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Old 01-19-2008, 06:17 PM   #1
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melanie in mary HB User
Need tips, advice on restless leg syndrome!!!!!!!HELP

hi everyone. I have never posted on this board here but I hope someone can help me. I have been suffering with insomnia for about 5 years. I have never had a sleep study done but the doctor has tried me on different meds and the only thing that seems to consistently work every night for me to get to sleep is 1 mg of klonopin. The doctor thinks it is anxiety related so she put me on Celexa 20 mg and after a few months she put me on 40mg. I told her my mood was definately better but still have sleep issues (I don't snore,etc either). She thinks I have anxiety that I am unaware of! I do have 2 kids but I feel pretty stress free when I lay down at night. I do have a 4 year old who constantly keeps me busy..he is very active and we live in a two story house so I am constantly up and down the stairs. I do feel wired, kind of like I have been exercising and I feel tension in my legs and move them about a decent amount plus I usually get up with my 4 year old through the night to let him pee, etc. If this is restless leg syndrome, I go to my dr. in about a month, are there some things I can try to help this awful insomnia to see if it is rls? It is ruining my life not sleeping well. Please give me tips, advice, things to try before I go to the dr (since she thinks it is all anxiety), so that I can figure out if this is the root cause of my sleeping issues!!thanks

 
Old 02-10-2008, 12:21 PM   #2
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Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

You'll know if you have restless legs; you simply WILL NOT be able to not move them. Period. ...and it will occur almost exactly when you start to drift off to sleep. It is literally maddening.

I don't know what to suggest for your doctor's visit. I assume you've exhausted the sleep-hygiene checklist? You know:
* avoid caffeine and alcohol
* get up at the same time each morning
* room-darkening shades
* don't use bedroom for anything but sleep & "snuggling"
* don't have a visible clock (or watch) in the room
* get up after 20 minutes of unsuccessful sleep attempt and do something non-stimulating (like reading Arthur Conan Doyle) for 1/2 hour or so.
* ... etc.

The best thing you can do is probably exercise. I'm sure you've heard it before, but exercise has been shown to significantly improve 1) length of sleep, and 2) quality of sleep.

...exercise will also probably help your "anxiety", if by chance that is what it is.

Last edited by brighama; 02-10-2008 at 12:23 PM.

 
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Old 03-06-2008, 04:21 PM   #3
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csopko HB User
Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

You may have RLS. I tried magnesium pills with great results!

 
Old 03-10-2008, 02:57 PM   #4
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Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

I tried it all - magnesium for 4 months, exercise, stretching, soap at foot of bed, folic acid, vitamin E, leg cream, magnesium oil - nothing worked; started Ferrous Sulfate 325 mgs (65 mgs elemental iron); one per day on empty stomach w/Vitamin C-stayed on Mag to keep things moving; by day three I was symptom-free. No pain, no twitching, no restless pulling, totally symptom-free. It has been miraculous. My iron counts were normal, but the Iron still worked.

Last edited by trish444; 03-10-2008 at 02:58 PM.

 
Old 03-11-2008, 11:31 AM   #5
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Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

I have had restless legs on and off for many years, but in the last few months it's gotten worse. It begins about a half hour after going to bed. My legs don't feel painful or anything like that, no pins and needles or cramps, but it's sort of a gnawing feeling deep inside that just won't go away. I kick them, rub them, whatever and nothing ever helped. When it's been really bad I have to get up many times during the night and just walk around, since I can't sleep at all. I do know that prescription sleep aids help with the insomnia. Alcohol, chocolate and caffeine seems to make the restless legs worse, so I've quit the caffeine and I don't drink much anyway.

After doing some online research on the subject I started taking folate/folic acid, zinc and cal/mag tablets to get rid of the RL's. That was a couple of months ago.

I've learned since that I have an extremely low serum iron (4) and I believe that to be the cause of my restless legs. I go to bed way too early because I'm exhausted, but of course I don't sleep until around 5 in the morning.

I know I don't eat properly for weeks at a time, especially when I'm feeling anxious or upset and therefore my body isn't getting the proper nutrients it needs and the first thing to go of course are the vegetables, green leafy things and red meat. I'm a chicken and pork person.

So now I'm DEFINITELY going to eat right. I am taking an iron supplement, Vitamin B 12 complex, C, cal/mag, cod liver oil, zinc and the folate. I'm sure a good multivitamin would serve just as well. It's going to be a while (the Doc said a couple of months) before my iron levels go back to normal.
I'm greatly relieved to get to the root of the problem, but my home is still a mess (no kidding) as I haven't had the energy to keep the housework up.
My kids were accusing me of being lazy.

So to make a long story short, if you suffer from restless legs and a bunch of other things get your iron levels checked asap.

 
Old 03-12-2008, 10:14 PM   #6
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Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

Quote:
Originally Posted by violette1954 View Post
I have had restless legs on and off for many years, but in the last few months it's gotten worse. It begins about a half hour after going to bed. My legs don't feel painful or anything like that, no pins and needles or cramps, but it's sort of a gnawing feeling deep inside that just won't go away. I kick them, rub them, whatever and nothing ever helped. When it's been really bad I have to get up many times during the night and just walk around, since I can't sleep at all. I do know that prescription sleep aids help with the insomnia. Alcohol, chocolate and caffeine seems to make the restless legs worse, so I've quit the caffeine and I don't drink much anyway.

After doing some online research on the subject I started taking folate/folic acid, zinc and cal/mag tablets to get rid of the RL's. That was a couple of months ago.

I've learned since that I have an extremely low serum iron (4) and I believe that to be the cause of my restless legs. I go to bed way too early because I'm exhausted, but of course I don't sleep until around 5 in the morning.

I know I don't eat properly for weeks at a time, especially when I'm feeling anxious or upset and therefore my body isn't getting the proper nutrients it needs and the first thing to go of course are the vegetables, green leafy things and red meat. I'm a chicken and pork person.

So now I'm DEFINITELY going to eat right. I am taking an iron supplement, Vitamin B 12 complex, C, cal/mag, cod liver oil, zinc and the folate. I'm sure a good multivitamin would serve just as well. It's going to be a while (the Doc said a couple of months) before my iron levels go back to normal.
I'm greatly relieved to get to the root of the problem, but my home is still a mess (no kidding) as I haven't had the energy to keep the housework up.
My kids were accusing me of being lazy.

So to make a long story short, if you suffer from restless legs and a bunch of other things get your iron levels checked asap.
I am going nuts about this RLS. Night time is worst. I saw that someone said check iron. I will Thanks!!!!!
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Old 03-24-2008, 02:51 PM   #7
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Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

Try yoga - they have tricks for releasing muscle spasms in the hamstrings & groin that will help you.

I have actually had a chiropractor "adjust" my restless legs - somewhere in the upper back, believe it or not.

I've also had good luck with club soda with quinine added. This isn't recommended for long-term use, since quinine isn't super-safe.

I've also heard that magnesium works, but you obviously haven't had good luck with it. Have you tried liquid mag/cal supplements? I use something called "OsteoMega Care" from Life Force International, before I go to bed. I have no trouble sleeping. The liquid supplements are usually far superior to dry little pills that you don't even absorb much of.

Hope that helps a bit.

 
Old 03-26-2008, 06:33 PM   #8
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amrita HB User
Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

Melatonin works well for me. You can get it at a health food store. Maybe a drug store or grocery store??? It is also good for headache prevention. I don't wake up "hung over" like if I take a Tylenol PM or similar product. It's pretty cheap, too. : ) Good luck.

 
Old 03-26-2008, 08:08 PM   #9
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DebGrl HB User
Wink Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

Just thought I would let you know my mother suffers from RLS she found that
a half of glass of Quinine Water, relaxes them right away
She drinks a half of glass right before bed
Hope you can find some relief, I personally take Ambien so I don't know if my legs are moving or not! LOL

 
Old 03-27-2008, 05:00 PM   #10
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Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

Quote:
Originally Posted by Deebno View Post
I am going nuts about this RLS. Night time is worst. I saw that someone said check iron. I will Thanks!!!!!
THANK YOU FOR THE INFORMATION. MY IRON IS LOW ALSO AND I HAVE THE SAME NO ENERGY RLS SYMPTOMS. JUST GOT OUT OF THE HOSPITAL BECAUSE OF LOW SODIUM AND CHLORIDA LEVELS. ELECTROLYTES GOT MESSED UP SOMEHOW. IT IS HARD TO STAY HEALTHY SOMETIMES. THANK YOU.

 
Old 04-02-2008, 08:23 AM   #11
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nissan68 HB User
Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

I suffered with RLS for 20 years tried many different doctors my new doctor only wanted to treat 1 symptom out of the many things wrong with me he treated the rls so I could rest better (without good rest your body can't heal)and I was to the point where I didn't think I wanted to live another day with all the back,leg,neck,arm pain 1st he tried requip didn't work,then he tried mirapex the miracle drug I have ben taking it for 8 days now and I have more energy than my 4 year old son now that's a miracle I feal better each day....the pamplet list a lot of scary side effects with this drug so I call my doctor frequently to ask if what I am feeling is normal because I really don't know what it feels like to be healthy,energetic,social,motivated
I recomend asking your doctor about mirapex or requip for rls it saved my life

 
Old 04-03-2008, 12:19 AM   #12
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Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

I am taking serotin not sure what it does but it has lessened rls, and I am not so shakey. Does Requip make you shakey/nervous jitters?
I have now been diagnosed with bursitis in my hips and arthritis in the knees. Dr said to stay on Gluc condroiten, be nice to have a good soon. It's so wearing me down.
Thanks,
from Deebno
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Old 04-30-2008, 05:53 PM   #13
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Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

Melanie Mary's doctor obviously haven't kept with his/her medical journals...

Although I am not a medical person, I do have some experience with restless leg and periodic limb movements. Here's what I learned from my sleep specialist:

1. Sleep apnea, a condition when one stops breathing or breaths shallowly when sleeping, can cause one's oxygen levels to drop. When this happens, a number of things occur. Sometimes when the apnea is treated and oxygen levels are maintained at a normal level when sleeping, restless leg or periodic limb movements will disappear. Sleep apnea treatment for me was 100 percent effective in treating my apnea, but not effectuve in eliminating my movements.

2. Some people's restless leg/periodic limb movement symptoms disappear when they take an over the counter iron supplement, even if their laboratory iron levels are ok. I've read that in VERY small studies, they've found some people with this condition have iron deficiencies, not in the blood, but in the brain area. My specialist "prescribed" over the counter iron supplements for several weeks? months? I don't remember but the fact is they did not help me.

3. My sleep specialist then prescribed mirapex, which I took for a number of months...with no results. My specialist was honest enough to say thay he had no more suggestions....but I did find the answers on my own.

I noticed a difference in the severity and the duration of my movements when I switched blood pressure medication!!! My primary doctor denied their could be a correlation between my medication and the movements.."rolled eye syndrome" is what I call it. When I stopped taking blood pressure medication, I no longer had a problem. I have since read that an inbalance of electrolytes can cause these problems and golly, that "innocent" little water pill can cause an electrolyte imbalance. I don't understand why the other bp meds, would cause problems, but they can. Often they list "fatigue" as a side effect, but I doubt any of the "experiments" had sleep studies done to explain why they experieinced a side effect of fatigue. Perhaps it was due to restless leg.

In my humble opinion, both my primary and my sleep specialist should have first done lab work to determine if my lab work was normal. Both missed the boat...I have been movement free for a year now, but will never forget how disabilitating those months were.

There is no one cause for any one symptoms...good luck finding your "cures"!

Bethsheba

Last edited by bethsheba; 04-30-2008 at 05:59 PM.

 
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Old 04-30-2008, 09:51 PM   #14
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Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

Quote:
Originally Posted by bethsheba View Post
Melanie Mary's doctor obviously haven't kept with his/her medical journals...

Although I am not a medical person, I do have some experience with restless leg and periodic limb movements. Here's what I learned from my sleep specialist:

1. Sleep apnea, a condition when one stops breathing or breaths shallowly when sleeping, can cause one's oxygen levels to drop. When this happens, a number of things occur. Sometimes when the apnea is treated and oxygen levels are maintained at a normal level when sleeping, restless leg or periodic limb movements will disappear. Sleep apnea treatment for me was 100 percent effective in treating my apnea, but not effectuve in eliminating my movements.

2. Some people's restless leg/periodic limb movement symptoms disappear when they take an over the counter iron supplement, even if their laboratory iron levels are ok. I've read that in VERY small studies, they've found some people with this condition have iron deficiencies, not in the blood, but in the brain area. My specialist "prescribed" over the counter iron supplements for several weeks? months? I don't remember but the fact is they did not help me.

3. My sleep specialist then prescribed mirapex, which I took for a number of months...with no results. My specialist was honest enough to say thay he had no more suggestions....but I did find the answers on my own.

I noticed a difference in the severity and the duration of my movements when I switched blood pressure medication!!! My primary doctor denied their could be a correlation between my medication and the movements.."rolled eye syndrome" is what I call it. When I stopped taking blood pressure medication, I no longer had a problem. I have since read that an inbalance of electrolytes can cause these problems and golly, that "innocent" little water pill can cause an electrolyte imbalance. I don't understand why the other bp meds, would cause problems, but they can. Often they list "fatigue" as a side effect, but I doubt any of the "experiments" had sleep studies done to explain why they experieinced a side effect of fatigue. Perhaps it was due to restless leg.

In my humble opinion, both my primary and my sleep specialist should have first done lab work to determine if my lab work was normal. Both missed the boat...I have been movement free for a year now, but will never forget how disabilitating those months were.

There is no one cause for any one symptoms...good luck finding your "cures"!

Bethsheba
Thanks for the info that is helpful. Not to mention since I wrote that note, I have had a sleep study done. I am now using a Cpap machine to breathe each night. Tonight is my first night with it, wish me luck!
DeeBno
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Old 05-01-2008, 06:09 AM   #15
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Re: Need tips, advice on restless leg syndrome!!!!!!!HELP

Quote:
Originally Posted by Deebno View Post
Thanks for the info that is helpful. Not to mention since I wrote that note, I have had a sleep study done. I am now using a Cpap machine to breathe each night. Tonight is my first night with it, wish me luck!
DeeBno
Congrats on getting that sleep study done, deebno! And I certainly wish you luck with your new machine. I knew I was keeping mine the first night I slept with it, but it took me about 3 masks and 3 months of trial and error before I got it "right" so hang in there....one fine tunes constantly but it is well worth it!

Didn't take the time to address your post yesterday but will do so now....I used to experience hip pain, so severe that it would wake me at night and I wouldn't be able to get back to sleep again. Pain killers did nothing for the pain! Keep in mind, up until taking bp meds, I was riding my bicycle, gardening, camping, climbing up and down ladders, etc. Having the sleep study done showed I was having almost 500 periodic limb movements a night! I have to think that I was having hip pain because of these movements (my legs would jerk all night long!) When I stopped taking hydrochlorothiazide, a water pill, my movements stopped. I have since read that an imbalance in electrolytes (magnesium in particular) can contribute to this condition and of course, water pills can cause an imbalance in electrolytes (as can a poor diet, stomach flu, or dehydration).

If you haven't done so already, do get a copy of your sleep study. I refer to mine regularly as it is impossible to remember/understand every thing on it---especially if the doctor doesn't discuss everything with you.

Bethsheba

 
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