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Board: Myositis 02-27-2013, 10:22 AM
Replies: 20
Views: 2,942
Posted By hopefloats36
Re: Elevated CPK Level

[/U]

Ladybud,
You are a wealth of information. Do you have a medical background?
I will add the question of repeating anti-mitochondrial antibodie labs to my list for the doc. I do remember at...
Board: Fibromyalgia 02-25-2013, 05:52 PM
Replies: 4
Views: 271
Posted By hopefloats36
Re: Recirring cormea abrasion

Hi Gina, Did you have a follow-up with an eye doctor (MD) for the recurring corneal abrasions? If not, I would make one. I was diagnosed with EBMD (epithilial basement membrane dystrophy) and 2 years...
Board: Fibromyalgia 02-25-2013, 05:36 PM
Replies: 11
Views: 408
Posted By hopefloats36
Re: Ok hope I get feedback I answer frequently help!

Hi Cathy, Sorry to hear you are not feeling well. I was wondering if you've ever had breath testing by your GI doc for SIBO (small intestinal bacterial overgrowth), or Fructose Malabsorption, or...
Board: Myositis 02-25-2013, 05:18 PM
Replies: 20
Views: 2,942
Posted By hopefloats36
Re: Elevated CPK Level

Ladybug, Thank you for your feedback. Last year I did test negative for a hep panel. I'm not sure that the enzymes were fractionized last year or not and GGT doesn't sound familiar so I don't think...
Board: Liver & Pancreas Disorders 02-25-2013, 12:01 PM
Replies: 14
Views: 2,674
Posted By hopefloats36
Re: Slightly high ALT/AST

And....how is it going with you and your liver? I'm curious because my ALT and AST are elevated...higher than last year when the billirubin was also high. I'm having another ultrasound next month....
Board: Myositis 02-25-2013, 11:40 AM
Replies: 12
Views: 4,392
Posted By hopefloats36
Re: Myositis and bloodwork

I guess I'm not the only one whose blood results didn't confirm myosits. My muscle biopsies (2) did, but they ended up questioning the results of those. It's been hard having a symptomatic medical...
Board: Myositis 02-25-2013, 10:39 AM
Replies: 20
Views: 2,942
Posted By hopefloats36
Re: Elevated CPK Level

Yes, I have muscle weakness/fatigue in my proximal muscles. My CPK was never elevated. A muscle biopsy confirmed inflamatory myositis with type 2 muscle fiber atrophy. The myositis Dx was later...
Board: Myositis 02-22-2013, 04:03 AM
Replies: 3
Views: 1,472
Posted By hopefloats36
Re: Polymyositis- family doctor doesn't have a clue about this illness

HiPattianne24, A neurologist once told me that autoimmune diseases tend to run in packs. Frustrating isn't it? Hope you have been doing better.
Board: Myositis 02-22-2013, 03:35 AM
Replies: 20
Views: 2,942
Posted By hopefloats36
Re: Elevated CPK Level

Hi Blessed to be me,
Was wondering how you have been doing. We have some similar issues. Was it ever determined why your ALT and AST were elevated? Mine are more elevated than one year ago...still...
Board: Lupus 02-22-2013, 03:08 AM
Replies: 12
Views: 1,406
Posted By hopefloats36
Re: confused and no dx.

Hi Ladybug,
Interstitial lung disease may also be prevalent with Myositis. Autoimmune diseases are so frustrating and sometimes definative diagnosis are challenging to come by. Hang in there all.
Board: Myositis 02-22-2013, 02:46 AM
Replies: 14
Views: 6,103
Posted By hopefloats36
Re: Muscle Weakness - Myasthenia Gravis

To jwood,
Glad to hear your son's MG is being managed well with medication.

Continued better health for your son. :-)
Board: Myositis 02-22-2013, 02:34 AM
Replies: 6
Views: 1,393
Posted By hopefloats36
Re: prevastatin and myositis/high cholesterol

I have burning pain in my proximal muscles upon exertion of them. It was not known the cause of my myositis although years prior to diagnosis I used a medication to lower my cholestrol. I was not...
Board: Dysphagia 01-30-2013, 05:42 PM
Replies: 5
Views: 632
Posted By hopefloats36
Re: Desperately need help...

I had <a manometry study> for dysphagia done and it diagnosed weakened esophageal muscles, etc. You will need to go to a GI practice that has a specialist in this testing and diagnosis.
It's...
Board: Bowel Disorders 01-30-2013, 05:27 PM
Replies: 3
Views: 583
Posted By hopefloats36
Re: Ridiculous amount of gas and other fun stuff

Has your GI doctor ordered breath testing for SIBO Small Intestional Bacterial Overgrowth, Fructose Malabsoption and Lactose Intolerance? It made all the difference in the world for me to get the...
Board: Irritable Bowel Syndrome (IBS) 01-30-2013, 05:19 PM
Replies: 1
Views: 299
Posted By hopefloats36
Re: Is it really IBS?

Find GI doctor that dos the breath testing for Fructose Malabsorption, Lactose Intolerance, and SIBO Small Intestinal Bacterial Overgrowth. Getting the right diagnosis made all he difference in the...
Board: Nutritional Disorders 01-30-2013, 05:11 PM
Replies: 2
Views: 654
Posted By hopefloats36
Re: Vitamin D Deficiency and Calcium

More than likely, 1,200 IU's won't be enough for you. I'm surprised your doc didn't write you a script for 50,000 IU which is what you'll need to rectify your situation. You are VERY deficient....
Board: Family & Friends of Addicts and Alcoholics 08-19-2012, 06:47 PM
Replies: 3
Views: 368
Posted By hopefloats36
Re: Advice for parents of 19yr old drug user?

This thread continues on...so I'm back as well. I continue to work with our local community organization to provide drug & alcohol awareness and education to our young people and community at large....
Board: Grief & Loss 04-17-2012, 11:45 AM
Replies: 5
Views: 1,430
Posted By hopefloats36
Re: 26 Year Old on the Journey to Losing My Mother!

I'm sincerely sorry for the loss of your beloved mother. Both our mom's died of GI cancers...my mom's cancer was bile duct. I'm relieved that you made the opportunities to spend that time with your...
Board: Irritable Bowel Syndrome (IBS) 04-17-2012, 11:25 AM
Replies: 9
Views: 6,616
Posted By hopefloats36
Re: Sibo

Hi MaryAnn,

I've been taking Culturelle Health & Wellness Formula probiotic (CVS) for the last 1 1/2 wks as I started diarrhea and mild stomach gurgling again. Not too problematic, but in...
Board: Aging Issues 04-07-2012, 05:45 PM
Replies: 16
Views: 7,047
Posted By hopefloats36
Re: What you see in others that makes them look old.

Way too much sun ages skin more than anything. I see so many people with that extremely dark, leathery skin...the sun worshipers. They usually looks many years older than their actual age. Not to...
Board: Aging Issues 04-07-2012, 05:40 PM
Replies: 9
Views: 5,364
Posted By hopefloats36
Re: Gaining weight after 45

Know that too much magnesium will cause diarrhea...so beware.
Also, don't forget that the thyroid gland regulates our metabolism and our mood. Google hypothyroidism which is very common in women....
Board: Aging Issues 04-07-2012, 05:27 PM
Replies: 15
Views: 8,150
Posted By hopefloats36
Re: I hate looking younger than I really am.

Hi Alex. It looks like you have connected with some people with similar situations here. That's great to know that you are not alone. Fortunately or unfortunately, we all grow older...some of us look...
Board: Addiction & Recovery 04-07-2012, 04:57 PM
Replies: 9
Views: 1,357
Posted By hopefloats36
Re: Looking for some support - trying to stop drinking

Is your decade long drinking problem an alcohol addiction? That's a really important question for you to answer. Being honest with yourself is the easiest part of your journey. The day in and day out...
Board: Bowel Disorders 04-07-2012, 04:35 PM
Replies: 14
Views: 2,967
Posted By hopefloats36
Re: My Life Revolves Around a Toilet

To that6irl:
Most definately keep looking for answers to why you have these GI symptoms. I think the answers are out there for you. I always felt that about me...how unfortunate that it took me 10...
Board: Irritable Bowel Syndrome (IBS) 04-02-2012, 07:01 AM
Replies: 14
Views: 2,062
Posted By hopefloats36
Re: Bacterial Overgrwth diagnosed - feeling down, anyone else have it?

I am going to try the probiotic Culturelle - Natural Healh & Wellnes Formula...not the Digestive Formula. It was recommended by the nurtitionist I saw for Frusctose Malabsorption and SIBO. I am on...
Board: Alternative Medicine 03-31-2012, 08:38 AM
Replies: 4
Views: 1,566
Posted By hopefloats36
Re: Can't Sleep Naturally

Hi GAH58...I'm back again. I've previouly used amitryptiline which wasn't successful for sleep for me. I used Trazodone with great success. It's also an antidepressant that's primarily used for sleep...
Board: Grief & Loss 03-30-2012, 10:22 PM
Replies: 3
Views: 1,031
Posted By hopefloats36
Re: Loss of daughter

My condolances to you both. I know the sadness of loosing a child as well. My son was 26 and what happened 19 months ago when my world crashed in still feels like it happened yesterday. The...
Board: Bowel Disorders 03-28-2012, 01:48 PM
Replies: 3
Views: 1,367
Posted By hopefloats36
Re: Lactose Intolerance?

Keeping a food diary is really important. Record everything you eat and drink and the quantities. Record your symptoms and the times they occur. It will help you to find patterns.

Lactose...
Board: Bowel Disorders 03-28-2012, 01:38 PM
Replies: 7
Views: 2,239
Posted By hopefloats36
Re: Scared it's not IBS

To LuSmith....Today I just posted a lengthy response to the thread "My life revolves around the toilet" here in this forum. Please go there and read my response. I hope it helps your situation. Best...
Board: Bowel Disorders 03-28-2012, 01:28 PM
Replies: 14
Views: 2,967
Posted By hopefloats36
Re: My Life Revolves Around a Toilet

OK....don't you just love doctors who make you think it's all in your head when they fail to diagnose what's really wrong with you. Your stories were my stories....exactly. For over 10 years I was a...
Board: Anemia 03-28-2012, 12:51 PM
Replies: 1
Views: 1,014
Posted By hopefloats36
Re: Low iron but no anemia?

Make sure you eat plenty of fiber and drink more water while you are taking iron supplements. Iron can cause constipation rather quickly.
Board: Alternative Medicine 03-28-2012, 11:58 AM
Replies: 4
Views: 1,566
Posted By hopefloats36
Re: Can't Sleep Naturally

I have used Calms Forte by Hylands in the past for sleep problems. My naturopathic doc at the time recommended them. I needed to take 4 of the tiny pills at one time but had good results with them....
Board: General Health 03-28-2012, 11:07 AM
Replies: 1
Views: 672
Posted By hopefloats36
Re: Leg Cramp during sleep, What med. is good for it?

Has your iron and ferritin been tested. Low levels can cause muscle cramping. I went through this for many years before I discovered the connection. Feel better soon!
Board: General Health 03-28-2012, 11:00 AM
Replies: 7
Views: 659
Posted By hopefloats36
Re: Any thoughts? Fatigue etc..

To bartonse...after being diagnosed with IBS and miserable with horific GI symptoms for over 10 years, I tested positive for Fructose Malabsorption (FM) and Small Intestinal Bacterial Overgrowth...
Board: Irritable Bowel Syndrome (IBS) 03-27-2012, 11:12 PM
Replies: 7
Views: 3,846
Posted By hopefloats36
Re: Severe IBS, anxiety, and no end in sight...

Hello Rachael Bunny...I also have SIBO and Fructose Malabsorption and have been on the FODMAP diet. I saw a dietician experienced with these issues and have the latest information on the diet. I'm...
Board: General Health 03-27-2012, 10:45 PM
Replies: 7
Views: 659
Posted By hopefloats36
Re: Any thoughts? Fatigue etc..

Were you tested for an elevated CK level, active Epstein-Barr Virus, Thyroid disease, or anemia?
Board: Autoimmune Disorders 03-27-2012, 10:00 PM
Replies: 8
Views: 1,818
Posted By hopefloats36
Re: Autoimmune? Can't get a DX

How are you ladies doing? I've been following and wondering if there were any updates on your medical issues.
Board: Autoimmune Disorders 03-27-2012, 09:32 PM
Replies: 4
Views: 1,073
Posted By hopefloats36
Re: What's going on here?

Related to your GI symptoms...ask for breath tests for SIBO (Small Bowel Intestinal Bacterial Overgrowth) and FM (Fructose Malabsorption). After 10 years of GI symptoms and being told I had IBS, I...
Board: Grief & Loss 03-25-2012, 11:33 PM
Replies: 5
Views: 1,430
Posted By hopefloats36
Re: 26 Year Old on the Journey to Losing My Mother!

You have had many losses at a young age. I'm so sorry for that and my heart is heavy for you as you anticipate the death of your ailing mom. I'm glad you have your boyfriend to stand by you. Don't be...
Board: Grief & Loss 03-25-2012, 10:58 PM
Replies: 1
Views: 745
Posted By hopefloats36
Afterlife

Just finished watching the movie entitled Afterlife starring Matt Damon. It tells the touching stories of 3 characters who lives intertwine in a special way. Those of you looking for comfort may...
Board: Irritable Bowel Syndrome (IBS) 03-14-2012, 12:46 PM
Replies: 13
Views: 4,755
Posted By hopefloats36
Re: IBS can lead to SIBO

Hi MaryAnn, Oh those LUCKY ones! Don't we just love them. lol

I made the time today to check out Dr. Pimentel's site. I felt compelled to order the book on Amazon. I don't know if my GI doc has...
Board: Family & Friends of Addicts and Alcoholics 03-14-2012, 12:30 PM
Replies: 15
Views: 2,642
Posted By hopefloats36
Re: Advice for parents of 19yr old drug user?

1moretime, I'm not so sure that because the young man hasen't yet admitted drug use to his parents that he can't be helped. It's just not that cut and dry for everyone. Most children aren't going to...
Board: Irritable Bowel Syndrome (IBS) 03-13-2012, 03:01 PM
Replies: 13
Views: 4,755
Posted By hopefloats36
Re: IBS can lead to SIBO

All righty then...I made you feel better! I never knew that having fat in my stool would be something to have in common with someone else!!! Ha, ha. As I was reading your response I was laughing so...
Board: Irritable Bowel Syndrome (IBS) 03-12-2012, 08:53 PM
Replies: 13
Views: 4,755
Posted By hopefloats36
Re: IBS can lead to SIBO

Hi MaryAnn,
I'm happy to hear from you, but sorry to hear you are still having symptoms. Did you ever have the breath test for Fructose Malabsorption? The FM symptoms are quite similar to those of...
Board: Irritable Bowel Syndrome (IBS) 03-12-2012, 01:09 PM
Replies: 9
Views: 6,616
Posted By hopefloats36
Re: Sibo

I was treated for SIBO, Small Bowel Intestional Bacteria Overgrowth with Xifaxin 550 mg 3x's daily for 2 weeks. 3 months later I repeated the treatment. Feeling much better. I was initially...
Board: Irritable Bowel Syndrome (IBS) 03-12-2012, 12:57 PM
Replies: 13
Views: 4,755
Posted By hopefloats36
Smile Re: IBS can lead to SIBO

Hi to meirocco and Twinkie50,
I can relate to your diagnosis and treatment of SIBO and the symptoms you've endured. I endured these symptoms for over ten years. You are not alone. In my humble...
Board: Addiction & Recovery 03-12-2012, 11:34 AM
Replies: 10
Views: 1,931
Posted By hopefloats36
Re: very confused , dont know where to turn

Hi mearl37, It's great to hear that you've chosen to be substance free and you are going on 14 days, You must feel encouraged about the direction you are going in. I would encourage you to keep...
Board: Digestive Disorders 03-06-2012, 01:17 PM
Replies: 4
Views: 2,076
Posted By hopefloats36
Re: HELP!!! Gastro health deteriorating fast

BRINYSKYSAIL: Wondering how you are making out with dealing with Fructose Malabsorption. I have it too as well as SIBO.
Board: Digestive Disorders 03-06-2012, 12:56 PM
Replies: 0
Views: 962
Posted By hopefloats36
Fructose Malabsorption and Low FODMAP Diet

Has anyone out there been diagnosed with Fructose Malabsorption and/or using the Low FODMAP Diet? I would like to hear from you.
Board: Addiction & Recovery 03-06-2012, 12:15 PM
Replies: 10
Views: 1,931
Posted By hopefloats36
Re: very confused , dont know where to turn

I'm glad you reached out for help with your situation. Addiction is a medical issue that you might consider addressing with your physician who is prepared to assist you. Let him know about your...
Showing results 1 to 50 of 53
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