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Board: Reflex Sympathetic Dystrophy 04-10-2013, 08:46 AM
Replies: 17
Views: 652
Posted By painman2009
Re: Rsd/crps

The back pain and RSD, if your dealing with spread just might wind up being indecipherable from one another. My back pain was before RSD so I too know what it was like dealing with that,(I could...
Board: Reflex Sympathetic Dystrophy 04-01-2013, 11:49 PM
Replies: 17
Views: 652
Posted By painman2009
Re: Rsd/crps

Hey snowman..
every one is going to give you a different story . from minor differences to complete opposites. RSD/CRPS as well as pain itself is very personal and like a living creature it...
Board: Reflex Sympathetic Dystrophy 01-15-2013, 04:40 PM
Replies: 28
Views: 1,979
Posted By painman2009
Re: RSD=Help! Very confused!!!

Ok so let me first answer the question. my painlevels havent dropped below 7, and I live in 8/9 but telling the difference is this..
I suffered multiple back injuries between 2005 and 2007. those...
Board: Reflex Sympathetic Dystrophy 01-09-2013, 07:24 PM
Replies: 28
Views: 1,979
Posted By painman2009
Re: RSD=Help! Very confused!!!

Hello dear. I too was injured at work and RSD/CRPS was the result of that injury. Now my present job is physical so .(no work for me) but I have worked in Dr,s offices as well in my years doing...
Board: Reflex Sympathetic Dystrophy 12-11-2012, 07:43 AM
Replies: 3
Views: 433
Posted By painman2009
Re: RSD in ear

hmm i know my Dr,s havent a clue ow to test for it in the ear, because they have no test for the head. but they monitor the changes and believe it is RSD.
I will ask next week and see if they have...
Board: Reflex Sympathetic Dystrophy 12-11-2012, 07:14 AM
Replies: 1
Views: 362
Posted By painman2009
Re: Ok to give blood??

to date they do not know what truly "causes" RSD/CRPS so there is no reason to believe her blood is tainted. any way they test the blood before using it. the only thing I would be wary of is the...
Board: Reflex Sympathetic Dystrophy 12-11-2012, 06:59 AM
Replies: 15
Views: 1,358
Posted By painman2009
Re: Triple Phase Bone Scan for RSD

Im disabled due to RSD/CRPS brought on by a work related accident.I'm still out on comp though I did try to return to work. I went for a nuclear bone scan then a tri phase bone scan. Now I await the...
Board: Reflex Sympathetic Dystrophy 06-12-2012, 08:12 PM
Replies: 3
Views: 845
Posted By painman2009
Re: Joint Damage

arthritis likes injury.. so it would not surprise me if you have it.. but RSD is and "it is" all to itself. if you know what i mean. good luck to you.. god speed soft hugs and warm wishes
Board: Disabilities 06-12-2012, 08:05 PM
Replies: 31
Views: 5,701
Posted By painman2009
Re: How Do You Deal with the Negativity?

I send you my heart. and lots of soft hugs. The thoughts you have I am sure is common here. I have a friend that keeps telling me I do not understand pain..(she complains of cramps and ulcer pains) I...
Board: Reflex Sympathetic Dystrophy 06-06-2012, 08:34 PM
Replies: 11
Views: 1,421
Posted By painman2009
Re: RSD/CRPS sufferer from Killen, AL

sorry to see another newbies here in RSD hell.. My best advice is to go into google and type in (RSD CRPS) and research.. see a treatment ask this forum on how it worked for us. just like dx,ing RSD...
Board: Reflex Sympathetic Dystrophy 03-03-2012, 06:56 PM
Replies: 6
Views: 1,196
Posted By painman2009
Re: Doctors

duuuude.. that stinks that your are sooo bound and tied to the workers comp desicion.. I dont know maybe if you could check to see if new jersey has health guide lines for RSD/CRPS.. I just found one...
Board: Reflex Sympathetic Dystrophy 02-24-2012, 09:45 PM
Replies: 6
Views: 1,196
Posted By painman2009
Re: Doctors

hey dan.. umm the comp case worker?? ok im in new york dont know what state you are in nor there regulations but here in ny this is how it goes.. we get hurt at work, we got to er, we either go to dr...
Board: Reflex Sympathetic Dystrophy 02-24-2012, 09:27 PM
Replies: 23
Views: 3,130
Posted By painman2009
Re: Too all rsd sufferers

kudos to that!!!! I sometimes get down and earlier this week i got real down but sharing it with others lifts the spirit. false hope?? I dont believe that exists.. for what is hope but blind belief...
Board: Reflex Sympathetic Dystrophy 02-22-2012, 08:24 PM
Replies: 23
Views: 3,130
Posted By painman2009
Re: Too all rsd sufferers

just a quik note to keep this post new for other newbies.. plus the thought for today
I am awake, i am alive, the world moves on so I MUST survive
Board: Headaches & Migraines 01-09-2012, 09:58 PM
Replies: 4
Views: 4,568
Posted By painman2009
Re: Burning,pinching,squeezing (head in a vice)tingling sensations in head

hey..it could be nerve issues coming from your thorasic spine and even possible lumbar. I know it sounds wierd but my spine specialist explained this to me before one of my many procedures.. and...
Board: Reflex Sympathetic Dystrophy 11-28-2011, 07:33 PM
Replies: 7
Views: 1,111
Posted By painman2009
Re: Running out of a medication

hey. i know little of you whole situation so my answer maybe generic but . I agree with k lana i didnt have it yesterday another day will not kill me. and going to more than one pharmacy is very...
Board: Reflex Sympathetic Dystrophy 11-07-2011, 03:13 PM
Replies: 9
Views: 1,680
Posted By painman2009
Re: RSD and weight loss surgery

dont sell yourself short weight loss is still ml possible. but that requires a significant knowledge of foods, and how to prepare them.. plus the money needed for all the fruits and veggies you will...
Board: Reflex Sympathetic Dystrophy 09-01-2011, 09:28 PM
Replies: 22
Views: 4,483
Posted By painman2009
Re: For the newly diagnosed!

I do not see this as negative just a necessary eye opener.. I do not believe this is meant to steal hope from people just a reality check.. I myself belong to many supportgroups and have heard of...
Board: Reflex Sympathetic Dystrophy 08-16-2011, 08:53 PM
Replies: 23
Views: 3,130
Posted By painman2009
To all rsd sufferers

Either new or old to this beast..times are going to be hard you might get better you might win the prize of remission.GOD HELPING...we all have to be ahead of the curve more knwledgable than our drs...
Board: Reflex Sympathetic Dystrophy 08-08-2011, 08:09 PM
Replies: 5
Views: 1,653
Posted By painman2009
Re: Help for RSD?

finding a knowledgable dr re: RSD is rough any where .. what you need is a dr that doesnt mind learning .. .. you will have to do more research on rsd and be able to teach the drs and attys.. also i...
Board: Reflex Sympathetic Dystrophy 06-16-2011, 12:35 PM
Replies: 18
Views: 2,455
Posted By painman2009
Re: I need some feedback, please :)

we move foward because we have to... today exists and and its always on the move.. and even if we think we are doing nothing we are....accepting this is difficult.. but its either that or insanity.....
Board: Reflex Sympathetic Dystrophy 06-14-2011, 06:55 PM
Replies: 15
Views: 4,673
Posted By painman2009
Re: Curious about others RSD quirks

good luck .. i hope it helps.. please leave the 411 in a new thread ..mark it with the name of the drugs they gave you...best wishes
Board: Reflex Sympathetic Dystrophy 06-13-2011, 08:47 PM
Replies: 7
Views: 1,282
Posted By painman2009
Re: Why not Ketmine

hey ..their is a research center in fla that does it but it is in trials.. ketamine is a psychotropic drug .. so you can see y its still being tested here in the USA. I have read alot about it and...
Board: Reflex Sympathetic Dystrophy 05-30-2011, 08:45 PM
Replies: 28
Views: 6,181
Posted By painman2009
Re: New RSD Diagnosis....Please help

hey all.. first I must comment about ..amputation..dont do it.. that is like killing the patient to cure his disease...almost all the reports ive read show RSD spreads like a forest fire in the...
Board: Reflex Sympathetic Dystrophy 05-23-2011, 07:53 PM
Replies: 16
Views: 4,074
Posted By painman2009
Re: RSD vs Conversion Disorder

Deltagrits.. hey caught this thread a little behind.. if you dnt have a comp atty you should get one espec. with this dx.. comp will run circles around you otherwise. I too am a comp rsder and i...
Board: Reflex Sympathetic Dystrophy 05-17-2011, 07:38 AM
Replies: 22
Views: 4,729
Posted By painman2009
Re: RSD? Yeah, I had that, no big deal.

my drugs are only at night now they took me off of neurontin..wich was 400mg 3x daily it made me groggy amd more of a grump than rsd has already made me plus it was makeing me retain water. and...
Board: Reflex Sympathetic Dystrophy 05-12-2011, 10:10 AM
Replies: 48
Views: 13,207
Posted By painman2009
Re: RSD help

wow this thread has it all how have i missed out on this..you know how many drs i see that have different opinions on the best way to treat RSD. I have seen pros and cons to all the treatments as i...
Board: Reflex Sympathetic Dystrophy 05-08-2011, 06:43 PM
Replies: 13
Views: 1,773
Posted By painman2009
Re: hello

hey guyss. i read all of this .and well wow. we go to drs for treatment , these drs dont understand this infliction at all. Ive had drs say it doesnt spread too and i respond look at my other foot,...
Board: Reflex Sympathetic Dystrophy 05-06-2011, 08:12 PM
Replies: 8
Views: 1,343
Posted By painman2009
Re: Couple more questions please

well what do you know.. I dont fly(affraid of the final crash and boom) but it dsnt matter as i am forbidden by my dr,s to enter a plane due to my rsd and past blood clot.. ths seems to be coming up...
Board: Reflex Sympathetic Dystrophy 05-06-2011, 07:34 PM
Replies: 13
Views: 1,773
Posted By painman2009
Re: hello

wow just diagnosed with rsd and they are already pushing the implant, i see they have you on drugs, just like us all. listen i dont know how long is just diagnosed but did they try non surgical,...
Board: Reflex Sympathetic Dystrophy 05-03-2011, 07:50 PM
Replies: 5
Views: 1,371
Posted By painman2009
Re: I dont know what this is? You decide the Title...

ok why spanked ur in enough pain already... and calm down on the mellow....she doesnt know u as well as i
now let me respond to both rsdfree you need help...for your stress and mellow im sure sees...
Board: Reflex Sympathetic Dystrophy 05-03-2011, 06:53 PM
Replies: 36
Views: 7,182
Posted By painman2009
Re: Looking for encouragement, and maybe a little sympathy...

dont worry we all trip on their many rules ..whats important is that we remain and try not to repeat it..honestly i ddnt read the rules till after i got 2 reprimands..my bad..i try very hard not to...
Board: Reflex Sympathetic Dystrophy 05-03-2011, 06:46 PM
Replies: 8
Views: 1,407
Posted By painman2009
Re: Having a hard time today.

ok ok ..first of all pmsing... we arent all female here.. (lol) we all get loss, i can no longer enjoy creating 3d worlds in life form..walking in my gardens not as enjoyable anymore for i can no...
Board: Reflex Sympathetic Dystrophy 05-03-2011, 12:36 PM
Replies: 36
Views: 7,182
Posted By painman2009
Re: Looking for encouragement, and maybe a little sympathy...

i took it for 5 months and havent needed it since.. and it was the only drug i took..go to p4p and see
Board: Reflex Sympathetic Dystrophy 05-02-2011, 06:39 AM
Replies: 7
Views: 1,134
Posted By painman2009
Re: Neurontin

i know alot of people on this drug ,,and so far im the only one who really has had any complaints..but with my experience i say ..you --be ---cautiouse it is your life and we are already emotionally...
Board: Reflex Sympathetic Dystrophy 04-29-2011, 07:34 PM
Replies: 36
Views: 7,182
Posted By painman2009
Re: Looking for encouragement, and maybe a little sympathy...

sorry guys i tend to lash out at stupidity..and we are unfortunate to see alot of it..my pt is a well of information ..yes and sees i will put myself through all kinds of pain to stop my atrophy..and...
Board: Reflex Sympathetic Dystrophy 04-21-2011, 09:19 PM
Replies: 12
Views: 1,396
Posted By painman2009
Re: its my pain and very personal

i love catching them in there own web of bs and trust be you let them move and eventually if you are diligent you can catch them every time.. and boy is it funn
Board: Reflex Sympathetic Dystrophy 04-20-2011, 05:54 PM
Replies: 6
Views: 1,278
Posted By painman2009
Re: Question about spreading...

ohh sweety if he thought you were nuts you would have sent you to a shrink long ago..
some unhappy facts about the psych of chronic pain.. a large percent of rsd patients are suicidal.. in fact what...
Board: Reflex Sympathetic Dystrophy 04-19-2011, 09:05 PM
Replies: 10
Views: 1,707
Posted By painman2009
Re: Still Looking 4 Answers... 1 1/2 years later

seeking answers doesnt always get you good answers sorry .. it sounds like RSD and i would suggest you see a neurologist.. rsd damage to the sympathetic nervouse system..
when i first got rsd (or...
Board: Reflex Sympathetic Dystrophy 04-19-2011, 08:45 PM
Replies: 6
Views: 1,278
Posted By painman2009
Re: Question about spreading...

hey sweety. sorry it spreads.. please take note that it is nerve damage, and there for is thus far a mystery ..Drs are pretty sure what they do they just cannaot map them as well as they can other...
Board: Reflex Sympathetic Dystrophy 04-18-2011, 02:01 PM
Replies: 9
Views: 1,654
Posted By painman2009
Re: just need to vent selfishly a moment

yeah small wins feel like grand victories.. keep chuggin foward you will have no issues
feel well and be good
Board: Reflex Sympathetic Dystrophy 04-18-2011, 01:59 PM
Replies: 36
Views: 7,182
Posted By painman2009
Re: Looking for encouragement, and maybe a little sympathy...

hey .. i like your husband ..that was a great move.. my drs whom are starting to go in circles i have to put in thier places ..just got a new vasc surg. tdy who needed schooling on touching me.. pain...
Board: Reflex Sympathetic Dystrophy 04-10-2011, 06:49 PM
Replies: 36
Views: 7,182
Posted By painman2009
Re: Looking for encouragement, and maybe a little sympathy...

ohh my god sympathies.. my father got all of his treatment at the va out here..none of them were worth a damne, he first went to them re pain in his back due to the injury he got while serving..but...
Board: Reflex Sympathetic Dystrophy 04-04-2011, 07:41 PM
Replies: 17
Views: 3,177
Posted By painman2009
Re: Can anyone help?

ashlee0715 it sounds like a run around ..june until you can see a neurologists..why not sooner .rsd is seriouse and the longer it takes to treat it the worse it is...june is months away and it could...
Board: Reflex Sympathetic Dystrophy 04-03-2011, 09:57 AM
Replies: 9
Views: 1,654
Posted By painman2009
Re: just need to vent selfishly a moment

soo sorry for you position..and like you said they did not know the posisition they were putting you in, nor did they realize your cans and can nots. I have a guess they might have learned the hard...
Board: Back Problems 03-18-2011, 07:12 PM
Replies: 9
Views: 6,366
Posted By painman2009
Re: MRI report, need help understanding it

I am gald you are moving foward and taking a more sturdy position in your heakth care , i am sorry for your depression,, along with my back issues i suffer from RSD in fact that is where I post the...
Board: Back Problems 03-17-2011, 10:05 PM
Replies: 9
Views: 6,366
Posted By painman2009
Re: MRI report, need help understanding it

hey sorry to here of your problems ..my spine specialist pulled me from work and im out on diability for a bunch of thing herniations and annular tear is one of them..physical therapy is the firt...
Board: Reflex Sympathetic Dystrophy 03-07-2011, 06:09 PM
Replies: 4
Views: 1,882
Posted By painman2009
Re: Disabled from RSD and SSA wants update.

i am surounded by disability insurance short term/ long term ..comp and ssdi
they all are looking for regular updates.. doesnt matter why you are on it they are looking for some reason to take you...
Board: Reflex Sympathetic Dystrophy 03-01-2011, 07:13 PM
Replies: 2
Views: 809
Posted By painman2009
Re: No more guessing

hello friend...wish i had a definate answer for you .unfortunately with rsd/crps we are still guessing... pain blocks narcotics antidepressants painful physical therapy and experimental...
Board: Addiction & Recovery 02-26-2011, 06:13 PM
Replies: 18
Views: 3,711
Posted By painman2009
Re: Bye bye...opiates......hello vodka and bud light

hey sweety. I dont like talk like that.. we need you to stay strong we need you to help yourself as you help us . i have seen some of the advice you give and it is solid...now i ask you do the...
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