What do they do if, - Reflex Sympathetic Dystrophy Message Board

RSD_Angel · 10-30-2003, 09:45 AM

Ok a quick question for you all,

As you know i have been put through the ringer to try and get my RSD in remmission or at least lessen the pain adn everytihng so far has been temporary. From what my doc said 2 weeks ago after he did the temp sympathectomy that he is going to take one of the 2 leads that are up my spine nad put it down along my sciatic nerve to get my stim to try and cover my foot! I am scared about that surg and what it all entails bc of him running it along one of the largest nerves in the body...?? and how he is going to be able to get to the sciatic nerve?? cut through all the butt i have..lmao iknow i might have a lot there , but ..lol

So the question i have is that what else can they do if this doenst wrk? And i know that some of you have had it for over many many years, what do they do with you? He wont give me the pain pump unless its the dead last thing to do bc of my age. but if thats all that will help with the pain and i have to live with this rsd all my life now?? i am just geting frustrated with being cooped up and not being able to do what every 25 yo is out there doing!

So, what have they done to help you i guesss cope with the chronic pain that nothing will help and any other treatments that i havent had??

Thank you soo mcuh! love you guys!!

Bryn

Soxy · 10-30-2003, 11:11 AM

Bryn, I don't have any answers for you. I wish I did. I just wanted you to know that even though I haven't been around I have been praying for you and my other RSD friends every day. You have been through so much. My heart aches for you. I hope and pray that what ever the docs do will finally bring you some relief.
Dianne

cattys · 10-30-2003, 01:47 PM

Bryn,

I tell ya, I wish I could wave a magic wand over your Leg and foot and help you.

I wonder if they weed the wire down through like they do in your spine.

Maybe the pain pump is the only way you are going to get any relief if the new lead dosn't work. I would tell my dr. I might be young but right now I would rather have a quality life then worry about my age. no one should have to suffer as bad as you have been.

I know when my dr. mentioned the scs my neuro said you are just a baby yet and I wouldn't recomend it. I knew that I had to do it for my own quality of life.

I really hope they can find something that works for you. You are always in my prayers.

Friends are angels who lift us up to our feet when our wings have trouble remembering to fly.

((((Gentle Hugs))))
cattys

ejames4773 · 10-30-2003, 03:41 PM

Bryn ... my heart goes out to you. It must be awful for you. I have two suggestions. First let me tell you that here in the UK they are doing research into the lack of oxygen in the cells of those with RSD, and also free radicals. They are giving doses of VitC for the free radicals, and hyperbaric oxygen therapy for the oxygen. The HBOT as it is called is what is given to divers who have the bends, and we have a few centres here in the UK who offer treatment to MS and RSD sufferers. One young girl in her twenties here has a second hand machine in her garage, and uses it each day. Last year she came to the conference in a wheel chair. This year she was walking!! Now it doesn't work for everyone, of course, but if there was an HBOT centre near you it is worth exploring. Perhaps some of the others might like to think about it too. The Vit C is easy to buy over the counter, but if you decide to try it check with your doctor as to the dose.
Best of luck,
Edna xx

RSD_Angel · 10-30-2003, 03:49 PM

Thank you all for helping me!

Its just getting frustrating like I said and I dont know what i would do with out you all!!

MY doc also suggested that I start seeing a psych? I dont knw why, Im not depressed at all.. maybe hes send ing me there to help maybe cope with haveing RSD for life now and not getting back to wrk??

Gota get something for supper.. TTYL

Bryn