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Board: Back Problems 07-31-2011, 04:39 PM
Replies: 17
Views: 3,246
Posted By kelly4004
Re: spinal cord stimulator, does it feel like a tens unit does?

Hi all, I have an scs implanted and No it is not the same as a tens unit it you actually feel it on the inside it is hard to explain, the tens unit was very uncomfortable for me, beut the stimulator...
Board: Reflex Sympathetic Dystrophy 07-15-2011, 07:34 AM
Replies: 2
Views: 693
Posted By kelly4004
Re: no stimulator- now burning?

Run dont do the nerve ablation! Once those nerve are burned good luck getting nerves blocks in the future!!!! also it only lasts about 3 months at a time and has caused RSD to flare and spread crazy...
Board: Reflex Sympathetic Dystrophy 06-18-2011, 11:59 AM
Replies: 9
Views: 1,059
Posted By kelly4004
Re: SCS question and regional anesthesia

Hey klana, my leads inside me are about bra line, the leads arent inside the epidural space thewhole length of spine to the battery, just the connections, Im pretty sure you can still have an...
Board: Reflex Sympathetic Dystrophy 06-17-2011, 04:03 PM
Replies: 9
Views: 1,074
Posted By kelly4004
Re: Swelling

I have the swelling, one of the things I use is a paraffin wax soak, it helps with the cold feeling and the swelling. I cant use any kind of tight stockings my foot is hypersensitive. mostly I...
Board: Reflex Sympathetic Dystrophy 06-15-2011, 09:29 AM
Replies: 17
Views: 2,877
Posted By kelly4004
Re: Newly diagnosed with RSD

Hi walakegirl, When you say you have neuromas, I am guessing mortons neuromas? I had a mortons neuroma surgically removed in my left foot, which is what turned my world upside down. My pod dx me on...
Board: Reflex Sympathetic Dystrophy 06-13-2011, 09:03 PM
Replies: 7
Views: 1,269
Posted By kelly4004
Re: Why not Ketmine

Hi Pain man I live about 15 minutes from the RSD research center headed by dr kirkpatrick.here in tampa. fl. They do not take health insurance and their prices are very high, I was lucky my pain doc...
Board: Reflex Sympathetic Dystrophy 06-10-2011, 11:15 AM
Replies: 7
Views: 1,269
Posted By kelly4004
Re: Why not Ketmine

I dont have any personal experience with the ketamine dose, I think part of the reason not everyone doing it is because alot of insurance companies will pay for it, and most of us are unable to work...
Board: Reflex Sympathetic Dystrophy 05-27-2011, 07:12 PM
Replies: 10
Views: 1,421
Posted By kelly4004
Re: Not a good appt. today.

Hey guys, if any of you have any questions, I just had my scs implanted in dec 2010. I will answer you honestly and you can ask anything. I was scared out of my mind before my trial, and then surgery...
Board: Reflex Sympathetic Dystrophy 05-26-2011, 09:24 AM
Replies: 12
Views: 2,704
Posted By kelly4004
Re: RSD spreading or eat more bananas?

Ok so you are maxed out on topomax, try switching meds ask about lyrica or neurotin, I use a catapress patch i change weekly, this is clonidine and noramally used to control blood pressure, but also...
Board: Reflex Sympathetic Dystrophy 05-23-2011, 11:32 AM
Replies: 23
Views: 2,521
Posted By kelly4004
Re: Desperate mum....Help please.

Ok I found it I hope I can post this, just google dream online the pain puzzle and its about a childrens hospitol in boston I believe, It is very interesting.
I hope this helps
kelly
Board: Reflex Sympathetic Dystrophy 05-19-2011, 08:08 PM
Replies: 8
Views: 1,770
Posted By kelly4004
Re: Is surgery advisable on wrist with RSD?

Hi, I had RSD in my left foot all the way up to my hip and in both hand and arms.
I had a spinal cord stimulator implanted in Dec of 2010. My RSD not only flared but spread to my surgery sites in my...
Board: Reflex Sympathetic Dystrophy 05-12-2011, 06:24 AM
Replies: 2
Views: 2,597
Posted By kelly4004
Re: Question on ketamine cream?

Hi knave, I recently got the cream also mine has ketamine, baclofen,cyclobenzaprine, gabapentin (which is neurotin) and lidocaine. my PM doctor ordered it for me. I got it delivered to my door from...
Board: Reflex Sympathetic Dystrophy 05-04-2011, 10:10 AM
Replies: 8
Views: 1,400
Posted By kelly4004
Re: Having a hard time today.

KLana, Hi there havent been able to see so good lately I am only just now reading your post. It is very hard to give up the things you love to do. All of us here know how hard it is, so we are all...
Board: Reflex Sympathetic Dystrophy 04-29-2011, 02:40 PM
Replies: 23
Views: 8,811
Posted By kelly4004
Re: ketamine cream

Hi hurting,
I really started noticing more that the pain from surgery never went completely away, I just had my scs implanted dec 2010 and revision surgery in jan, Yes my scs works well I am still...
Board: Reflex Sympathetic Dystrophy 04-25-2011, 08:00 AM
Replies: 4
Views: 696
Posted By kelly4004
Re: embarrassed to ask??

Hey guys my pain level with my meds and stimulator are a base line of 3 or 4 with little spikes through out the day of anywhere from 8 to 10 what I consider a flare up is when I am at an 8 or 10 all...
Board: Reflex Sympathetic Dystrophy 04-20-2011, 01:17 PM
Replies: 6
Views: 1,268
Posted By kelly4004
Re: Question about spreading...

Hi KLana, Seeing the psych is actually a good thing people with pain 24/7 usually are depressed. I dont think your doc thinks your crazy, I think that after all your set backs, and the pain he may be...
Board: Reflex Sympathetic Dystrophy 04-17-2011, 09:23 AM
Replies: 23
Views: 8,811
Posted By kelly4004
Re: ketamine cream

K Lana, My doc ordered from custom pharmacy solutions I have Blue cross blue shield and only had to pay 20 dollars for 240 mgs its a 60 supply if i did the math right 2 mgs 4xs a day. I got some...
Board: Reflex Sympathetic Dystrophy 04-17-2011, 09:17 AM
Replies: 9
Views: 1,781
Posted By kelly4004
Re: SCS Be warned

My SCS helps my foot and leg pain with out it I dont think I could walk, My RSD has spread to my incision site UGHh but with out the stimulator I would not have what little independence I have now,...
Board: Reflex Sympathetic Dystrophy 04-13-2011, 02:43 PM
Replies: 11
Views: 2,562
Posted By kelly4004
Re: block worked..now what?

hi azgurlie, usually if the block works that means yes unfortunately. but I am glad they have more blocks scheduled for you, and dont be discouraged if your block wears off if a few days or even...
Board: Pain Management 04-12-2011, 06:36 PM
Replies: 16
Views: 4,207
Posted By kelly4004
Re: Spinal Cord Stimulator Personal Question

Hi ivorylassie, I had my stimulator implanted 12/2010, four weeks after, I had to have surgery to put the leads back in place. as far as the stimulation being stronger or weaker when you move or...
Board: Foot Problems 04-05-2011, 08:21 PM
Replies: 240
Views: 82,148
Posted By kelly4004
Re: Nerve/Leg & Foot Issues (Long)

Oh I am sorry, It really sucks! I hope that all goes good and that you are able to support your family and not be in to much pain.
kelly
Board: Foot Problems 03-10-2011, 04:31 PM
Replies: 240
Views: 82,148
Posted By kelly4004
Re: Nerve/Leg & Foot Issues (Long)

Hi Maggietaz, Dont be discouraged about the blocks, I know when the pain comes back it really hits hard emotionally. I would go to the PT for your 4 visits and tell them your ins is gonna run out...
Board: Foot Problems 03-03-2011, 07:33 PM
Replies: 240
Views: 82,148
Posted By kelly4004
Re: Nerve/Leg & Foot Issues (Long)

I felt absolutely no pain with the sympathetic nerve blocks, I was put to sleep for them because I am big chicken. but I never had any soreness at all what so ever. not for the lower lumbar for my...
Board: Reflex Sympathetic Dystrophy 02-25-2011, 08:06 PM
Replies: 15
Views: 5,204
Posted By kelly4004
Re: rsd spread fast..normal or not

Hi Painman,
I have only had RSD for a year and 2 months for the first 2 months it was only in my left foot, then it spread up my entire leg to my hip, I swear this happened overnight. then about 2...
Board: Reflex Sympathetic Dystrophy 02-20-2011, 09:18 PM
Replies: 21
Views: 6,030
Posted By kelly4004
Re: My husband was just diagnosed with RSD

Hi Msbakely, I am sorry for your husbands pain, I also have RSD in my left foot and leg up to my hip, also spread to my hands. I also had a job that required me to stand on a concrete floor for 10...
Board: Reflex Sympathetic Dystrophy 01-13-2011, 09:06 PM
Replies: 8
Views: 3,041
Posted By kelly4004
Re: going crazy here

Hey tatertim, I am the biggest!!!! chicken I was so nervous and scared before my first nerve block, I almost chickend out. My doctor is also great and puts me at ease, so I did it. I was lucky to...
Board: Reflex Sympathetic Dystrophy 01-12-2011, 08:24 PM
Replies: 8
Views: 3,041
Posted By kelly4004
Re: going crazy here

Hi tatertim, sorry for your pain. I have RSD In my lft foot and entire leg, and in both of my hands. I was diagnosed pretty easily. I had mortons neuroma surgery in my left foot in Dec 09 which...
Board: Reflex Sympathetic Dystrophy 11-11-2010, 12:14 PM
Replies: 13
Views: 5,484
Posted By kelly4004
Re: RSD/CRPS Whats the difference

Hey there, the tremors could be rsd but could also be a side affect of meds, the pain where your leg connects could also be rsd or could be from walking differently protecting your rsd foot. its so...
Board: Reflex Sympathetic Dystrophy 10-31-2010, 05:58 PM
Replies: 13
Views: 5,484
Posted By kelly4004
Re: RSD/CRPS Whats the difference

Hi coosissypoo and welcome, I have had several sympathetic nerve blocks lumbar lower in the back for my left leg and foot and the stellate ganglion in my neck for my hand, i was very scared before my...
Board: Reflex Sympathetic Dystrophy 10-03-2010, 05:48 PM
Replies: 6
Views: 2,267
Posted By kelly4004
Re: weather and rsd??

I absolutely notice this, I live in florida and when it rains my foot and hands hurt horribly also in the winter my foot would turn color fast and also in doctors offices that are real cold. My pain...
Board: Foot Problems 02-17-2010, 07:38 AM
Replies: 25
Views: 12,589
Posted By kelly4004
Unhappy mortons neuroma surgery

Hi, I am new to this, but I really need some advice. I had mortons neuroma surgery between my second and third toes. My pod went in through the top, after surgery he said I had the largest neuroma he...
Showing results 1 to 31 of 31

 











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