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Board: Autoimmune Disorders 05-16-2013, 06:46 AM
Replies: 1
Views: 111
Posted By luca689
Re: Hidradenitis suppervativia

I wish I had more info on this condition but other than antibiotics and warm compresses it seems to be a very difficult thing to treat. I did see one suggestion of antibacterial soap but I'm sure you...
Board: Sleep Disorders 05-16-2013, 06:20 AM
Replies: 3
Views: 428
Posted By luca689
Re: Sleep Apnea

It took me several months to get over extreme fatigue at first. As to the 82%, to give you an idea, if your oxygen levels were like that during your waking hours you would be at your Dr's being...
Board: Costochondritis 05-09-2013, 01:41 PM
Replies: 2
Views: 203
Posted By luca689
Re: Hello everyone, my name is Kimberly im new on the forum. I have been diagnosed wi

My first bout lasted for many months as well. It does indeed sound like it, but have you been evaluated for Gerd as well? I believe that an anti-inflammatory is one of the best treatments for costo,...
Board: Autoimmune Disorders 05-09-2013, 01:27 PM
Replies: 4
Views: 138
Posted By luca689
Re: Recommendations needed for possible Autoimmune Disorder

When you speak of arsenic levels being high, do you work in an industry where exposure would be likely? Were you treated for it? Are your cysts larger than the normal or diagnosed as something, IE...
Board: Lupus 05-02-2013, 10:09 AM
Replies: 8
Views: 224
Posted By luca689
Re: Am I leaving Limboland??

Just to add to the mix, I don't have lupus but if I get sun exposure anywhere, I can get the "sunburn" anywhere but on the sun exposed part. If I leave my lower arm exposed in an open window in the...
Board: Raynaud's Syndrome 05-01-2013, 06:43 AM
Replies: 2
Views: 163
Posted By luca689
Re: acids... help??!!

Only if she has tummy problems. Raynaud's is best treated by keeping warm and good circulation practices. There are many types of arthritis, the most common of which is osteoarthritis which is not...
Board: Sjögren's Syndrome 04-29-2013, 10:12 AM
Replies: 1
Views: 156
Posted By luca689
Re: smelling exhaust fumes??

Yeah, sometimes I smell exactly that, exhaust fumes and a few other things that are not there. Happens very occasionally.
Board: Raynaud's Syndrome 04-29-2013, 09:56 AM
Replies: 2
Views: 183
Posted By luca689
Re: Reynauds syndrome

What sort of questions do you have? Do your colour changes happen in response to cold?
Board: Thyroid Disorders 04-25-2013, 08:08 AM
Replies: 5
Views: 180
Posted By luca689
Re: Biopsy result question..

Hashi's is diagnosed by the presence of antibodies usually found via blood work, and histologic findings. Hashi's and Graves disease are the most common autoimmune thyroid diseases but are not the...
Board: Lupus 04-24-2013, 01:19 PM
Replies: 8
Views: 470
Posted By luca689
Re: Neuropathy

A diagnosis of CREST requires positive bloodwork of some sort, if you don't have sclerodactyly and the antibodies found in labs are very important as they can indicate what sort of things you might...
Board: Thyroid Disorders 04-24-2013, 12:54 PM
Replies: 3
Views: 181
Posted By luca689
Re: Not sure its synthroid is working

You really can't compare your specific dosage to anyone else's. There may be average dosages but patients are not averages. We all have different needs and requirements. You may need total hormone...
Board: Vitamins & Supplements 04-24-2013, 09:41 AM
Replies: 7
Views: 269
Posted By luca689
Re: Diagnosed w/Vit. D deficiency and

I do hope you feel better!
Board: Autoimmune Disorders 04-23-2013, 10:27 AM
Replies: 12
Views: 319
Posted By luca689
Re: What does this sound to you? which auto-immune disease?

Well, in my misbegotten youth ;) I would rapid cycle between hyper and hypo states in like a week. If I got chilled I would shiver like a drug addict for hours on end, lol. I just had to put up with...
Board: Vitamins & Supplements 04-23-2013, 10:12 AM
Replies: 7
Views: 269
Posted By luca689
Re: Diagnosed w/Vit. D deficiency and

I'm not sure what particular vitamin D level you mean as there are different measurements of it. My last lab tests were for 3, 25-OH Vit Total , 25-OH VIT D2, and 25-OH VIT D3 with a standard range...
Board: Autoimmune Disorders 04-23-2013, 07:36 AM
Replies: 12
Views: 319
Posted By luca689
Re: What does this sound to you? which auto-immune disease?

Hashi's can actually cycle very quickly in it's initial phases between hyper and hypo thyroid hormone levels. My levels still fluctuate occasionally to this day! Graves and Hashi's antibodies can...
Board: Raynaud's Syndrome 04-23-2013, 07:00 AM
Replies: 1
Views: 130
Posted By luca689
Re: shooting pains

Are you on medication for Raynaud's? Are your showers very hot? That can do it to me (the redness and tingling) As to the wrist and shoulder pain, I don't think they would be caused by Raynaud's....
Board: Neurology 04-23-2013, 06:44 AM
Replies: 1
Views: 167
Posted By luca689
Re: Neurological issues & Menopause

What has your neurologist discussed with you? (Rhetorically speaking, of course) He or she should be the first source of information about your condition, assuming it is related to your previous...
Board: Vitamins & Supplements 04-23-2013, 06:26 AM
Replies: 7
Views: 269
Posted By luca689
Re: Diagnosed w/Vit. D deficiency and

I have been very low on Vit D as well and can say from experience that raising it to a normal level helps alleviate a lot of aches and pains! I have to occasionally go on RX Vit D and have to take a...
Board: Autoimmune Disorders 04-18-2013, 07:40 AM
Replies: 2
Views: 325
Posted By luca689
Re: RA Latex Turbid- Test Results 257.5 IU/ML

The RA turbid latex test is just a specific test for RF factor, FWIW. And apparently RA can come with rashes too. The most serious is vasculitis, just off the top of my head. Like Vee, I am just a...
Board: Relationship Health 04-17-2013, 06:22 AM
Replies: 6
Views: 316
Posted By luca689
Re: Do two introverts make a good couple?

Yep, 25 yrs so far. We don't share the same interests, politics, religion either, but we can pursue our different interests in each other's company, often without speaking at all. Relationships...
Board: Sleep Disorders 04-16-2013, 06:31 AM
Replies: 1
Views: 181
Posted By luca689
Re: Sporadic fatal insomnia and sleeping pills

There have only been something like 8 cases or so of this disease diagnosed in the past 8 years or so worldwide. I do not believe that a good response has been attained with the use of sleeping aids...
Board: Raynaud's Syndrome 04-10-2013, 07:07 AM
Replies: 1
Views: 174
Posted By luca689
Re: Cold Gums

I don't think that the cold sensation in your gums is related to your Raynaud's but I'm just a patient FWIW. Are you on any sort of medication for the Raynaud's? I have secondary too, (limited...
Board: Human Papillomavirus (HPV) 04-09-2013, 11:45 AM
Replies: 4
Views: 278
Posted By luca689
Re: Please Help My Girlfriend (Question for Females)

The warts in the area you describe are generally cosmetic and therefore do not cause cancer as cervical warts do. Of course a doctor is the one to make that determination and your girlfriend...
Board: Human Papillomavirus (HPV) 04-09-2013, 09:35 AM
Replies: 4
Views: 278
Posted By luca689
Re: Please Help My Girlfriend (Question for Females)

I would run, not walk, to seek a second opinion from a different ob-gyn. There are multiple treatment options available and there would have to be a darn good reason for such a life changing invasive...
Board: Raynaud's Syndrome 04-09-2013, 06:22 AM
Replies: 5
Views: 181
Posted By luca689
Re: Hands up

If it's worrisome, see your Dr. There might be nothing wrong at all, but it never hurts to check, or talk to your Dr at your next visit. Good luck and best wishes!
Board: Raynaud's Syndrome 04-09-2013, 05:57 AM
Replies: 5
Views: 181
Posted By luca689
Re: Hands up

Raynaud's is a vasospastic disorder that causes certain areas of your body, like fingers, toes and ears, to feel cool in response to cold or stress. Smaller arteries that supply blood to your skin in...
Board: Immune Disorders 04-08-2013, 01:54 PM
Replies: 6
Views: 169
Posted By luca689
Re: Sjogrens Syndrome?

Sjogren's can be seronegative, or the sicca symptoms may be due to something else. The good news is that if your symptoms are severe enough, there are medications you can take in addition to OTC...
Board: Immune Disorders 04-08-2013, 01:10 PM
Replies: 6
Views: 169
Posted By luca689
Re: Sjogrens Syndrome?

What did your Dr say? Have you had an evaluation by either a rheumatologist or eye specialist? They would be the ones to evaluate or determine whether your symptoms would indicate Sjogren's or some...
Board: Lupus 04-08-2013, 07:31 AM
Replies: 2
Views: 201
Posted By luca689
Re: Help finding a good Rheumy

Ditto what Vee said and I also wanted to add: don't delay in getting that sleep study. It is important to get apnea treated should she have it and one can obviously have that in addition to...
Board: Autoimmune Disorders 04-08-2013, 06:43 AM
Replies: 15
Views: 1,054
Posted By luca689
Re: Unknown autoimmune, nonspecific symptoms? help please!

I think the fibromyalgia diagnoses being handed out so quickly are clouding up the issues of having an autoimmune disease. Fibro is a syndrome, not a disease in that, while it may make you feel...
Board: Raynaud's Syndrome 04-08-2013, 05:52 AM
Replies: 5
Views: 223
Posted By luca689
Re: Diagnosed with Primary Reynauds

Keeping your core warm really helps too. Gloves while using the computer helps, as well as taking breaks to move about to get the circulation moving everywhere is very helpful even if it just means...
Board: Raynaud's Syndrome 04-05-2013, 10:36 AM
Replies: 5
Views: 223
Posted By luca689
Re: Diagnosed with Primary Reynauds

There are no blood tests for Raynaud's. It is an observable syndrome and a Dr can use a cold test if necessary. It is almost always recommended that any patient with Raynaud's, whether primary or...
Board: Autoimmune Disorders 04-01-2013, 09:26 AM
Replies: 2
Views: 217
Posted By luca689
Re: AutoImmune, rheumatoid arthritis/hashimotos

What kind of Doctor is yours? Hashimoto's disease is diagnosed by antibodies and is different than Hypothyroidism. Inflammation in the gut is usually a symptom rather than a cause of autoimmune...
Board: Raynaud's Syndrome 04-01-2013, 08:59 AM
Replies: 1
Views: 233
Posted By luca689
Re: Are These Symptoms of Raynauds?

Does this happen after your fingers are cold? Did your physician do a cold challenge to your fingers?
Board: Autoimmune Disorders 03-27-2013, 05:38 AM
Replies: 2
Views: 174
Posted By luca689
Re: While I wait for the Plaquenil....

I use advil and aleve. I too feel the weather and am prone to annoying bouts of tendonitis, like now. I also have a hot wax bath thingy for my hands that helps a lot. I don't have lupus but sclero...
Board: Autoimmune Disorders 03-26-2013, 11:45 AM
Replies: 4
Views: 261
Posted By luca689
Re: Positive ANA, positive SSaRO & Centromere

Have you had Raynaud's for a long time? I sympathize with you on the dry eye thing. I use all sorts of drops and Restasis. Of course, dry eye in and of itself isn't always a result of Sjogren's but...
Board: Autoimmune Disorders 03-26-2013, 10:43 AM
Replies: 4
Views: 261
Posted By luca689
Re: Positive ANA, positive SSaRO & Centromere

Which Centromere antibody did you test positive for? That sometimes can be telling. Also, CREST has some pretty definitive symptoms of which I believe you must have at least 3 plus supporting labs....
Board: Autoimmune Disorders 03-26-2013, 10:20 AM
Replies: 5
Views: 249
Posted By luca689
Re: Long history, looking for answers...

UCTD and MCTD are 2 different AI diseases, each with it's own criteria and symptoms. Problem is, many AI diseases overlap in symptoms and presentations. As Vee said, MCTD requires that anti-RNP be...
Board: Autoimmune Disorders 03-26-2013, 09:36 AM
Replies: 3
Views: 291
Posted By luca689
Re: Diagnosed with Hashimoto's Thyroiditis

Hi Rightnow. I have Hashi's as diagnosed by antibodies. I would imagine that your Dr is just being cautious by ordering the ultrasound. An enlarged thyroid is very common with Hashi's and usually no...
Board: Lupus 03-13-2013, 08:54 AM
Replies: 6
Views: 234
Posted By luca689
Re: How do you find a primary and Rheumy doctor?

My rheumatologist treats my APS. I am just a patient and I have sclero rather than lupus, but this is what I have learned about APS. There are 3 main treatments of it: baby aspirin, heparin, and...
Board: Autoimmune Disorders 03-12-2013, 10:46 AM
Replies: 2
Views: 227
Posted By luca689
Re: ice water sensation in hands, feet, back - not yet diagnosed, scared

I'm not familiar with that symptom. Hopefully someone one else can shed some light on this for you.
Board: Autoimmune Disorders 03-11-2013, 08:21 AM
Replies: 4
Views: 253
Posted By luca689
Re: Imuran for Autoimmune

MCTD isn't a mixture in the sense that you have lupus and myositis and.... It is it's own AI disease that has some features of this and that as an overlap but is treated as it's own entity. How long...
Board: Autoimmune Disorders 03-05-2013, 09:01 AM
Replies: 8
Views: 339
Posted By luca689
Re: Undiagnosed Chronic Pain And Other Problems

Unfortunately, this pattern is seen in lots of things and no things as well. Another key test is your SED rate or CRP. These tests indicate if there are any inflammatory processes going on. However,...
Board: Autoimmune Disorders 03-05-2013, 08:34 AM
Replies: 8
Views: 339
Posted By luca689
Re: Undiagnosed Chronic Pain And Other Problems

Sometimes the staining pattern of the ANA test can point in a particular direction, sometimes not. Do you know what yours was?
Board: Hypochondria 02-27-2013, 10:22 AM
Replies: 2
Views: 273
Posted By luca689
Re: Hello! New member and terrified about autoimmune diseases

An ANA titre that is the lowest is not considered indicative of a disease state by rheumatologists, in the absence of symptoms. They can be raised by a passing virus, such as a cold and can also be...
Board: Skin Problems 02-12-2013, 07:32 AM
Replies: 2
Views: 209
Posted By luca689
Re: was this a Raynauds attack

It could very well have been a Raynaud's attack, but might have been brought on by your gloves being too tight, since you mentioned wearing 2 pair. Gripping your handlebars too hard can cause it too....
Board: Autoimmune Disorders 02-05-2013, 10:35 AM
Replies: 2
Views: 277
Posted By luca689
Re: HLAB-27+ gene marker=Reactive Arthritis

It is associated with seronegative spondyloarthropathies such as your reactive arthritis. It is not diagnostic of it but can be useful in determining future severity and chronicity of the your...
Board: Open to All Other Health Topics 02-05-2013, 10:21 AM
Replies: 3
Views: 248
Posted By luca689
Re: Trying to Cope With Illness Without a Diagnosis

There are indeed fellow travelers out there. Many of us with autoimmune disease know exactly what it is like as we can spend years with no diagnosis, or worse yet, being told that "it's all in your...
Board: Autoimmune Disorders 01-24-2013, 07:29 AM
Replies: 15
Views: 1,054
Posted By luca689
Re: Unknown autoimmune, nonspecific symptoms? help please!

Just a thought, have you had your thyroid levels checked? Were any other autoimmune tests run? Were your vitamin levels checked? Ummm, and what about your SED rate, to check for inflammation?
Board: Autoimmune Disorders 01-17-2013, 09:55 AM
Replies: 7
Views: 435
Posted By luca689
Re: auto immune haemalytic aneamia

Hemolytic anemia happens when your red blood cells die before they are supposed to. Aplastic anemia is when your bone marrow doesn't make enough or any of all the cell types in your blood.
Showing results 1 to 50 of 373
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