Does everyone know ? - Reflex Sympathetic Dystrophy Message Board

dizzydi · 10-26-2003, 02:24 PM

Hi it's Diane again (yes all the way from bonnie Scotland) Just asking if everyone knows that its RSD Awareness week from the 1st-7th November,in the UK.dont know about anywhere else,and RSD_UK has just become an official registerd charity,thanks to all the hard work of Cathrine & Barry who fought hard to get it recognised.Hope we get lots of publicity eh!
Diane

cattys · 10-26-2003, 06:29 PM

Thanks for sharing that with us. I have heard of November being RSD awarness month somewhere.

((((Hugs))))
cattys

AngeInBoston · 10-28-2003, 07:31 PM

Wow, that's amazing!

I can't believe there isn't more awareness of this horrible disease here in America.....what we really need (although I wouldn't wish it on anyone!) is for some big Celebrity to get it and become an aggressive Spokesperson for RSD!

Hat's off to Scotland to be a leader in RSD awareness!

~Ange~

sharon1030 · 10-28-2003, 07:34 PM

Hi Ange,

I know what you mean about having a celeb get it-preferable a politician's family member. Anyway, we have an RSD week of awareness in October-forgot which week though. If I find out, I'll let you know. I know it's been around for a few years too.

Sharon

cattys · 10-28-2003, 07:50 PM

I was just thinking that the other day. You never hear of anyone famous that has RSD. That would definetly get the wheels rolling for more awarness.

I was suprised when I heard that Jerry Lee Lewis had the stimulator for his condition.

To the world you might be one person, but to one person you might be the world

unknown