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Board: Muscular Dystrophy 08-26-2011, 12:18 PM
Replies: 6
Views: 1,881
Posted By michigani
Re: explain leg problems to friends and family

I often think that the only people on earth who understand are the people on this site. Even the people who love us the most don't and cannot understand.

I've attempted to explain by saying "Tie...
Board: Muscular Dystrophy 07-25-2011, 11:23 AM
Replies: 9
Views: 3,012
Posted By michigani
Re: your opinion/advice on taking creatine and COQ10.

I've taken CoQ10 for years and kept a diary for my doctor. I took 400mg each morning and 800-1000mg dose if I went out somewhere that I anticipated getting tired. It helped.

The affect only lasts...
Board: Muscular Dystrophy 07-01-2011, 11:12 AM
Replies: 23
Facioscapulohumeral Homebound
Views: 4,199
Posted By michigani
Re: Homebound

I LOVE my Kindle. If anyone with MD has thought about one, you can make the font as big as you need (up to 1/2 inch at least) and with most of the newer books the Kindle will read to you and turn the...
Board: Muscular Dystrophy 06-20-2011, 12:27 PM
Replies: 4
Views: 1,853
Posted By michigani
Re: Dropping items

During your EMG, it is possible that the doctor pricked a small nerve. This is not common but I think it can happen. During my muscle biopsy, my doctor clipped a nerve extracting the muscle sample. I...
Board: Muscular Dystrophy 06-06-2011, 01:14 PM
Replies: 12
Views: 4,894
Posted By michigani
Re: My Guinea Pig Testing

Absolutely. Talk to the doctor. The side affects were minimal. I felt like I'd had a strong cup of coffee after taking a dose early in the treatment but that all went away within a week. I can't...
Board: Muscular Dystrophy 05-19-2011, 11:05 AM
Replies: 19
Views: 5,571
Posted By michigani
Re: Possible MD?

Hey Gerry,

I'm really glad you have at least found out some answers and received a diagnosis. That's the first huge hurdle in any case of MD.

My definitive diagnosis is still eluding my doctors...
Board: Muscular Dystrophy 05-17-2011, 08:14 AM
Replies: 16
Views: 3,659
Posted By michigani
Re: Update: My friends still don't get it

True, true, TRUE !!!! :)
Board: Muscular Dystrophy 04-30-2011, 04:45 PM
Replies: 11
Views: 2,123
Posted By michigani
Re: Doc appt Monday

Can you stand on your heels? If not, I believe I can explain why you take steps backwards unexpectedly.....

Your tibialis muscles (shins) are getting weak. Healthy people control their...
Board: Muscular Dystrophy 04-26-2011, 11:42 AM
Replies: 5
Views: 1,767
Posted By michigani
Re: general fatigue

Marlene,

Did you ever see my Healthboards post about the Albuterol treatment I'm on for fatigue? Here's a link:

http://www.healthboards.com/boards/showthread.php?t=751594&highlight=albuterol
...
Board: Muscular Dystrophy 04-26-2011, 10:37 AM
Replies: 16
Views: 3,659
Posted By michigani
Re: My friends still don't get it

Hi Marlene,
I'm sure she's a very good dentist. I'm guessing that she just doesn't know how to handle your situation. I was very fortunate. My adult friends, boss and co-workers all seemed to be...
Board: Muscular Dystrophy 04-14-2011, 10:54 AM
Replies: 4
Views: 2,717
Posted By michigani
Re: LGMD - fingers going limp and unable to grip

Hi Yogaman,

I CANNOT believe you mentioned LGMD1G !!! - I came across an article about type 1G myself about a year ago. I searched the internet for days for any info on that particular type. I...
Board: Muscular Dystrophy 04-06-2011, 11:20 AM
Replies: 13
Views: 4,237
Posted By michigani
Re: Coping with MD?

Hang in there Rira,

Everyone here understands your fears and frustrations. Post here anytime. There are a lot of great people all going through the same thing in various stages of MD. It's very...
Board: Muscular Dystrophy 03-07-2011, 08:49 AM
Replies: 1
Views: 908
Posted By michigani
Re: escalator

Been there, done that! When I was still walking with a cane in Oct 2005, I was in Washington DC with my family. We came to the escalators in the subway and all of a sudden I was terrified to step...
Board: Muscular Dystrophy 05-31-2010, 12:15 PM
Replies: 12
Views: 4,894
Posted By michigani
My Guinea Pig Testing

My MD Clinic doctor started me on a new "experiment". We had a long talk 2 weeks ago about a promising experience that some MD patients have had. I don't want to call it a treatment.....it's still a...
Board: Muscular Dystrophy 06-24-2008, 04:03 PM
Replies: 39
Views: 10,096
Posted By michigani
Re: What Emotions are you dealing with?

Oh yeah, I've felt both of those too. I watch people jump out of their car and run into a store and I think, "Gosh it must be nice to do that without thinking". It's a major event for me to get into...
Board: Muscular Dystrophy 02-07-2008, 01:00 PM
Replies: 1
Views: 1,212
Posted By michigani
Re: blood test for LGMD

There is a testing facility in The States called Athena Diagnostics. They have tests for a few Muscular Dystrophies including a couple for LGMD. Unfortunately, Many LGMDs don't have a blood test yet....
Board: Muscular Dystrophy 09-11-2006, 12:23 PM
Replies: 1
Views: 1,693
Posted By michigani
Re: Looking for people to talk to about LGMD-Part 2

Hey JimmyC,

Wow! That sounds like something I would have written. You sound a lot like me with the same history, stories, symptoms and most important....attitude. The only major difference between...
Showing results 1 to 17 of 17

 











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