It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Sarcoidosis Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools Search this Thread
Old 08-01-2011, 04:37 PM   #1
Junior Member
(male)
 
Join Date: Aug 2011
Location: Virginia
Posts: 22
vtcrb HB User
New to the board. I have a question for you all.

I plan on keeping this short and to the point. Dont want to wrote a novel. Haha. I was diagnosed in 2000 with Sarcoid in my Lungs after months of tests, losing 35 lbs and being misdiagnosed with Cancer. I was then diagnosed in 2005 with Sarcoid in my Liver, plus Fatty Liver Disease. That is just brief summary, if anyone is interested in full story let me know.

My question relates to my recent pain in my lower to mid back on my right side. My Liver is enlarged and causes pain, but the pain in lower to mid back has occured within last 3 months. Just wondering if anyone else has experienced anything similar. Thanks in advance for any feedback.

 
Reply With Quote
Sponsors Lightbulb
   
Old 06-22-2014, 04:03 PM   #2
Member
(male)
 
Join Date: May 2014
Posts: 54
sh85 HB User
Re: New to the board. I have a question or you all.

i just found out i have non caseating epithelioid granulomas in my liver. going for a chest x-ray and blood work tommorrow

 
Reply With Quote
Old 06-25-2014, 01:50 PM   #3
Member
(male)
 
Join Date: May 2014
Posts: 54
sh85 HB User
Re: New to the board. I have a question or you all.

I also have the fatty liver but no enlargement. however, my spleen is mildly to moderately enlarged. chest xray came back negative and totally clear. how did you get diagnosed with it in your liver?

 
Reply With Quote
Old 09-25-2014, 08:19 PM   #4
Junior Member
(male)
 
Join Date: Aug 2011
Location: Virginia
Posts: 22
vtcrb HB User
Re: New to the board. I have a question or you all.

I was Diagnosed after Liver Biopsy. Now i am at Stage 2 scarring from the Fatty Liver disease, which is hard to understand, as I TRY to stay active. Also just went thru battle with Knots popping up on Arms and Legs caused by Sarcoidosis(confirmed thru Biopsy). Now I am battling CHRONIC joint pain, had some tests done and just waiting for results to see if it is Sarcoid as well. It is amazing the LACK of Awareness of a Disease that can cause such chaos in a person's life.

Wishing you a Speedy recovery.

 
Reply With Quote
Old 03-23-2015, 03:14 PM   #5
Newbie
(male)
 
Join Date: Mar 2015
Location: Illinois
Posts: 3
Benard C HB User
Re: New to the board. I have a question for you all.

I was diagnosed w/ sarcoid in my lungs in 2009 After going in for a C.T. for kidney stones.I had a midlobe wedge biopsy done on my right lung.I was put on methotrexate & prednisone.I had a lot of pressure in my mid to upper back on the right side which lasted for some time & caused me to have shortness of breath & labored breathing.Since then anytime I have a flare up I get the pressure & shortness of breath as before.I'm told to increase my prednisone until my flare up passes which could be weeks or months.
I tried Embrel, & Humera for some time, but it didn't seem to help.The only thing that helped was the methotrexate at the right dosage with the prednisone.
In 2014 I had my spleen removed after they found sarcoid while doing a C.T. for kidney stones.
I hope this helps.Good luck & take care.

Last edited by Benard C; 03-23-2015 at 03:22 PM.

 
Reply With Quote
Old 04-05-2015, 03:56 PM   #6
Newbie
(female)
 
Join Date: Apr 2015
Posts: 1
MaryPoppins3 HB User
Re: New to the board. I have a question for you all.

I have had pain similar to this, but it's hard to say if it's in the same location to which you are referring.

In my case, it was gallbladder/gallstone issues. I do have sarcoid; and a liver biopsy several years ago confirmed some liver involvement). However, I don't know that this was at all related to sarcoid.

The pain was on the lower right (towards the center right), basically opposite the stomach. However, in the worst times, it radiated up and down my back, mostly on the right. They were awful until the stones passed (like literally felt like I would die).

 
Reply With Quote
Reply Reply

Similar Threads
Thread Thread Starter Board Replies Last Post
New to this board and have a seizure question PennGuy Epilepsy 5 12-29-2012 05:47 PM
Post-op from Cheilectomy & Recovery Question Soretoe12 Foot & Ankle Problems 4 12-08-2012 06:39 AM
Numbness General Question raden Multiple Sclerosis 25 11-01-2012 02:08 PM
Question about Diarrhea and foods eaten sesameseed Bowel Disorders 0 10-15-2012 02:01 AM
General question on using the board olsoneagle Registration/Membership/Site Problems 4 09-25-2012 09:10 AM




Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:32 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2015 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!