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Board: Multiple Sclerosis 05-20-2013, 10:21 PM
Replies: 19
Views: 266
Posted By MSJayhawk
Re: update: sharing some results - antibodies

Shahila,

Actually I have had all over tingles when I got out of the shower. Once it was due to sensitivity to a shampoo change (the following week no problem), once it was due to my towel (the...
Board: Multiple Sclerosis 05-20-2013, 08:43 PM
Replies: 7
Views: 122
Posted By MSJayhawk
Re: I think I fractured my wrist

Vicki,

Great news update, thanks for sharing. That is one less worry for you to be carrying!! :angel:
Board: Multiple Sclerosis 05-20-2013, 06:19 PM
Replies: 19
Views: 266
Posted By MSJayhawk
Re: update: sharing some results - antibodies

Shahila,

The tingling and itching after a hot shower should not be the reason to dismiss MS as a possibility. Some MSers experience similar symptoms following a hot shower. Today I felt the same,...
Board: Multiple Sclerosis 05-20-2013, 04:58 PM
Replies: 1
Views: 50
Posted By MSJayhawk
Re: Double Vision Question

Luke,

For me, I often notice the initial signs of impending vision concerns whenever I am driving. What I have found is that it helps me to focus ahead of my vehicle. I have found that it is my...
Board: Multiple Sclerosis 05-20-2013, 04:17 PM
Replies: 13
Views: 275
Posted By MSJayhawk
Re: Initial consultation with MS specialist

Eric,

Thanks for your kind update! It looks like you are in good hands!! :) :angel:
Board: Multiple Sclerosis 05-20-2013, 11:46 AM
Replies: 13
Views: 275
Posted By MSJayhawk
Re: Initial consultation with MS specialist

Eric,

I have never heard of a disclaimer mentioned, but it could be the doctor covering themselves from any potential liability. I think this is the case in SoCal where the MS Specialists are...
Board: Multiple Sclerosis 05-20-2013, 09:00 AM
Replies: 19
Views: 266
Posted By MSJayhawk
Re: update: sharing some results - antibodies

Shahila,

"Neutropenia" is a condition in which the number of neutrophils in the bloodstream is decreased. Neutrophils are a type of white blood cell also known as polymorphonuclear leukocytes or...
Board: Multiple Sclerosis 05-19-2013, 11:09 PM
Replies: 19
Views: 266
Posted By MSJayhawk
Re: update: sharing some results - antibodies

Shahila,

No worries. You are in my prayers. Sorry you could not find better results on the thyroid board. I certainly hope you can still make your trip. I have to wonder to if you will...
Board: Multiple Sclerosis 05-19-2013, 10:03 PM
Replies: 4
Views: 107
Posted By MSJayhawk
Re: MRI-Did they do the right kind?

Tiffany,

No worries. Many other MSers and patients will try to look through their MRI images and most wind up worrying over the images. June 10 is not far off and if your neuro is like mine,...
Board: Multiple Sclerosis 05-19-2013, 09:37 PM
Replies: 4
Views: 107
Posted By MSJayhawk
Re: MRI-Did they do the right kind?

Tiffany,

I think you are OK. After "all these years" I do not worry about my MRI because it is best left in the hands of those who are taking care of you. The best thing you can do is to leave...
Board: Multiple Sclerosis 05-19-2013, 10:55 AM
Replies: 10
Views: 320
Posted By MSJayhawk
Re: Lesions with no diagnosis

I think you are doing right by what you have written. I hope that the rest of May, June and July are a time of peace and tranquility for you. As long as you are doing the best you can, you are...
Board: Multiple Sclerosis 05-19-2013, 09:30 AM
Replies: 7
Views: 122
Posted By MSJayhawk
Re: I think I fractured my wrist

Vicki,

Hopefully it is just an irritation and not a fracture. It took me about 4 weeks to recover from a sprain and another 5 months to get it back to my "normal" functioning level. Rather than...
Board: Multiple Sclerosis 05-19-2013, 09:16 AM
Replies: 19
Views: 266
Posted By MSJayhawk
Re: update: sharing some results - antibodies

Shahila,

I would definitely follow up on what anti-bodies were found. I am glad your endo called to put you off the meds. You need not get messed up for no reason. You might check the thyroid...
Board: Multiple Sclerosis 05-18-2013, 01:45 PM
Replies: 6
Views: 194
Posted By MSJayhawk
Re: Had to go to ER again last night

Luke,

There are some MS Specialists who are super great at diagnosing but lousy for long term care. Since you have a diagnosis, you can find a general neuro who is willing to work with you and...
Board: Multiple Sclerosis 05-18-2013, 12:44 PM
Replies: 7
Views: 167
Posted By MSJayhawk
Re: bugs?

Zipster,

Other than my legs, the predominant pain I have daily is in my head- literally! For me it is MS related pain and something to which I have slowly built tolerances, but which I also...
Board: Multiple Sclerosis 05-18-2013, 08:26 AM
Replies: 5
Views: 156
Posted By MSJayhawk
Re: How do I see a neuro immediately?

kissymoomom,

MS, should you have it, is not fatal and the wait only seems like an eternity. I think you are making the right decision to work with your PCP since you have a trust factor (which...
Board: Multiple Sclerosis 05-18-2013, 08:21 AM
Replies: 2
Views: 101
Posted By MSJayhawk
Re: Coversion Disorder?

Conversion,

Welcome. :wave: Conversion Disorder may be presenting to you like MS, but it is not MS. Conversion disorder is a mental health condition in which a person has blindness, paralysis,...
Board: Multiple Sclerosis 05-17-2013, 09:49 PM
Replies: 2
Views: 165
Posted By MSJayhawk
Re: What should my next step be and what are your thoughts?

kybarton,

Welcome :wave:

If you have Lupus, testing should provide you with that diagnosis, but with MS, you have to eliminate your thyroid, Lupus, anxiety, etc as possible problems. The...
Board: Multiple Sclerosis 05-17-2013, 05:43 PM
Replies: 9
Views: 178
Posted By MSJayhawk
Re: Multiple Sclerosis and High ANA

Christine,

You are doing everything right and I hope you get the needed answers next week. Do let us know how things go. :) :angel:
Board: Multiple Sclerosis 05-17-2013, 04:54 PM
Replies: 9
Views: 178
Posted By MSJayhawk
Re: Multiple Sclerosis and High ANA

Christine,

The only way to be able to get answers regarding MS is to see an MS Specialist. Given your pre-existing medical problems, the MS Specialist would probably focus on your "MS Symptoms"...
Board: Multiple Sclerosis 05-17-2013, 02:48 PM
Replies: 13
Views: 296
Posted By MSJayhawk
Re: MS Fatigue

You are not alone. After 35+ years, I still have many who do not understand my MS either. As long as you have a few who do, you will be fine- at least this has been the case for me! :angel:
Board: Multiple Sclerosis 05-17-2013, 02:45 PM
Replies: 1
Views: 102
Posted By MSJayhawk
Re: Fatigue medicine

Deb,

Will they cover generics for you?:

Ritalin is the same as methylphenidate hydrochloride and the following are approved manufacturers of the generic Ritalin:

Manufacturer: MALLINCKRODT...
Board: Multiple Sclerosis 05-17-2013, 02:37 PM
Replies: 5
Views: 156
Posted By MSJayhawk
Re: How do I see a neuro immediately?

kissymoomom,

Welcome to the MS board :wave:

My personal experience was in 1982 when I went to the ER and my future MS Specialist (a neurologist whose specialty is MS) happened to be the...
Board: Multiple Sclerosis 05-17-2013, 02:27 PM
Replies: 11
Views: 191
Posted By MSJayhawk
Re: In the hospital

Whimpurr,

Check with your state about tax credits. The non-carpet flooring could fit with their ADA home improvements which might qualify for a tax credit. It does for me here.

When I...
Board: Multiple Sclerosis 05-17-2013, 02:23 PM
Replies: 2
Views: 91
Posted By MSJayhawk
Re: Tecfidera anyone????

Tammy,

The Tecfidera vs placebo had a better result than with the other oral meds, but as the main ingredient is associated with a risk of PML, your doctor should have done preliminary testing for...
Board: Multiple Sclerosis 05-17-2013, 11:18 AM
Replies: 11
Views: 191
Posted By MSJayhawk
Re: In the hospital

Whimpurr,

Thanks for your update. When I mop or vacuum, I have found it saves me energy to do both from my power chair. Better yet, for you, ask hubby to change your flooring to MSer friendly...
Board: Multiple Sclerosis 05-17-2013, 10:19 AM
Replies: 3
Views: 123
Posted By MSJayhawk
Re: allodynia

Welcome hm00 :wave:

I am sorry to hear of your son's problems. Allodynia, while it can be associated with MS, is also associated with other problems such as Fibro or a reaction to medication or...
Board: Multiple Sclerosis 05-17-2013, 08:17 AM
Replies: 7
Views: 167
Posted By MSJayhawk
Re: bugs?

Zipster,

When I feel a "bug" coming, I will take 3000 - 5000 mg of vitamin C each day (divided into 3- 4 times) and continue taking them until the "feeling" has passed. I do not take vitamin C...
Board: Multiple Sclerosis 05-17-2013, 08:00 AM
Replies: 9
Views: 178
Posted By MSJayhawk
Re: Multiple Sclerosis and High ANA

Christine,

Welcome :wave:

As you indicated, you have a very overactive autoimmune system. The MS- high ANA idea has yet to provide any hard evidence and does not speak to the number of MSers...
Board: Multiple Sclerosis 05-17-2013, 07:46 AM
Replies: 7
Views: 167
Posted By MSJayhawk
Re: bugs?

Zipster,

If you are dealing with an autoimmune system on the fritz, you might be in the queue for more bugs depending on how your system is working. For some with MS, the autoimmune system is...
Board: Multiple Sclerosis 05-16-2013, 10:34 PM
Replies: 4
Views: 142
Posted By MSJayhawk
Re: Aches and pains?

Tiffany,

Those skin sensations are what I go through from time to time. Certain plastics and paper will bother me just by touching them. Not all the time and while plastic might be my nemesis...
Board: Multiple Sclerosis 05-16-2013, 09:59 PM
Replies: 4
Views: 142
Posted By MSJayhawk
Re: Aches and pains?

Tiffany,

My body is currently in a cycle of aches and pains. For me, my MS brings tingling, buzzing, vibrating, aches, pain, and numbness, though it is mainly in my legs, it will often settle...
Board: Multiple Sclerosis 05-16-2013, 09:53 PM
Replies: 11
Views: 191
Posted By MSJayhawk
Re: In the hospital

Whimpurr,

I will be lifting you in prayers. Sounds like you did a bit much! A few days bed rest will do your body good. Still, let us know how things go. :angel:
Board: Multiple Sclerosis 05-16-2013, 08:02 PM
Replies: 6
Views: 123
Posted By MSJayhawk
Re: tastes in MS

Shahila,

As long as your chocolate is still sweet and your Jasmine tea smooth, you will be ok! ;) :angel:
Board: Multiple Sclerosis 05-16-2013, 07:39 PM
Replies: 6
Views: 123
Posted By MSJayhawk
Re: tastes in MS

Shahila,

Taste disorders can be caused by thyroid problems or reactions to medications or chemicals in your environment. You could also develop such a symptom if you are B12 deficient. Ageusia...
Board: Multiple Sclerosis 05-16-2013, 02:28 PM
Replies: 3
Views: 128
Posted By MSJayhawk
Re: Its not fair

Vicki,

No, it is not fair, but it is what we have been dealt and we have to learn to live with it. You will have bad days and really bad days, but the good days will still outnumber the bad. I...
Board: Multiple Sclerosis 05-16-2013, 01:15 PM
Replies: 2
Views: 112
Posted By MSJayhawk
Re: Most recent flare up has me scared

Mamamazz,

Is your doctor monitoring your Vitamin D levels? Also, hydration needs can change day-to-day. When I get muscle exhaustion as you describe, it only worsens if I try to keep doing...
Board: Multiple Sclerosis 05-16-2013, 11:44 AM
Replies: 34
Views: 952
Posted By MSJayhawk
Re: Scared, Confused, No diagnosis yet

Kyhu3,

Muscle size can vary due to lack of use or dehydration. I think that it is good that your observation of this comes at an appropriate time and could give you further answers towards...
Board: Multiple Sclerosis 05-16-2013, 08:35 AM
Replies: 34
Views: 952
Posted By MSJayhawk
Re: Scared, Confused, No diagnosis yet

kyhu3,

Before my MS worsened, I was power lifting. Since then, I have "shrunk to a slight degree, but I have found that stretching helps preserve muscle memory and my passive exercise bike has...
Board: Multiple Sclerosis 05-15-2013, 04:27 PM
Replies: 36
Views: 636
Posted By MSJayhawk
Re: Should I go to a neuro?

TimeWaster,

The tests run by the MS Specialist are designed to identify one of over 400 MS mimicries. At the very least something will be found and you would be pointed to another specialist. I...
Board: Multiple Sclerosis 05-15-2013, 04:21 PM
Replies: 1
Views: 108
Posted By MSJayhawk
Re: Making progress

mszee,

Welcome back! Thanks for the update. My first LP in 1982 took two tries, but my last one in 2002 was by far the easiest.

I certainly hope you can get out of limbo land soon! :angel:
Board: Multiple Sclerosis 05-15-2013, 04:16 PM
Replies: 4
Views: 137
Posted By MSJayhawk
Re: Curiosity Killed The Cat!!!!

Misty,

I truly think it will be in your best interest to see an MS Specialist. At the very least they will point you to another specialist. It all gets old when you are in limbo land and no one...
Board: Multiple Sclerosis 05-15-2013, 02:13 PM
Replies: 139
Views: 3,310
Posted By MSJayhawk
Re: Does this sound like MS?

Boots,

Your old doctor did not believe you had any physical condition or CNS problems. If you stick with your meds and listen to your doctors' advice, you should eventually get back to a...
Board: Multiple Sclerosis 05-15-2013, 12:29 PM
Replies: 14
Views: 241
Posted By MSJayhawk
Re: MS pain question

Nekole,

The Institute of Medicine publishes recommended daily allowance (RDA), which is an estimate of the amount of vitamin D that meets the needs of most people in the population. The current...
Board: Multiple Sclerosis 05-15-2013, 12:10 PM
Replies: 139
Views: 3,310
Posted By MSJayhawk
Re: Does this sound like MS?

Boots,

As you have seen doctors who have told you your situation is more than likely anxiety/depression, I would encourage you to consult with them in order to see if they still maintain their...
Board: Multiple Sclerosis 05-15-2013, 12:06 PM
Replies: 14
Views: 241
Posted By MSJayhawk
Re: MS pain question

Nekole,

Your visit sounds like the neuro I saw who told me that I did not have MS because I had seizures. (He is no longer at the hospital to which I went and his opinion flew in the face of over...
Board: Multiple Sclerosis 05-15-2013, 08:33 AM
Replies: 8
Views: 242
Posted By MSJayhawk
Re: another question about ON and fluctuating symptoms

Maxine,

Please lay aside your fears.

The doctor was being quite factual. With ON there is no predictor which can tell you accurately how quickly you will recover or if you might have lingering...
Board: Multiple Sclerosis 05-15-2013, 08:25 AM
Replies: 13
Views: 296
Posted By MSJayhawk
Re: MS Fatigue

Other than explaining that you are extremely exhausted, sometimes friends and family refuse to hear because they do not want you to be the way you are. Your friends and family will eventually "get...
Board: Multiple Sclerosis 05-15-2013, 08:13 AM
Replies: 1
Views: 107
Posted By MSJayhawk
Re: Being Tested for MS- Weird Vision Problems for 4+ weeks

strizzlow20,

Welcome :wave:

I applaud the fact that you will go see an MS Specialist. The LP? Your doctor is wrong. The LP will neither confirm nor deny MS. I have had MS for 35+ years and...
Board: Multiple Sclerosis 05-15-2013, 07:54 AM
Replies: 4
Views: 137
Posted By MSJayhawk
Re: Curiosity Killed The Cat!!!!

Misty,

Welcome!
:wave:

Your doctor might certainly have seen "normal" in your MRI image, but it is from his experience and perspective. The same MRI might render a different story were it...
Showing results 1 to 50 of 500
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