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Restless Leg Syndrome Message Board
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Old 09-18-2003, 01:39 PM   #1
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natalieb HB User
Post How to handle the pain?

I was recently diagnosed with RLS by my Neurologist. The sensation of having to stretch or move my legs has become so extreme that I do it unconciously when I sleep (which is a rarity anymore). According to my fiance, I am constantly flexing my legs (which probably explains why I feel like I've run a marathon in the morning). Anyways, my doctor prescribed Mirapex (anyone heard of it?) which so far is doing nothing. I'm barely sleeping and when I get up in the morning, the pain in legs and lower back is so bad that I can barely stand, let alone walk. I have a follow-up visit next week, any suggestions on alternative meds that have worked.

 
Old 09-18-2003, 02:13 PM   #2
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natalieb, I too have been prescribed mirapex. I started with 0.25mg. I took it every night before bed for one week. No relief. I called my neurologist and she upped the dose to 0.50mg and told me to try that for one week and then try 0.75 if needed. Last night was the first night in over 8 months that I laid down and did not feel that awful sensation in my legs or arms. So, just hang in there. I understand there is much success with this medication, but it may take some time to adjust the dosage. I have had RLS since I was a small child, and I am 50 now. It was only in the last few years that I understood what it was. It would come and go throughout my life. This last time it did now go away. Best of Luck to you....Gen
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Old 10-16-2003, 03:27 PM   #3
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Guys,
If you're having leg pain with low back pain, always consider the possibilty of having lumbar disk bulge/herniation. You dont' need to lift heavy stuff or experience a trauma for this. It'll happen by age, even if you're at your 30.
Rose

 
Old 04-25-2004, 10:16 AM   #4
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Re: How to handle the pain?

Opiates.
I have used EVERY RLS drug and none worked except Neurontin which made me so tired and stupid I couldn't live my life.
I take percocet now and I feel normal. Amen.

 
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