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Restless Leg Syndrome Message Board
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Old 05-19-2009, 09:06 AM   #1
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RLS and PAIN

I would like to hear from those of you who experience pain along with or because of your RLS.
Some say rls does not involve pain, some reports say it does. Lets get to the bottom of this.

 
Old 05-28-2009, 10:36 AM   #2
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Re: RLS and PAIN

Hi again!

Quote:
Originally Posted by elle45 View Post
I would like to hear from those of you who experience pain along with or because of your RLS.
Some say rls does not involve pain, some reports say it does. Lets get to the bottom of this.
Emotional pain, maybe.

Sincerely,
Dozyoff

 
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Old 06-04-2009, 12:17 PM   #3
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Re: RLS and PAIN

My legs hurt along with the electrial, tremory, type feeling when I sit or lie down. My calves actually hurt to touch.

 
Old 09-15-2009, 06:26 AM   #4
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Re: RLS and PAIN

i have severe rls, so severe that it is in my arms along with my legs and I have severe pain. I do not get the itchy bug crawling symptoms, i have deep deep pain in my legs and arms

 
Old 09-19-2009, 09:09 AM   #5
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Re: RLS and PAIN

Hi there....I know what you're going through. I have bone crushing pain in my legs-both of them from my low back/hips down to my feet.
I am currently in pain mgmt. b/c it is so bad.
They said I don't have RLS b/c the typical rls meds don't help me, so unfortunatly I have to take strong meds to help me.
I'm still being tested to find a solution.

Good luck to you!
schao

kkmpk: what is the pain like in your arms and legs....like bone crushing pain, is it your whole arms and legs? Worse anytime of day? What do you take for the pain? Just wondering.....thanks!

schao

 
Old 09-20-2009, 05:52 AM   #6
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Re: RLS and PAIN

the pain in my legs feels like bone crushing, the pain in my arms only begins after my legs. It is almost like my legs are like I can't take anymore and it goes to my arms. The pain I have is from knees to ankles and elbows to wrists. When I get the pain in my arms it always starts with cold elbows and then it always take 4 -5 times longer to go away than in my legs. Currently I take 8mg requip for one month then I take mirapex for one month. I also take a low does of Klonopin at bedtime.

 
Old 10-19-2009, 06:30 PM   #7
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Re: RLS and PAIN

Quote:
Originally Posted by elle45 View Post
I would like to hear from those of you who experience pain along with or because of your RLS.
Some say rls does not involve pain, some reports say it does. Lets get to the bottom of this.

lots of pain

 
Old 10-20-2009, 04:14 AM   #8
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Re: RLS and PAIN

the pain in both my arms and legs feels like bone pain, the pain is from my elbows/knees to my wrists/ankles at no particular time of day. I actually see an acupuncturist and he feels that in chinese medicine I have a blood deficiency, hence the pain so deep rooted. botn my neurologists were very interested in the blood deficiency aspect. both my neurologist and psychiatrist also belive I have dopamine deficiency resulting in me hitting the ceiling very quickly on my meds. my body just metabolizes every new increase in about 2 weeks. My neurologist informed me I have very severe rls that of someone who is about 85 years old (i am only 42) I take requip, mirapex, cymbalta, vicadin and they dont take away all my pain.

 
Old 10-22-2009, 04:24 PM   #9
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Re: RLS and PAIN

I don't trust doctors and I think that RLS should be in different categories with different types (e.g., like types of headaches -- migraine, tension, etc.). Some will complain that they're suffering from RLS and have pain, and some will tell you that there is no pain but a uneasy, creepy-crawly feeling without pain. I suffer with RLS and would rather have pain than to deal with the uneasiness that I suffer with. As a matter of fact...I would usually poke myself or slap my limbs to the point where it hurts to get my mind of the uneasiness of the creepy-crawly feeling. IMHO, prescribing the same medication for someone who is suffering with the pain type of RLS to a person suffering with the uneasy, painless, creepy-crawly RLS, probably would not work. Requip and Vicodin which has opiods would only work for those suffering from the painless, creepy-crawly type RLS. It's sad that SO many doctors misdiagnose their patients, especially those who suffer from RLS. I have been to SO many doctors and they're usually stumped when I describe the symptoms I have from RLS. Moreover...I'm the one who usually has to tell them that it's RLS.

 
Old 11-16-2009, 03:26 PM   #10
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Re: RLS and PAIN

The symptoms may not actually be RLS, but the leg pain I eventually suffered had me going insane without sleep. I started introvenus iron from a hemotologist and my symptoms which were severe, went away with the second treatment. My iron was so low, that I was getting introvenous iron twice a week. Those with RLS symptoms might want to get a complete blood test done.

 
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