Do you use hot compresses for your blepharitis? What about eyelid scrubs?
You mentioned that your ophthalmologist gave you some cream for rosacea to put on your eyelids. Once a dermatologist tried to get me to out some Elidel cream on my eyelids because she thought it would help. I ran it by my ophthalmologist and he wanted to know what this dermatologist would do for me if the Elidel got in my eyes or irriated my eyes even more. He told me not to use it. I have to follow his instructions because he has never steered me wrong.
My doctors are very confused too. My blood tests always come back borderline for Sjogrens. But I still have dry eyes and some dry mouth and now the skin problems on my face. My immunologist is wonderful. He's written several books about Sjogren's. He said that even though my blood tests don't come back positive yet, that doesn't mean I don't have it. I tried to get a salivary gland biopsy but it turned out that the surgeon completely missed my salivary glands in my lip! He just took out skin!
So my immunologist says that when I'm ready, he'll send me to someone else to try again.
I also have very poor immunity to illnesses. No matter how many multi-vitamins and vitamin C I take, if someone on the next block sneezes, I catch their cold. I live with my parents right now and I told them that the next time one of them gets sick, I'm going to a hotel!
The thing is, we know I have MS. All of my tests for that are 100% positive. MS is an auto-immune disorder that affects the brain and central nervous system. All of my doctors say that auto-immune disorders go hand in hand with each other, and that if you have one it is very likely that you have another.
My immunologist has written several papers on the links between Sjogrens and other auto-immune disorders, especially MS. My neurologist also agrees. Even my dermatologist has experience with patients with auto-immune disorders (he specializes in treating patients with Scleroderma) and he said that it is highly likely that I have these skin problems because my immune system is so messed up. It's all linked. My ophthalmologist believes whole heartedly that my eyes are unable to fight off infection because my tear quality is so screwy and because my body as a whole has a very poor immune system. I've also got some Irritable Bowel Syndrome, which a lot of times goes along with auto-immune problems.