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Old 09-15-2003, 03:53 AM   #1
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Aly B HB User
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Hi all,

I have been absent from the board for the last couple of weeks, been up and down like a yoyo emotionally, so have just skim read through 3 pages of posts.

Glad I was absent for a couple of them.. I felt awful just reading a couple of posts that turned fairly nasty. Such a change from the usual very supportive posts that I am used to reading here.

Anyway, I have been tried and failed on several medications since being diagnosed and failed on blocks also, during which time my RSD spread quite rapidly from the toes on my left foot up to my hip and I occassionally experience burning in the toes of my right leg. I refuse, however, to acknowledge any pain in my right foot as being able to wear one shoe is better than not being able to wear any.

My pain doctor and reseacher have recently returned from the scientific conference on CRPS that was held in Europe in August and nothing new of any real significance has been highlighted worldwide in the way of treatments so it is business as usual.

The next course of treatment for me which has been recommended by my PMD and Neuro is a spinal cord stimulator trial, which has been scheduled for the 7th of October next month. So it is a case of wait and see, but any pain relief would be a welcome change from the 8/10 pain I have suffered around the clock since I first experienced it 6 weeks after my car accident last year.

Take care all... *hugz*



Aly

 
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Old 09-15-2003, 12:09 PM   #2
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Hi Aly. Welcome back. I too was away for a few weeks and was surprised by the tone of a few of a few posts. Please keep us posted as you get closer to the stimulator. I hope you will get some good relief.
Soxy

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Old 09-15-2003, 02:23 PM   #3
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Hi Aly, yep, I felt kind of like staying away too!!! But it all got resolved in the end.

Glad to see you're back. Keep in touch and let us know how you're doing.

I'm not familiar with your case but I'm a right footer and have been since Feb 03.

This sucks doesn't it??

 
Old 09-15-2003, 03:28 PM   #4
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cattys HB User
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Aly,

Welcome back, Yea things were pretty hectic here it was also a first for me to see things get so not nice.

I have a spinal cord stimulator so if you have any questions I will be more then glad to help.

How is your part of the world doing? I have a hurricane heading my way. It is just lovely.
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Friends are those rare people who ask how we are and then wait to hear the answer
Ed Cunningham

Take care
cattys

 
Old 09-15-2003, 06:57 PM   #5
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riceneuroni HB User
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Hi Aly, Welcome back! Missed ya!

Sorry things have been rough for ya. Hope things start going better after the 7th.

 
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