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Board: Addison's Disease 04-20-2013, 08:03 PM
Replies: 2
Views: 236
Posted By luvthesun
Addison's & tinnitus/ringing ears... anyone?

Over the past several months, I've developed ringing in my ears, but for the most part, I've been able to deal with it. However, it now is waking me up in the middle of the night, is very loud, high...
Board: Addison's Disease 04-05-2013, 09:30 AM
Replies: 1
Views: 197
Posted By luvthesun
Re: Constipation

I believe that constipation can definitely be related to Addison's Disease. People with Addison's tend to dehydrate VERY easily, and when your're dehydrated, especially within your gastrointestinal...
Board: Addison's Disease 03-03-2013, 07:08 PM
Replies: 7
Views: 643
Posted By luvthesun
Re: Could it be Addison's? Desperate for Answers!

I would absolutely avoid all gluten and dairy for awhile and see how you feel. They are two of the most common food sensitivities, and most people with digestive complaints feel much better, and...
Board: Addison's Disease 01-28-2013, 08:22 PM
Replies: 3
Views: 320
Posted By luvthesun
Re: What does this sound like?

I'm sorry to hear that you are having to live with all of this. You really have a lot going on. However, it sounds like you aren't getting the right medical care, attention, testing, etc. First...
Board: Addison's Disease 09-29-2012, 03:21 PM
Replies: 0
Views: 359
Posted By luvthesun
addisons and perimenopause

I'm looking for any input regarding Addison's/Adrenal Insufficiency and Perimenopause. I'm 42 years old and my hormones are definitely imbalanced and in decline. I have severe PMS - to the point of...
Board: Addison's Disease 09-11-2012, 02:25 PM
Replies: 5
Views: 1,292
Posted By luvthesun
Re: Dead Tired

Are you taking enough replacement steroid? Your symptoms indicate low cortisol ...

there might be another "stress" in your body (or mind) that you're unaware of and it's eating up your cortisol...
Board: Addison's Disease 08-27-2012, 07:32 PM
Replies: 5
Views: 968
Posted By luvthesun
Re: constant thirst

thank you both very much for your replies. Ladybug, I will check with my doc about the testing you suggested. Funny I've told him frequently about the constant thirst and he just blows it off....
Board: Addison's Disease 08-26-2012, 08:25 PM
Replies: 5
Views: 968
Posted By luvthesun
constant thirst

Is it normal/common to constantly feel thirsty? I feel like I drink all day long. I get PLENTY of salt and I take .1 mg Florinef, but I feel like I'm always dehydrated. And I don't drink...
Board: Addison's Disease 08-17-2012, 08:56 PM
Replies: 4
Views: 979
Posted By luvthesun
prednisone instead of HC

Has anyone switched to prednisone from hydrocortisone, and feels better?

I burn through hydrocortisone so quickly and am aware of symptoms several times everyday. Also, I wake in the middle of the...
Board: Addison's Disease 08-01-2012, 01:26 PM
Replies: 0
Views: 549
Posted By luvthesun
soooo awful upon waking

I'm just wondering if most others with Addisons/Adrenal Insufficiency feel absolutely awful in the morning? Actually, I don't even see the mornings anymore as I'm in bed until atleast 11 waiting for...
Board: Addison's Disease 07-29-2012, 05:35 PM
Replies: 1
Views: 1,064
Posted By luvthesun
Re: Diagnosed today

you haven't posted anything in awhile... just wondering if you're feeling any better since starting the Prednisone?

I hope you are well..

Sincerely,
Mollie
Board: Addison's Disease 07-25-2012, 09:05 PM
Replies: 11
Views: 1,465
Posted By luvthesun
Re: PLEASE help with test results

The weak, dizzy and faint thing is definitely related to your aldosterone levels. Are you thirsty a lot? Do you crave salty foods?

And have you had your thyroid checked out? How are all of...
Board: Addison's Disease 07-25-2012, 12:44 PM
Replies: 11
Views: 1,465
Posted By luvthesun
Re: PLEASE help with test results

I cannot imagine how aldosterone could be "0" and be "in range"... that makes no sense to me. We have to have aldosterone. I think you want to be somewhere in the middle of the reference range. ...
Board: Addison's Disease 07-25-2012, 11:38 AM
Replies: 11
Views: 1,465
Posted By luvthesun
Re: PLEASE help with test results

Doesn't look like you have an adrenal issue. Your ACTH & cortisol levels are fine.. these would be the two that would clearly indicate adrenal insufficiency. Also, there is usually very low sodium...
Board: Addison's Disease 07-13-2012, 11:43 AM
Replies: 4
Views: 674
Posted By luvthesun
Re: new, been sick, need answers, thanks

Hi Terry,

I'm so sorry to hear what you're going through...in some ways i can completely relate. I understand the crashing horribly during the night and feeling awful in the morning, and I also...
Board: Addison's Disease 06-07-2012, 07:58 PM
Replies: 10
Views: 2,063
Posted By luvthesun
Re: 1st Post for me. I need advice please.

I'm exhausted, having a poor health day so am going to be kinda brief. Craving salty food is almost always low adrenal function, and you should NOT take any sort of diuretic to eliminate the...
Board: Addison's Disease 06-07-2012, 04:55 PM
Replies: 10
Views: 2,063
Posted By luvthesun
Re: 1st Post for me. I need advice please.

the low blood pressure situation is hard to know as you had high BP as a kid, and with Addison's or Adrenal Insufficiency, there is almost always a tendency towards low BP. So that's a bit...
Board: Addison's Disease 06-06-2012, 10:07 PM
Replies: 10
Views: 2,063
Posted By luvthesun
Re: 1st Post for me. I need advice please.

I am so sorry you are living this, but do NOT give up hope. I'm not a doctor, but I have multiple health issues myself (Addison's being the most serious), and you clearly are in need of some...
Board: Addison's Disease 05-27-2012, 10:40 PM
Replies: 1
Views: 891
Posted By luvthesun
increase meds and working out??

Hi there..

I'm wondering what others do about increasing cortisone when exercising/working out? I've had a very rough year with my health and am in sort of a fragile state, but am really wanting...
Board: Addison's Disease 05-23-2012, 11:24 AM
Replies: 3
Views: 1,555
Posted By luvthesun
Re: constant thirst... dehydration

Hi "Syvia"...

Thank you for responding. I know we all have different needs, but I'm curious.. how much prednisone do you take daily? And what time in the afternoon or evening do you take your last...
Board: Addison's Disease 05-10-2012, 05:18 PM
Replies: 4
Views: 1,064
Posted By luvthesun
Re: Hoping for help and advice on what is happening to me

this may seem like a very insensitive response to your post, but the answer seems quite simple... DON'T FORGET YOUR AFTERNOON DOSE OF CORTISONE!! It really is that simple. In fact, I don't know how...
Board: Addison's Disease 04-16-2012, 07:49 PM
Replies: 0
Views: 626
Posted By luvthesun
To Steven/ Veno0881

Hi Steven ..

I find it interesting that you've had Addison's your entire life. I'm wondering if you've felt any sort of a negative progression with this illness as time has gone on? Have your...
Board: Addison's Disease 04-14-2012, 02:26 PM
Replies: 3
Views: 1,555
Posted By luvthesun
constant thirst... dehydration

I have a couple of different questions..

Does anyone take prednisone instead of hydrocortisone? I was diagnosed in 2007 and began taking Cortef. Over the past couple of years I began to need...
Board: Addison's Disease 04-05-2012, 12:21 PM
Replies: 9
Views: 2,256
Posted By luvthesun
Re: middle of night/4am cortisol call

Hi Steven .. thank you so much for your incredible kindness and concern. I just wanted to drop a quick line to thank you very much for your responses to my posts, and let you know that I will write...
Board: Adrenal Disorders 03-16-2012, 12:32 PM
Replies: 5
Views: 1,416
Posted By luvthesun
Re: Please help Saliva test results

This makes no sense to me.. you are completely out of range LOW for cortisol, yet your doctor does not want to treat it?? Time to find a new doc.

You are in need of replacement cortisol .. this...
Board: Addison's Disease 03-11-2012, 02:16 PM
Replies: 0
Views: 938
Posted By luvthesun
hydrocortisone resistance?

Has anyone experienced a gradual decline in hydrocortisone's effectiveness? Or developed a resistance to it? I was in and out of adrenal crisis for 3 months and felt very close to death on a few...
Board: Adrenal Disorders 02-23-2012, 11:32 AM
Replies: 5
Views: 1,416
Posted By luvthesun
Re: Please help Saliva test results

You have a lot of the most common symptoms of Adrenal Insufficiency .. in fact, I have everyone of the symptoms that you've mentioned .. all of which are greatly helped when you are on an adequate...
Board: Addison's Disease 02-12-2012, 10:56 AM
Replies: 9
Views: 2,256
Posted By luvthesun
middle of night/4am cortisol call

I've posted about this before, but didn't get any responses.. so I will try again as I'm sure I'm not the only Addisonian who struggles with sleep, early morning waking (4am) in need of steroids,...
Board: Addison's Disease 01-27-2012, 08:25 PM
Replies: 5
Views: 1,516
Posted By luvthesun
Re: Finally saw my Endo today

You need to see another endocrinlogist. It bothers me that your endo didn't know what to say about your nausea and fatigue... two of the most prominant symptoms associated with low cortisol. ...
Board: Addison's Disease 01-19-2012, 05:27 PM
Replies: 2
Views: 1,215
Posted By luvthesun
addison's and perimenopause

Are there any women out there who are having, or have had an extremely difficult time with Perimenopause or PMS? My Pms has recently gotten so bad.. it's almost to the point of non-functioning. A...
Board: Addison's Disease 01-16-2012, 09:51 PM
Replies: 2
Views: 2,213
Posted By luvthesun
Re: Fasting and Cortisol test

Yes.. you need to be fasting for cortisol test. Food increases cortisol levels and you want to see what your cortisol levels are without any outside influences..

Take care
Board: Addison's Disease 01-13-2012, 12:01 PM
Replies: 0
Views: 1,090
Posted By luvthesun
experience with prednisone vs. hydrocortisone

I will try to be as brief as possible because I really need some feedback from those living with Addison's, rather than the docs. I haven't been able to work in almost 4 months (viral infection that...
Board: Addison's Disease 01-09-2012, 11:55 AM
Replies: 2
Views: 977
Posted By luvthesun
Re: can't wake up... ever!

If you have Addison's Disease, you are not taking enough steroid... at all. I have never heard of anyone being on such a low replacement dose. Typical replacement dose is 25-30 mg of cortisone/day,...
Board: Addison's Disease 12-23-2011, 11:03 AM
Replies: 5
Views: 1,829
Posted By luvthesun
Re: Addison's and Nausea

I have never heard of someone with Addison's being on such a low dose of cortisone. Typical replacement dose is 20-30 mg/daily. Fatigue and nausea certainly are 2 very common symptoms of low...
Board: Addison's Disease 11-25-2011, 04:14 PM
Replies: 3
Views: 1,398
Posted By luvthesun
difficulty getting to sleep/insomnia

I'm 40 years old, and was diagnosed 5 years ago with Addison's.. since then, sleep has been very difficult, but manageable. I'm finding it no longer to be manageable.. in fact, it is my biggest...
Board: Addison's Disease 11-12-2011, 07:47 PM
Replies: 4
Views: 1,233
Posted By luvthesun
sick for 2 weeks - help w/cortisone dosing

Hi everyone,

I have been very sick with the seasonal viral, sore throat, extreme FATIGUE thing. It's been hanging on for about 2 weeks now and doesn't seem to be getting any better. I have very...
Board: Addison's Disease 10-27-2011, 02:23 PM
Replies: 8
Views: 2,719
Posted By luvthesun
Re: anyone switch to Prednisone from Hydrocortisone?

Perhaps the steroids effect different bodies in different ways. I agree that prednisone is more difficult to digest and is more difficult on your liver, but I have felt the difference in terms of...
Board: Addison's Disease 10-20-2011, 08:48 PM
Replies: 8
Views: 2,719
Posted By luvthesun
anyone switch to Prednisone from Hydrocortisone?

I am having such a difficult time with figuring out dosing of Hydrocortisone. I seem to burn through Hydrocortisone so quickly and this is especially causing problems with sleep. I NEVER sleep...
Board: Addison's Disease 10-10-2011, 08:03 PM
Replies: 5
Views: 1,576
Posted By luvthesun
Re: Help!!Please help me with addision due to pituitary gland tumor

one of the signs of insufficient steroid replacement is weight loss. 20 mg of hydrocortisone is usually not enough for most people w/ Addison's Disease or Adrenal Insufficiency. It depends if your...
Board: Addison's Disease 10-01-2011, 09:33 PM
Replies: 5
Views: 1,137
Posted By luvthesun
Re: can anyne help me?

How am I doing? Honestly, that is a very difficult question for me to answer right now, as I am not doing well due to a lot of emotional trauma/stress/etc. So the condition becomes more difficult to...
Board: Addison's Disease 10-01-2011, 08:49 PM
Replies: 5
Views: 1,137
Posted By luvthesun
Re: can anyne help me?

You do have a lot of the common symptoms of Adrenal Insufficiency.. everything you mention is how I feel when I know I am running low on my steroid replacement... especially, the extreme fatigue,...
Board: Addison's Disease 10-01-2011, 07:41 PM
Replies: 5
Views: 1,137
Posted By luvthesun
Re: can anyne help me?

You are sooooo young. Why do you think your adrenals are shot? Rather than trying to figure this out on your own, and doing a lot of self-diagnosing (which we all do when we don't feel well), get...
Board: Addison's Disease 09-27-2011, 09:49 PM
Replies: 2
Views: 1,522
Posted By luvthesun
Re: Addison's, chronic thrush, chronic nausea

Hi Matt,

First I want to thank you for replying to my two recent posts.. i really appreciate that you took the time to respond. I will look for the supplement you suggested for sexual...
Board: Addison's Disease 09-26-2011, 11:28 AM
Replies: 3
Views: 1,214
Posted By luvthesun
please help.. cortisone dosing

I've been struggling for a very long time with my cortisone schedule, specifically the last dose... i try to take it fairly late (10:00pm) as I always wake up too early, haven't gotten enough sleep,...
Board: Addison's Disease 09-22-2011, 02:24 PM
Replies: 2
Views: 2,050
Posted By luvthesun
extra cortisol with sex

I have never read anything here about sexual ability/energy with Addison's Disease... but I am wondering if anyone else needs extra cortisol when sexually active? May sound crazy, but I've almost...
Board: Addison's Disease 09-11-2011, 10:29 PM
Replies: 7
Views: 3,764
Posted By luvthesun
Re: Low cortisol developing into Addison's?

I am very sorry to hear all of this.. very sorry, and I am sorry that I'm not going to write much as I'm exhausted & not feeling well, but I couldn't just read this without writing a little...
Board: Addison's Disease 09-05-2011, 07:49 PM
Replies: 14
Views: 4,077
Posted By luvthesun
Re: Help - timing & dosing of steroids

Thanks very much for taking the time to respond... VERY much appreciated.

Sincerely,
Mollie
Board: Addison's Disease 06-16-2011, 10:47 PM
Replies: 8
Views: 2,752
Posted By luvthesun
extremely underweight

I was diagnosed w/ Addison's about 5 years ago (age 35), and at the time, weight loss was not one of my symptoms. I have lost quite a bit of weight over the past couple of years, and this was not...
Board: Addison's Disease 06-01-2011, 07:35 PM
Replies: 6
Views: 1,614
Posted By luvthesun
Re: traveling with Addisons

One of the very best things you can do for any sort of bacteria or parasite in your tummy is to be sure to take probiotics/acidophilus (good bacteria) daily. Go to a Wholefoods Market, healthfood...
Board: Addison's Disease 05-27-2011, 09:51 PM
Replies: 14
Views: 4,077
Posted By luvthesun
Re: Help - timing & dosing of steroids

Hi Caniac...
Thank you VERY much for responding.. it really helps to hear what other people are doing. I find it extremely disappointing that my thread was only asking for others to post their...
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