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Board: Dizziness / Vertigo 06-18-2013, 08:03 AM
Replies: 4
Views: 155
Posted By Fantine
Re: Terrible vertigo and dizziness, where do I go from here??

Glad to hear it. Let us know what you find out, OK?
Board: Dizziness / Vertigo 06-17-2013, 06:22 PM
Replies: 5
Views: 85
Posted By Fantine
Re: Can anyone explain why cycling helps?

I'm sorry to hear that this is such a long, drawn-out process. Based on what I know, you should have an MD or audiologist perform a Dix-Hallpike test which puts your head in specific positions and...
Board: Dizziness / Vertigo 06-17-2013, 03:14 PM
Replies: 5
Views: 85
Posted By Fantine
Re: Can anyone explain why cycling helps?

I assume that your doctors have ruled out Meniere's and BPPV?
Board: Dizziness / Vertigo 06-17-2013, 03:04 PM
Replies: 5
Views: 85
Posted By Fantine
Re: Can anyone explain why cycling helps?

Well, maybe when you're cycling, your brain is occupied with maintaining your balance and rejects whatever stimulus is causing the vertigo. On an escalator, you and your brain at rest, not working...
Board: Dizziness / Vertigo 06-16-2013, 04:52 PM
Replies: 4
Views: 155
Posted By Fantine
Re: Terrible vertigo and dizziness, where do I go from here??

I think that you need to insist that you get referred to an ENT. The Epley maneuver should be done by an ENT or an audiologist, rather than the patient. Point out to the MD that you have to be...
Board: Sjögren's Syndrome 01-23-2013, 11:09 AM
Replies: 8
Views: 557
Posted By Fantine
Re: Generic Evoxac

Well, the only thing I can think of is that your health insurance plan doesn't give you cheaper prices for generic medication. Maybe you can call your plan?
Board: Sjögren's Syndrome 01-18-2013, 03:04 PM
Replies: 8
Views: 557
Posted By Fantine
Re: Generic Evoxac

Express Scripts, which used to be Medco. It's the mail order pharmacy that my health insurance plan uses. Kroger's must be trying to get rid of the brand name version. Did you specifically ask for...
Board: Sjögren's Syndrome 01-11-2013, 11:41 AM
Replies: 3
Views: 401
Posted By Fantine
Re: Hello and Lip biopsy Post Treatment

I don't know the answer to your question about Evoxac, but, based on what I know about how Evoxac works, I THINK that it only operates to stimulate the salivary glands and would not impact the...
Board: Sjögren's Syndrome 01-11-2013, 11:37 AM
Replies: 3
Views: 401
Posted By Fantine
Re: Hello and Lip biopsy Post Treatment

I don't know the answer to your question about Evoxac, but, based on what I know about how Evoxac works, I THINK that it only operates to stimulate the salivary glands and would not impact the...
Board: Sjögren's Syndrome 01-11-2013, 11:29 AM
Replies: 3
Views: 260
Posted By Fantine
Re: Help with lab results

I recall hearing that "au" means arbitrary units, while "u" just means units. So, I don't think that you can compare "u/ml" to "au/ml" as they're probably NOT the same. Maybe call your doctor's...
Board: Sjögren's Syndrome 11-29-2012, 04:03 PM
Replies: 4
Views: 428
Posted By Fantine
Re: What tests are there to check for sjogren's?

I would definitely talk to your doctor about getting a prescription for Evoxac. Many people find that it helps them with dry mouth and also dry eyes.
Board: Sjögren's Syndrome 11-29-2012, 02:37 PM
Replies: 4
Views: 428
Posted By Fantine
Re: What tests are there to check for sjogren's?

You can ask your internist or a rheumatologist to do some blood tests. I think that most typically, they would test for RF, ANA, and SSA and SSA for Sjogrens. The trouble is that some people (like...
Board: Sjögren's Syndrome 11-28-2012, 01:51 PM
Replies: 8
Views: 557
Posted By Fantine
Generic Evoxac

I just wanted to let everyone know that I went to renew my Evoxac today, and it was finally available as a generic. My three-month supply was $15. :)
Board: Acid Reflux / GERD 10-24-2012, 03:37 PM
Replies: 3
Views: 408
Posted By Fantine
Re: I think the Target brand Zantac was making my reflux worse

Personally, I have only used Zantac and Protonix 40 mg, and I haven't experimented with other drugs. As for the generics, my doctor told me that there can real differences in the inactive...
Board: Acid Reflux / GERD 10-24-2012, 10:00 AM
Replies: 3
Views: 408
Posted By Fantine
Re: I think the Target brand Zantac was making my reflux worse

Lots of people would agree with you that there are significant differences among various generic medications. CVS must be buying a different generic than Target. Ask the pharmacist at CVS which...
Board: Sjögren's Syndrome 10-12-2012, 05:36 AM
Replies: 18
Views: 1,420
Posted By Fantine
Re: Having Sjogrens without positive labs?

The doctor may have said sicca syndrome, which means dry mouth/eyes. My rheumatologist won't do a lip biopsy unless there is some medical need to confirm Sjogrens as opposed to some other disease. ...
Board: Hearing Disorders 08-18-2012, 03:33 PM
Replies: 3
Views: 707
Posted By Fantine
Re: Hypercompliant Ear with Otosclerosis??

Nope. The first ENT I spoke to did say that my audiogram indicated that I had a bone gap, which is why he sent me for the first CT scan. But the radiologist's report eliminated both otosclerosis...
Board: Hearing Disorders 08-17-2012, 04:20 PM
Replies: 3
Views: 707
Posted By Fantine
Re: Hypercompliant Ear with Otosclerosis??

I have bilateral otosclerosis which was not properly diagnosed for over 10 years. I had two CTs scans fives year apart, and both times, the radiologists missed the otosclerosis. It was only a very...
Board: Sjögren's Syndrome 07-29-2012, 06:02 AM
Replies: 2
Views: 519
Posted By Fantine
Re: hair quality

If you're a woman who is post-menopausal, then hormonal changes are likely to be the cause of changes in hair quality (and quantity) more than any auto-immune condition. Lots of women in their 50s...
Board: Sjögren's Syndrome 07-20-2012, 03:11 PM
Replies: 11
Views: 1,044
Posted By Fantine
Re: I think i have sjorens

My rheumatologist told me that she doesn't do lip biopsies unless there is a need to eliminate another disease as the source of dryness. She says that you're supposed to treat symptoms, so unless...
Board: Sjögren's Syndrome 07-16-2012, 01:46 PM
Replies: 11
Views: 1,914
Posted By Fantine
Re: Hearing loss and loud ringing in ear!

I've had tinnitus for over a decade. In almost all cases, it is due to damage to the auditory nerve and/or the hair cells in your inner ear, such as exposure to excessively loud music or other...
Board: Hearing Disorders 06-27-2012, 08:33 AM
Replies: 12
Views: 947
Posted By Fantine
Re: stapedectomy tomorrow in turkey

Hang in there!
Board: Hearing Disorders 06-26-2012, 05:31 PM
Replies: 12
Views: 947
Posted By Fantine
Re: stapedectomy tomorrow in turkey

You are hearing your pulse because the packing prevents your ear from hearing anything from the outside. Don't worry, it will go away once all the new outside sounds start to reach your ear. Your...
Board: Hearing Disorders 06-23-2012, 06:22 AM
Replies: 70
Views: 7,618
Posted By Fantine
Re: 2nd ear stapedectomy for otosclerosis

My surgery was April 2011, and I still occasionally get pain in my operated ear. My surgeon doesn't think it's significant. Personally, I think it must be from very small scars in the ear, but I...
Board: Hearing Disorders 06-23-2012, 06:19 AM
Replies: 70
Views: 7,618
Posted By Fantine
Re: 2nd ear stapedectomy for otosclerosis

I was told that your hearing won't stabilize until at least 8 weeks after surgery, so I wouldn't worry about the results you're getting less than 4 weeks ago. IIRC, my ear was still draining fluids...
Board: Hearing Disorders 06-23-2012, 06:06 AM
Replies: 0
Views: 509
Posted By Fantine
Bilateral Stapedectomies

Hello, I would like to hear from people who had bilateral otosclerosis and stapedectomies in both ears. Did you have any problems with taste or dry mouth after the surgeries? I have bilateral...
Board: Acid Reflux / GERD 05-31-2012, 02:30 PM
Replies: 28
Views: 2,279
Posted By Fantine
Re: Awaiting Nissan Fundoplication, does it work?

I was actually at my gastro doctor today for a consult. He told me that only 50% of Nissan procedures work long-term, half of the time the stomach will unwind. He thinks that surgery should be the...
Board: Sjögren's Syndrome 05-24-2012, 11:34 AM
Replies: 4
Views: 1,056
Posted By Fantine
Re: Shingles

This is a vaccine for shingles now, and you should talk to your doctor about getting it if you're worried about shingles.
Board: Sjögren's Syndrome 05-11-2012, 03:42 PM
Replies: 19
Views: 3,000
Posted By Fantine
Re: Undiagnosed and frustrated

Try Ayr Saline Gel for your dry nose. It's OTC. You just put a dot of the gel on a Q-tip and spread it inside the lower part of your nostril, and then use the other side of the Q-tip for the other...
Board: Sjögren's Syndrome 05-06-2012, 06:34 AM
Replies: 5
Views: 1,254
Posted By Fantine
Re: SO DRY can not swallow....

Have you spoken to your doctor about taking a prescription drug like Evoxac? It seems to help many people with dry mouth.
Board: Hearing Disorders 05-05-2012, 08:08 PM
Replies: 18
Views: 1,493
Posted By Fantine
Re: Stapedectomy next May 3er in Argentina

Glad to hear everything went well!
Board: Hearing Disorders 05-01-2012, 04:39 PM
Replies: 18
Views: 1,493
Posted By Fantine
Re: Stapedectomy next May 3er in Argentina

Good luck!
Board: Sjögren's Syndrome 04-30-2012, 05:44 AM
Replies: 13
Views: 8,690
Posted By Fantine
Re: A full days work with sjogrens

Do you mind if I ask you if you were able to retire early on disability? If you prefer not to answer, that's fine. Thanks in any event.
Board: Hearing Disorders 04-22-2012, 07:44 AM
Replies: 18
Views: 1,493
Posted By Fantine
Re: Stapedectomy next May 3er in Argentina

Good luck, Martin, and please stay in touch with us!
Board: Hearing Disorders 04-20-2012, 06:14 AM
Replies: 70
Views: 7,618
Posted By Fantine
Re: 2nd ear stapedectomy for otosclerosis

Clare, congratulations on your successful surgery!
Board: Hearing Disorders 04-13-2012, 03:11 PM
Replies: 70
Views: 7,618
Posted By Fantine
Re: 2nd ear stapedectomy for otosclerosis

Irony of ironies: I had a bad cold the very day that my second ear stapedectomy was scheduled. I had already cancelled it, but I suspect that the surgeon would have refused to operate on me once he...
Board: Hearing Disorders 04-10-2012, 06:25 AM
Replies: 70
Views: 7,618
Posted By Fantine
Re: 2nd ear stapedectomy for otosclerosis

Thanks for asking Clare. I really don't expect to make a decision anytime soon. I need to talk to several doctors first, including my surgeon.
--Fantine
Board: Hearing Disorders 04-06-2012, 07:13 AM
Replies: 0
Views: 776
Posted By Fantine
Post-stapedectomy ear protection

Anyone who has undergone a stapedectomy remembers all the warnings about not getting water in your ear when you shower or wash your hair. You have to put a cotton ball with vaseline on it in your...
Board: Hearing Disorders 04-06-2012, 07:08 AM
Replies: 13
Views: 1,652
Posted By Fantine
Re: stapedectomy and Early Hearing Tests

I can tell you that my hearing gradually improved over weeks, and then months, as my brain figured out what to do with all the new sounds that it hadn't heard for some 20 plus years. Things will...
Board: Hearing Disorders 04-06-2012, 07:05 AM
Replies: 2
Views: 640
Posted By Fantine
Re: Looking for a Top Notch Doctor in the Boston Area for Stapendectormy

I don't have any names for you, but I suggest that you look for a "neurotologist" working at all the local medical school faculties (Departments of Head and Neck Surgeries). Also, call and ask local...
Board: Sjögren's Syndrome 04-05-2012, 10:18 AM
Replies: 6
Views: 2,102
Posted By Fantine
Re: Eustachian tube dysfunction

If you have any links about the problem, I would interested. I was actually under the impression that the dysfunction that Sjogrens causes to the tubes is to keep them open, rather than closed. . .
Board: Hearing Disorders 04-04-2012, 04:46 PM
Replies: 70
Views: 7,618
Posted By Fantine
Re: 2nd ear stapedectomy for otosclerosis

@Clare

I have to make an appointment to see my surgeon. There's usually some weeks' wait to see him, unfortunately.
Board: Hearing Disorders 04-04-2012, 12:37 PM
Replies: 70
Views: 7,618
Posted By Fantine
Re: 2nd ear stapedectomy for otosclerosis

BTW, I wanted to let all the stapedectomy people know that there are "shower caps" for ears, which are used in beauty salons for hair coloring. They look just like mini versions of the elasticized...
Board: Hearing Disorders 04-04-2012, 12:31 PM
Replies: 70
Views: 7,618
Posted By Fantine
Re: 2nd ear stapedectomy for otosclerosis

@Nickle1

Thanks for the suggestion -- I will definitely ask my surgeon to check his notes regarding the nerve in my left middle ear.
Board: Hearing Disorders 04-03-2012, 05:17 AM
Replies: 70
Views: 7,618
Posted By Fantine
Re: 2nd ear stapedectomy for otosclerosis

Hi Clare,
My internist thinks that the dry mouth is probably due to Sjogrens, even though I tested negative for it. She said that there are lots and lots of false negatives for Sjogrens, especially...
Board: Hearing Disorders 04-02-2012, 04:01 PM
Replies: 70
Views: 7,618
Posted By Fantine
Re: 2nd ear stapedectomy for otosclerosis

Thanks for the support! My thinking is that I want to do more research and talk to doctors before making a decision. Once I have the second surgery, it's irrevocable, so I want to be conservative...
Board: Hearing Disorders 04-02-2012, 06:30 AM
Replies: 70
Views: 7,618
Posted By Fantine
Re: 2nd ear stapedectomy for otosclerosis

I also have bilateral otosclerosis and had a very successful stapedectomy on my left ear in April 2011. The surgeon completely closed a 50-dB bone gap, and I now have normal hearing in my left ear. ...
Board: Sjögren's Syndrome 03-28-2012, 07:35 AM
Replies: 0
Views: 1,026
Posted By Fantine
Sjogrens screen test results

I finally got my hands on the test results from the Sjogrens screen my doctor ordered. The ANA is just listed as "negative," with no numerical value. The SSA is 9 and the SSB is 36, where <100 is...
Board: Sjögren's Syndrome 03-17-2012, 02:01 PM
Replies: 6
Views: 2,102
Posted By Fantine
Eustachian tube dysfunction

Has anybody with Sjogrens experienced any problems with their eustachian tubes creating a sensation of your ear being blocked, as if you were in a plane that is descending or ascending? Anybody have...
Board: Sjögren's Syndrome 03-17-2012, 12:09 PM
Replies: 14
Views: 2,140
Posted By Fantine
Re: GP completely unfamiliar with Sjogrens

Could you ask your rheumy to call or write your GP with some general information that would be helpful for your GP to have in order to better treat you?
Showing results 1 to 50 of 85
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