I went to my Dr. today because my RLS symptoms have increase dramatically since starting Paxil 3 months ago. He prescribed Neurontin at 300mg bedtime. Has anyone had experience with this drug? Has it been helpful?
First I want to say every body is different and reacts different to a med, but this is my experience. I've had RLS for about 3 yrs and have been on numerous
drugs, that worked for a while then stopped. I was
put on neurontin 100mg about 6-8 months ago and it worked immediately, but wore off fast so my doctor
bumped me up to 300mgs which worked better. I started
developing some strange symtoms over the last 6 months
or so but neither my doctor nor I related them to the
neurontin, because I also have several other medical
issues. I also happen to be very med senitive and
recently decided to start investagating the side affects of neurontin and sure enough all the odd symtoms I've been having are listed as side effects for neurontin. I just discovered much of this info recently and came back to this board to look for alternative idea's for myself and saw your posting. My advise is check into it and possibly give it a short trial. Good Luck, Sue
JULY 12. MSNBC is running a piece on its site (a transcript of a Dateline show) which reveals, to the uninformed, a staggering medical- drug scandal at Parke-Davis, a division of Warner-Lambert, a subsidiary of Pfizer.
The company has pushed a little drug called Neurontin, approved for epileptic seizures, up the hill and into the wild-blue yonder of a variety of off-label uses---e.g., for so-called bipolar disorder.
Neurontin now outsells Viagra.
The company has used salesmen and ďmedical liaisonsĒ to lie to medical doctors in their offices about the wonderful results Neurontin has achieved for pain and bipolar and practically anything else under the sun.
As if itís some wonder drug. A magic pill.
Company documents and voice-mails reveal a can-do kick-*** attitude. As in, GO OUT THERE AND PUSH THIS DRUG TO DOCTORS FOR USE WITH ANY PROBLEM. GO FOR IT. DONíT HOLD BACK. DONíT EVEN THINK ABOUT SAFETY CONCERNS.
Doctors have been paid to allow salesmen to sit in their examining rooms for a full day, look at patientsí medical records, and watch the docs write out scripts for Neurontin.
Doctors have been paid to travel to holiday resorts and listen to hype about off-label uses of Neurontin.
Parke-Davis has used a paid cutout to write blue-sky articles about the wonderful results of Neurontin for many conditions. The cutout then paid doctors a grand a pop to sign their names to the already-written pieces, which were planted in medical journals.
Internal memos promoting the aggressive and illegal Neurontin sales campaign reached the desks of some bigshots at the company, where theyíve produced no remedial action.
A federal lawsuit against Pfizer seems close to gaining its day in court.
What MSNBC does not say is, these practices are SOP at many, if not all, big drug companies.
After the Dateline show, Iím sure a whole lot of shredding machines are going full-bore from Zanzibar to North Carolina.
And we havenít even touched on the LEGAL use of drugs which are toxic.
The FDA approves medical drugs for specific uses. This is on-label. Then, doctors begin to experiment on live patients, prescribing the drugs for uses which are not approved. This is called off-label, and itís legal. Thatís right.
But when a drug company lies, and pressures and induces doctors to engage in specific off-label practices, the law finally kicks in.
It will be interesting to see what penalty is imposed on Pfizer, if all these charges are shown to be true. 300-400 million in fines would be chicken feed, judging by the sales performance of Neurontin.
At one point, according to evidence NBC has obtained, the company considered applying to the FDA for approval of these off-label uses for Neurontin, but decided against it, because the process would take too long, given the time-limit on Neurontinís patent.
Instead, the company apparently just kept on lying and shucking and jiving doctors, who played along, took money, and closed their eyes.
If youíre a person who trusts all doctors all the time, you might want to read this article again. Then again, you might want to pretend you never read it.
And if you believe that all articles on drugs that appear in medical journals are thoroughly vetted, you might want to do a reality check there too.
Imagine the wild stories Neurontin patients have to tell.
And the FDA and arrogant down-their-nose docs and so-called quackbusters are raging about ďthe dangersĒ of nutritional supplements.
They should try to clean their own house, but if they do, there might not be any house left.
They might be pumping gas or dealing coke.
JON RAPPOPORT [url="http://www.nomorefaknews.com"]www.nomorefaknews.com[/url]
I like Neurontin, however I needed to play with the strengths to figure out what dose was good for me. I was on 300mg, and felt "delayed". Vision and movement were slow.Thinking, I just felt spacey. I now take 100-150mg and it calms me down fast.It helps me stop being fidgety/restless. I think clear and feel calm.
I also take Neurontin, 600mg. at at 9:00 every night. i have been taking this for over 4 years. Sometimes I even take another 100 if I start having more symtoms. It helps most of the time. I get spells sometimes that only last a few days. It works wonders!! I can't say enough about how great it is. I feel a little groggy sometimes but guess what? If I wasn't taking it, I would feel groggy all the time. No sleep and up til 4:00 in the morning walking the halls, is no fun!! The next morning I didn't feel very chipper. No drug is perfect and most have many side effects to deal with. Just be glad there is a drug to take. Neurontin also doesn't cause agumentation. Another plus. Julie
I have been diagnosed with RLS and was taking Mirapex. Because of fewer side affects, I am now taking Primidone. The first dosage was 100 mgs. It made me VERY sleepy and disoriented. I am hoping it gets better!
i was taking half the prescribed 300 mg doseof Neurontin, because Mirapex had begun to cause sleeplessness.(no fun). The neurontin stopped the rls and joint pain (arthritis) BUT I was so spaced out and drunk feeling even the next day for about half the day. I finally got off it, am back on MIrapex, and its working again. Personally, I didnt much like the Neurontin.. G.
I just received my perscription and haven't had a chance to start it but I am reading all the post on it and I have to ask. I am suppose to take 300mg 3x a day. That seems to be more than I have seen posted. I wonder how this dose is going to affect me? It seems like alot after reading all of these posts.
I started neurontin in July at 100mgs. My neuro told me to give it 2 wks to work. It didn't. He bumped me up to 300mg, then 600mg when that didn't work. Now I'm on 800mg once a day. I take it at bedtime and I do get a little sleepy (which is good). I also seem to have a little dizziness from it - but it's nothing major compared to the agony I was feeling.
I used to have symptoms everyday starting at around 9 - 10 am. They would usually last all day and all night. Needless to say I wasn't getting much sleep at all. I tried other meds - paxil, klonopin, mirapex - without much relief. Actually, the mirapex worked for a little while then I had to have the dose increased and I started to see weird things out of the corner of my eye. I couldn't deal with that.
I don't have any symptoms at all during the day now. I can't say that I'm really well rested but I am sleeping much better than I was.
In regards to your dose - 300 mg 3x/s a day - yeah it does seem like allot. I would discuss it with your DR - let him/her know that your a little leary.
Hi, I take Paxil--which makes RLS worse. So I alternate with some nights taking 3000 mg of Neurontin (I became immune to lower doses in no time) and on other nights taking Vicadin. I don't have any bad side effects with Neurontin, unlike most drugs I take. I agree that it shouldn't be prescribed for bi-polar disorder or some other condition that it doesn't treat, but it sure has been a Godsend for me! Good Luck!!