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Board: Alzheimer's Disease & Dementia 07-10-2012, 03:37 PM
Replies: 22
Views: 1,317
Posted By Beginning
Re: Legal Recourse for Unfair CG Load

You need to consult an attorney in your home state, but my guess is that you're probably going to be told that you don't stand any chance at all of breaking your Mom's will just because of your...
Board: Alzheimer's Disease & Dementia 06-26-2012, 05:33 PM
Replies: 17
Views: 3,149
Posted By Beginning
Re: Looking For Other 20/30 Something Children of Early Onset Alzheimer's Parents

You're definitely not alone. My 20 year old just went to visit her Dad in the NH a few minutes ago! With older brothers in their early and mid 20s, all of our kids were raised with their Dad's...
Board: Alzheimer's Disease & Dementia 06-04-2012, 05:01 PM
Replies: 28
Views: 2,344
Posted By Beginning
Re: Discouraged, disheartened, dispirited...

Deb and Nina:

I agree completely. One of the nicest things about this site is that no one judges or says that there's only one way of being a caregiver. We are each trying to do our best in our...
Board: Alzheimer's Disease & Dementia 05-31-2012, 09:48 AM
Replies: 6
Views: 976
Posted By Beginning
Re: Please help me understand

Nina: Your answer is a very good one. I leaped to the conclusion that his other medical conditions (heart/stroke) might be terminal since he had been placed in a facility even though his dementia...
Board: Alzheimer's Disease & Dementia 05-23-2012, 05:16 AM
Replies: 20
Views: 1,765
Posted By Beginning
Re: "Problem Child"/FTD

Just another story that might help. Yes, as already noted, facilities are able to decline patients. Patients who may need restraints at times and behavior problems are the hardest to place. NHs...
Board: Alzheimer's Disease & Dementia 05-09-2012, 03:45 PM
Replies: 70
Views: 3,957
Posted By Beginning
Re: Feeding tube???

Nina:

I thought of you last night. We went to a presentation offered by our local Alzhimers Association on end-of-life issues relating to Alzheimers' care. It ended up being a presentation by...
Board: Alzheimer's Disease & Dementia 05-05-2012, 02:41 PM
Replies: 30
Views: 1,941
Posted By Beginning
Re: Questions for carers of early onset. How do you manage?

Thank you so much. Except for my screw-ups about dates. I seriously feel like we've been living with this forever, and clearly lose track of the years. My apologies for that - still, I do try to...
Board: Alzheimer's Disease & Dementia 03-30-2012, 04:27 PM
Replies: 10
Views: 1,583
Posted By Beginning
Re: Hospital nightmare.

I remember when DH was sent to the hospital by the NH for his behavioral issues. When I arrived at the emergency room, I discovered a young nurse shouting at DH to get his personal information as if...
Board: Alzheimer's Disease & Dementia 02-06-2012, 01:44 AM
Replies: 21
Views: 2,310
Posted By Beginning
Re: I'm new and exhausted...

My heart breaks for you. Yes, we had the same conversations! After the diagnosis, we even renewed our vows to confirm better or worse. We included the kids in a family ceremony.

DH tried so...
Board: Alzheimer's Disease & Dementia 02-05-2012, 01:44 PM
Replies: 21
Views: 2,310
Posted By Beginning
Re: I'm new and exhausted...

I've been in your shoes, and remember how overwhelming it was. I even remember the stage where DH would follow me (or our daughter) around the house. Privacy was a thing of the pst.

I lived...
Board: Alzheimer's Disease & Dementia 01-30-2012, 03:35 PM
Replies: 17
Views: 3,149
Posted By Beginning
Re: Looking For Other 20/30 Something Children of Early Onset Alzheimer's Parents

I'd say that the best things you can do right now are

(1) start to learn about Medicaid, or whatever other resources may be available if you're not in the U.S. As much as your Mom and the rest...
Board: Alzheimer's Disease & Dementia 01-30-2012, 03:15 AM
Replies: 17
Views: 3,149
Posted By Beginning
Re: Looking For Other 20/30 Something Children of Early Onset Alzheimer's Parents

Hi Bardess. We have 3 kids who ranged from 10 to 16 when their Dad was diagnosed, and I understand completely. It's horrible. Yes, their Dad also looked "normal" and it became increasingly...
Board: Alzheimer's Disease & Dementia 01-04-2012, 01:53 AM
Replies: 10
Views: 2,914
Posted By Beginning
Re: Progression of Disease

It is so frustrating not to be able to look ahead and know what will happen (and when). Sometimes you think you're prepared for the next step, but you really aren't.

I've been upset over the...
Board: Alzheimer's Disease & Dementia 12-28-2011, 11:18 AM
Replies: 10
Views: 2,914
Posted By Beginning
Re: Progression of Disease

I agree with Gabriel that it's a very individualized process. It can be either slow or fast. DH was diagnosed at a very early stage, when he was just having trouble finding some words. He covered...
Board: Alzheimer's Disease & Dementia 12-18-2011, 04:02 AM
Replies: 48
Views: 3,798
Posted By Beginning
Re: no place for my mom

I hope the situation is improving, and that you're able to have some Christmas peace. I just wanted to add that there are some patients whose reaction to Alzheimers becomes constant screaming or...
Board: Alzheimer's Disease & Dementia 12-09-2011, 05:13 PM
Replies: 10
Views: 1,028
Posted By Beginning
Re: Can someone confirm what I am thinking?

We also saw some of the same behaviors with DH. In our case, he didn't have any family history of the disease at all. Getting a diagnosis was a relief to him, since he found out that there was a...
Board: Alzheimer's Disease & Dementia 11-25-2011, 04:49 AM
Replies: 6
Views: 884
Posted By Beginning
Re: oh a disapointing day

I think that this stage was the absolutely hardest emotionally on our family. Getting the nursing home placement, worrying about losing it for various reasons (behavioral issues, health isssues),...
Board: Alzheimer's Disease & Dementia 11-22-2011, 03:34 PM
Replies: 20
Views: 2,045
Posted By Beginning
Re: I feel like I am in for the fight of my life

Jags: You're very fortunate that you have a good choice of nursing homes. I live in the suburb of a mid-sized city, and found few choices for Alzheimers' care. Some of the nursing homes here are...
Board: Alzheimer's Disease & Dementia 11-20-2011, 08:35 AM
Replies: 20
Views: 2,045
Posted By Beginning
Re: I feel like I am in for the fight of my life

Keep in mind that they may also tell you to find another placement for your Mom if they believe the family is too hard to deal with. You should have a Plan B if the relationship starts to break...
Board: Alzheimer's Disease & Dementia 11-08-2011, 07:10 PM
Replies: 16
Views: 1,857
Posted By Beginning
Re: Wheelchair

Even though we know that each Alzheimers patient is different, we see many of the same behaviors and progressions too.

The step from being mobile to being bedridden seems to be one of the more...
Board: Alzheimer's Disease & Dementia 09-17-2011, 05:39 PM
Replies: 5
Views: 1,473
Posted By Beginning
Re: worried

In my opinion, you need to see an elder lawyer. Bring a list of your bank accounts and assets. Some elder lawyers have a checklist that they will give you before the consultation, so you can fill...
Board: Alzheimer's Disease & Dementia 08-13-2011, 03:42 PM
Replies: 9
Views: 1,853
Posted By Beginning
Re: Looking for addvice/info on pottying issues

We went through exactly the same things with DH, and I see others in the NH doing the same thing. There's a lady right now on DH's ward who is going through this.

In DH's case, he became...
Board: Alzheimer's Disease & Dementia 07-31-2011, 04:36 PM
Replies: 16
Views: 2,602
Posted By Beginning
Re: help

The kids will follow your lead, and you'll be surprised how they adjust. My 10 year old grew up watching cartoons with her Dad, helping to keep track of him in grocery stores etc. By the time she...
Board: Alzheimer's Disease & Dementia 07-27-2011, 05:56 PM
Replies: 16
Views: 2,602
Posted By Beginning
Re: help

I went through this too (about 9 years ago) when DH was in his mid 50s and I was in my mid 40s. At the time our kids ranged in age from 10 to 16. I recall that our first stages were panic and...
Board: Alzheimer's Disease & Dementia 07-25-2011, 03:42 PM
Replies: 11
Views: 2,108
Posted By Beginning
Re: Alzheimers spouse

KenBob's advice is so useful, I found myself rereading it a few times. And of course, I've been exactly where Soonerfan is now. Interestingly, it was also speech that was affected with DH too. ...
Board: Alzheimer's Disease & Dementia 07-14-2011, 02:54 AM
Replies: 37
Views: 13,858
Posted By Beginning
Re: My father has early onset alzheimer's

In our case, there was absolutely no family history even though my husband came from large families on both sides. My husband was diagnosed in the mid-50s. We asked many of the same questions from...
Board: Alzheimer's Disease & Dementia 07-06-2011, 02:49 AM
Replies: 37
Views: 13,858
Posted By Beginning
Re: My father has early onset alzheimer's

My spouse was in his mid-50s when diagnosed. His parents had both been from extremely large families, and there was no family history. Our immediate reaction was also that it was a death sentence,...
Board: Alzheimer's Disease & Dementia 06-28-2011, 03:55 AM
Replies: 17
Views: 4,146
Posted By Beginning
Re: Ready for Nursing home level of care ?

In order to get into a nursing home, you will need an assessment that your Mom needs nursing care. In our state, there's a specific nursing home assessment form that is prepared by a physician. A...
Board: Alzheimer's Disease & Dementia 06-07-2011, 04:37 AM
Replies: 44
Views: 7,513
Posted By Beginning
Re: Help me help him!

I agree with Meg. The longer you live with them in these conditions, the more you are exposing yourself to charges of elder abuse and animal abuse. You are going to be held responsible as a...
Board: Alzheimer's Disease & Dementia 05-07-2011, 02:56 AM
Replies: 11
Views: 1,996
Posted By Beginning
Re: The ER

Thank you, Deb. And another kid is in law school...together, they're going to be quite a team of patient advocates!
Board: Alzheimer's Disease & Dementia 05-04-2011, 04:43 AM
Replies: 4
Views: 1,430
Posted By Beginning
Re: when to start the wheelchair?

I started talking to the aides about the same question for DH, and it doesn't appear that there are any clear guidelines. DH is also having trouble sitting and getting out of chairs (he's now in...
Board: Alzheimer's Disease & Dementia 03-12-2011, 03:23 AM
Replies: 16
Views: 3,364
Posted By Beginning
Re: decline

Can't speak to the assisted living complex, but I believe it probably helps. Certainly the familiarity of having routines and familiar people around is a good thing for her.

We had almost the...
Board: Alzheimer's Disease & Dementia 02-27-2011, 03:39 AM
Replies: 4
Views: 952
Posted By Beginning
Re: Incontinence issues

I did the same thing as DGabriel - bought the pull-up kind, and gave them to DH instead of regular underwear. DH doesn't like them, and will poke at them to indicate displeasure (especially when he...
Board: Alzheimer's Disease & Dementia 02-23-2011, 03:48 AM
Replies: 18
Views: 2,892
Posted By Beginning
Re: My Les has passed away

My prayers for you and for Les.
Board: Alzheimer's Disease & Dementia 11-22-2010, 06:33 PM
Replies: 9
Views: 1,841
Posted By Beginning
Re: Christmas

Your Christmas plans sound lovely. Depending on the stage of Alzheimers and the patient's overall health, some possible gifts for a patient are one of the very soft/cuddly bed-throws, food gifts...
Board: Alzheimer's Disease & Dementia 11-10-2010, 04:55 AM
Replies: 5
Views: 1,254
Posted By Beginning
Re: New patient finds peace

You have many, many times of happiness with your family in the coming years to look forward to! We never know when we will slip away forever, and each of us needs to enjoy the blessings in each day....
Board: Alzheimer's Disease & Dementia 01-08-2009, 02:53 PM
Replies: 31
Views: 5,590
Posted By Beginning
Re: 22 year old caretaker...needs advice!!

I agree with everyone else. The family may believe that everything is fine since you're there, instead of dealing with the situation. (I have a 22-yr old who helps to take care of his Dad who has...
Board: Alzheimer's Disease & Dementia 08-10-2007, 02:18 PM
Replies: 4
Views: 1,924
Posted By Beginning
Re: is physical pain associated alzheimer

DGabriel10 is absolutely right! In fact, we've just been through the exact same thing! I've been taking DH to the dentist for cleanings to make sure that his teeth were ok as long as possible, and...
Board: Alzheimer's Disease & Dementia 08-03-2007, 07:27 AM
Replies: 28
Views: 19,515
Posted By Beginning
Re: coming off aricept...

We've discussed going back on the meds. This may be difficult for some to understand, but my DH has actually wanted the disease to progress as fast as possible to its inevitable conclusion.

He...
Board: Alzheimer's Disease & Dementia 08-03-2007, 05:28 AM
Replies: 28
Views: 19,515
Posted By Beginning
Re: coming off aricept...

This was really interesting info for me, especially since I just saw a great but heartbreaking ad for Aricept on TV this morning that said exactly the same thing -- that the drug helps through all of...
Board: Alzheimer's Disease & Dementia 12-11-2006, 03:02 PM
Replies: 14
Views: 3,207
Posted By Beginning
Re: Are there any other young people caring for alzhimers?

Martha --

Boy, did your posting hit home. As you know, my husband was diagnosed 4 years ago. I now feel some of that frustration and resentment you describe. We're at the point where DH can't...
Board: Alzheimer's Disease & Dementia 01-20-2006, 03:29 AM
Replies: 36
Views: 6,095
Posted By Beginning
Re: Early Onset

My husband was 59 when diagnosed and is now almost 62. He comes from a very large family, with more than a dozen aunts and uncles and seven cousins around his age (although no one lives near us). ...
Board: Alzheimer's Disease & Dementia 01-07-2006, 04:36 PM
Replies: 18
Views: 7,527
Posted By Beginning
Re: Your experience.. time frame from early symptoms to later stages

I'm really interested in this question too -- I hope you get lots of answers! I pushed and pushed the doctors for a prognosis when my husband was diagnosed, since I wanted to know how much time we...
Board: Alzheimer's Disease & Dementia 07-20-2005, 03:54 PM
Replies: 15
Views: 1,710
Posted By Beginning
Re: What's a Good Pet?

Oooooh, pet stories! We have two bengal cats, and last year we got hubby a mini-dog to keep him company. Hubby wasn't interested in pets, but I thought that having a cat or dog would help our kids...
Board: Alzheimer's Disease & Dementia 06-19-2005, 11:22 AM
Replies: 13
Views: 10,351
Posted By Beginning
Re: Aricept for Dementia?

I agree that the questioning is probably because she doesn't really know what to do anymore. My hubby has started doing the same thing. My heart breaks, since I can tell that he gets very worried. ...
Board: Alzheimer's Disease & Dementia 07-17-2004, 03:57 AM
Replies: 6
Views: 1,605
Posted By Beginning
Re: Bathing? Help!

It sounds like you're a very concerned caregiver! I hope that when we get to the point of needing help with my husband, we're also able to find someone who cares about being able to do his/her job...
Board: Alzheimer's Disease & Dementia 06-27-2004, 03:13 PM
Replies: 1
Views: 1,197
Posted By Beginning
Re: New member/hello everyone

My husband was diagnosed a few months ago with early onset, and I'm learning my way around the resources for this awful disease.

I recently forced my husband to go to a support group in our...
Showing results 1 to 47 of 47

 











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