Re: Scared & Tired
The best relief I've ever gotten from Sarcoid was to quit letting it become my life. I was where you are now, for nearly four years. The not knowing what's next, the sudden new symptoms, the weakness, the weariness, the stress!
Then one day I simply decided that sarcoid was not going to define me. I forced myself to learn new 'hobbies," that would keep my mind working, and keep the sarcoid worries away--for at least awhile. When I say I "forced" myself, I am serious. If you want relief, ya gotta work for it....but it is worth it! Make yourself put sarcoid on the back burner...remain positive, count the blessings you do have....use all your resources; not just doctors and message boards, but your friends, your family, and yourself. Build the you that you want to be....look up....start with doing this for an hour; you will be able to increase the time away from thinking about it as you plug activities into time slots previously bestowed upon yucky sarcoid....or other illness....say, "yep, I've got some illnesses in me, and I can't do some things I used to do..but look what I CAN do!"
...now go do it, and the best of health and luck to you...