Originally Posted by AnnD
There are many causes of RLS ...it also can include the arms and it can happen day and night...and it happens when you are trying to relax and fall asleep. It is not something that can be controlled and it is something that can drive you absolutely insane. I don't know what you have but it isn't just a little thing it is a very big deal and without the aid of medications you can't sleep or relax and all you want to do is walk and or constantly move your legs/arms... you can not control it and is extremely uncomfortable. Some causes also include long term use of some medications and the only way to rest and relax is to take a narcotic, Benzodiazepine or antiparkinsonism agents...however, not many are helped with the RLS agents they promote as helping. Good luck in finding out what is going on with you.
Ann - Your description of RLS has never been more accurate than any I have ever read. I have been miserable, periodically, with RLS for several years. It doesn't happen every night but when it does, I am awake all night and get absolutely NO sleep or rest. Like you say.........I walk, I get in bed, out of bed, eat....lie on the couch.....anything to take my mind away from the movements I "must" make. I have Systemic Lupus that affects my joints, especially my hip and not only do I try to walk, out of desperation, but the pain in my hip becomes unbearable. I have also had the sensations move up into both arms and I move my feet.....I throw my arms......it isn't a pleasant sight. Some people think leg cramps are restless legs but until you have had an out and out attack, nothing describes the feeling that you have to move your legs (and sometimes arms). I do have Clonopin (Klonopin) to take for these episodes but 2 tablets (1mg) doesn't phase it. In the early morning, after about 4-6 hours from taking my first dose of Clonopin, I took another 2 tablets and did seem to get some relief but by then the sun was up and all the neighbors were outside tending their yards and I hadn't closed my eyes all night long! RLS is the most miserable, out of control feeling, that I have ever experienced.
I don't want to overdose on Clonopin but RLS is almost undescribable to someone who has never experienced a full-blown attack. I am also on strong pain meds for Lupus and want to be very careful on the Clonopin usage. I really don't know how I am functioning at this moment after my night-marish night, but I had to go to Healthboards to see if anyone had other suggestions. I managed to sleep 2 hours after 6 a.m. I assume that with your RLS description, you must suffer from RLS or work closely with others who have it. Any further help on the subject? I do thank you.