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Board: Caregivers 06-18-2008, 09:10 AM
Replies: 6
Views: 3,330
Posted By nerfmom
Re: Am i wrong about my feelings

Bess,
I haven't been on the forum for a while and when I saw your posting, I had to answer it.
It is very hard to deal with serious illness and people on the outside don't understand sometimes. ...
Board: Caregivers 04-22-2008, 08:51 AM
Replies: 15
Views: 5,280
Posted By nerfmom
Re: Gonna lose mom soon

G-d works in mysterious ways. Obviously, your Mother's work on this earth isn't finished. Cherish each day you have with her. Miracles can and do happen. Take care.
Board: Family & Friends of the Mentally Ill 04-17-2008, 02:01 PM
Replies: 3
Views: 756
Posted By nerfmom
Re: My friend

Thanks to you both. She lives here in the same senior complex that I do. Except for her cat, she is alone. I saw her drive by in her car yesterday, but she didn't acknowledge me at all. I must say...
Board: Family & Friends of the Mentally Ill 04-14-2008, 05:40 PM
Replies: 3
Views: 756
Posted By nerfmom
My friend

I have a friend with Schizophrenia. She called me a couple of days ago to chat and mentioned that she has been having problems lately with her imagination vs reality. For example, she told me that...
Board: Caregivers 04-14-2008, 11:33 AM
Replies: 1
Views: 1,377
Posted By nerfmom
What do you do when you are sick?

Right now, I have the flu. My husband is getting over it and still coughing. (so muc for this year's flu shot). I am feeling lousy, but of course I can't stop and rest.
This morning, I had to...
Board: Caregivers 04-13-2008, 09:40 AM
Replies: 8
Views: 5,873
Posted By nerfmom
Re: borderline personality

Right on, Phoenix!
Board: Caregivers 04-07-2008, 06:24 PM
Replies: 28
Views: 18,722
Posted By nerfmom
Re: Looking for friends that are constant caregivers

I can totally relate. I have been my husband's care giver for many years. He is still able to do some things by himself, but I do most everything around here. I have health problems too and...
Board: Caregivers 04-04-2008, 04:50 PM
Replies: 4
Views: 1,775
Posted By nerfmom
Re: New here

I am sorry that it has taken so long to post a return message. I haven't been to the site in a while.
Is there any way you can get a weekend away? Sometimes there are respite programs that you can...
Board: Epilepsy 03-08-2008, 08:20 PM
Replies: 7
Views: 1,063
Posted By nerfmom
Re: Still no seizures

My husband dozes all the time, but at his age (84), it is no big deal. I think part of it is the meds, but not all. As long as he remains seizure free, that is all we can ask. I don't think that...
Board: Caregivers 02-25-2008, 06:18 PM
Replies: 6
Views: 2,495
Posted By nerfmom
Re: feel all alone..need help don't know where to start

My heart goes out to you. Right now, you need to take one day at a time. I had a similar experience when I lost my mother, but day by day, things got better.
The best advise that I can give you...
Board: Caregivers 02-22-2008, 08:22 AM
Replies: 5
Views: 1,699
Posted By nerfmom
Re: new here and hope to get some support

My children were 11 and 14 when my father was diagnosed with liver cancer. We knew that it was probably terminal. Since I was going through a divorce, I moved to the same town so that the children...
Board: Caregivers 02-21-2008, 02:24 PM
Replies: 4
Views: 1,775
Posted By nerfmom
New here

I have been taking care of my husband for over 10 years now. He has multiple medical problems. He is 84 and I am 63. I am a retired LVN, so I do have some medical knowledge and experience.
My...
Board: Heart Disorders 02-10-2008, 04:05 PM
Replies: 0
Views: 1,324
Posted By nerfmom
abdominal aortic aneurisym

About 8 years ago, my husband had his AAA repaired. He did well after surgery.
A few days ago He had an x-ray taken for another health problem. It came back showing another AAA. Is this...
Board: Back Problems 01-21-2008, 05:04 PM
Replies: 9
Views: 791
Posted By nerfmom
Re: My husband not getting much better

I finally got him an appointment with the Ortho spine doctor. It isn't until the 7th of Feb. actually, he has had a better day today. He even washed the dishes that I had left in the sink this...
Board: Back Problems 01-21-2008, 08:35 AM
Replies: 9
Views: 791
Posted By nerfmom
Re: My husband not getting much better

He has decided to stick with the Tylenol instead of the Vicodin. I guess the Tylenol relieves the pain better.
He is an old guy and spends much of his time reading and watching TV. Those are his...
Board: Back Problems 01-20-2008, 06:54 PM
Replies: 5
Views: 886
Posted By nerfmom
Re: New severe back pain / TENS unit

Years ago, when I had my back injury, I was given a TENS unit. I don't know how they operate now, but back then conductive jelly was used under the pads. I found that if I didn't use enough jelly,...
Board: Back Problems 01-20-2008, 12:43 PM
Replies: 9
Views: 791
Posted By nerfmom
Re: My husband not getting much better

I bought him a heating pad, the kind that turns off after a while. I have one that I use for my IBS pain, so we have matching heating pads now.
My concern is that the Vicodin isn't holding him for...
Board: Back Problems 01-20-2008, 08:28 AM
Replies: 9
Views: 791
Posted By nerfmom
My husband not getting much better

He is still in pain. I got his GP to prescribe Vicodin and a muscle relaxant, but he is still about the same. He has an L-2 compression (not a fracture).
In the meantime, I am still trying to get...
Board: Back Problems 01-15-2008, 08:14 AM
Replies: 2
Views: 431
Posted By nerfmom
Re: Compression of L-2

The problem was is that we didn't get a call back from the doctor re: the x-rays. I had to call and then finally received a call back from the office staff, so I didn't even get a chance to speak to...
Board: Back Problems 01-14-2008, 06:03 PM
Replies: 2
Views: 431
Posted By nerfmom
Compression of L-2

My husband had a fall and has a compression (not a fracture) of L-2. His pain is mostly in his right thigh at this point. It is getting better, but very slowly.
What at this point will help with...
Board: Epilepsy 01-13-2008, 06:33 PM
Replies: 4
Views: 935
Posted By nerfmom
Re: Epilepsy and tumors

Seizures can be caused by a variety of things. Von Hippel Lindau syndrome causes the body to make tumors. It is a rare heriditary disease. We have been told that my husband has a brain tumor which...
Board: Epilepsy 01-12-2008, 07:17 PM
Replies: 9
Views: 5,951
Posted By nerfmom
Re: does dilantin cause gum disease

I believe that gum and teeth problems are a side effect from long term Dilantin use. Also, Dilantin can be calcium robbing, so taking extra calcium is a good idea. My husband is on 1800 mg of...
Board: Epilepsy 01-12-2008, 07:10 PM
Replies: 8
Views: 3,829
Posted By nerfmom
Re: New Dilantin

That is the 100mg capsules you are talking about, right? I noticed that they are being manufactored by a different company, Pfizer rather than Parke Davis. That is probably why the change in...
Board: Epilepsy 01-10-2008, 05:56 PM
Replies: 10
Views: 4,186
Posted By nerfmom
Re: Started Keppra today

Along with the Keppra,750mg BID, he still takes 390mg of Dilantin. His grand mal seizures were all nocturnal and averaged one every 2-3 months. He also had petit mal seizures every so often. But...
Board: Epilepsy 01-08-2008, 06:13 PM
Replies: 10
Views: 4,186
Posted By nerfmom
Re: Started Keppra today

My husband slept more when he started on Keppra. He also complained of feeling cold all the time. Luckily, he had no other major side effects.
The really good news is, he hasn't had any seizures...
Board: Back Problems 12-29-2007, 08:23 AM
Replies: 3
Views: 599
Posted By nerfmom
Re: Scoliosis

I have had no treatment for my scoliosis. I had a back injury years ago. I think that was when scoliosis was mentioned to me. I remember when I was about 8, there was some school related test done...
Board: Back Problems 12-28-2007, 07:01 PM
Replies: 3
Views: 599
Posted By nerfmom
Scoliosis

Does anyone here have scoliosis? I also have IBS. Anyone else with both problems?
Board: Bowel Disorders 12-20-2007, 08:40 AM
Replies: 6
Views: 56,484
Posted By nerfmom
Re: Why do I go to the bathroom as soon as I eat

Classic IBS symptoms. Have you checked out some IBS web sites?
Board: Arthritis 12-20-2007, 08:26 AM
Replies: 5
Views: 1,241
Posted By nerfmom
Re: Hip pain

I have an old back injury from my job of 20+ years ago, but it is higher up, not my lower back. The pain is mostly in my hip joint, I believe. I also have pain elsewhere in my joints, but the right...
Board: Arthritis 12-19-2007, 06:34 PM
Replies: 5
Views: 1,241
Posted By nerfmom
Hip pain

The last several years, I have been having hip pain. It seems that when I bend, stoop, squat and lift heavy things, it causes pain, sometimes severe. It has gotten worse with time. At times, the...
Board: Epilepsy 12-19-2007, 05:35 PM
Replies: 1
Views: 3,263
Posted By nerfmom
Re: Hiccups?!

There are several other posts related to hiccups and the reasons for them. My husband has been prone to hiccups too. I always thought that they may be related to his heart as he had bouts of...
Board: Epilepsy 12-13-2007, 08:13 PM
Replies: 4
Views: 4,160
Posted By nerfmom
Re: hiccups and seizures

My husband takes 390 mg. of Dilantin a day and 750 mg. Keppra twice a day. Shortly after starting the combo of the 2 drugs, he has had bouts of the hiccups several times a day. Usually they are...
Board: Epilepsy 11-18-2007, 09:44 AM
Replies: 7
Views: 1,063
Posted By nerfmom
Still no seizures

I just noticed that Dec. 6th will be the one year anniversary of my husband's start on Keppra. He has not had any seizures since then. His last seizure was just before he started the Keppra. It...
Board: Epilepsy 10-30-2007, 02:44 PM
Replies: 7
Views: 16,468
Posted By nerfmom
Re: What Happens When You Have a Seizure

All of my husband's grand mals have been while he is asleep in bed at night. He is never aware of them. Afterwards, he is unconscious. It takes about 30-40 minutes for him to regain consciousness...
Board: Epilepsy 10-18-2007, 07:42 PM
Replies: 2
Views: 1,166
Posted By nerfmom
Re: Question For People With First Seizure As An Adult

My husband was about 70 when he had his first grand mal. He had what we thought were TIA's for a while before that. We now know that they were actually Petit mal seizures. I don't think that...
Board: Epilepsy 10-16-2007, 05:59 PM
Replies: 3
Views: 2,399
Posted By nerfmom
Re: Has anyone had an adverse reaction to the flu shot?

I think that reactions to flu shots vary, but the shot doesn't give you the flu. It is after all, not a live virus that you are getting. The usual reaction is a sore arm and maybe a little...
Board: Epilepsy 09-24-2007, 04:08 PM
Replies: 5
Views: 2,680
Posted By nerfmom
Re: Lamictal and feeling cold all the time?

My husband complained about feeling cold shortly after he started taken Keppra. I am always hot, so every time I open the windows, he goes to get a sweater. He has very warm clothes for the winter;...
Board: Epilepsy 09-12-2007, 08:17 AM
Replies: 5
Views: 1,100
Posted By nerfmom
Re: taking my husband to the doctor on Tuesday

Update: The doctor said that my husband's heart sounds fine and he also thinks it might be the Keppra causing his hiccups. But, since he has had no seizures while on the Keppra, we are keeping him...
Board: Epilepsy 09-10-2007, 01:46 PM
Replies: 5
Views: 1,100
Posted By nerfmom
Board: Epilepsy 09-09-2007, 09:57 AM
Replies: 4
Views: 969
Posted By nerfmom
Re: Can't deal with this!!!

I think that one of the side effects of the Keppra is chills or the feeling of being cold. It will pass. If the Keppra controls your seizures, it may be worth some of the side effects. That is...
Board: Epilepsy 09-08-2007, 07:38 PM
Replies: 5
Views: 1,100
Posted By nerfmom
taking my husband to the doctor on Tuesday

My husband is seeing his regular doctor on Tuesday. I am going to ask about his bouts with hiccups. I am concerned that his heart is responsible for these hiccups. He has a history of heart...
Board: Epilepsy 09-06-2007, 05:12 PM
Replies: 7
Views: 2,325
Posted By nerfmom
Re: feeling angry just to have a seizure disorder

It is hard to have a social life with any chronic illness, especially these days. As you get older things change and so do relationships.
Don't let your seizure disorder interfer with your social...
Board: Epilepsy 09-05-2007, 11:55 AM
Replies: 7
Views: 2,325
Posted By nerfmom
Re: feeling angry just to have a seizure disorder

I think that having seizures makes a person feel as if they have no control of their lives. It was hard for my husband to have to stop driving because of his seizures. After all, he had been...
Board: Epilepsy 09-03-2007, 02:53 PM
Replies: 0
Views: 945
Posted By nerfmom
does anyone here have Von Hippel Lindau syndrome?

One of my husband's diagnosis is Von Hippel Lindau syndrome. The body produces tumors in several possible areas including the brain. This was a secondary diagnosis. He was originally diagnosed...
Board: Epilepsy 08-31-2007, 08:28 AM
Replies: 4
Views: 1,037
Posted By nerfmom
seuzures and aphasia

Every time my husband has had a seizure, after he regains consciousness, he has a period of time that he is unable to speak. One of his brain lesions is in his speech center. Now, he has expressive...
Board: Epilepsy 08-30-2007, 12:23 PM
Replies: 3
Views: 2,365
Posted By nerfmom
Re: Nocturnal Seizures

It is believed that my husband's seizures are from a brain tumor. His original diagnosis was Sterge Weber but his last Neur. thought it might be Von Hippel Lindau. Either one is genetic in origin....
Board: Epilepsy 08-29-2007, 12:54 PM
Replies: 3
Views: 2,365
Posted By nerfmom
Nocturnal Seizures

All of my husband's grand mal seizures have been at night while he is asleep. His petit mal seizures can happen at any time, but most often while he naps. He has NEVER had a grand mal seizure...
Board: Epilepsy 08-29-2007, 12:05 PM
Replies: 0
Views: 499
Posted By nerfmom
Calcium

My husband takes 1800 mg of calcium every day. As I am sure that you know, Dilantin robs the body of calcium. I had him on 1200 mg, but a blood test revealed that his calcium was still too low. At...
Board: Epilepsy 08-27-2007, 07:23 PM
Replies: 2
Views: 1,697
Posted By nerfmom
Re: Keppra and B6

My husband takes B-1 which is supposed to be an anti-seizure vitamin to go with his Dilantin and Keppra. He was told to take it when he first had seizures. Interesting that B-6 wasn't mentioned at...
Board: Epilepsy 08-27-2007, 02:29 PM
Replies: 7
Views: 1,494
Posted By nerfmom
Re: new to the board

Thank you for the welcome.
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