I have tried Amitriptyline for a long time now and have fibromyalgia which is what they origanally gave it to me for.... But my RSL is awful ...I have it all over my body back shoulders legs arms too ....the Amitriptyline helped some when it acted up as long as I could manage to stay still long enough to be able to let it help me fall asleep ...But I have recently discovered how bad Anitriptyline is for ur heart so I am trying to go off it and try MAgnesium as I have heard of others talking about...just took my first one a little while ago...but I have been sitting for a while doing a Psy test and now feel the RSL in my back ......I hate it !! anyone else have it all over not just the legs ?
Anyone else have bad sweating while on Amitriptyline ? I have it bad sometimes and In the store tonight i had sweat dripping off me so i stop at blood preasure machine to see my heart rate while I was sweating like that and my heart rate was like 124 I thought that was crazy !
Yes I have Fibro also all these things run in my family my mother as well as sisters suffered from it. RSL can be in other parts of the body i have found in my research as well ....It happens in my legs and like I mnetioned other areas. its the same feeling I have had in my legs the creepy crawling sensation as well as the uncontrolable urge to have to move. I think I have it worse possibly due to being beaten badly growing up. I so have sinus problems well I used to get sinutitous alot but this was due to having my wisdom teeth all cut out at once and they told me I woul dhave issuses with it later seeing as the roots went very close to the sinuses. It is maddening when the sensations occor and I can sometimes keep still by rubbing my finger nails over the areas lightly to counteract it until I fall asleep. It does not always help but I think people have differnant forms of RSL . I defaintly have Fibro as I have pain in my Muscles that is extreme sometimes . I also have Teize Syndrome which apeared after my sister died in 2006. I kept going to the ER thinking I had some bone disease it hurt so bad. I do have a Arythmium my heart beats extra beats sometimes . Like last night it was going 125 beats per min when I checked it in the store last night. I feel that is extreme and should not be that high for simple shopping .
Beth I forgot to mention the pain in my muscles began when I was 29 it is a deep aching pain that comes and goes. The RSL I have had issues in ,y late 20's as well. I have a very over Active nervous system if you ask me !! And Now believe I have Rosaca as well...My mom had it but passed away this July before mine acted up. I had to red areas right where the cheek bones begin that burned, stung and itched. Then they started going away and were more dry looking. I have found that alot of these things are related and also is associated with the sympathetic nervous system.
I am not doubting your symptoms or your pain whatsoever!! However, I am questioning the diagnosis.
Have your doctors screened you for Lyme Disease? You have lots of the symptoms (some people only have one)...fibro is often misdiagnosed when Lyme is the real culprit. If you were bitten by a tick, it might explain why you have an "over active nervous system".
Muscle pain, "rls" issues, rosaca or any other unidientified rashes, sinus problems, irregular heartbeats, sweating, are just a few of the symptoms that people with Lyme Disease experience. And although your mother and your sisters have suffered from "it", it is possible (and probably more likely) that they have/had Lyme also. Often people blame their symptoms on past conditions...without considering the fact that the previous condition may/may not be related. I had excruciating back pain and blamed it on a herniated disc that had 20 some years ago (doctor didn't know what was causing the pain but did rule out spinal tumor)...only to find out what I really was experiencing, was a side effect of my blood pressure medication. I found out accidentally when I stopped taking the offending med...and yes, back pain was listed as a side effect of that med (
Lyme is very difficult to diagnose...but it does (unlike fibro) respond to antibiotic treatment!
I know you don't know me from "Joe Blow" but I would hope that you'll look into this...unlike fibro, people with Lyme can have many of their symptoms go away with treatment. JoJo and others on the Lyme Board, who have been treated for Lyme are quite knowledable and very helpful.
PS You mentioned that people with "fibro" may have different kinds of "fibro"...I suspect it is more likely that they have Lyme because there are 4 or more different co infections with Lyme Disease and the different co infections can have different symptoms.
Hi , I also have joint pain.....I was trying to go off the Amitriptyline and havent had it in a few days, was trying the magnesium instead. But I was hurting last night and Am right now as well even with muscle relaxers and 3 ibuprohen . I am so stiff and just feel tight all over and joints and muscles are achey ....sometimes I have had my muscle feel like it has ripped by just reaching for bread on a fridge that wasnt high at all. I even heard it like ripping , it hurt for a long time and still have a issue with that area even after alonst 2 yrs later. this is why I have to take muscle relaxers if not my muscles are too tight and sometimes even that doesnt help. I have thought about lime disease and researched it. I have about a year ago started having a tingling numbing feeling in my back , it comes and goes its like around the area of the where the shoulder bone is in the back . Now it has started happening in another area the same tingiling and numbing at the same time. It comes and goes . I have the lumps that grow all over under the skin i find some every where some smaller then get bigger ...im not sure if maybe some are putting preasure on my nerves and causing some of this ? Not sure .
Well, I'm glad you're back...that means I haven't scared you too much, !
I am so very, very sorry you are in so much pain...just wish you could take a simple pill and have it go away but I guess life is not like that.
Joint pain and muscle pain are common with Lyme (as is with other diseases like the flu)...one symptom I see listed by lots of people with "questionable" diagnosis is popping and cracking joints...and pulsating, purring, vibrations, etc...the only ones who have these symptoms and who have symptoms that have responded to treatment (that I've read about) are people on the Lyme boards who are taking antibiotics.
I really, really think Lyme is a possibiltiy for you and for your family....and I really, really think that it is unlikely that you and your family members all have fibro...it's just statistically very unlikely!!
I don't know if anyone really knows how the Lyme bacteria and other coinfections cause the problems that they do in the body...but if you think about it, bacteria are living organisms and they have to eat...what do you think they are eating?? I don't know what they're eating but they circulate throughout the body in our blood, and set up housekeeping in our muscles, bones, nerves, and other tissue so I would think that whatever they are eating is close by, .
I would hope that you do lots and lots of reading about Lyme...afterall, Lyme can be treated and if there's no permanent damage, the symptoms will go away....but if Lyme isn't treated, the symptoms could get worse, and it is possible that death could result...so in my opinion, it would well be worth the investigation.
In the meantime magnesium may help your nervous system but there are some conditions...you'll need to get twice as much calcium as magnesium (2 to 1), and you'll need to find out what form of magnesium is better than the other 3...sorry, I can't help you here but you will find that info on this board by doing an advanced search. And finally, you'll need to check with your pharmacist and your medication instructions to see if any of the meds you are taking will interfer with the absorption of the calcium or magnesium.
Finally, a diet high in fresh fruits and veggies is your best bet...there is some government research that supports this.
Take care...and keep reading! Too many people stop reading when they find the information they want to believe, and stop short of finding the truth.
I have found that it is found out that Researchers have found that fibromyalgia is more common among the siblings, parents and children of those who have fibromyalgia than in the general population. I not sure if the Amitriptyline would really help me if it was that ...Im fine with this type of pain if I take it except the tingles/ numbness pops in and out ,as well as some bone sometimes which they told me was Teize Syndrome.
Thank you for telling me about the fibro/familial connection as it has been some time since I've done some reading about fibro. A family member was initially diagnosed with fibro years ago but after a few years the symptoms went away so I haven't paid attention to the current litature. My apologies.
That said, I did a BRIEF search of the literature...I look for scientific literature coming out of educational sites (recognized universities) and government sites. I just checked a couple of "search" pages and came up (primarily) with non academic/non government sources that suggested that fibro "may" have a familial or a gentic component....based on the brief unscientific search that I did, it sounds like the jury's still out.
But whatever the diagnosis, I'd keep an open mind...many people, myself included, have been diagnosed with things way off the mark!
Take care and may your days be pain free and filled with peace and happiness.
no problem ...yes it seems they are ocming up with more new things everyday ....
I have been pain free so far this morning ...thank God !! Yesterday was a little tough so maybe today will be better !
I am defaintly going to talk to my doctor about the other things when I go next time ...it sure cant hurt to check I know that !!! And if it turns out that it is lyme disease then maybe We can stop it from advancing or worse . So I appreciate all thoughts about these symptoms maybe one day the doctors will get it just right and cure us all !! <Not holding my breath to long though> lol
Hope you have a pain free day as well !
....I have been pain free so far this morning ...thank God !!
Yehhhh, :!!!! I hope that trend continues!!!
...I am defaintly going to talk to my doctor about the other things when I go next time ...it sure cant hurt to check I know that !!!
Yes, definitely check with your doctor but do read the Lyme Boards before you see him/her. Few doctors have the knowledge and experience to diagnose lyme. And even if they do, they can make mistakes (I have what I would consider to be a wonderful sleep specialist who missed the obvious when addressing my restless leg/periodic limb movement syndrome--I found my "cure" accidentally, and found out the "why" of my cure on these boards!).
..,.And if it turns out that it is lyme disease then maybe We can stop it from advancing or worse.
Unless the damage is permenant, symptoms can be reversed. That is why I think it is so important to at least consider treating for lyme...like fibro, there is no reliable tool for diagnosis.
...So I appreciate all thoughts about these symptoms maybe one day the doctors will get it just right and cure us all !! <Not holding my breath to long though> lol
Dream on, tannersmom, dream on! LOL "Practicing" medicine is too lucrative....doctors who don't get it right get repeat business, .
Dream on, tannersmom, dream on! LOL "Practicing" medicine is too lucrative....doctors who don't get it right get repeat business, .
Exactly !! They want that money !! I wouldnt be suprised if some illnesses were given to us on purpose to make more money ! Like Y do they continue to put floride in our water they know it is dangerous !! Among all the other things in it ....I know that my RSL has been somehwat better since taking the Magnesium ....not gone I can still feel it but it didnt advance like it does alot so bad that I kept waking up ...which is awsome since I normally would !
...I wouldnt be suprised if some illnesses were given to us on purpose to make more money!
I hate to say it but they are...med side effects cause many symptoms and instead of changing meds, docs prescribe more meds to treat the symptoms.
....I know that my RSL has been somehwat better since taking the Magnesium ....not gone I can still feel it but it didnt advance like it does alot so bad that I kept waking up ...which is awsome since I normally would !
From what I've read, it takes 1-2 years to replenish a body's supply of mg if the deficiency is severe...so don't give up! I'm assuming you've got your docs "blessing" to supplement...in healthy people the excess magnesium is excreted daily...but if there are health problems, some people could possibly build up toxic levels of this mineral.
For what it's worth...I used to wake up nightly with severe hip pain, which I didn't experience during the day time hours...hmmmm....that should have been my first clue! A sleep study revealed that I experienced almost 500 periodic limb movements a night...thus, the hip pain! I discontinued taking a water pill (which I later found out had the potential for depleting magnesium and other electrolytes), and I haven't had a problem since. That's how I accidentally found out about the magnesium connection...and without the help from my doctors.
It sounds like you have a few things going on. I would definitely see a cardiologist about the tachycardia. I have fibro, rls, sleep apnea and tachycardia with syncope. My cardiologist says that it is all related. I take Sectral for the heartrate and an amazing side effect is that I have not had a single episode of sinusists since I started taking it over a year ago. My heart rate was 120's resting started out of the blue. Then I started passing out. I had a complete workup and failed a tilt table test. It is a vagle response which is neurological. The Sectral changed my life. I take it at bedtime and it enhances sleep. Heart rate is 80 and I feel so much better! I had a sleep study as part of my workup and was diagnosed with sleep apnea and rls. My husband says that I sleep like a chicken on a spit - always turning. I never had a clue other than this nagging deep itch in my sacrum that only feels better when I pound it and rock my legs or stand up. I heve been in overdrive with the holidays coming and am sitting here wanting to rip my legs and back off. I just found this message board today in a desperate attempt to fix this. I will be trying Magnesium tomorrow! I have only recently been diagnosed with fibro when I went to a Rheum for arthritis. He knew immediately what was going on. Arthritis flares also trigger rls and fibro flares. He injected my elbow and knee and wants me to get past that before starting fibro treatment. I am also taking Ultracet, but I swear that it what is making the rls so bad. I had lost 31 pounds but with the arthritis couldn't exercise and gained 12 back. I now have about 30 to lose. I feel that there is a definite benefit to exercise and losing the weight. I had alot less difficulty when I was thinner. Any fibro advice and rls advice appreciated. Good luck with the tachycardia.