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Old 03-26-2003, 07:42 PM   #1
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Cheeky HB User
Post Schizophrenia - what should I do?

Hi There,

My mom has suffered from Schizophrenia for years now.
I am now 23 but when I was 9, she had a pshycotic episode. The situation got out of hand. We were renting an apartment at the time but due to her actions and paranoia she lost her pension she was getting that meant losing the flat and getting locked out. We ended up on the streets that we walked endlessly. There were times she didn't let me fall asleep believing that I was never going to wake up again.

When the police realised that we were in a particular spot for a few days they took me away from my mom and placed me in a foster home. In the mean time, she was in a hospital then given a Housing Commission place.

Now further down the track she has recently suffered another pshycotic episode. But this time with the help of the police and Health care workers I put her in a hospital for a while to get the proper care she needed.

Now she is doing fine but she has got noone besides me. I visit her every week and ring her to see if she's ok.

Her daily routine of cleaning and cooking has deteriorated and so I was thinking of placing her in a nursing home. Cause mind yo I lived with her again from when I was 17 to 20 and I was just stressed out and edgy.

I cannot see her like this and want to make sure that she is in the right place with the right care. She is now 65 yrs old.

Can anyone suggest anything I could do? Where I could put her?

 
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Old 03-31-2003, 09:21 PM   #2
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hello cheeky.this is Mr.X.

i need to know some things first. what medication(s)is/are she taking? neuroleptics? if you live in the US, theres a new mediaction called Abilify, that i've heard have changed peoples lives dramatically. no symptoms, no side effects.

another thing i can tell you is she can have a nurse come to her house daily. i had this done to me when i was 9 years old, in school to help me take my medication for asthma. i'm not sure how much money it would be or if its covered by benefits or government. but look into it and maybe you can find out something. i know my grandmother used to have a nurse come to her house daily and prepare her breakfast, help her shower and get dressed, clean the house , and even prepare her meals for the day and make it simple for her to do it herself when she was ready to eat later on in the day.i hope you and your mother the best, and best of luck to her.

respectfully,
Mr.X.

 
Old 04-03-2003, 06:45 PM   #3
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Thanks for your reply Mr. X much appreciated....

firstly we live in Sydney, Australia...

Secondly I would agree to getting her a nurse at home... but due to her lack of English as well on the other hand and not getting around much she gets pretty lonely....

That's why I was kinda thinking of a nursing home...

bad idea?

Cheeky

 
Old 04-07-2003, 04:58 PM   #4
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Hi there,
My story is a bit like yours. I have a mom who was not able to raise me and my siblings. So we were raised in orphanages, foster homes, and group homes. Unfortunately, my brother inherited the disease, but much worse - he eventually died because of his paranoia.
She has been in and out of our lives in visiting us while we were institutionalized. When she got out her last mental hospital, she decided to return to Detroit (we are from Chicago) because she had many brothers and sisters there. Eventually, her physical and mental health deteriated (sp?)(mostly because she was abusing the many pills prescribed to her) and I placed her in minimum care facility. She was accepted because she was not violent and could physically move around. But then, several years later, her health further deteriated and she went into a full care nursing home. Her medications are closely monitored, and I think this was the best move for her. She, like us, got used to institutionalization. Further, although we don't visit her often (mostly out of choice as she is not a nice person - and this is NOT due to her condition), we can console ourselves that she is being well taken care of.
Regarding your situation, it seems that you have alot deeper connections to your mom than we do. Speaking another language other than the language spoken in your country will not be good for her, unless of course being bilingual is quite common, and others speak her language as well. Is she nice to others where she won't start fights with them? This is a great advantage. Further, nursing homes tend to be much more careful if family constantly visit them. My mom does have some frequent visitors.
I hope this helps you. God bless. I dealt with my younger brother (the one who was also ill) and it was very difficult - particularly because I felt like I was my brother's keeper. Please don't feel obliged - remember it is not your fault and it is also not her fault - so make the decision accordingly. Good luck

 
Old 04-07-2003, 07:45 PM   #5
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Hi Esperenza,

I greatly appreciate your advise.....

A lot of times it feels like I'm alone in this world cause the rest of the family just won't help when it comes to my mom....

After I got put into the orphanage/foster home I hated my mom.... but as I grew up I got over it and understood more what happened and why....

and now its my turn to return the favour.... just want to make sure she is at the right place with the right people and medication.

Cheers,

Cheeky :0

 
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