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Board: Foot Problems 06-10-2012, 12:37 AM
Replies: 11
Views: 2,164
Posted By K_Lana
Re: Ankle replacement vs debridement, spur removal & peroneal tendon surgery

Hey there,
I got my STAR in Dec of last year, so about 6 mos. I knew the first second I put my foot on the ground that something was not right. But a month ago the pain was so severe I had to go...
Board: Reflex Sympathetic Dystrophy 05-05-2012, 05:18 AM
Replies: 16
Views: 1,651
Posted By K_Lana
Re: Need another surgery and scared!

Blocks helped me a lot in the beginning until I had to have emergency surgery without the right anesthesia. Things went south after that and I've had a hard time since then.

Heat works for me. I...
Board: Reflex Sympathetic Dystrophy 04-25-2012, 11:27 AM
Replies: 16
Views: 2,640
Posted By K_Lana
Re: RSD / CPS following bunion surgery??

I was diagnosed based on what my PT saw over time, my OS saw over time, and what the PM dr. saw.

The block is not a nerve block in one nerve, it is called a sympathetic nerve block and they give...
Board: Foot Problems 04-25-2012, 05:43 AM
Replies: 6
Views: 2,394
Posted By K_Lana
Re: Nerve Pain Following Bunion Surgery

Sandy,

Your PT suggested CRPS and didn't refer you anywhere?

I developed RSD or Complex Regional Pain Syndrome after one of my surgeries. You NEED to get in to see a pain management dr. ASAP....
Board: Foot Problems 04-25-2012, 05:27 AM
Replies: 51
Views: 5,916
Posted By K_Lana
Re: Sprained Ankle/Fracture

Oh how I wish that read this back when you first sprained your ankle. Your story is very much like mine.

YOU NEED TO GET THE ANKLE FIXED. THat is the bottom line. Learn from my mistake and get off...
Board: Foot Problems 04-25-2012, 04:54 AM
Replies: 6
Views: 812
Posted By K_Lana
Re: Posterior Tibial Tendon. OCD lesion

Hi Carlos,

Yes, actually. After my OATS, about 10 mos after, I had go in for debridement of my peroneal tendon and my Posterior tibial tendon. My OS found a tear in my posterior tibial tendon...
Board: Foot Problems 04-22-2012, 11:53 AM
Replies: 2
Views: 160
Posted By K_Lana
Re: So I had an ankle replacement

Hi there! Okay, let me try to answer your questions best I can.

I got RSD after or during the last month or so of having the external fixator from the distraction arthroplasty in 2010. I was...
Board: Foot Problems 02-15-2012, 04:30 AM
Replies: 4
Views: 1,028
Posted By K_Lana
Re: Apparently I didn't have the whole story...

I hear you. I ran, but competed nationally in karate. I had to give that up and give up teaching about 4 mos before I was to test for my 3 rd degree black belt. To come so close and not make that...
Board: Reflex Sympathetic Dystrophy 02-08-2012, 02:23 PM
Replies: 10
Views: 1,659
Posted By K_Lana
Re: burning eyes , RSD ?

Kellyevans40 had some issues with her eyes that were RSD related. Look up some of her posts. I'm not sure what they called the issue she had, but I know it had to be treated pretty quickly and it was...
Board: Foot Problems 01-30-2012, 12:20 PM
Replies: 4
Views: 735
Posted By K_Lana
Re: Foot cramps

WIsh I could help you. My toes cramp up something bad too. I have RSD and I keep bringing it up to both my OS and my PM dr. like a broken record and they look at me like they are staring at a...
Board: Foot Problems 01-26-2012, 09:10 AM
Replies: 113
Views: 14,792
Posted By K_Lana
Re: ankle OCD surgery post Op

*DeLurking*

Okay, I'm am not a newcomer to recovering from ankle surgery, finding new doctors, researching De Dovo,and new types of procedures. I've been through my share of surgeries on the...
Board: Reflex Sympathetic Dystrophy 01-23-2012, 08:30 AM
Replies: 8
Views: 1,993
Posted By K_Lana
Re: BURNING PAIN in feet making me insane! Help please..

I find the freezing cold burning is worse than the hot burning as well. I found for the freezing burning that a warm herbal wrap helps. My mom bought me years ago these foot herbal slippers. Well, I...
Board: Foot Problems 01-07-2012, 10:48 AM
Replies: 9
Views: 2,221
Posted By K_Lana
Re: post operation ankle ligament reconstruction questions

I've had 2 Brostroms of various variations (lol) and numbness is normal. It also took me about 6 mos before the feeling came back in my toes and top of my foot. I've had 6 surgeries on my ankle and...
Board: Reflex Sympathetic Dystrophy 01-06-2012, 08:22 AM
Replies: 15
Views: 1,701
Posted By K_Lana
Re: Am new on here and very frightened of my spread.

It is very scary, the spread. I started out with the rsd in only my ankle/foot. I had a surgery on my leg (emergency) and it spread to my entire leg from hip to toes. Because of the emergency...
Board: Foot Problems 01-06-2012, 07:56 AM
Replies: 5
Views: 700
Posted By K_Lana
Re: Subtailor Fusion

I also had a subtalar fusion 4 weeks ago along with an ankle replacement. The site where the subtalar fusion was done is way more sore than the scar from the replacement. I'm still in a cast too, so...
Board: Foot Problems 01-06-2012, 07:50 AM
Replies: 10
Views: 2,442
Posted By K_Lana
Re: OATS recovery: how long until desk work?

I was up and about about 2 weeks after OATS. BUT, it still was painful not to have a chair or something to rest your leg on at least level with the chair you are sitting on.

As for DeNovo and...
Board: Reflex Sympathetic Dystrophy 11-23-2011, 10:38 AM
Replies: 7
Views: 1,100
Posted By K_Lana
Re: Running out of a medication

Sometimes I"ve been on something new and the pharmacy doesn't have it. I don't go rushing to another pharmacy. I figure I've lived that long without it, what is another day. Don't get yourself in a...
Board: Reflex Sympathetic Dystrophy 10-13-2011, 06:41 AM
Replies: 7
Views: 1,500
Posted By K_Lana
Re: RSD Questions????

Hang in there J-

I went through the same feelings as you. I was shocked and mad and sad that so many people had no clue at what this was. THey still don't. It gets so frustrating to try and...
Board: Reflex Sympathetic Dystrophy 10-03-2011, 04:47 AM
Replies: 8
Views: 1,537
Posted By K_Lana
Re: Wait between trial SCS and permanent implant?

I had a BS stimulator and I think it all depends on getting it scheduled more than anything else. My pm dr. did my trial, but then I had to get an appt. with a neurosurgeon for the pre-op for the...
Board: Reflex Sympathetic Dystrophy 10-01-2011, 08:40 AM
Replies: 32
Views: 5,920
Posted By K_Lana
Re: I'm new. Does your doctor listen to you??

So glad you are getting somewhere and the OS listened to her!! Good idea about not mentioning the RSD. IT would be good to let him come to any conclusions on his own. I hope PT works well for her....
Board: Reflex Sympathetic Dystrophy 09-25-2011, 03:17 PM
Replies: 7
Views: 2,597
Posted By K_Lana
Re: Spinal Cord Stimulator for RSD

Well, I told you my story, and you can do a search for when I was asking questions about it. I did learn that you don't have to have it turned up really high to still have it work. It worked best at...
Board: Reflex Sympathetic Dystrophy 09-25-2011, 05:13 AM
Replies: 32
Views: 5,920
Posted By K_Lana
Re: I'm new. Does your doctor listen to you??

See what the orthopedist says. My pm dr. at first said to me, "No more surgeries". Best case, that would be the case, no more surgeries. But when you have something physically wrong that needs to...
Board: Reflex Sympathetic Dystrophy 09-21-2011, 08:25 AM
Replies: 32
Views: 5,920
Posted By K_Lana
Re: I'm new. Does your doctor listen to you??

Glad I can help. Yesterday I was asking God how this could possibly all work together for my good. So knowing that I can be a help, helps me know something good is coming out of all this.

THere...
Board: Reflex Sympathetic Dystrophy 09-20-2011, 01:01 PM
Replies: 6
Views: 1,346
Posted By K_Lana
Re: Frustrrated

What kind of anesthsia did you have with your other surgeries on your rsd leg? There are certain precautions you can take to help reduce the risk of it getting worse. You should talk to your PM dr....
Board: Reflex Sympathetic Dystrophy 09-20-2011, 05:17 AM
Replies: 6
Views: 1,346
Posted By K_Lana
Re: Frustrrated

Tayden, what type of dr. are have you been seeing? I think you also need to see and OS if your knees are that bad. I have a bad joint plus rsd in my leg and I know it is hard to exercise and no...
Board: Foot Problems 08-29-2011, 04:27 AM
Replies: 21
Views: 5,442
Posted By K_Lana
Re: Ankle Replacement- 24- questions...

That' great that you are doing so well and have mild pain only. I hope you continue to do well.
Board: Reflex Sympathetic Dystrophy 08-23-2011, 08:14 AM
Replies: 2
Views: 867
Posted By K_Lana
Re: Hey old friends. Still kicking.

I'm sorry you are in the limbo waiting period. I'm there too. Had the SCS taken out and on warafin because I'm on a picc line and get blood clots. Can't do any blocks of any type until I'm off of...
Board: Foot Problems 08-18-2011, 08:40 AM
Replies: 9
Views: 2,340
Posted By K_Lana
Re: Any "OATS" Veterans Experiencing Posterior Tibial Tendonitis?

I'm also about the same time out as Kim, from my OATS. I did have a posterior tibial tendon tear post-OATS. I had the surgery for that exactly 10 mos after my OATS surgery. We didn't know going in...
Board: Reflex Sympathetic Dystrophy 08-04-2011, 08:10 AM
Replies: 3
Views: 1,036
Posted By K_Lana
Re: Going to nerologist is this good or bad?

I don't think anyone can answer the question about if you didn't get the block at surgery would you have gotten this....

I've had 6 surgeries on my leg/ankle. All had blocks give at time of...
Board: Reflex Sympathetic Dystrophy 07-25-2011, 05:21 AM
Replies: 2
Views: 806
Posted By K_Lana
Re: Helo , me again.

So sorry. I know for me that listening to worship songs also helps. Remember, there will be good days too. It's all up and down.
Board: Foot Problems 06-29-2011, 07:22 AM
Replies: 6
Views: 3,639
Posted By K_Lana
Re: Ankle Surgery for a torn ligament... What is it called? questions..

Look up pluripotent stem cells. The big question is though... how did he fix your ligament. Think of the stems cells as a minor enhancement to whatever he did. That isn't going to be the main...
Board: Foot Problems 06-29-2011, 04:50 AM
Replies: 6
Views: 3,639
Posted By K_Lana
Re: Ankle Surgery for a torn ligament... What is it called? questions..

You have me stumped because taking bone marrow from your knee would have nothing to do with a ligament repair that I can think of unless he was trying to get some stem cells, but that would be from...
Board: Foot Problems 06-29-2011, 04:42 AM
Replies: 6
Views: 1,847
Posted By K_Lana
Re: Yet another Brostrom question

Hi Zogs-

I've had a Brostrom done twice. Both times I had numness and tingling after. I didn't get feeling back to the top half of my foot until about 6 mos after the surgery.

If your cast is...
Board: Reflex Sympathetic Dystrophy 06-16-2011, 07:51 PM
Replies: 5
Views: 885
Posted By K_Lana
Re: Sympathetic Nevre Block

Groin pain will go away. Warm foot pain is good! Nothing I've figured out to make it last longer. I suggest keeping a pain diary. It wasn't until I started that and I didn't get a block for a month...
Board: Reflex Sympathetic Dystrophy 06-15-2011, 04:17 AM
Replies: 17
Views: 2,876
Posted By K_Lana
Re: Newly diagnosed with RSD

I would get in to a pain management dr. for sympathetic nerve blocks. According to my pm dr. that is the way to make sure it stays mild. You need to do this as soon after your dx as possible.
...
Board: Reflex Sympathetic Dystrophy 06-10-2011, 11:07 AM
Replies: 6
Views: 865
Posted By K_Lana
Re: Just diagnosed

My pain management dr. told me that if they can start doing sympathetic nerve blocks early, like first 3 mos, then there is a very good chance the pain will be reduced. He said it will never go away,...
Board: Reflex Sympathetic Dystrophy 06-09-2011, 04:00 AM
Replies: 7
Views: 1,168
Posted By K_Lana
Re: RSD ???

Mine also started in my foot. My ortho dr. may/may not have suspected it. He didn't say anything, just prescribed Lyrica and then neurontin and never followed up. My PT picked up on it, told me he...
Board: Reflex Sympathetic Dystrophy 05-25-2011, 11:56 AM
Replies: 2
Views: 488
Posted By K_Lana
Re: Thought I'd post a smile

Glad you got to see your grandson and it put a smile on your face. And you are right, if it made you happy, maybe seeing him more will help ease your mental state with all this pain some.

Whatever...
Board: Reflex Sympathetic Dystrophy 05-21-2011, 10:31 AM
Replies: 4
Views: 839
Posted By K_Lana
Re: Zonegran for RSD

I started with 25 a day for 2 weeks and now going up to 50 a day since I was so sleepy on the others. Not sure what I am going to get up to. I think if 50 works then we stay with that.
Board: Reflex Sympathetic Dystrophy 05-20-2011, 05:27 PM
Replies: 4
Views: 839
Posted By K_Lana
Re: Zonegran for RSD

Yes! I am on it and doing ok. Tired, but not like Neurontin. Plus, it helps with weight loss, although I have yet to experience that but my lb a day gain has stopped. Burning has reduced. So, so far...
Board: Reflex Sympathetic Dystrophy 05-19-2011, 04:10 AM
Replies: 8
Views: 1,770
Posted By K_Lana
Re: Is surgery advisable on wrist with RSD?

I'm not planning writst surgery, but my RSD is in my left le/foot. I am discussing ankle replacement or amputation with my OS. He did say, like Kev said, that with proper blocks before AND after, the...
Board: Reflex Sympathetic Dystrophy 05-17-2011, 04:35 AM
Replies: 22
Views: 4,677
Posted By K_Lana
Re: RSD? Yeah, I had that, no big deal.

(((HUGS)))

I've tried Lyrica (allergic), Nuerontin (made me in such a brain fog I couldn't live) and now I'm on zonagran. I'm only taking a very small dose now at night. Will probably up in on...
Board: Reflex Sympathetic Dystrophy 05-11-2011, 06:04 AM
Replies: 2
Views: 2,596
Posted By K_Lana
Re: Question on ketamine cream?

Hey there.

I have some, it's a combination of 4 things, ketamine, lidocaine, amatriptyline (sp?) and something with a G. ANyway, you have to get a compound pharmacy to make it. Most PM docs have...
Board: Reflex Sympathetic Dystrophy 05-10-2011, 02:33 AM
Replies: 8
Views: 1,328
Posted By K_Lana
Re: Couple more questions please

Tina,

I did have several ultrasounds to check for blood clots in March. It didn't do anything to the increase in RSD at all. So don't worry about it too much. It is a bit different feeling than...
Board: Reflex Sympathetic Dystrophy 05-07-2011, 07:18 AM
Replies: 1
Hi.
Views: 488
Posted By K_Lana
Re: Hi.

Hey J-

(((HUGS))) I know hearing it diagnosed for real is bad, even though you knew it was coming. I knew for a month or so that I had RSD, but until I saw the PM dr. and got the official word, I...
Board: Reflex Sympathetic Dystrophy 05-07-2011, 07:06 AM
Replies: 13
Views: 1,757
Posted By K_Lana
Re: hello

Did they try any blocks first? I've been getting blocks weekly since last December. It's only recently that my PM dr brought up SCS after the blocks stopped working and I've had spreading.

I'm...
Board: Foot Problems 05-04-2011, 04:29 AM
Replies: 7
Views: 3,759
Posted By K_Lana
Re: Brostrom Lateral Ligament Reconstruction

Hi there and welcome. :wave:

I've been in your shoes more than once. I won't get in to too many details about my surgical history, but my first surgery started with Brostrom repair, peroneal...
Board: Foot Problems 05-04-2011, 04:11 AM
Replies: 2
Views: 6,027
Posted By K_Lana
Re: Should i get for surgery for ruptured ankle ligaments

I would. I had an unstable ankle for years which eventually led to OCD lesions and another grade 3 sprain. My ankle is toast now. I did have surgery after the last grade 3 sprain, but my first OS...
Board: Reflex Sympathetic Dystrophy 04-30-2011, 10:00 AM
Replies: 17
Views: 3,290
Posted By K_Lana
Re: Iritis caused by RSD anyone else???

Oh my gosh Kelly!!!!!!!!!!

Praying for you!!

I sure hope you are seeing an opthamologist and a good one who knows what he is doing. Was he not agressive enough in treating it from the...
Board: Reflex Sympathetic Dystrophy 04-28-2011, 06:53 AM
Replies: 48
Views: 13,143
Posted By K_Lana
Re: RSD help

I am so sorry Kelly. (((HUGS))) what can they do for the eye, anything? When I've scratched my cornea in the past they gave me numbing drops that made my eye completely numb. Can they give you that?
Showing results 1 to 50 of 67

 











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