It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

 HealthBoards > Search Boards > Search Results
Lightbulb

Search   Advanced Search
Page 1 of 3 1 23
Showing results 1 to 50 of 147
Search took 2.68 seconds. Search: Posts Made By: VeeJ

Alternative to Searching: Try our message board index!
Board: Autoimmune Disorders 05-21-2013, 05:08 AM
Replies: 5
Views: 186
Posted By VeeJ
Re: Newbie Here Who Needs Help Figuring Things Out...

Ivorygirl, hi & welcome. I'm just a patient, so please read in that light! On your first question, about complement levels, I believe that when these are abnormal in lupus, they tend to be low, not...
Board: Autoimmune Disorders 05-12-2013, 02:37 AM
Replies: 3
Views: 155
Posted By VeeJ
Re: Phrenic nerve

Hi, Jane, and welcome! I'm sorry you're having breathing concerns on top of the thymus surgery. Has your surgeon "transferred" you back to your main doctor (is that a neurologist?), and have you...
Board: Autoimmune Disorders 05-04-2013, 02:37 AM
Replies: 4
Views: 171
Posted By VeeJ
Re: Getting closer, we hope!

I fully agree with everything Ladybug said. And there's something else that bothers me: his reliance on CLIFT. While crithidia luciliae immunofluorescence (CLIFT) is thought to have the highest...
Board: Lupus 05-02-2013, 10:30 AM
Replies: 3
Views: 193
Posted By VeeJ
Re: Initial Questions for Doctor

Hi & welcome. I'm sorry your daughter has problems but glad she's seeing a rheumatologist. I'm only a patient, so please read this in that light.

I'd first aim for a basic understanding of...
Board: Lupus 05-02-2013, 01:42 AM
Replies: 8
Views: 220
Posted By VeeJ
Re: Am I leaving Limboland??

Gullyabb, that's an interesting question you raise, whether your med could cause *only* a facial rash. I think it's possible, depending on to what extent, and at what angle, the sun hit you. Was it,...
Board: Autoimmune Disorders 04-20-2013, 04:17 AM
Replies: 8
Views: 467
Posted By VeeJ
Re: Positive ANA 1:160 & speckled...Plz feedback from any1 shares symptoms & is diagn

Hannah, sorry to be slow in posting back (am having a bad month). I had many of the same symptoms and was finally diagnosed with lupus. I'm not sure whether you've seen the rheumatologist yet, but...
Board: Autoimmune Disorders 04-12-2013, 06:02 AM
Replies: 5
Views: 328
Posted By VeeJ
Re: help!

Hi, Withered. I believe of all the AI's, it's in Sjogren's that ANA tends to be the highest. One of my lupus books says that 1:2580 would be a typical ANA for Sjogren's. Also, I think of the two...
Board: Lupus 04-11-2013, 02:58 PM
Replies: 4
Views: 291
Posted By VeeJ
Re: Positive ANA everything else normal

Hi & welcome. I'm sorry you're under the weather & not getting speedy answers. AI's can take awhile to diagnose, unfortunately. Here are things that came to my mind as I read your posts.

Re: your...
Board: Autoimmune Disorders 03-28-2013, 02:55 AM
Replies: 1
Views: 202
Posted By VeeJ
Re: Pos ANA Speckled Pattern

Hi. I'm really sorry about your 12-year old daughter's issues; this has to be very difficult for both of you. In that her ANA is positive, has she seen a rheumatologist? I'd want that because...
Board: Autoimmune Disorders 03-27-2013, 01:00 AM
Replies: 2
Views: 173
Posted By VeeJ
Re: While I wait for the Plaquenil....

kkvane, hi & welcome. I'm sorry you got a dx but glad that you found us!

I was dx'ed with lupus years ago, and I need Advil daily because Plaquenil alone doesn't provide enough pain relief. I'm...
Board: Lupus 03-27-2013, 12:41 AM
Replies: 7
Views: 425
Posted By VeeJ
Re: Hi everyone - just diagnosed with SLE

Pharmgirl, it's hard to be happy about sun being prohibited, but I learned some things after Dx that may make you glad you got good advice from your doctor. First off, I didn't know "rashes cross...
Board: Autoimmune Disorders 03-26-2013, 04:16 AM
Replies: 3
Views: 289
Posted By VeeJ
Re: Diagnosed with Hashimoto's Thyroiditis

Hi & welcome. Several of my friends with Hashimoto's had thyroid biopsies but *only because nodules were found on ultrasound*. With luck, your ultrasound won't turn up nodules requiring biopsy. But...
Board: Autoimmune Disorders 03-26-2013, 01:08 AM
Replies: 5
Views: 249
Posted By VeeJ
Re: Long history, looking for answers....

Hi, Rosi. I agree that it would good to get clarification on your labs, also to ask for copies for your own files. When ANA is positive, a number of MORE SPECIFIC autoantibody tests are usually run....
Board: Lupus 03-18-2013, 02:31 AM
Replies: 7
Views: 425
Posted By VeeJ
Re: Hi everyone - just diagnosed with SLE

Hi & welcome. I was told that Plaquenil can take upwards of 3-4 months to reach full effect, even more in some people. I actually felt "some" effect sooner, though, and hope you do, too!

Did your...
Board: Lupus 03-14-2013, 09:59 AM
Replies: 4
Views: 491
Posted By VeeJ
Re: Is is possible to have Lupus undiagnosed for years?

Hi. I had rashes (upper arms & back) that were misdiagnosed as Erythema Annulare Centrifugum, among other things (Lyme, etc.) Here's some of what I eventually learned the hard way.

First off,...
Board: Autoimmune Disorders 03-13-2013, 05:01 AM
Replies: 2
Views: 225
Posted By VeeJ
Re: ice water sensation in hands, feet, back - not yet diagnosed, scared

Hi. I'm not sure whether this sounds close, but when I experience pain along the long bones of legs/arms, if you asked whether the pain feels hot or cold, I'd say "both" or "neither". Or even, "The...
Board: Autoimmune Disorders 03-04-2013, 04:46 AM
Replies: 5
Views: 276
Posted By VeeJ
Re: Lab result question

Hi, Pixie. In addition to what Ladybug wrote (and I agree with all), I'll add a few "background comments".

Antiphospholipid syndrome (APS) is seen in a certain percent of people with lupus....
Board: Autoimmune Disorders 02-16-2013, 12:50 AM
Replies: 1
Views: 253
Posted By VeeJ
Re: SED rate affected by taking anti-inflamatories ?

Hi. Whether meds lower sed rate is something I'd looked into during the years I was seeking a diagnosis. Apparently NSAID's and steroids *may* lower it, but aspirin may either lower or elevate it....
Board: Autoimmune Disorders 02-08-2013, 01:39 PM
Replies: 14
Views: 1,348
Posted By VeeJ
Re: Positive ANA 1:40 Nucleolar Pattern

Yes, I'm afraid it can take awhile for some of the AI's to build enough steam to be "trapped" by tests, or for additional "useful" symptoms to erupt. People vary so much. I was very slow to develop...
Board: Lupus 01-15-2013, 04:56 AM
Replies: 4
Views: 322
Posted By VeeJ
Re: APS related question-needing advice

Jen, APS is diagnosed by tests, not symptoms. One or more of the following tests must be positive two times; further, the 2nd round of tests must be conducted at least 12 weeks or more after the 1st...
Board: Lupus 01-13-2013, 08:44 AM
Replies: 6
Views: 588
Posted By VeeJ
Re: Is it Lupus???

Hi. In case RA comes up again, I just want to add something about how it's diagnosed: there isn't any single test to diagnose it! You've probably read how SLE is generally (not always) diagnosed, by...
Board: Lupus 01-13-2013, 07:12 AM
Replies: 6
Views: 588
Posted By VeeJ
Re: Is it Lupus???

Good morning. What role is your GP playing? Mine would have reacted really strongly if I'd lost that much hair, had that much pain & fatigue, etc.

Minimally I'd want complete basic labs PLUS...
Board: Lupus 12-19-2012, 02:27 AM
Replies: 5
Views: 548
Posted By VeeJ
Re: Plaquenil users info please

Hi, Glojer. One expert cites the following, which I found true for me:

Can take 4-6 months to reach *full* effect.
At first, may see a "halo" around lights. (I avoided night driving for a bit.)...
Board: Lupus 12-18-2012, 04:06 AM
Replies: 7
Views: 696
Posted By VeeJ
Re: Proper 'Mild Lupus' Treatment?

Hi, Guessing. Have you gotten copies of your labs? For example, I'd want to see if any of the standard values are out-of-range, that might indicate anemia, etc. Also if urinalysis has been done...
Board: Lupus 12-13-2012, 04:29 AM
Replies: 1
Views: 237
Posted By VeeJ
Re: Mouth ulcers

Hi, Luca. One author recommends these things.

Home gargling remedies: buttermilk, or hydrogen peroxide diluted by a few ounces of water.

OTC dental gels: like Orabase or Kenalog (they contain...
Board: Lupus 12-06-2012, 11:51 PM
Replies: 4
Views: 403
Posted By VeeJ
Re: Bone pain in flare

Goldy, my first episode of widespread pain along the long bones of arms/legs at age 13 lasted many months. I was hospitalized several times. I know at least some of my labs were off then, like high...
Board: Lupus 12-06-2012, 12:51 AM
Replies: 4
Views: 403
Posted By VeeJ
Re: Bone pain in flare

spellinGoldy, as I understand it, lupus is a connective tissue disease. Personally I find this term so vague as to be meaningless to a non-doctor. The best definition I've found is that connective...
Board: Lupus 12-05-2012, 11:21 PM
Replies: 27
Views: 2,017
Posted By VeeJ
Re: Positive ANA AB Titer with Nucleolar Patter??

Boxermama, even if you don't want Plaquenil now, I hope you'll do yourself a small favor: look into it, write down its many benefits, get your arms around the eye concern (which is extremely...
Board: Lupus 12-04-2012, 10:30 AM
Replies: 5
Views: 386
Posted By VeeJ
Re: Advise please

Smiled, I just want to say that it's possible but RARE to have lupus without a positive ANA. The main exception is where anti-Ro is positive despite ANA being negative: this is called "Ro-lupus"....
Board: Lupus 12-02-2012, 04:01 PM
Replies: 5
Views: 386
Posted By VeeJ
Re: Advise please

Smiled, hello and welcome! I'm sorry for the problems that bring you here. I'm just a patient, so please read in that light, OK? For starters, have you seen the "sticky posts" (permanent info posts)...
Board: Lupus 11-30-2012, 10:54 AM
Replies: 0
Views: 1,318
Posted By VeeJ
Lupus-specific Rashes

Lupus-specific Rashes (list isn’t exhaustive)

The CCLE rashes (Chronic cutaneous lupus erythematosus). Lesions favor photo-exposed skin. Most of the time labs are negative. Of patients presenting...
Board: Autoimmune Disorders 11-27-2012, 01:45 AM
Replies: 5
Views: 547
Posted By VeeJ
Re: AI Diagnosis Question - 1:640 ANA+ Speckled Pattern

I'm sorry you're headed to thyroid biopsy for nodules, but on the other hand, that's progress, so yay! Don't let the word "biopsy" send you into a tailspin, it's standard for nodules. From the...
Board: Lupus 11-26-2012, 01:55 PM
Replies: 48
Views: 12,482
Posted By VeeJ
Re: vist with rheumy didn't meet my expectations

jujuz, having a "for-sure" spinal problem on top of your lupus does sound like a perfect storm. (I was actually hoping you hadn't gotten confirming spinal tests, i.e., hoping the spinal pain might...
Board: Autoimmune Disorders 11-26-2012, 02:50 AM
Replies: 5
Views: 547
Posted By VeeJ
Re: AI Diagnosis Question - 1:640 ANA+ Speckled Pattern

Hi & welcome. I'm really sorry you're having these problems. I think many of us here know that "flu-like" feeling that didn't explain what was really going on. (Mine turned out to be lupus.) Here are...
Board: Autoimmune Disorders 11-25-2012, 11:57 AM
Replies: 9
Views: 891
Posted By VeeJ
Re: Undiagnosed

Hi, again. Many of your abnormal values seem to cluster around a few subjects, but please read this with a HUGE grain of salt, since I'm only a patient.

CRP apparently elevates in infection,...
Board: Lupus 11-22-2012, 07:01 AM
Replies: 10
Views: 861
Posted By VeeJ
Re: Pics that aren't worst case senario

Hi & welcome. I've read that even doctors can't necessarily diagnose skin problems based on appearance, probably because there are something like 16,000 or more skin conditions, so many look similar...
Board: Lupus 11-15-2012, 02:25 PM
Replies: 4
Views: 267
Posted By VeeJ
Re: Incontinence

Hi, Sunic, and welcome! I had urinary problems (frequency & urgency) before dx and still have them 10+ years later, to a lesser degree but still there.

Here are some things I've tried.
1. If...
Board: Lupus 11-10-2012, 01:07 AM
Replies: 27
Views: 2,017
Posted By VeeJ
Re: Positive ANA AB Titer with Nucleolar Patter??

Boxermama, interesting, more "dittos". I had IBS problems for 20+ years, deemed my primary problem, written off to Fibro, yet so severe I was hospitalized for dehydration & potassium imbalance...
Board: Lupus 11-09-2012, 07:57 AM
Replies: 27
Views: 2,017
Posted By VeeJ
Re: Positive ANA AB Titer with Nucleolar Patter??

Boxermama, hi. I'm just a patient, of course. But in that context, I want to say "ditto" to the comments already posted about scleroderma. I don't think it's ever diagnosed solely on pattern! Also, I...
Board: Lupus 11-08-2012, 04:16 AM
Replies: 5
Views: 543
Posted By VeeJ
Re: ESR and C3 C4 Lupus?

Hi, Ann. I believe C3 and C4 tend to be LOW in lupus, not high, but I'm not sure that's a hard & fast "rule", as lupus can vary so much from one person to another...

You could verify that C3/C4...
Board: Lupus 10-30-2012, 05:55 PM
Replies: 1
Views: 192
Posted By VeeJ
Re: hello new here

Hi & welcome. From reading, I suspect the TSH value you cited is likely elevated, which suggests hypothyroidsm, underactive thyroid. That can cause fatigue, hair loss, pain, etc. Are you ALSO seeing...
Board: Lupus 10-28-2012, 07:06 AM
Replies: 2
Views: 329
Posted By VeeJ
Re: In Need of advise!! Please!!

Hi & welcome. ANA alone doesn't diagnose lupus (or anything else, really) for several reasons: it can be positive in multiple conditions, not just lupus; and it may only elevate due to a family...
Board: Lupus 10-28-2012, 03:03 AM
Replies: 1
Views: 272
Posted By VeeJ
Re: Stopping Cellcept...

Good morning. In her shoes, I'd speak with dr(s) right away. I think she'd want to rule out dangerous fluid retention, because that's one thing that can cause rapid weight gain (and there may be...
Board: Lupus 10-20-2012, 01:56 AM
Replies: 17
Views: 1,303
Posted By VeeJ
Re: Need help with weird red spots!!

Tacky, hi. Are your spots on sun-exposed skin? Did the one that blistered scar or depigment after it faded? I'm only a patient, of course, but several things come to my (dumb patient's) mind. First,...
Board: Lupus 10-18-2012, 02:37 AM
Replies: 3
Views: 432
Posted By VeeJ
Re: Lupus or connective tissue disorder?

Hi & welcome. I'm only a (dumb) patient, but from reading, I think there are many overlaps among the "connective tissue conditions" (of which lupus is only one), but that specialists have ways to...
Board: Lupus 10-16-2012, 01:55 PM
Replies: 6
Views: 509
Posted By VeeJ
Re: Fatigue this bad?

Hi to both. Do you typically have low BP? I just read that in people with low BP, a hot shower elevates blood pressure very rapidly. I hope you ask your doctors, though---seems the wisest course....
Board: Lupus 10-11-2012, 01:44 AM
Replies: 6
Views: 656
Posted By VeeJ
Re: Positive Results....

LucyBee, which test (or tests) came back positive? Some doctors erroneously call ANA "the lupus test". This is misleading for several reasons. First, it can be positive in multiple conditions, not...
Board: Lupus 10-11-2012, 01:18 AM
Replies: 3
Views: 532
Posted By VeeJ
Re: Lupus questions

First off, good for you, NOT that all this is happening, but that your SCLE rash was dx'ed quickly, nailing your dx down fast. I was also positive for anti-Ro, and here are some things I was told.
...
Board: Lupus 09-27-2012, 10:34 AM
Replies: 7
Views: 761
Posted By VeeJ
Re: went to get treated for lyme but...

Hi. To learn more, you could also borrow library books on lupus & thyroid.

I was treated for Lyme, too (same 21 days doxycycline) but no WB test was done, as my dr. didn't feel the test was...
Board: Lupus 09-27-2012, 02:51 AM
Replies: 2
Views: 562
Posted By VeeJ
Re: New Doc wants me to prove I have Lupus

Flurgrl, same happened to me when my local GP retired. Just for this contingency, when I was Dx'ed years before, I'd asked my rheumatologist to send an "FYI letter" to my local GP. (BTW, it's good to...
Showing results 1 to 50 of 147
Page 1 of 3 1 23

 











All times are GMT -7. The time now is 08:58 AM.

Home - About Us - Archive - Search - Privacy - Disclaimer - FAQ - Tags - Site Map - Advertise With Us - Contact Us - Top


Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2013 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!