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Old 10-28-2003, 04:29 PM   #1
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Lindaa HB User
Question What should I not do?

Hi, I'm new here and want to know what I shouldn't do, like ice.

 
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Old 10-28-2003, 05:40 PM   #2
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Hi Lindaa...thank goodness you found out early that ice is a no, no. Physio and meds are the first treatment of choice. I think to start off conservatively and not rush into blocks. My son had one, and still believes that it was responsible for the spread to all four limbs. It's a very thorny question, and what works for one doesn't for another. Soaking in warm water with Epsom salts is said to help, because it removes the P substance from the cells, and Schwartzman who is one authority on the subject talks about this substance.Important to exercise the thumb, and keep it moving, so that it doesn't stiffen up.
Lastly, welcome to what is one of the friendliest Boards around. Everyone is always so willing to help, and share their experiences. I hope you may be lucky, and that you will plateau, or resolve early.

Warm regards,
Edna

 
Old 10-28-2003, 07:55 PM   #3
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Welcome Linda,

Don't sit around waiting for doctors to tell you what to do next. Don't give up on recovery. Don't stop looking yourself into what caused your nerves to go haywire. Analyze, research, and try every recommendation that you think might apply to your RSD. Chances are you're the only one who can figure out what's causing the problem - not the injury (if that's what triggered your thumb to flare - but what is keeping the nerves from calming down normally. You're doing the right thing researching, don't give up and give in to all the negative talk about "it's not treatable". Some cases are. Good luck.

 
Old 10-28-2003, 09:51 PM   #4
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AngeInBoston HB User
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Excellent Answer Riceneuroni!!!

Don't let the Medical Community push you around, don't be passive and just go along with what they say, you MUST toughen up and be aggressive and ask questions and tell THEM what you want and when you need it, from Meds to Treatments!

Don't forget to document everything in a notebook and keep a file of all kinds of info, like printouts of relevant threads from here, etc.

Never use ice, never go out in the freezing cold without tons of protection, keep your affected hand or foot elevated, especially when it's swolen and sore....

And if your significant other, or close friend, tells you that you look terrible, or that your meds are making you zombieish/gaunt/shaky/high anxiety/depressed.....DON'T be in Denial and tell them it's not true and that you're fine....because as a caretaker myself, I can tell you that I can see clearly what is happening with Joey when he is oblivious to it!

Hope I helped!

~Ange~

 
Old 10-29-2003, 06:29 AM   #5
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dayton HB User
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Hi,

read somewhere (can't remember where tho), no ice, no chocolate, no caffeine.

ultram and some of the other meds didn't do squat for me. it's hit or miss on the meds.

 
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