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Old 09-14-2003, 10:05 PM   #1
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savysac HB User
Question Pain Attacks!!

Do any of you get sudden, unexpected, totally out of the blue pain attacks that surpass your usual level of pain?

During these attacks do you find that no amount of medication seems to lessen the pain, and you just have to ride it out?

I have RSD in my left foot and left thigh, I am usually at a pain level of 6 throughout the day if I do not take my base med of MSContin, if I take my base med, I can get to a 3 or 4 and function, for the most part, as a normal person. However, I get these flareups, from time to time ( it could be once a week or several times a day) that may last only 5 minutes or may hang around for hours where the pain level shoots to a 8-9 ( I never use 10, that is reserved for the worst pain imaginable). I will take my bt medication when this happens, but it does nothing.

I usualy get these flare-ups in my thigh, not my foot, and it seems as though they happen more at night than during the day, just a deep burning, crushing pain, my thigh will get so hot, that my entire body feels like I am in a sauna.

I have tried breathing techniques, which help from time to time, I also take a muscle relaxor(zanaflex) which seems to help some.

After I have a flare-up, and the pain subsides, my thigh will go cool to the touch, it feels numb on the surface and it feels like cool water or blood is surging through the area. It is a wierd sensation to go through, let alone describe. I will then have twitching and spasms in my leg and foot for a few hours after the pain stops.

Does anyone else ever get these kind of pain attacks? Do they vary from my experience? What sorts of things do you experience during an attack?

Thanks for any and all replies.

Peace

Terry

 
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Old 09-14-2003, 10:18 PM   #2
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cattys HB User
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Evening Terry,

I am having one of those attacks right now. The bone pain is horrific. My whole hand and arm is on fire and nothing touches it when it gets like this. Then it spreads into my neck and chest. If I ever had a heart attack I wouldn't know it because I am always having this in my left arm neck and chest.

I am also on zanalex for my muscle spasms which does help with them.

I hope you have a restfull evening.

Cattys


 
Old 09-14-2003, 10:39 PM   #3
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savysac HB User
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Cattys

I am so sorry that you are suffering now. Thats the thing with these darned attacks, they come on whenever they want to with no regard to the fact that it is bedtime, or you are at work, or you have a family/social funtcion you need to attend.

Whenever I get one of these buggers, I try to disassociate myself from the limb by doing breathing exercises and meditation, it helps sometimes, but most of the time all you can do is ride it out.

I hope it is over for you real soon, and take comfort in that I am here to support you and know what your going through.

Have a good night

peace

terry

[This message has been edited by savysac (edited 09-15-2003).]

 
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