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Board: Lupus 06-28-2011, 04:44 AM
Replies: 22
Views: 8,501
Posted By brooklyngirl
Re: I just want answers. Defeated.

My first rheumatologist also diagnosed me with fibromyalgia even though I didn't have any muscle pain/buring/depression. I refused this wastebasket diagnosis (not saying people don't have it, but it...
Board: Arthritis 06-28-2011, 04:31 AM
Replies: 4
Osteoarthritis Inflamation/Prednisone
Views: 775
Posted By brooklyngirl
Re: Inflamation/Prednisone

If your heart rate is that high you really need to call your doctor because it can be dangerous, so for that it is valuable to call in health wise. However, if you are feeling better and your heart...
Board: Fibromyalgia 06-23-2011, 04:18 AM
Replies: 34
Views: 6,816
Posted By brooklyngirl
Re: wierd symptom ???

This would really depend on what symptoms you are having. The muscle aches and fatigue leading to the flu-like feeling could be a part of fibromyalgia, but if you are having symptoms like low fevers...
Board: Lupus 06-18-2011, 10:30 AM
Replies: 6
Views: 1,580
Posted By brooklyngirl
Re: New and waiting on test results...

My BP is actually low for a normal bp reading (90/60) and goes lower when I feel worse (80/50). It would make sense that the stress of a flare would raise the BP though, I just seem to be the...
Board: Fibromyalgia 05-22-2011, 03:33 AM
Replies: 5
Views: 1,197
Posted By brooklyngirl
Re: weird pain

Absolutely check on the vitamin d level, like someone else wrote it affects calcium and magnesium absorption and we need magnesium for our muscles. You could even try taking a small dose of a...
Board: Fibromyalgia 05-08-2011, 03:20 AM
Replies: 3
Views: 1,181
Posted By brooklyngirl
Re: Narcotic prescribing...Rheumy/Pain Managmanet doctor in Brooklyn, NY

My friend (has RA) goes to Dr. Howard Michael Belmont in Manhattan. He receives narcotics as needed for his pain. Dr. Belmont is affiliated with NYU Hospital for Joint Diseases and his office is...
Board: Lupus 05-02-2011, 05:48 AM
Replies: 4
Views: 1,174
Posted By brooklyngirl
Re: Should I have my 14yr old tested for lupus?

I don't think it would hurt anything to have her checked just to be sure. I have vitiligo and not all of my white patches are extremely white in color. Vitiligo can destroy some of the melanin and...
Board: Fibromyalgia 04-23-2011, 01:09 PM
Replies: 2
Views: 941
Posted By brooklyngirl
Re: fibromyalgia??

I would get a second opinion because these symptoms are not consistent with fibromyalgia without any muscle pain. Fibromyalgia can include some numbness and tingling but I don't think its to the...
Board: Lupus 04-13-2011, 03:59 PM
Replies: 2
Views: 838
Posted By brooklyngirl
Re: Orthopedist thinks it's lupus, any suggestions?

You certainly could have Lupus, but the rheumatologist will probably do more tests to make sure its not something else. You could keep a journal of any symptoms and what you were doing or eating...
Board: Fibromyalgia 04-13-2011, 03:50 PM
Replies: 2
Views: 720
Posted By brooklyngirl
Re: Introduction, Fibro & New Skin Disorder

Sounds similar to the sores I sometimes get and mine is caused by Lupus, I often get them on my scalp but they also appear on my arms and legs. I don't believe that fibromyalgia can cause sores. A...
Board: Fibromyalgia 04-13-2011, 04:52 AM
Replies: 9
Views: 1,421
Posted By brooklyngirl
Re: Questioning my rheumy's paperwork

I have been taking vicodin since 2006 and have no addiction problems, some doctors think all patients are drug addicts and have had problems in the past which cause them to hesitiate to give the meds...
Board: Fibromyalgia 04-03-2011, 04:16 AM
Replies: 4
Views: 1,051
Posted By brooklyngirl
Re: New here! struggling with FMS pain

You are right about healthy people having mouth ulcers, they should only get maybe a few a year. I get them all the time and they are painless but caused (in my case) by Sjogren's Syndrome and...
Board: Fibromyalgia 04-01-2011, 03:36 AM
Replies: 23
Views: 8,344
Posted By brooklyngirl
Re: Anyone else who thinks they are misdiagnosed?

Tia
Those bumps may be swollen lymph nodes, I get them all the time and your primary doctor can check them to be certain that is what they are. I have no doubt that many people are misdiagnosed...
Board: Fibromyalgia 03-29-2011, 09:06 AM
Replies: 43
Views: 5,309
Posted By brooklyngirl
Re: what do you love? what brings you joy?

Seeing my little boys (ages 1 and 3) smiling and playing makes everything else seem very far away and knowing I was able to do something that caused the smile is wonderful because I have a hard time...
Board: Fibromyalgia 03-28-2011, 03:29 AM
Replies: 6
Views: 1,189
Posted By brooklyngirl
Re: Could it be FM

It is very easy to get frustrated by doctors. My primary is the one that insisted I had Sjogren's Syndrome and possibly SLE and did not believe the first rheumy either, if it had not been for her...
Board: Fibromyalgia 03-27-2011, 04:36 AM
Replies: 6
Views: 1,189
Posted By brooklyngirl
Re: Could it be FM

All of my blood tests came back negative too and my former rheumatologist diagnosed me with fibromyalgia even though I have absolutely no muscle pain. She was very wrong. I fired her and went to...
Board: Fibromyalgia 03-19-2011, 05:25 AM
Replies: 15
Views: 2,698
Posted By brooklyngirl
Re: Question about doctors and pain meds

First, taking a pain med is not going to make you an addict unless you take several everyday for months, so you don't have to be afraid of asking for help when you need it. I have been on vicodin...
Board: Fibromyalgia 03-17-2011, 04:46 PM
Replies: 2
Views: 580
Posted By brooklyngirl
Re: Need doc in Arkansas

I don't know about doctors in your area (sorry I live in NYC) but you can check a fibromyalgia website (I think its a .org site) that has a list of fibro doctors all over the country. Also, if you...
Board: Fibromyalgia 03-17-2011, 04:39 PM
Replies: 6
Views: 4,350
Posted By brooklyngirl
Re: Back Muscle pain, feels like stomach ulcer Pain!

I have never heard of that happening, but if you have that much pain on a regular basis you may want to have your dr check it out. Ulcers can be very painful and dangerous. Do you notice if any...
Board: Fibromyalgia 03-15-2011, 12:29 PM
Replies: 23
Views: 2,847
Posted By brooklyngirl
Re: out with the old, in with the new rheumy!!

Hope your new rheumatologist is better than the last! I too had a bad rheumy and only gave her six months then I told my primary I wanted a referral to a new one and she agreed. I finally got in and...
Board: Fibromyalgia 03-09-2011, 12:16 PM
Replies: 17
Views: 3,237
Posted By brooklyngirl
Re: I have to gripe again...

I get that a lot, especially from people I work with. They keep asking me why I am putting in eyedrops at every break (I have Sjogren's) and why I keep rubbing my fingers (SLE) or why I am so tired...
Board: Fibromyalgia 03-03-2011, 03:11 PM
Replies: 8
Views: 4,235
Posted By brooklyngirl
Re: Has anyone tried Amitriptyline (Elavil)

I took it for about a month for migraine prevention, but I was so tired and out of it all day that I had to stop taking it. I was concerned that I may get hurt at work (I work on machines with lots...
Board: Fibromyalgia 03-02-2011, 01:34 PM
Replies: 18
Views: 5,842
Posted By brooklyngirl
Re: All System Overload!

Have you ever tried Cipro for the UTI? I was put on that other one you mentioned and had a bad reaction to it, but the Cipro works fine and I did not have any reactions. I know what it is like...
Board: Fibromyalgia 02-23-2011, 05:06 PM
Replies: 7
Views: 1,310
Posted By brooklyngirl
Re: cold, cold floors, natural gas

We have natural gas and wood heat in our house and always have since we moved here from NYC (we had oil heat in our apartment there). Our house is cold and I usually wear a sweatshirt or cover with...
Board: Fibromyalgia 02-23-2011, 01:15 PM
Replies: 3
Views: 1,133
Posted By brooklyngirl
Re: Is it RA or Fibro? Or is it me needing to vent?

Both RA and fibro can make you tired so you may go by any other symptoms you are feeling at the same time. I have constant joint pain in my hands and feet (thankfully x-ray did not show any damage)...
Board: Fibromyalgia 02-23-2011, 01:09 PM
Replies: 7
Views: 1,068
Posted By brooklyngirl
Re: shaking/my doctor's "plan"

I know how you feel. My rheumatologist put me on Savella and I feel much worse than I did taking nothing. I have an appointment to see her tomorrow during which I will tell her to keep her meds...
Board: Fibromyalgia 02-16-2011, 04:32 AM
Replies: 12
Views: 2,192
Posted By brooklyngirl
Re: Have I really got it?!

Usually it takes at least three months of widespread pain and fatigue along with 11 of the 18 tender points to get a diagnosis and that is after ruling out everything else with tests. It sounds like...
Board: Fibromyalgia 02-15-2011, 10:33 AM
Replies: 6
Views: 5,001
Posted By brooklyngirl
Re: Positive ANA,High Sed Rate...Now what do i do?

Positive ANA and high sed rate point towards autoimmune issues, however, they can take years to get a diagnosis. I have been in the process of being tested for Sjogren's Syndrome and Lupus even...
Board: Fibromyalgia 02-15-2011, 04:23 AM
Replies: 6
Views: 1,131
Posted By brooklyngirl
Re: OK - The BIG question - why isn't Fibro recognised?

Fibromyalgia is a recognized medical syndrome in the US and we have several medications that have been specifically approved for fibromyalgia treatment. There are still many doctors that use it as a...
Board: Fibromyalgia 02-09-2011, 04:26 PM
Replies: 3
Views: 821
Posted By brooklyngirl
Re: Wht do doctors know ?? RANT

I have similar pain from my shoulder through my arm and mine is caused by nerve compression from ruptured discs in my neck. I have ruptured discs throughout my spine. Muscle relaxers did help - a...
Board: Fibromyalgia 01-20-2011, 02:17 PM
Replies: 14
Views: 2,707
Posted By brooklyngirl
Re: what is my future like?

I also take online courses, it is the only way I will ever complete my degree. I have a hard time going outside because I am so sensitive to the sun that I have to wear very high SPF sunblock and...
Board: Fibromyalgia 01-10-2011, 09:20 AM
Replies: 32
Views: 5,368
Posted By brooklyngirl
Re: Just got fired

I lost my job due to medical reasons in 2008 and filed for disability....twice. Got denied both times and just applied for disability for the third time, this time I am using a lawyer. It feels...
Showing results 1 to 32 of 32

 











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