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Board: Hepatitis 01-25-2003, 10:48 AM
Replies: 2
Views: 524
Posted By joann jennings
Post Dear Jon, First of all congradulations for...

Dear Jon,
First of all congradulations for going threw
"THE WAR OF THE DRAGON"
Last night was my last shot and I just came on the board to see "whats next?" I have been on proxak and Addivan all...
Board: Hepatitis 01-06-2003, 08:58 AM
Replies: 14
Views: 2,490
Posted By joann jennings
Smile WOW....making love with your spouse just became...

WOW....making love with your spouse just became dangerous to your health?

I know all the different studies and percentages every one talks about....but my husband and I have decided not to freak...
Board: Hepatitis 11-11-2002, 07:04 PM
Replies: 15
Views: 761
Posted By joann jennings
Re: starting treatment tomorrow! Comments?

I still have headaches off and on....I never use to at all... I don't tire as easy and fell good about 75% of the time...I still haven't started back up to working out at 4:30 a.m. (only time I have...
Board: Hepatitis 11-09-2002, 09:57 PM
Replies: 15
Views: 761
Posted By joann jennings
Re: starting treatment tomorrow! Comments?

Wes,
Boy did I need to know that one...sometimes I just don't feel like drinking water which is weird because I usually love water...I woke up this morning so parched and still didn't find the water...
Board: Hepatitis 11-04-2002, 02:32 PM
Replies: 22
Views: 2,939
Posted By joann jennings
Post dhartma, ASK YOUR DOCTOR before you do...

dhartma,

ASK YOUR DOCTOR before you do anything....when it was to much for me he lowered the dose...twice...
also ask for a B12 shot.,...they help pick me up...
the headaches are intense....I...
Board: Hepatitis 10-30-2002, 09:09 AM
Replies: 22
Views: 2,939
Posted By joann jennings
Post doodlebug, My heart goes out to you... You...

doodlebug,
My heart goes out to you... You sound like you are living minute to minute and you are going to drive yourself crazy...
First I like to say you are a good wife...It is not a easy load to...
Board: Hepatitis 10-29-2002, 09:42 AM
Replies: 13
Views: 553
Posted By joann jennings
Re: partner on pegintron

Ok Guys,,,
I am the other side of this conversation..I have been on treatment 5 months and 2 weeks this thursday..(counting down those days) and have been married for 19 years...
I don't know how...
Board: Hepatitis 09-11-2002, 09:29 PM
Replies: 16
Views: 2,444
Posted By joann jennings
Re: living without treatment Cerish

just wanted to see it burn...... <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
Board: Hepatitis 09-11-2002, 09:20 PM
Replies: 16
Views: 2,444
Posted By joann jennings
Re: living without treatment Cerish

I agree with kackles, the healthier you are the better you will be to tackle the treatment if you ever need to go on...I took care of my self naturally for 3 years before going on treatment and it...
Board: Hepatitis 08-30-2002, 09:52 PM
Replies: 4
Views: 560
Posted By joann jennings
Re: going back to work :-)

You have a lot on your plate...and you sound courageous and educated...be a spokes person for hep c..we need to be the educatiors....You will be in my prayers...jj
Board: Hepatitis 08-30-2002, 04:27 PM
Replies: 10
Views: 878
Posted By joann jennings
Re: Urgent...need your knowledge, waiting for hemo doctor to call

My wonderful friends...
I won't go into deatail of why it took two days to get ahold of my results. Well one day I just didn;t try because I was burnt out...so finally bugged the doctors office and...
Board: Hepatitis 08-28-2002, 01:55 PM
Replies: 10
Views: 878
Posted By joann jennings
Re: Urgent...need your knowledge, waiting for hemo doctor to call

Just got back from the hospital and they took more blood...we also took a viral count. they will fax them to us and to the doctors as soon as the results come in...sometimes I hear from them the same...
Board: Hepatitis 08-28-2002, 11:23 AM
Replies: 10
Views: 878
Posted By joann jennings
Urgent...need your knowledge, waiting for hemo doctor to call

I have been on treatment for 3 months and 1 and 1/2 weeks...(I am done with 103 days of it yippiee) I get me blood work done every 3 weeks...My wbc went from 2.1 to 1.5 in 3 weeks...also rbc from...
Board: Hepatitis 08-26-2002, 05:42 PM
Replies: 8
Views: 330
Posted By joann jennings
Re: restless. coming off treatment???

I was on zanex for about 9 years off about 2 before I started treatment...The docotrs started me on prozak and addivan if needed...I take addivan on the night of my injections...I laugh alot at...
Board: Hepatitis 08-09-2002, 03:32 PM
Replies: 12
Views: 2,740
Posted By joann jennings
Re: JJ - Cirrhosis/Fibrosis Scale

Thanks...reading the board kinda alows me to take a deep breath and exhale...we get so tied up in it...time to put the hep c aside the mind for awhile..it's hard when your on treatment because its...
Board: Hepatitis 08-08-2002, 09:54 AM
Replies: 12
Views: 2,740
Posted By joann jennings
Re: JJ - Cirrhosis/Fibrosis Scale

Neil,
I could kiss you....I wish my doctors could talk such plain english...they kept saying I was in Cirrhosis. I kept telling my husband that I am in fibrosis not cirrhosis....My doctor said they...
Board: Hepatitis 08-07-2002, 09:31 PM
Replies: 12
Views: 2,740
Posted By joann jennings
Re: JJ - Cirrhosis/Fibrosis Scale

Neil,
ok...one question...what is the difference between fibrosis and cirrhosis? You are pritty deep...my husband and I are trying to figure this thing out...thanks for the info,....
jj
Board: Hepatitis 08-07-2002, 01:51 PM
Replies: 6
Views: 813
Posted By joann jennings
Re: HCV Related Cirrhosis- Study

But I do have cirrhosis..... at least thats what my doctor said...stage 2 was mild to moderate...but I was moving along because 5 years ago I was at stage 1....thats why i went on interferone...any...
Board: Hepatitis 08-06-2002, 06:58 PM
Replies: 6
Views: 813
Posted By joann jennings
Re: HCV Related Cirrhosis- Study

Neil,
Help me with this one...You know I am a 3a....and I am in stage 2 of fibrosis.....been on treatment almost 3 months....what does this say to me...when I read it I don't feel good about...
Board: Hepatitis 08-05-2002, 11:29 AM
Replies: 4
Views: 221
Posted By joann jennings
Re: new here but been lurking

Rick,
You got alot of good advice...this is a strong board and very informed....as far as good foods,,,,it was a very dificult transition for me because I hate to cook...things that are good for...
Board: Hepatitis 07-31-2002, 07:37 PM
Replies: 3
Views: 357
Posted By joann jennings
Re: Flu like symptoms

ditto to what thannbey said.....all the above works for me...It was hard for me to take personal time for myself...not like me...but have been getting real use to it...we have a hot tub in and out of...
Board: Hepatitis 07-26-2002, 09:24 PM
Replies: 5
Views: 435
Posted By joann jennings
Re: Curious about hepatitis. I have 2 questions.

Mark,
I have known about my hep c since it was called non-a non-b...about 19 years (?) can't remember but it has been awhile...found out when I was trying to give blood for my sick father in law. I...
Board: Hepatitis 07-25-2002, 03:02 PM
Replies: 5
Views: 435
Posted By joann jennings
Re: Curious about hepatitis. I have 2 questions.

I will leave question number 1 for Sean...
as far as side affects from hep C...I never had any and I have had it for 30 years...I knew about it threw a blood test so I have just been watching...
Board: Hepatitis 07-25-2002, 02:59 PM
Replies: 3
Views: 292
Posted By joann jennings
Re: What to do after Biopsy?

Meech..When you think about it, the needle went in threw a cartilige (bone) area....It closes as soon as the needle comes out unless you have a slight leak...If it were me I would not put any extra...
Board: Hepatitis 07-25-2002, 02:52 PM
Replies: 4
Views: 158
Posted By joann jennings
Re: genotypes

Wow, what a scare....I feel bad for your husband and you..wish you had the odds when it comes to winning the lottery...as far as answering your genotype question I knew Sean would be able to explain...
Board: Hepatitis 07-24-2002, 09:35 PM
Replies: 10
Views: 435
Posted By joann jennings
Re: Tomarrow Biopsy

PRAISE GOD.....you did it....I am proud of you...looking forward to good results...keep us informed...enjoy your victory of putting that behind you....God bless..jj
Board: Hepatitis 07-24-2002, 09:32 PM
Replies: 5
Views: 792
Posted By joann jennings
Re: Mother diagnosed with Hep C -- I may of contracted

Aerosmith,,
RELAX....first wait and see what the test show...I know bowls that look clay like and seems to be dry are a sign of liver dieases... But you sound like your freeking yourself out...I...
Board: Hepatitis 07-24-2002, 09:27 PM
Replies: 4
Views: 158
Posted By joann jennings
Re: genotypes

doclexi,
welcome to the board..stay here you will find a lot of good ideas and hope...read some of the old post they deal alot with foods and hep c (all over body care)..but most of all don't let...
Board: Hepatitis 07-24-2002, 03:27 PM
Replies: 9
Views: 369
Posted By joann jennings
Re: No Energy!!!!!

also try eating about 8 times a day (a little at a time) instead of 3 meals...fruit is good...Also in the summer (Hot months) we need to keep our body cool inside...don't drink ice cold...
Board: Hepatitis 07-24-2002, 03:13 PM
Replies: 3
Views: 287
Posted By joann jennings
Re: conditions

Kaka,
try not to get on the pill train....doctors are good at that...read up on some natural ways to help yourself...Food medicine is the key...try not eating acidy foods (tomatoes, sauce,) to help...
Board: Hepatitis 07-24-2002, 03:08 PM
Replies: 10
Views: 435
Posted By joann jennings
Re: Tomarrow Biopsy

Ok Meech....where are you....??? how it go...???/
You got me nervous...jj
Board: Hepatitis 07-24-2002, 03:07 PM
Replies: 6
Views: 302
Posted By joann jennings
Re: Pegasys

Glad to see they are seeing how serious this is and getting on the ball with getting other help...exciting news...jj
Board: Hepatitis 07-24-2002, 02:59 PM
Replies: 9
Views: 369
Posted By joann jennings
Re: No Energy!!!!!

spikester,
stay away from the coffee or any caffeine products...We already have enough anxiety because of our liver...Coffee is a stimulant...you will feel alot better when you quit all...
Board: Hepatitis 07-23-2002, 03:38 PM
Replies: 9
Views: 369
Posted By joann jennings
Re: No Energy!!!!!

Spikester,
I have been on combo treatment for two months also...I go in for B12 shots about every week..It was like a miracle for me...gave me back my energy..also no matter how much you feel like...
Board: Hepatitis 07-23-2002, 03:24 PM
Replies: 10
Views: 435
Posted By joann jennings
Re: Tomarrow Biopsy

You are in my prayers also...let us know how it went...I have been banned from the board and I;,m not sure why..i am checking into it....Be strong...jj
Board: Hepatitis 07-18-2002, 04:40 PM
Replies: 7
Views: 472
Posted By joann jennings
Re: Liver biopsy

Congradulations on your Baptism....(my spelling is bad to) and you are right....give it over and don't take it back...so many times we think we can fix things ourselfs and all we do is make it...
Board: Hepatitis 07-18-2002, 04:35 PM
Replies: 1
Views: 179
Posted By joann jennings
Re: Support Groups

Glenn,
read your other post...Yes diet is important in all area's of health...when you find out you have diabetes the first thing is change of diet...anything with heart attacks...change of...
Board: Hepatitis 07-18-2002, 10:31 AM
Replies: 13
Views: 949
Posted By joann jennings
Re: Mom has Hep C :(

Blue,
Well Sean had some good advice..I get chills when I think of going through this without any medical help...I am not into prozac or anyother anxiety pills but while we are on this drug we need...
Board: Hepatitis 07-17-2002, 06:56 PM
Replies: 1
Views: 175
Posted By joann jennings
Re: Check'in In

Welcome back....It is a busy board...sometimes we just need to get away...jj
Board: Hepatitis 07-17-2002, 01:25 PM
Replies: 6
Views: 1,156
Posted By joann jennings
Re: please add to the list of foods - good and bad for liver...

cudagirl,,
the licorice that I actually eat is from the health food store and is licorice root...It's sweet but you can't eat alot of it or you will end up with diarrea.
It's good if your...
Board: Hepatitis 07-16-2002, 08:44 PM
Replies: 13
Views: 949
Posted By joann jennings
Re: Mom has Hep C :(

Blue,
One of the first things I learned was that the liver controlled emotions....usually dirty liveris associated with bad eyes, sad easy, high anxiety, panic attacks. I am glad she is on the...
Board: Hepatitis 07-16-2002, 08:48 AM
Replies: 13
Views: 949
Posted By joann jennings
Re: Mom has Hep C :(

Blue4u2,
What a wonderful oppertunity to get close and get to know each other again...God puts it all together for us...The first thing your mom has to do is to be happy...time for the two of you...
Board: Hepatitis 07-15-2002, 03:59 PM
Replies: 6
Views: 1,156
Posted By joann jennings
Re: please add to the list of foods - good and bad for liver...

sean,,,
i agree...I knew there was a reason i just couldn't get to typing a "list" tho some people have requested one....so....lets put it on a ask and answer request..not a list..i wouldn't want to...
Board: Hepatitis 07-15-2002, 02:08 PM
Replies: 6
Views: 1,156
Posted By joann jennings
please add to the list of foods - good and bad for liver...

This is the knowledge I have picked up over the last 3 years of dealing with hep c and holistic medicine...I beleive in food being our natural medicine. seasonal foods are the best...that means what...
Board: Hepatitis 07-15-2002, 11:36 AM
Replies: 1
Views: 244
Posted By joann jennings
Re: Questions, JJ, Cudagirl, Sean......

Meech,
I have heard of citric acid, potassium,goldenrod, parsely leaves, licorice root, --- the only one''s I really know are good are goldenrod and licorice root...Alot ot the other stuff (calcium...
Board: Hepatitis 07-15-2002, 11:26 AM
Replies: 7
Views: 472
Posted By joann jennings
Re: Liver biopsy

Meech,
Jeremiah 29:11 -- For I know the plans I have for you "declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."
Remember God takes care of his...
Board: Hepatitis 07-14-2002, 10:16 AM
Replies: 16
Views: 722
Posted By joann jennings
Re: test back from doctors...looking good!!! almost two months on treatment...

restless,
I put you on my wall..(prayer chain) Keep your eyes focused and a happy heart...I know you will do well, how can you lose with Jesus. God bless..jj
Board: Hepatitis 07-13-2002, 01:13 PM
Replies: 3
Views: 201
Posted By joann jennings
Re: question that needs answers!

You need to have a hep c panel ran....demand it from your doctor or move on to another one...It's your life.jj
Board: Hepatitis 07-13-2002, 01:07 PM
Replies: 16
Views: 722
Posted By joann jennings
Re: test back from doctors...looking good!!! almost two months on treatment...

Oh my...the importance of bowel movements...we should be going twice a day...I know everyone is different but do not fall for the "its normal" from your doctors...The longeer the food stays in you...
Board: Hepatitis 07-11-2002, 08:24 PM
Replies: 16
Views: 722
Posted By joann jennings
Re: test back from doctors...looking good!!! almost two months on treatment...

Tadpole,
sorry to hear it's been rough....you must be on pegaferon...I am on interferone..and rebetol 800 mlgs daily...the shots are twice a week...my doctor felt I was better canditate for...
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