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Board: Ear, Nose & Throat 05-28-2013, 03:55 PM
Replies: 16
Views: 484
Posted By jenni9033
Re: Eustachian Tube Dysfunction

I have a T-tube in my worst ear (a replacement for the original pe tube that grew out) and currently no tube remains in the other ear. But I used to have tubes in both ears, and my hearing was weird...
Board: Ear, Nose & Throat 05-27-2013, 04:45 PM
Replies: 16
Views: 484
Posted By jenni9033
Re: Eustachian Tube Dysfunction

I just wanted to post to say that a "click" with swallowing is considered normal e-tube function. E-tubes open briefly throughout the day activated by the swallowing muscles and in order to aerate...
Board: Ear, Nose & Throat 05-27-2013, 03:56 PM
Replies: 22
Views: 698
Posted By jenni9033
Long Term Eustachian Tube Dysfunction Recovery

Some of you have been following my journey with eustachian tube problems, which began for me after taking a flight with severe nasal congestion in December of 2010. I wanted to update with...
Board: Ear, Nose & Throat 03-19-2013, 02:52 PM
Replies: 155
Views: 31,431
Posted By jenni9033
Re: Eustachian Tube Dysfunction - My Diagnosis and Treatment Plan

Hi Shay (and others who have written asking how I'm doing),

Unfortunately last April's TMJD diagnosis I talked about at the beginning of this thread did not prove to lead directly to the cure for...
Board: Ear, Nose & Throat 12-09-2012, 11:37 PM
Replies: 155
Views: 31,431
Posted By jenni9033
Re: Eustachian Tube Dysfunction - My Diagnosis and Treatment Plan

Hi Barb,

I do believe my problem was either kickstarted or completely created by a flight I took Dec 18th of 2010. I fly twice in a day (to my father-in-law's funeral service and back), and I was...
Board: Ear, Nose & Throat 09-06-2012, 03:26 PM
Replies: 27
Views: 2,634
Posted By jenni9033
Re: Need some advice on Eustachian tube dysfunction.

Good luck flying! If you google Flying with Eustachian Tube Dysfunction, it will give you a helpful protocol to follow. I have flown a few times with ETD before I got my pe tubes and was okay...I...
Board: Ear, Nose & Throat 06-28-2012, 11:27 AM
Replies: 4
Views: 622
Posted By jenni9033
Re: Hi newbie here and need your help. Ears Blocked Again !!

Hi Ronnie, sorry to hear you are dealing with this. People who don't have chronic ear problems can hardly imagine how awful it is.

Have you tried Afrin or a similar nasal spray decongestant? That...
Board: Ear, Nose & Throat 06-28-2012, 11:19 AM
Replies: 1
Etd
Views: 340
Posted By jenni9033
Re: Etd

Hi there, sorry to hear you are suffering from this woeful monster, ETD. I wish I could wave a magic wand and cure you. Of course, I'd have to cure myself first. I'm finding out that this journey can...
Board: Ear, Nose & Throat 06-06-2012, 11:16 AM
Replies: 37
Views: 9,475
Posted By jenni9033
Re: Calling all eustachian tube dysfunction sufferers!

I can talk some about pe tubes in adults. I have a history of ear infections as an adult, and in December 2010 ended up with a double ear infection that turned into ETD. Flying while congested is...
Board: Ear, Nose & Throat 05-15-2012, 10:27 PM
Replies: 6
Views: 8,194
Posted By jenni9033
Re: Ear Twitch/Spasm

Hi, I am so sorry to hear you are going through this. Nobody should have to live this way.

It sounds like you have middle ear myoclonus -- it's like an eyelid twitch, except it's either your...
Board: Ear, Nose & Throat 05-07-2012, 11:33 AM
Replies: 211
Views: 53,456
Posted By jenni9033
Re: Blocked left ear but no pain...

Is it sad that I chewed up a tablet of Gas-X to a pulp without swallowing, then laid down and let it sort of coat the back of my throat for a good twenty minutes? (Do not attempt this at home,...
Board: Ear, Nose & Throat 04-26-2012, 09:39 AM
Replies: 211
Views: 53,456
Posted By jenni9033
Re: Blocked left ear but no pain...

Buffalo, the palate flex thing I do...I am not sure if I learned it as part of my body's respond to ETD, or if I've always been able to do it but never really needed to or cared to. But it's called...
Board: Ear, Nose & Throat 04-23-2012, 06:21 PM
Replies: 211
Views: 53,456
Posted By jenni9033
Re: Blocked left ear but no pain...

Buffalo, Flexeril and Klonapin are the two drugs that I alternate when I'm at that "I can't stand this another second" point. Because both have anti-spasm/muscle-relaxant properties, and because they...
Board: Ear, Nose & Throat 04-20-2012, 11:25 AM
Replies: 22
Views: 3,326
Posted By jenni9033
Re: Eustachian tube dysfunction- I need some help!

We'll keep you in our thoughts and prayers, TMJ. If left untreated, this ETD stuff can do some serious damage to the delicate structures of our ears. I'm angry whenever I encounter doctors who...
Board: Ear, Nose & Throat 04-18-2012, 04:13 PM
Replies: 155
Views: 31,431
Posted By jenni9033
Eustachian Tube Dysfunction - My Diagnosis and Treatment Plan

Some of you have been following my struggles with eustachian tube dysfunction (which began in October 2010 and got infinitely worse in December 2010). I thought I would write up a brief synopsis of...
Board: Ear, Nose & Throat 04-18-2012, 03:18 PM
Replies: 22
Views: 3,326
Posted By jenni9033
Re: Eustachian tube dysfunction- I need some help!

Hi ladies (and any gents who also might be reading),

I'm starting a new thread to detail my recent doctor's appointment a bit more. I also just got done with the new local specialist I'm working...
Board: Ear, Nose & Throat 04-08-2012, 08:33 PM
Replies: 27
Views: 2,634
Posted By jenni9033
Re: Need some advice on Eustachian tube dysfunction.

Hi! I'm sure the one I bought was the home version. It's the one sold over-the-counter in drugstores in Canada. My husband brought it home from a business trip as a gift! (Ah, the romance of ETD,...
Board: Ear, Nose & Throat 03-31-2012, 04:11 PM
Replies: 5
Views: 1,092
Posted By jenni9033
Re: EarPlanes?

I used them before I got my pressure equalization tubes put in to try to protect my ears, since I have ETD and barotrauma (apparently) caused by flying with congestion. They seemed to help. Also, my...
Board: Ear, Nose & Throat 02-28-2012, 12:00 PM
Replies: 8
Views: 3,759
Posted By jenni9033
Re: Noise triggers crackling in ear

Hi, ask your doctor about middle ear myoclonus. It's like a muscle twitch behind the eardrum, and yes, it can be sound-activated. Voices activate mine. It comes and goes, but I've had this particular...
Board: Inner Ear Disorders 12-26-2011, 11:47 PM
Replies: 5
Views: 7,285
Posted By jenni9033
Re: Feeling of "fullness", hissing, eardrum won't open - following bad cold

Hi, it sounds like Eustachian Tube Dysfunction, which I have had for just over one year now. Mine started after a flight with a cold ands sinus congestion lead to plugged ears and a middle ear...
Board: Ear, Nose & Throat 12-13-2011, 09:51 AM
Replies: 3
Views: 3,500
Posted By jenni9033
Re: blocked/clogged ears

Hi John, it sounds like eustachian tube dysfunction, to me. The problem lies with some blockage or inflammation either behind the eardrum in the middle ear space or in the eustachian tube that...
Board: Ear, Nose & Throat 11-03-2011, 11:00 PM
Replies: 9
Views: 6,527
Posted By jenni9033
Re: Muted thumping noise in left ear triggered by sound in right ear!

Sounds like a form of middle ear myoclonus. I have this, also noise-triggered, but the noise affects the same ear with the myoclonus for me. It's basically a muscle spasm, much like an eyelid twitch....
Board: Ear, Nose & Throat 10-28-2011, 05:26 PM
Replies: 3
Views: 3,161
Posted By jenni9033
Re: Vibration in the Left Ear

Hello, sorry to hear you are suffering. Your condition brings to mind either middle ear myoclonus or tensor tympani syndrome. The vibration may be worsened by stress, and it may have to do with tiny...
Board: Ear, Nose & Throat 10-20-2011, 12:43 PM
Replies: 102
Views: 46,910
Posted By jenni9033
Re: My Story of Eustachian Tube Dysfunction

Dlt, soooooo excited and happy to read this! I will write more soon; am on a bus touring Savannah, GA, right now, ha ha! But had to log in and see what u had to say. :):):)
Board: Ear, Nose & Throat 10-19-2011, 04:47 AM
Replies: 102
Views: 46,910
Posted By jenni9033
Re: My Story of Eustachian Tube Dysfunction

Lenore, I have heard of sinus surgery performed concurrent with tube surgery. A dr in NYC (I think?) does it that way. Also, I read about a little-understood sinus located behind the eyes that can...
Board: Ear, Nose & Throat 10-06-2011, 12:08 PM
Replies: 102
Views: 46,910
Posted By jenni9033
Re: My Story of Eustachian Tube Dysfunction

So glad this thread is helping others cope with this ETD misery/mystery, even if it doesn't take away all our pain magically (wish there was a way...sounds like the balloon surgery is the closest...
Board: Ear, Nose & Throat 09-12-2011, 11:27 AM
Replies: 102
Views: 46,910
Posted By jenni9033
Re: My Story of Eustachian Tube Dysfunction

Hi Leah,

Sorry to hear you are going through this ordeal as well. Your symptoms sound almost dead-on like mine, even down to the ear that's being affected (my "bad" ear is the right ear, although...
Board: Ear, Nose & Throat 08-07-2011, 02:29 AM
Replies: 11
Views: 263
Posted By jenni9033
Re: Eustachian Tube Dysfunction? Please answer.

Hi Kkek,

Sorry to hear you are going through this. Yes, it's annoying and disheartening, to say the least. Nobody can quite understand how distressing an ear issue is until they've experienced it...
Board: Ear, Nose & Throat 07-28-2011, 11:17 AM
Replies: 15
Views: 13,882
Posted By jenni9033
Re: severe ear pressure wont go away!! help !! h

Hi Matthew,

My pressure feels worse when I am up and active. In fact, I often wake up and feel okay until I get out of bed. Then it's either back, or it comes on later and then gradually worsens...
Board: Ear, Nose & Throat 07-04-2011, 01:09 AM
Replies: 9
Views: 11,987
Posted By jenni9033
Re: Eustachian Tube Dysfunction? Please answer.

Hi Kelly,

From my research, this condition can last days, weeks, months, or even longer. For me, it's been about 7 months and counting. You can read more on this board by searching "eustachian...
Board: Ear, Nose & Throat 05-28-2011, 12:05 PM
Replies: 3
Views: 963
Posted By jenni9033
Re: symptoms returning after stapedectomy

I was given a muscle relaxant for my myoclonus, which I only heard when there was noise coming into the affected ear. It seemed to help, as the instances grew fewer and eventually it stopped. I'll...
Board: TMJ Disorder -TemporoMandibular Joint 02-07-2011, 11:43 AM
Replies: 20
Views: 20,554
Posted By jenni9033
Re: For those with ear problems, what exactly does it feel like?

Ah, I feel for you so much...the crying spells, the terrible anxiety. :(

My humming is focused on one ear, as well, but like yours the popping/clogging/pressure is sometimes in both ears,...
Board: Ear, Nose & Throat 01-31-2011, 11:27 AM
Replies: 59
Views: 45,618
Posted By jenni9033
Re: Need some advice on Eustachian tube dysfunction.

Hi, I understand your frustration. I just went through 48 days straight of Eustachian Tube Dysfunction horror show. It started with a flight I took when I had a cold, then progressed to a middle...
Showing results 1 to 33 of 33

 











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