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Board: Cancer: Prostate 05-05-2013, 12:16 AM
Replies: 6
Views: 267
Posted By Tall Allen
Re: Disease free survival for prostate cancer

After which treatment?
Board: Cancer: Prostate 04-21-2013, 10:28 AM
Replies: 10
Views: 662
Posted By Tall Allen
Re: IADT, 8 months on vacations

Hi Baptista,

If your previous SRT already irradiated the pelvic nodes with sufficient dosage, I agree that there is no point to looking there for the cancer. In my friend's case, his SRT was...
Board: Cancer: Prostate 04-16-2013, 11:34 PM
Replies: 10
Views: 662
Posted By Tall Allen
Re: IADT, 8 months on vacations

Hi Baptista,

I'll try to address your questions as far as I know.



He is now on his second "on" cycle, not counting the adjuvant ADT he had with his salvage radiation. He expects to be on...
Board: Cancer: Prostate 04-08-2013, 10:59 AM
Replies: 10
Views: 662
Posted By Tall Allen
Re: IADT, 8 months on vacations

Congratulations on the vacation. From everything I've read, the kind of complete PSA response you are getting is the best indicator of continued response. In the US, Zytiga (abiraterone) is only...
Board: Cancer: Prostate 02-15-2013, 09:12 PM
Replies: 8
Views: 742
Posted By Tall Allen
Re: vitamin supplements?

Vitamin D is a great example of a substance that has had a lot of studies, but no proven benefit to PC. There seems to be a lot of misinformation out there about Vitamin D. I pulled the following out...
Board: Cancer: Prostate 02-14-2013, 08:57 PM
Replies: 8
Views: 742
Posted By Tall Allen
Re: vitamin supplements?

Thanks, Tommy, for letting me address this issue -- I think it's important that everyone be able to distinguish what constitutes "proof" from what doesn't, especially because these days we all have...
Board: Cancer: Prostate 02-03-2013, 09:26 PM
Replies: 8
Views: 742
Posted By Tall Allen
Re: vitamin supplements?

None have ever been proven useful for preventing PC, but Vitamin E has proved harmful in the incidence of PC. But after RP with no indication of residual disease, I seriously doubt that any vitamins...
Board: Cancer: Prostate 01-30-2013, 04:42 PM
Replies: 3
Views: 332
Posted By Tall Allen
Re: prostate

Gleason 7 or a rapidly rising PSA while not on hormone therapy are usually the danger signals that it's time to come off Active Surveillance. The problem with continued hormone therapy is that it may...
Board: Cancer: Prostate 01-23-2013, 12:54 PM
Replies: 5
Views: 653
Posted By Tall Allen
Re: Torn between options...

I'm sorry to hear about your diagnosis. You must be in shock. It's hard to absorb all the facts and opinions about treatment when you're still reeling and feel time pressure to act.

Urologists...
Board: Cancer: Prostate 12-22-2012, 09:57 PM
Replies: 8
Views: 1,305
Posted By Tall Allen
Re: Rising PSA Level - Options to Control?

Not every anti-oxidant, just some particular ones.You might want to try the more concentrated extracts. EGCG is green tea extract. Broccoli sprout extract or sulfurophane may be helpful. Also: soy...
Board: Cancer: Prostate 12-19-2012, 11:16 AM
Replies: 1
Views: 260
Posted By Tall Allen
Re: "Double" Bump after Radiation

I was told to expect bounces at any time. Bounces are associated with treatment success. They are not a cause for concern unless they are at least 2 full points over your lowest PSA, which would...
Board: Cancer: Prostate 12-19-2012, 10:40 AM
Replies: 8
Views: 1,305
Posted By Tall Allen
Re: Rising PSA Level - Options to Control?

Hi Gatt,
I'm sorry to hear your father and you have so much to contend with. I think maybe you're in Europe, because I do not recognize the names of the medications you listed. They may have...
Board: Cancer: Prostate 11-30-2012, 04:11 PM
Replies: 13
Views: 1,450
Posted By Tall Allen
Re: Dad Diagnosed With Gleason (3+5)

A lot has been learned in the last 5 years.
Board: Cancer: Prostate 11-30-2012, 03:47 PM
Replies: 13
Views: 1,450
Posted By Tall Allen
Re: Dad Diagnosed With Gleason (3+5)

Are you looking at an old edition of Dr Snuffy Myer's book? The problem with books is they get outdated so quickly.

There was a large study conducted on Selenium and Vitamin E and the risk of PC,...
Board: Cancer: Prostate 11-28-2012, 05:38 PM
Replies: 17
Views: 2,268
Posted By Tall Allen
Re: High PSA level 56

I'm sorry to hear about the diagnosis. If you're like most of us, "cancer panic" sets in quickly. Because of that, it is important to take a deep breath and some time before making critical...
Board: Cancer: Prostate 11-27-2012, 02:36 PM
Replies: 2
Views: 333
Posted By Tall Allen
Re: Nutrition prior to PC radiation

His RO may ask him to stay on some kind of low fiber, low gas diet while on radiation. I didn't have to because I had only 5 treatments (I strongly recommend he look into hypofractionated SBRT (e.g.,...
Board: Cancer: Prostate 11-15-2012, 09:05 AM
Replies: 8
Views: 1,004
Posted By Tall Allen
Re: Psa velocity

I saw a study that showed an increase after vigorous bike riding -- stationary bikes are a smoother ride. Unless there is some other reason, like a positive DRE or unexplained urinary symptoms,...
Board: Cancer: Prostate 11-15-2012, 12:05 AM
Replies: 8
Views: 1,004
Posted By Tall Allen
Re: Psa velocity

Your PSA is ridiculously low. PSA velocity is meaningless on such low numbers.Congratulations!

- Allen
Board: Cancer: Prostate 10-30-2012, 09:36 PM
Replies: 16
Views: 3,847
Posted By Tall Allen
Re: Recovery from Hormonal Therapy. My latest results

You can mix the tocotrienols (γ & δ), as long as it's pretty low on alpha-tocopherol (Vitamin E). Apparently, they have to extract it from annatto beans. He uses Unique E brand, but I see there are...
Board: Cancer: Prostate 10-26-2012, 11:52 AM
Replies: 33
Views: 4,419
Posted By Tall Allen
Re: New diagnosis, age 48 no symptoms

Most clinical trials for the really interesting new medicines are limited to men who are already castrate resistant. Many include other restrictions. Phase 3 clinical trials always include placebo or...
Board: Cancer: Prostate 10-23-2012, 11:57 AM
Replies: 7
Views: 459
Posted By Tall Allen
Re: Cryosurgery Advice

Hi Landcrab47,

A very good friend of mine is in a similar situation. He's experiencing rising PSA after RP and SRT, and has been through a cycle of HT. Like you, he is now letting his PSA rise to...
Board: Cancer: Prostate 10-21-2012, 01:32 PM
Replies: 33
Pca
Views: 3,131
Posted By Tall Allen
re: Pca

Yes. Tom was overweight. He went on a Mediterranean-style diet with plenty of fish and highly colored fruits and vegetables, broccoli, low dairy, no red meat and lost about 30 lbs on it. He worked...
Board: Cancer: Prostate 10-18-2012, 11:48 PM
Replies: 33
Pca
Views: 3,131
Posted By Tall Allen
re: Pca

RJV,
Since you seem to be a fan of anecdotes, let me share one with you. My friend Tom, in my PC Support group, found out he was Gleason 8 about 10 years ago. He had a prostatectomy, but several...
Board: Cancer: Prostate 10-12-2012, 03:04 PM
Replies: 2
Views: 445
Posted By Tall Allen
Re: How long can remission last?

Congratulations on your successful salvage radiation treatment. It sounds like you've been cured. Usually, not always, if it's going to reappear it would have done so. There have been rare cases...
Board: Cancer: Prostate 09-28-2012, 12:45 PM
Replies: 1
Views: 696
Posted By Tall Allen
Re: Cancer recurrence after 9 yers

It may be that some cells had escaped the prostate before you ever had the radiation and were lying in wait somewhere else all that time. It may still be too small to be detectable on a bone scan. Or...
Board: Cancer: Prostate 09-28-2012, 11:12 AM
Replies: 33
Views: 4,419
Posted By Tall Allen
Re: New diagnosis, age 48 no symptoms

What a shock this must be to both of you. I found that psych counseling was very valuable to me at the time of diagnosis. I also joined a PC support group that I still attend. On top of the possible...
Board: Cancer: Prostate 09-26-2012, 05:26 PM
Replies: 1
Views: 593
Posted By Tall Allen
Re: PSA jumped 2 points in 5 weeks

Those are classic symptoms of prostatitis, including PSA shooting up like that. It's been estimated that only about 5% of prostatitis is responsive to antibiotics. If one doesn't work, you can try...
Board: Cancer: Prostate 09-26-2012, 04:19 PM
Replies: 31
Views: 3,499
Posted By Tall Allen
Re: A little concerned

That's what I suspected the DRE would show and was hoping for. Prostate cancer usually has some lumpiness because the tumor areas are harder. When the whole thing is hard in a man your age, the most...
Board: Cancer: Prostate 09-24-2012, 04:15 PM
Replies: 4
Views: 557
Posted By Tall Allen
Re: Meaning of a "clear" biopsy

Congratulations on your negative biopsy. It sounds like you don't want to take no for an answer.:)

Not every PC survivor is a PC expert. Evidently your friend did not know that PSA is not specific...
Board: Cancer: Prostate 09-24-2012, 12:47 PM
Replies: 11
Views: 1,140
Posted By Tall Allen
Re: elevated PSA after TES treatment

As you can tell from my previous comments, I agree with your urologic surgeon. Biopsies are way overdone and often lead to missed cancers, on the one hand, or overdiagnosis of insignificant cancers,...
Board: Cancer: Prostate 09-22-2012, 12:08 PM
Replies: 33
Pca
Views: 3,131
Posted By Tall Allen
re: Pca

Your exercise regimen will pay off in improved results, so I'm really happy to hear how well you're doing it.

For some tips about the hot flashes, go to this link:...
Board: Cancer: Prostate 09-20-2012, 04:19 PM
Replies: 35
Views: 5,633
Posted By Tall Allen
Re: Confused, Anxiety, All so fast - what next?

The experience of the surgeon at performing that specific technique is the single most important factor in determining the outcome, and it sounds like you've found a very experienced surgeon. I'm a...
Board: Cancer: Prostate 09-20-2012, 12:14 PM
Replies: 11
Views: 1,140
Posted By Tall Allen
Re: elevated PSA after TES treatment

The subject of testosterone replacement and prostate cancer comes up a lot, and I welcome the opportunity to address it, as I've looked into it. A lot of people, urologists included, draw an...
Board: Cancer: Prostate 09-19-2012, 05:22 PM
Replies: 11
Views: 1,140
Posted By Tall Allen
Re: elevated PSA after TES treatment

Ordinary MRIs or USs are lousy at detecting small lesions, and would be a waste of time right now, inho.Save the imaging for later if you need it. Testosterone can certainly make BPH flare, or you...
Board: Cancer: Prostate 09-18-2012, 02:10 PM
Replies: 11
Views: 1,140
Posted By Tall Allen
Re: elevated PSA after TES treatment

With an enlarged prostate (BPH), it is likely that the testosterone aggravated your BPH causing your PSA to rise. Testosterone is metabolized into DHT which will further aggravate your BPH. Proscar...
Board: Cancer: Prostate 09-13-2012, 09:58 AM
Replies: 2
Views: 611
Posted By Tall Allen
Re: Stunned by the diagnosis?

Celebrate! (I think you meant it was not positive for tumor). No atypical cells, not even PIN is great!

You might want to review my initial advice to you when you announced on here that you wanted...
Board: Cancer: Prostate 09-10-2012, 10:19 AM
Replies: 2
Views: 617
Posted By Tall Allen
Re: My biopsy experience... results pending

I hope they gave you the additional antibiotics.

Prostate enlargement (BPH) happens to most of us as we age. You can take a 5-ARI (Proscar or Avodart) and an alpha-blocker like Rapaflo if you are...
Board: Cancer: Prostate 09-09-2012, 04:41 PM
Replies: 1
Views: 513
Posted By Tall Allen
Re: My ongoing nightmare:

Thanks for the update. I've heard great things about the new sphincters from guys who have them, and I'm hoping it will work as well for you. I hope at least one of the many doctors you've seen is...
Board: Cancer: Prostate 09-02-2012, 04:57 PM
Replies: 3
Views: 567
Posted By Tall Allen
Re: chances of this being cancer?????????

Is it the left testicle? If so, it's probably a varicocele, which can lead to infertility if left untreated. It's not prostate cancer, if that's what you're worried about. You may want to pick up...
Board: Cancer: Prostate 08-31-2012, 07:33 PM
Replies: 16
Views: 3,847
Posted By Tall Allen
Re: Recovery from Hormonal Therapy. My latest results

It's rather lengthy -- about 10 pages including all the references. Maybe I'll exclude the government references for now, but if in discussions with your oncologist, he would like to see them, let me...
Board: Cancer: Prostate 08-31-2012, 12:01 PM
Replies: 16
Views: 3,847
Posted By Tall Allen
Re: Recovery from Hormonal Therapy. My latest results

Hi Baptista,

I'm wishing you the longest possible vacation.

On the issue of continuous vs intermittent ADT, there was published today in the New England Journal of Medicine, the results of a...
Board: Cancer: Prostate 08-30-2012, 05:38 PM
Replies: 3
Views: 496
Posted By Tall Allen
Re: Anybody thinking about Immunotherapy as a treatment?

That's because there's not yet much available to discuss. The only FDA-approved vaccine for PC is Provenge, but it has only been approved for mCRPC so far. Yervoy is in clinical trials but is...
Board: Cancer: Prostate 08-25-2012, 10:00 AM
Replies: 1
Views: 430
Posted By Tall Allen
Re: ciberknife

I'm certain that if you contact Accuray, either online or by phone, they can tell you where your closest CyberKnife treatment center would be.



It's only one set of four or five treatments....
Board: Cancer: Prostate 08-16-2012, 04:34 PM
Replies: 18
Views: 1,168
Posted By Tall Allen
Re: Diffusion weighted prostate mri or mri spectroscopy

The endorectal coil gives a much better image -- makes a big difference. You're looking for really small soft tissue differences. Some places now have as much as a 10T MRI -- might not improve much...
Board: Cancer: Prostate 08-16-2012, 01:55 PM
Replies: 35
Views: 5,633
Posted By Tall Allen
Re: Confused, Anxiety, All so fast - what next?

Hi Eddie,

In my experience urologist-surgeons are often a pain in the keester to deal with, and some of the best ones are the biggest pains, unfortunately.

You wrote:


You should...
Board: Cancer: Prostate 08-13-2012, 09:51 AM
Replies: 3
Views: 354
Posted By Tall Allen
Re: surgery for urinary incontinence?

I know one guy who had the sling and one who had the sphincter. They were both completely successful -- they use no pads anymore. They tell me the new ones work great. The sling is the less invasive...
Board: Cancer: Prostate 08-03-2012, 10:34 AM
Replies: 33
Pca
Views: 3,131
Posted By Tall Allen
re: Pca

That's great news that your bone scan was clear.

With Gleason 8, and evidence of lymph node involvement, many men take a multimodal approach: neoadjuvant (started 2-3 months before the radiation)...
Board: Cancer: Prostate 08-01-2012, 06:34 PM
Replies: 8
Views: 1,802
Posted By Tall Allen
Re: Sudden PSA rise & Hormonal changes

Hi,
You seem worried about something, but I can't tell what. % free PSA is good. In Europe, you can get the new PHI test (It's been approved in the US, but isn't yet available here) and the PCA3...
Board: Cancer: Prostate 07-22-2012, 04:15 PM
Replies: 34
Views: 3,221
Posted By Tall Allen
Re: Trus biopsy versus mri-ultrasound fusion

As to your other question:


Increasing the diagnostic accuracy of your PSA is certainly a good idea. You can do that by eliminating the sources of error due to BPH and prostatitis. You already...
Board: Cancer: Prostate 07-18-2012, 09:51 PM
Replies: 2
Views: 407
Posted By Tall Allen
Re: Herbal or Prescription for ED?

If you don't like the side effects of Viagra, try Levitra or Cialis. Soon you'll be able to try the newly approved one called Stendra. Many doctors advocate beginning daily dosing (5 mg for Cialis,...
Showing results 1 to 50 of 157
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