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Board: Neuropathy 09-26-2012, 09:56 PM
Replies: 4
Views: 755
Posted By Ruby8
Re: Please help me 22 year old with loads of problems !!!!

Hi Ryan - I feel for you being so young and having this terrible experience. Your symptoms are different from what I have read on this board before, so I hope someone reads your post who can relate...
Board: Neuropathy 09-25-2012, 09:17 PM
Replies: 2
Views: 584
Posted By Ruby8
Re: Lip Biopsy to test for Sjorgen's Disease

Hi June - I certainly do wish you well, although for me personally there seemed no point in having such tests to confirm Sjogren's--that is if I have dry eyes and dry mouth, well there is no cure for...
Board: Neuropathy 07-26-2012, 08:45 PM
Replies: 29
Views: 3,246
Posted By Ruby8
Re: Gabapentin

Hi - No, Gabapentin didn't make me dizzy. It doesn't do anything for numbness--no drug does as far as I know or I sure would be taking it. The 100 mg 3 times a day routine is how the med is usually...
Board: Neuropathy 07-25-2012, 11:27 PM
Replies: 29
Views: 3,246
Posted By Ruby8
Re: Gabapentin

Hi - I have taken Gabapentin since I was diagnosed with SFN over 3 years ago. I only take 300 mg 2 times a day. In the beginning it made me very tired, but that effect wore off. I also take...
Board: Neuropathy 07-25-2012, 11:59 AM
Replies: 8
Views: 761
Posted By Ruby8
Re: Newby - need some info on sfn please

I don't think a "skin" biopsy can determine if any specific person's SFN has a genetic cause. On the other hand, a "sural nerve" biopsy is a biopsy performed to determine if small fiber nerves have...
Board: Neuropathy 07-12-2012, 09:56 AM
Replies: 23
Views: 3,014
Posted By Ruby8
Re: nerve conduction test

Good morning Nola - I personally don't have vision problems and haven't heard others mention vision problems with neuropathy, so I never researched that aspect. The tremors you mention also don't...
Board: Neuropathy 07-11-2012, 08:21 PM
Replies: 23
Views: 3,014
Posted By Ruby8
Re: nerve conduction test

Hi to you two scheduled for an EMG and probably a NCV test. Everyone experiences pain differently, but for me these tests weren't overly painful--just uncomfortable. Most importantly to be aware...
Board: Neuropathy 05-30-2012, 11:08 PM
Replies: 4
Views: 864
Posted By Ruby8
Re: neuropathy diagnosis in question

Hi Sands819 - Sounds like your podiatrist is talking out of his field and beyond his expertise. If the nerve conduction study showed you have neuropathy, then you have neuropathy, and it is the type...
Board: Neuropathy 05-22-2012, 07:45 PM
Replies: 5
Views: 5,351
Posted By Ruby8
Re: Neck/Shoulder Pain, Muscle Ache, Skin Hypersensitive, Eye Trouble

Hi Hangin99 - A type of neuropathy called small fiber neuropathy (SFN) doesn't show up on an EMG test, and many neurologists overlook the possibility of SFN when making a diagnosis. SFN could...
Board: Neuropathy 04-17-2012, 08:31 PM
Replies: 3
Views: 902
Posted By Ruby8
Cymbalta Helps SFN

I want to share my latest experience with Cymbalta in hopes it helps someone else. I had taken Cymbalta for close to 3 years, ever since I was diagnosed with SFN. I took it along with just 300 mg 2...
Board: Neuropathy 04-17-2012, 08:16 PM
Replies: 3
Views: 957
Posted By Ruby8
Re: IVIG treatment, any tips?

Hi June - I had ivig treatments monthly for a year in hopes it would help my SFN. It didn't. That said, I want to assure you the treatments are very safe and I had absolutely no ill effects from...
Board: Neuropathy 11-16-2011, 07:26 PM
Replies: 25
Views: 3,870
Posted By Ruby8
Re: vitamin b12 can help anyone know?

Hi Bull353 - Regarding your B12 question, if you are deficient in B12 (your doctor should have checked this), B12 should help, but even if you are not deficient, B12 may help your neuropathy. A very...
Board: Neuropathy 11-01-2011, 06:51 PM
Replies: 2
Views: 888
Posted By Ruby8
Re: neuropathy?

Hi Cocoa - Assuming your diagnosis is correct, both your doctors are correct. "Neuropathy" means a disease of the peripheral nervous system, i.e., the nerves peripheral to the brain and spinal cord....
Board: Neuropathy 08-23-2011, 10:28 PM
Replies: 113
Views: 35,890
Posted By Ruby8
Re: I have SFN-Do You?

Hi Capewind - Unfortunately Will no longer posts on this board. His threads, like this one, were invaluable to me when I first had SFN. Wish he and the gang were still around. - Ruby
Board: Neuropathy 06-26-2011, 10:42 AM
Replies: 9
Views: 2,194
Posted By Ruby8
Re: Neuropathy perhaps?

Hi Working Dad - Wow! Your persistence and research are wonderful. I wish you luck in your neurological search, and for the benefit of us all, do hope you post further on what you find. Only...
Board: Neuropathy 06-01-2011, 09:57 PM
Replies: 3
Views: 1,145
Posted By Ruby8
Re: Pn pain driving me crazy !!!!

Hi Ivp714 - I am so sorry to hear of your pain and diminished quality of life. I don't have a magic wand to wave, but do suggest you see a pain managment doctor as there are so many meds and med...
Board: Neuropathy 05-01-2011, 05:36 PM
Replies: 1
Views: 1,613
Posted By Ruby8
Cymbalta for neuropathic pain

I am now a big fan of Cymbalta and wanted to share my expience. I had been taking it along with Gabapentin for over 2 years now for the pain associated with my SFN. It is an expensive drug, plus I...
Board: Neuropathy 04-12-2011, 08:40 PM
Replies: 2
Views: 540
Posted By Ruby8
Re: Support Groups

Hi again J - I lead a neuropathy support group, and find the group helps a lot of people. I joined the group when I was first diagnosed, became a co-leader, and then leader when the original leader...
Board: Neuropathy 01-23-2011, 08:13 PM
Replies: 2
Views: 1,513
Posted By Ruby8
Re: Living with neuropathy

Hi Tingles, Sorry to hear about your neuropathy and that it took so long for you to be taken seriously. I belong to a neuropathy support group, so I meet many people with neuropathy and am...
Board: Neuropathy 11-11-2010, 02:37 PM
Replies: 8
Views: 4,874
Posted By Ruby8
Re: pins & needles as well as tingling in many parts of the body

Hi Slick50 - As to how SFN might be diagnosed and treated, the information you will find on the web is rather skimpy. The best information I found when I first started having symptoms was that posted...
Board: Neuropathy 11-08-2010, 08:43 PM
Replies: 8
Views: 4,874
Posted By Ruby8
Re: pins & needles as well as tingling in many parts of the body

Hi Slick50 - If your pins & needles, etc. are affecting your whole body, one possibility is that you have small fiber neuropathy (SFN). This is a type of neuropathy that doesn't show up on nerve...
Board: Neuropathy 09-17-2009, 08:59 AM
Replies: 113
Views: 35,890
Posted By Ruby8
Re: I have SFN-Do You?

Hi Will and All - I have not posted in a while because I have been feeling so darned good that I have been too busy. I do follow the board regularly though, and I almost feel guilty that my SFN is so...
Board: Neuropathy 04-28-2009, 09:37 PM
Replies: 12
Views: 2,592
Posted By Ruby8
Re: A Day In The Life Of Small Fiber Neuropathy

Aussie, Very happy for you that you no longer have nerve pain. Thanks for sharing and supporting those of us who still do. Best, Ruby8
Showing results 1 to 23 of 23

 











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