Meds - Reflex Sympathetic Dystrophy Message Board

dayton · 09-09-2003, 12:31 PM

I know I've probably already asked this but blame it on "memory" problems. As ya'll know, I'm on neurotin 3 times a day and elavil 75 mg per night and that's all. (and right now I've gained about 40 pounds, so I'm real unhappy about the weight. I look like a cross between Roseanne Barr and Momma Cass in cowboy boots!!) Uh, where was I? oh yes. How long did you have rsd before you got pain killers? I mean something stronger than ultram (which didn't do squat for me, other than sending my blood pressure and heart rate through the roof.)

cattys · 09-09-2003, 01:13 PM

I was on pain killers from day one of being diagnosed. I went off of them when I got the scs. My dr. feels that the scs should take care of everything but he has no clue.

SFangel · 09-10-2003, 03:44 AM

I have had RSD in my left knee/leg since August 2001 but my RSD was first diagnosed in May 2002. Only 2 doctors (primary care physicians) were willing to prescribe strong (narcotic) painkillers for me. Before I met them, I had to suffer severe to excruciating pain for 9 months, which seemed more like 9 centuries to me.

dragonC · 09-10-2003, 07:01 AM

I was on pain meds from day one. I had darvocet and demerol (pill form) My family practice doctor recently offered stronger pain medication which I refused because I hate being so out of it. She was concerned that i was being undermedicated. I only take dravocet with an occasional Vicodin with a lidociane cream.

Neurontin, elavil, duragesic patches, ketamine all gave me nasty side effects. The side effects are as important to manage as the pain. Maybe you could tell your doc you don't like the weight gain and see if he has any other ideas.

Early on she had me sign a pain management contract about meds so that I thought about my use and probably so I didn't sue her.

There are so many drug seekers that try and say they have chronic pain to get prescriptions, often at more than one doctor's office. If you need more pain meds, have you asked your doc what his/her reasons are for not prescribing it. There are tons of articles on the web that discuss the undermedicating of pain patients. Its nice to have something strong in the house for the awful days or usually nights, even if I don;t use it consistently.

Pain management is sooo different doctor to doctor.

Peace
Just for today.....

Peace
Cathy

Bob A · 09-10-2003, 07:13 AM

I eat a lot of peanut butter and jelly. No! Seriously! They do nothing for the pain , but it makes me feel better.

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Bob A.