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Board: Multiple Sclerosis 05-23-2013, 06:58 PM
Replies: 2
Views: 85
Posted By MSNik
Re: nervous

Valerie,
Hearing the words MS is scary. We have all been there and dont think for a minute that we arent remembering that feeling, reading your words.

Not knowing your age, marital status, etc, I...
Board: Multiple Sclerosis 05-23-2013, 06:47 PM
Replies: 17
Views: 223
Posted By MSNik
Re: Felt Weird Today with Chest pains

I think this is a problem indeed. Next time you call, please tell the receptionist that you were in the ER and you need to follow up with your doctor, per their instructions.
Tell her you...
Board: Multiple Sclerosis 05-23-2013, 05:44 PM
Replies: 17
Views: 223
Posted By MSNik
Re: Felt Weird Today with Chest pains

Luke
I also agree that you need to talk to your Neuro immediately. The MS hug, as upsetting as it is, is not life threatening, and in my experience, has never lasted more than a few days and only a...
Board: Acne 05-23-2013, 02:49 AM
Replies: 5
Views: 117
Posted By MSNik
Re: tanning while using acne medicine?

using differin with tanning, can cause burns. Just so you know, dont risk it. the tanning salon alone can cause you future problems much worse than acne or burning...stay out of the tanning salon. No...
Board: Acne 05-23-2013, 02:48 AM
Replies: 5
Views: 117
Posted By MSNik
Re: tanning while using acne medicine?

using differin with tanning, can cause burns. Just so you know, dont risk it. the tanning salon alone can cause you future problems much worse than acne or burning...stay out of the tanning salon. No...
Board: Acne 05-23-2013, 02:45 AM
Replies: 8
Views: 317
Posted By MSNik
Re: Is going to a dermatologist worthless?

Drewlizard,
I just looked back over all your posts about this and for over a month, you have asked the same question- how come you dont seem to want to believe the answer?

A dermatologist is YOUR...
Board: Multiple Sclerosis 05-23-2013, 02:38 AM
Replies: 13
Views: 232
Posted By MSNik
Re: Am I paranoid?

Amanda,
When I hit severe brain fog in college, I started online classes. I found that with the book sitting next to me, the ability to go back and forth and keep looking up information and...
Board: Multiple Sclerosis 05-22-2013, 05:18 PM
Replies: 17
Views: 223
Posted By MSNik
Re: Felt Weird Today with Chest pains

Luke.
As i stated in above post, tramadol will NOT help chest pains...which goes to prove only one of two things..either this is anxiety, which is highly possible, or you need to see your doctor...
Board: Multiple Sclerosis 05-22-2013, 05:15 PM
Replies: 7
Views: 158
Posted By MSNik
Re: Flying through Dubai with MS.

Hi. I have actually flown through Dubai airport with Rebif...first of all, DO NOT CHECK THE DRUGS! Make sure you carry them on. The cold in the luggage compartment will make the drug unstable, and...
Board: Multiple Sclerosis 05-22-2013, 05:11 PM
Replies: 3
Views: 92
Posted By MSNik
re: bladder test went fine

Hello Old friend!
Im so glad you returned to us! And, Im glad to hear you are still living your life and doing what you can to stay mobile and active!

I am sorry to hear your family/ friends...
Board: Multiple Sclerosis 05-22-2013, 05:08 PM
Replies: 13
Views: 232
Posted By MSNik
Re: Am I paranoid?

Good luck Amanda, Stay positive and let us know how the neuro appointment goes...
Nikki
Board: Multiple Sclerosis 05-22-2013, 03:19 AM
Replies: 13
Views: 232
Posted By MSNik
Re: Am I paranoid?

Amanda,
MS presents like 400 other diseases, making your chances of having MS only one in 400. Try to breathe.

First of all, the odds are in your favor, but secondly, even if you did have MS- so...
Board: Multiple Sclerosis 05-22-2013, 03:14 AM
Replies: 2
Views: 102
Posted By MSNik
Re: Tumefactive ms

Thats very interesting that your doctor is labeling you with this. What led to the diagnosis, if you dont mind me asking?

Im glad you found us....welcome to healthboards. I hope you will share...
Board: Multiple Sclerosis 05-22-2013, 03:12 AM
Replies: 17
Views: 223
Posted By MSNik
Re: Felt Weird Today with Chest pains

Luke - did the tramadol help?
Chest pain shouldnt be affected by Tramadol....which means if it did help, it was anxiety. If it didnt, then it might truly have been some sort of chest pain, and you...
Board: Multiple Sclerosis 05-22-2013, 03:11 AM
Replies: 15
Views: 281
Posted By MSNik
Re: In the hospital

Whimpurr,
Glad you figured it out and you are feeling better. Its a bad year for allergies- be careful!
Nikki
Board: Multiple Sclerosis 05-20-2013, 02:39 AM
Replies: 4
Views: 127
Posted By MSNik
Re: MRI-Did they do the right kind?

Tiffany,
I have to agree. When I get my MRI films, I never look at them. Im not a radiologist and have alot of respect for those who are. I wouldnt be paying someone alot of money to read my films,...
Board: Multiple Sclerosis 05-19-2013, 01:13 PM
Replies: 7
Views: 151
Posted By MSNik
Re: I think I fractured my wrist

I have noticed that with my MS I tend to have a harder time healing either with a cold or even a cut

This isnt actually a fact. You may think its MS related, but it isnt. MS doesnt affect healing...
Board: Acne 05-19-2013, 06:51 AM
Replies: 4
Views: 228
Posted By MSNik
Re: Accutane and the effects

These are not signs of a Vitamin B deficiency. Im actually surprised your doctor doesnt think its from the accutane. The whole time i was on it, I had problems with my eyes being dry- my nostrils...
Board: Acne 05-19-2013, 06:51 AM
Replies: 4
Views: 228
Posted By MSNik
Re: Accutane and the effects

These are not signs of a Vitamin B deficiency. Im actually surprised your doctor doesnt think its from the accuntane. The whole time i was on it, I had problems with my eyes being dry- my nostrils...
Board: Multiple Sclerosis 05-19-2013, 05:10 AM
Replies: 22
Views: 410
Posted By MSNik
Re: update: sharing some results - antibodies

Shahila,
Unfortunately, I think you have to rule MS out at this time. None of your tests are coming back pointing this way. As you already have the thyroid info, I really think that is the direction...
Board: Multiple Sclerosis 05-18-2013, 04:16 PM
Replies: 6
Views: 220
Posted By MSNik
Re: Had to go to ER again last night

Luke. NO. The equate sleep aid is NOTHING LIKE ALEVE. Sleep aides generally have antihistimines in them- and yes, you can take one tonight to help you rest...however they have zero pain relieving...
Board: Multiple Sclerosis 05-18-2013, 04:07 PM
Replies: 14
Views: 374
Posted By MSNik
Re: MS Fatigue

Yes. I do. And so do many others here. remember, you are not alone- all of us have either gone through this, or are going thru it (or will eventually!). Its a sad thing, but thats why we are here, to...
Board: Multiple Sclerosis 05-18-2013, 04:05 PM
Replies: 2
Views: 125
Posted By MSNik
Re: Coversion Disorder?

HI welcome to healthboards. Im sure hearing what you did, is making you upset; but its actually good news. Having had the MRI and not showing anything worrisome, its something to celebrate! ...
Board: Multiple Sclerosis 05-18-2013, 06:24 AM
Replies: 2
Views: 150
Posted By MSNik
Re: Tecfidera anyone????

Tammy, the clinical trials for Tecfidera show a high rate of GI upset mostly in the first two months, followed by a high rate of lowered WBC (white blood count) - this is concerning to me, because it...
Board: Multiple Sclerosis 05-18-2013, 06:20 AM
Replies: 6
Views: 220
Posted By MSNik
Re: Had to go to ER again last night

Luke, both prendisone and tramidol can keep you awake. Im not surprised at all...also, the pain and anxiety arent helping you to sleep. Ill make a suggestion, try taking a Tylenol PM 1/2 hour before...
Board: Multiple Sclerosis 05-18-2013, 06:14 AM
Replies: 7
Views: 187
Posted By MSNik
Re: bugs?

Zipster,
You really do NOT want to take anything that stimulates the immune system, especially ecchinchia or any other herbs.....having MS means a compromised immune system- by taking something...
Board: Multiple Sclerosis 05-18-2013, 06:08 AM
Replies: 2
Views: 191
Posted By MSNik
Re: What should my next step be and what are your thoughts?

Hi and welcome to healthboards.
I too, am going to encourage you to stay away from reading on the internet. It sounds to me like you have good medical care. Having been dx with Hypothryoidism is...
Board: Multiple Sclerosis 05-18-2013, 05:58 AM
Replies: 6
Views: 220
Posted By MSNik
Re: Had to go to ER again last night

Hi luke.
Being that this is so new to you, both the dx and the Rebif- anything is possible. Most people with a new diagnosis want to blame everything on MS and people on injectables tend to get...
Board: Multiple Sclerosis 05-18-2013, 05:48 AM
Replies: 14
Views: 374
Posted By MSNik
Re: MS Fatigue

Your friends may never really get it. How can they if they havent experienced it? Even our loved ones- children, parents, spouses, dont truly understand.

In my own experience, I try to push...
Board: Multiple Sclerosis 05-17-2013, 04:28 PM
Replies: 12
Views: 587
Posted By MSNik
Re: Copaxone side effect

Carbo, Im deathly allergic to Copaxone. I had two severe reactions and stopped breathing at one point, rushed to the ER...

You really need to be careful with any drug- but follow your head and...
Board: Multiple Sclerosis 05-17-2013, 04:01 PM
Replies: 3
Views: 141
Posted By MSNik
Re: allodynia

Unfortunately, the symptoms you described are actually symptoms of about 1000 other diseases- MS would be the least likely thing I would think you should be thinking of. Too many other things present...
Board: Multiple Sclerosis 05-17-2013, 03:57 PM
Replies: 15
Views: 281
Posted By MSNik
Re: In the hospital

Glad to hear you are feeling better and are basically healthy Whipurr. I hate to bring this up, because I know everyone's finances are tight- but you might want to consider hiring someone to come in...
Board: Multiple Sclerosis 05-17-2013, 03:53 PM
Replies: 5
Views: 174
Posted By MSNik
Re: How do I see a neuro immediately?

Hi and welcome to healthboards. Unfortunately, ERs have changed in the past few years. Now, the idea is to treat you , get you out of pain and send you home with a note to follow up with your doctor....
Board: Acne 05-17-2013, 03:21 AM
Replies: 1
Views: 247
Posted By MSNik
Re: Cystic acne and chemicals peels?

A professional will not do a chemical peel on cystic acne. iT will aggravate it and make it worse.

Have you considered IPL laser? Its something you have to have done in a medical spa. They first...
Board: Acne 05-17-2013, 03:16 AM
Replies: 2
Views: 354
Posted By MSNik
Re: I'm Confused About Severe Acne/Cystic Acne

Drewlizard,
Why is what its called important? If you have chronic acne- always suffering from breakouts- and its more than just here and there on your face- consider it severe acne. IT doesnt really...
Board: Acne 05-17-2013, 03:11 AM
Replies: 2
Views: 208
Posted By MSNik
Re: Whats the clear fluid that comes out when you remove a pimple?

It is also made up of white blood cells. White blood cells are part of an infection- they come out when you squeeze them. Each time you squeeze a pimple, you are spreading the infection to the pores...
Board: Acne 05-17-2013, 03:09 AM
Replies: 1
Views: 231
Posted By MSNik
Re: Sea Water!!! are you serious

Salt water has drying affects- therefore people who go in the ocean usually have dry skin. Dry skin, can mean less acne; however it doesnt stop it from forming under the skin- it simply helps dry out...
Board: Multiple Sclerosis 05-17-2013, 03:06 AM
Replies: 2
Views: 124
Posted By MSNik
Re: Most recent flare up has me scared

mamamazzz
I hope you start feeling better soon. Remember that solumedrol can stay in your system up to a month and usually takes 3-5 days to work. Also remember that it can work against us in the...
Board: Multiple Sclerosis 05-17-2013, 03:01 AM
Replies: 14
Views: 374
Posted By MSNik
Re: MS Fatigue

ManagingmyMS,
Im sorry that you are starting to find out exactly what it means to have fair weather friends. I think we all go through this at some point.

There is a fine line between people not...
Board: Multiple Sclerosis 05-17-2013, 02:54 AM
Replies: 12
Views: 587
Posted By MSNik
Re: Copaxone side effect

Carbo, I dont blame you one bit. I know several Copaxone users who all say the same thing. My doctor and Shared Solutions tell me this can happen- and then it happens and they are completely freaked...
Board: Multiple Sclerosis 05-17-2013, 02:51 AM
Replies: 6
Views: 133
Posted By MSNik
Re: tastes in MS

Shahila,
Ageusia would NOT make things taste bitter. When you have Ageusia, you cannot taste or usually smell, anything at all-- although incredibly rare with MS, its highly linked to Thyroid...
Board: Multiple Sclerosis 05-17-2013, 02:49 AM
Replies: 15
Views: 281
Posted By MSNik
Re: In the hospital

Whimpurr,
So sorry to hear this. Please know you are in my thoughts and prayers. Let us know when you know anything.
Nikki
Board: Multiple Sclerosis 05-17-2013, 02:47 AM
Replies: 4
Views: 152
Posted By MSNik
Re: Aches and pains?

Good luck Sunday and with your new doctor Tiffany.

I too suffer from unexplainable aches and pains and occasionally itchiness! Its very random and I learned to live with it a very long time ago. I...
Board: Multiple Sclerosis 05-15-2013, 02:45 AM
Replies: 4
Views: 145
Posted By MSNik
Re: Curiosity Killed The Cat!!!!

Hi chele2774,

I would have to say your story doesnt sound all that familiar. Its not a typical presentation of MS that you are describing; however, not too many things about MS are typical.

You...
Board: Multiple Sclerosis 05-15-2013, 02:40 AM
Replies: 13
Views: 334
Posted By MSNik
Re: Initial consultation with MS specialist

Hi Ohno1010.
Sorry to hear you got the diagnosis, but Im here to tell you, it doesnt have to change your life as far as work goes.

When I was diagnosed, I was doing my undergraduate degree in...
Board: Multiple Sclerosis 05-14-2013, 05:56 PM
Replies: 5
Views: 110
Posted By MSNik
Re: booked a holiday

Maxine,
Dont cancel. I go on tropical vacations where it is very warm and humid yearly...and Im totally heat sensitive. The trick is to stay hydrated and if possible, spend as much time as possible...
Board: Multiple Sclerosis 05-14-2013, 04:00 AM
Replies: 2
Views: 112
Posted By MSNik
Re: Not yet diagnosed.

What you are describing would not be typical of MS onset. There are many symptoms which would accompany MS onset, and you have described none of them.

You really do need to work with your doctor...
Board: Multiple Sclerosis 05-14-2013, 03:58 AM
Replies: 10
Views: 342
Posted By MSNik
Re: Lesions with no diagnosis

Hi there. this does NOT say that you dont meet the criteria for MS.

“combination with the lesion arising within the cervical spinal cord would certainly raise the possibility of demyelination...
Board: Multiple Sclerosis 05-14-2013, 03:50 AM
Replies: 4
Views: 165
Posted By MSNik
Re: Please! need some feedback

I would have to say MS more than likely isnt your issue. MS is a nerve disease- caused by autoimmune, which attacks the spine, brain and eyes. THe symptoms of MS - which are broad- none of which you...
Board: Multiple Sclerosis 05-14-2013, 03:47 AM
Replies: 5
Views: 240
Posted By MSNik
Re: Very scared.... looking for some input

CJ,
I think you can definately rule out ALS- no one who has ALS isnt aware of it to the point where seeing a physician wouldnt end you up with significant testing and there is a test for ALS....
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