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Old 10-26-2003, 07:16 PM   #1
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Hi all,

I'm feeling a little better today. My friend came and got me and fixed up the couch for me. It felt good to get out a little bit. It's increasingly hard for me to walk even though I'm in less pain, (started amitriptyline\elavil). My leg is just getting bigger and hard and stiff! I do thank HP for at least some relief. I was just reading over some of the rules and posts, I hope I don't get kicked off, I think I get what I can and can't post. So here goes.. I heard of a treatment - low dose Ketamine or awake therapy? I was wondering if anyone has had this or even heard of it. Talk about nerve blocks and messing with my spine are scaring me, if I could find another treatment. Thanks.

Jo

 
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Old 10-26-2003, 08:26 PM   #2
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Hi Jo,

I haven't done the Ketamine treatment, but I have read about it. I don't know what I think about it yet. After having this for 17 years and trying all sorts of treatments, I have given up trying for now and I'm happy with my pump. It's hard after all these years because going through all those treatments was such an emotional roller coaster ride for me. Kept getting my hopes up that it would work and it didn't. So, for now, I'm happy with my little pump. I also think this treatment for RSD is kind of new and I'm a little wary about that too. I've been a guinea pig for enough time. I'll wait until there's a proven (or as proven as it can become) treatment for RSD.

Sharon

 
Old 10-26-2003, 08:41 PM   #3
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I'm with you Jo!

The low dose Ketamine treatment is in the stage right now where they are gathering funding to do the double blinded study.

Personally, I think these treatments are on the verge of being something that we all may get a shot at. Call me a wishful thinker, but the Doctor who was doing them has gatherd his data, and now that we are at this next baby step, im just thrilled!

There's another version to the ketamine treatment too, and it seems to be working "so far so good' in helping decrease the pain level in the patient it was tried in. Everyday shes reporting that her pain levels are still getting better!

I think we'll see lots and lots of different exeriments happining with the Ketamine.. and you know what... I say go for it!

I know too that it may just be a quick fix, and that one or two of the patients relapsed a little bit, (one says worse then before). Its all a shot in the dark. But before they were trying this, there was nothing to try at all, so, this is headway!

Im so excited about it, that i would be willing to be a guinea pig if I thought it would help... Not even me personally, just a "yup this worked", or a "nope, that didnt work" for the furtherment in finding a cure for RSD.

What do you think about it?

 
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