Sound like sarcoidosis?
First, let me say hello. I've been a member on a couple of other boards in the past, but it looks like this will be my home for a while.
In early September I began having tremendous pain on the outer edge of both feet. Since I had a routine checkup with my doc, she prescribed a predisone dose pack as I was heading out of the country on vacation. At the time I had occasional pain at the bottom of my left rib cage, but didn't mention it.
While on vacation, once my dose pack ended, my feet and ankles swelled and I could barely put on my shoes or walk. I have a history of arthritis, and thought that was the culprit. I also developed pain in the sternum area, my throat felt raw all the way to the lungs, and breathing was hard. We were in the mountains, which again made me discount any other thing as a problem.
We went to Colorado, again in the mountains, and I was still swollen. Since we had another flight coming, I ended up in ER in the booming metropolis of Salida on a Sunday. Another Medrol dose pack prescribed, and by flight on Thursday the swelling was down but the chest pain continued.
Flash forward...now I've had an abnormal chest xray and CT scan showing enlarged lymph nodes in both lungs. Pain below left ribs continues, though the chest pain seems somewhat less the past few days (could be because we bumped up the reflux meds, just in case that was the problem). I see the pulmonologist on Thursday and expect a biopsy.
So, are these symptoms fairly classic? My feet are doing well now, but what might I expect as far as recurrence? My throat/voice still are raspy, it still hurts some but is a lot better than 3 weeks ago.
My internet surfing led me to an educated guess on what's happening to me. If I am right, any suggestions for management, etc. welcome!
Nancy D-ACDF 6/2/02, bladder suspension 12/06, sarcoidosis 10/07, TKR 9/3/13