of sores.

Sudomotor changes occur when the temperature of the injured limb changes. The injured limb is either warmer and red or cooler and bluish. Early in the course of rsd the limb tends to be warm but as time goes on it will usually be colder than the healthy limb. The affected limbs become extremely sweaty even if they are cold to the touch and in later stages sweating may not occur at all at the affected sites.

Edema or swelling usually present with rsd. In the beginning of the process the edema may be quite large but in later stages the edema lessens and may actually be noted only by measuring the affectd limb and comparing it to the healty limb. Again, no symptoms are universal and some patients have gross edema even in the most advanced cases.

Movement disorders muscles become atrophied; isolated muscles may become very tense causing contractures. The range of movement may be impaired, spasms and myoclonic jerks can be seen in many patients and bones may declacify.

Emotional problems - I hate using this term because it may mislead people. These symptoms are caused by the pain & disability of rsd, not visa versa. Lack of sleep, depression, relationship problems including physial, emotional and sexual which are caused by the efects on the libido and thalmus.

These are the major symptoms of rsd. A person doesn't need to have all of these symptoms to be diagnosed with rsd. It is important to note that one sign or symptom is frequently out of proportion to the others. Such as severe pain with little vasomotor changes or the opposite. Doctors do not agree on exactly which symptoms need to be present to diagnose rsd but many agree that there needs to be at least 3 of the general categories mentioned above to confirm the presence of rsd.

Barbara Schaffer is an rsd patient and she has put together these notes on rsd. I hate to say that when I saw the pictures she has, I almost got physically ill. Please note that Barbara's case is extreme and unusual. Do not take her case as typical of rsd because it's not.



 
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Old 09-08-2003, 02:38 PM   #2
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Thank you for the list. There are changes I didn't know what to account for. The strangest is the short term memory loss. What is that about? Is there any help for that? What do you do to keep track of life?

Just for today.....
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Old 09-08-2003, 04:50 PM   #3
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Thanks for taking the time to post this for everyone

((((Gentle Hugs))))
Cattys

 
Old 09-08-2003, 05:13 PM   #4
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Uh, what short term memory loss??? You'll find I joke about just about everything. My memory has in fact gotten so bad I put the cereal in the refrigerator and the milk in the cabinet, I wore my pajamas to work under my clothes (and I'm not fibbing I really did), I also drove several blocks to work and realized I didn't have my glasses on and couldn't see. Went to wallie world for a prescription in hand and bought a couple of items but no prescription.

Sometimes you just feel lower than a snake's but in a wagon wheel rut, but hey, at least it's funny at the time...

Oh yes, you can take ginki biloba, but be careful it gave me a headache and can in fact cause some brain disturbances like strokes.... I just stay away from herbs altogether.

Well guys, I'm just like a duck's but, I never stop.... so I'll shut up......

Hah, make you laugh tho didn't I???

 
Old 09-08-2003, 06:27 PM   #5
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Yes you made me laugh and smile and now I don't feel like such a dope. I started Grad school a month before I got RSD and I thought that having children lowered my IQ. I make an fool of myself in front the intellectuals at least once a week but I forget about it until I see them at the next class. That may be one of the benefits! But I usually feel so triumphant that I found a parking spot that was close enough so I could get to class, that I don't care much. You and the forum have cheered me up immensely in the past 24 hours. Thank you

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