Dr.s appt - Reflex Sympathetic Dystrophy Message Board

dayton · 09-10-2003, 07:33 PM

I made an appt with my doc for tomorrow morning. I told him on the phone (1) get me off this neurotin. When I started I weighed 132, now I weigh almost 170 and I'm only 5 feet tall. (2) get me off elavil cause it makes me have extremely dry mouth and munchies (3) do something about the swelling in my leg (4) I'm going to ask him about physical therapy. He said since I'm working full time I don't need it, but everything I read and on another board too, says you should have it.

Did I leave anything out, do you think?

Oh, almost forgot, somebody said they used emu oil (you know that blue stuff they advertise). they said it helped. Has anybody here tried it?

Hugs. I'm going to bed. I take the elavil and neurotin about 6:30 and right on schedule at 8:30 I'm out of it. I wonder about staying in bed so much but it makes me so sleepy. I have to get up at 6 to go to work.

Will let you now what he says.

sharon1030 · 09-10-2003, 08:08 PM

Hi Dayton,

Good luck tomorrow. By the way, I know a woman who was put on Elavil because she needed to gain weight so I guess they use it for that too. I know other people who've been on it for RSD and gained weight and craved a lot of sweets that they didn't crave before. I'm sure there's something to the Elavil that might have made you gain too. I know I gained a lot of weight from the meds too. I think my major culprit was baclofen. After going on that, I gained extremely fast. Stinks, doesn't it? I liked your banana joke! Good luck again and let us know how you do.

Sharon

destinyevans · 09-10-2003, 09:12 PM

Hi,

Elavil will do it to you everytime. I was on it for 3 years after 2 back surgeries. I gained 30 pounds.

If you are getting relief from the neurontin, I'd stick with it. But you'll know after you go off of it.

You said you have Fibro.

When you have Fibro, you craves sweets and carbs. The only way to fight the cravings is you must change your diet.

And I think I mentioned before. Get your thyroid checked. An underactive thyroid will throw the pounds on you quicker than anything.

Hope this helps.

Hugs Destiny

riceneuroni · 09-11-2003, 02:58 AM

I've tried both the Blue Stuff and pure emu oil. I'd say save your money. The Blue Stuff seemed to help cool things down for maybe 15 minutes but was course and in the end inflicted additional pain. The emu oil seems effective for applications to joints, muscle, etc. only if you use it once in a great while. I don't recall that it had any positive effect on my RSD.