Lacei

Hi everyone,
Im new here, and of course, what brought me here is my newly diagnosed disorder/disease... RSD. My Neurologist seemed so certain when he said it. I cant tell you how double edged that sword was!

It was such a blessing that this fantom finally had a name!

For years now I've made doctors appointments, only to show up 2 weeks later, with no symptoms of anything. I could tell them "my shin was so swollen it was shining and would leave an indent where I pushed on it for 1/2 an hour!" and they would write it off as just a fluke kind of thing.

One time, I went to the emergency room, with my leg so swollen, it looked broken. Over and over again they asked me if I had injured it and I told them over and over again NO... They did ultra sounds looking for blood clots, they did blood work they did test out the ying yang, once again telling me to go home, ellivate it, and it would go away. Never diagnosing it.

A few months ago, I woke up and my left hand was so swollen it was white. I could not bend my fingers and even the air on my skin hurt like it had a hot iron on it. The swelling has gone down, but its still not gone, and this is the longest an "episode" as I've gotten used to calling them, has lasted.

So, now, to sum it up, on any given day, either one of my legs are arms, (or feet or hands) can swell up in the blink of an eye. I can feel the nerves throbbing and the skin burning. Sometimes its a sign its going to blow up, sometimes, its just pain. Now, to add to the list of pain, my muscles ache too.

My doctor immediatly prescribed Trombaline <? a sezure drug) and will increase the dosage for a month, then he will swith it to another one for a month, and then another and let me chose which one has the most tollerable side effects for me. Then he will add the antidepressant. All this coupled with Oxicontan <sp>.

All I can say, is that Im scared. I didn'tknow it would keep getting worse, and Im ****ed off that nobody ever cared enough to take me seriously, for the past 10 or so years. YUP, that long. Thank God for my Doctor, who is even telling me of treatments in other countrys that seem to work miricles if this doesn't help, or it keeps getting worse.

I read your posts and I wonder if you have what I have, and vice versa... If hes for 'real" as my kids would say. Ya know, sometimes you dont want to think in terms of "forever" when it comes to this miserable pain and inconvenience.

Oh well, more later.. dont like the feeling of my forearm on the desktop.. pathetic isn't it???