It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Sarcoidosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-02-2003, 08:31 PM   #1
Newbie
 
Join Date: Jul 2003
Location: Euclid,Ohio,USA
Posts: 2
LEO28 HB User
Unhappy Sarcoidosis/Lymphoma?

Im a 28yr old male. Since Oct. 2002 I have had momo
and phenemonia twice each. About two months ago I started to have severe pain in my left lung. A ct scan
showed a "pocket" in lower region. After a slu of blood test they found nothing.They did another ct scan
one week later(pain was getting worse and seemed to have been in different places now)sure enough they found that the one area was now small spots all over
both lungs! They preformed a broncoscopy with biopsy
and came up with nothing. My lung pain is still there
and now my ankles,wrists,forarms, and legs are hurting
constantly. They did another ct scan last week and said that the "spots" are beginning to cluster together and my lymphnodes in my chest are golf ball size They are doing a lung and lymphnode biopsy
on 8-6-03 to hopefully figure this out.So far they
are thinking its sarcoidosis or lymphoma. Do any of you have some insight? please help, good or bad!

 
Old 08-14-2003, 06:29 PM   #2
Junior Member
 
Join Date: Mar 2003
Posts: 29
Jemezmomma HB User
Post

I don't really have any great insight. I just wanted to wish you the best of luck. At 28 or any age it is pretty scarey to face the possiblity of anything being wrong. I would like to add that if it is a lymphoma it is very treatable and there are still lots of us out here to prove it. Let us know how things are going. Good luck and God Bless.

 
Sponsors Lightbulb
   
Old 08-20-2003, 02:27 PM   #3
Newbie
 
Join Date: Aug 2003
Location: Orlando, FL. USA
Posts: 4
youngatheart HB User
Post

Hi . . . I also have a posting on this site . . . and was disappointed that no one responded yet. However, I have another dr. appt. Tuesday to see what gives. Anyways, I started looking at other postings that weren't responded to, and noticed that I'd never heard of what you have. So I did a search on the net and found a bunch of websites . . . (even one that's looking for participants in a study). Here's the most informative site and it seems to include most of the symptoms you described:
[url="http://www.lungusa.org/diseases/lungsarcoido.html#about"]http://www.lungusa.org/diseases/lungsarcoido.html#about[/url]

Here's the one doing the study:

patientrecruitment.nhlbi.nih.gov

If you do a search on Yahoo, type "sarcoidosis" in your browser "search" window and you'll find other sites.

Good luck to you.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
sarcoidosis and leg paralysis kckdottboi Sarcoidosis 8 07-21-2011 07:29 AM
Sarcoidosis or Lymphoma? ChrisRenee75 Sarcoidosis 2 03-01-2008 04:13 PM
Stage 2 pulmonary sarcoidosis natedory Sarcoidosis 3 12-18-2007 11:40 AM
could i have sarcoidosis desparado13 Sarcoidosis 2 11-24-2007 11:58 AM
Sound like sarcoidosis? Nanner Sarcoidosis 3 10-10-2007 07:46 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added











All times are GMT -7. The time now is 10:52 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!