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Sarcoidosis Message Board
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Old 08-20-2013, 06:23 AM   #1
Junior Member
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Join Date: Jul 2009
Location: Kingston On Canada
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hotel dieu HB User
Sarcoidosis

Hello again- haven't been on this site for long time- had 2 surgeries for cancer(uterine and kidney) and then 2 surgeries for incisional hernias(not a great success). Am very worried for my 48 yr. old daughter diagnosed with sarcoidosis- has a total body rash, masses in her joints and internal organs, breathing problems, etc. She has allergy to prednisone. DOES ANYONE KNOW OF ANOTHER MEDICATION TO TREAT THIS.
Thanks- any info will be helpful.

 
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Old 08-20-2013, 07:21 PM   #2
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Join Date: Apr 2013
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Budgiegirl HB UserBudgiegirl HB User
Re: Sarcoidosis

Other medications used with or instead of prednisone include:
Methotrexate or azathioprine
Hydroxychloroquine and chloroquine
Cyclo phosphatase
Pentoxifylline and thalidomide
Infliximab
Colchicine
Nsaids
Various topical corticosteroids

There is a great website but I'm not sure if we are allowed to post web sites.

My mother is using Cortef instead of prednisone as cortef is more like the cortisol she is missing. It is easier for the body to handle. Is she allergic to cortef too?

 
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Old 08-21-2013, 05:33 AM   #3
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hotel dieu HB User
Re: Sarcoidosis

Thanks so very much for the info- will let my daughter know so she can discuss it with her doctors. Please keep well .

 
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