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Board: Thyroid Disorders 09-30-2013, 03:22 PM
Replies: 10
Views: 1,019
Posted By Spencer1
Re: Thyroiditis (Male - Please Help)

How are you doing now? Still great? No medication necessary??

Could you exercise?

I had the same thyroiditis.
Board: Thyroid Disorders 09-05-2013, 12:46 PM
Replies: 1
Views: 436
Posted By Spencer1
Complicated Situation - Do I Need to Be Medicated or Not?

I am a bit confused about my situation and if you can provide any intuition on it, that would be wonderful if you're up for it. I had a silent thyroiditis dx. 08/2010. I have no family history of...
Board: Thyroid Disorders 08-15-2013, 12:59 PM
Replies: 5
Views: 2,183
Posted By Spencer1
Re: Thoughts on Dr. Ken Blanchard's theories?

How are you doing? Did Dr. Blanchard's approach work for you? I have not been doing well for three years either.
Board: Muscular Dystrophy 07-23-2013, 07:47 PM
Replies: 18
Views: 4,131
Posted By Spencer1
Re: Losing muscle mass in tongue, tonsils normal?

Have you had the genetic test for myotonic dystrophy type 2? I have a mild percussion myotonia and muscle weakness. Do they suspect that in you? Has it been ruled out? We are similar.
Board: Muscular Dystrophy 07-09-2013, 02:07 PM
Replies: 2
Views: 2,018
Posted By Spencer1
Re: Percussion Myotonia

How are you doing now? I can relate 100 percent. What test confirmed your MD2? I have a "mild percussion myotonia" and fatigue.
Board: Thyroid Disorders 12-11-2012, 08:08 PM
Replies: 3
Views: 490
Posted By Spencer1
Re: Is it normal to feel worse when starting on Synthroid?

don't have them. that is all I have. my main question is if this is normal to feel so miserable when upping Synthroid and not feeling any relief. thanks.
Board: Thyroid Disorders 12-11-2012, 01:45 PM
Replies: 3
Views: 490
Posted By Spencer1
Is it normal to feel worse when starting on Synthroid?

Is it normal to feel worse when starting on Synthroid?

I am on 75 Synthroid.
Diagnosed with a TSH of 4.70
TSH 2.49 when on 50 Synthroid

I am feeling worse, very achy, miserable, have trouble...
Board: Thyroid Disorders 12-02-2012, 06:36 PM
Replies: 2
Views: 392
Posted By Spencer1
Board: Thyroid Disorders 12-01-2012, 05:27 PM
Replies: 2
Views: 392
Posted By Spencer1
T4-ONLY people: Does the depression ever go away?

T4-Only people: Did Synthroid (Levo, etc.) make you depressed?

I am worried the depression will not go away. Did not really have depression before going on Synthroid.

Will the depression...
Board: Thyroid Disorders 11-29-2012, 04:05 PM
Replies: 1
Views: 216
Posted By Spencer1
T4-only: How long after final dosage did you realize you were optimized?

T4-only people who are optimized: How long after the final dosage increase did you realize you were finally optimized?

Thank you.
Board: Thyroid Disorders 11-03-2012, 03:44 PM
Replies: 2
Views: 511
Posted By Spencer1
Has anyone had their hair grow back (or NOT grow back) on T4 meds?

Has anyone had their hair grow back (or NOT grow back) on T4 meds?

I only started losing a lot of hair AFTER I started thyroid treatment. If so, how long did it take after your last dosage...
Board: Thyroid Disorders 09-29-2012, 10:55 AM
Replies: 3
Views: 983
Posted By Spencer1
Re: Thyroid dosage and statins???

Hey there! Just reading through the posts and saw yours. I can definitely relate! I think we are in a similar situation. I don't want to jump on your thread, but I will share my situation and...
Board: Thyroid Disorders 09-23-2012, 04:56 PM
Replies: 14
Views: 2,404
Posted By Spencer1
Re: Need info from people who CANNOT take thyroid medication

Are you seeing good doctors? What about at Emory in Atlanta?

I cannot tolerate any T3 (Cytomel or NDT), but am improving on Synthroid. I took 50 Synthroid and felt TERRIBLE (and became so...
Board: Thyroid Disorders 09-23-2012, 04:55 PM
Replies: 14
Views: 2,404
Posted By Spencer1
Re: Need info from people who CANNOT take thyroid medication

Are you seeing good doctors? What about at Emory in Atlanta?

I cannot tolerate any T3 (Cytomel or NDT), but am improving on Synthroid. I took 50 Synthroid and felt TERRIBLE (and became so...
Board: Thyroid Disorders 09-23-2012, 04:53 PM
Replies: 14
Views: 2,404
Posted By Spencer1
Re: Need info from people who CANNOT take thyroid medication

Are you seeing good doctors? What about at Emory in Atlanta?

I cannot tolerate any T3 (Cytomel or NDT), but am improving on Synthroid. I took 50 Synthroid and felt TERRIBLE (and became so...
Board: Thyroid Disorders 09-23-2012, 04:07 PM
Replies: 14
Views: 2,404
Posted By Spencer1
Re: Need info from people who CANNOT take thyroid medication

Tirosint - hypoallergenic T4. Try it!
Board: Thyroid Disorders 09-22-2012, 04:48 PM
Replies: 2
Views: 489
Posted By Spencer1
Help! Has ANYONE ever hair their hair grow back after being optimized on Synthroid?

Has ANYONE ever hair their hair grow back after being optimized on Synthroid (T4-only)?

Or, anyone not have that happen?

Also, please let us know what is your TSH?

Thanks.
Board: Thyroid Disorders 09-06-2012, 11:02 AM
Replies: 2
Views: 264
Posted By Spencer1
Re: Has anyone ever not done well on one T4 medication and switched to another T4 med

Thanks, Lisa!! I noticed it so quickly - even after 3-5 days. I NEVER had fluid retention before getting on thyroid meds, ONLY after. Do you still, with that information, believe it was because I...
Board: Thyroid Disorders 09-06-2012, 10:35 AM
Replies: 2
Views: 264
Posted By Spencer1
Has anyone ever not done well on one T4 medication and switched to another T4 med?

Has anyone ever not done well on one T4 medication and switched to another T4 med and had a different outcome?

I am not sure if they are all basically the same or not. Still early in my thyroid...
Board: Thyroid Disorders 08-25-2012, 06:43 PM
Replies: 9
Views: 1,029
Posted By Spencer1
Re: She says I'm over medicated but I have constipation, delayed digestion, and no pe

Hmm, maybe. You are only on T4, which is not going to make the TSH too crazy looking (sometimes when you are on T3 it makes the TSH look really low). Get the lab results and let us know. For me...
Board: Thyroid Disorders 08-25-2012, 06:19 PM
Replies: 9
Views: 1,029
Posted By Spencer1
Re: She says I'm over medicated but I have constipation, delayed digestion, and no pe

I understand the frustration... do you have your most recent labs you can post? It's hard to make any judgment call without some kind of reference? TSH, Ft3, Ft4? And their ranges?
Board: Thyroid Disorders 08-24-2012, 06:36 PM
Replies: 0
Views: 424
Posted By Spencer1
If you are on Synthroid and it makes you retain a lot of water, should you increase?

If you are on Synthroid and it makes you retain a lot of water, should you increase it?

Thanks. :confused:
Board: Thyroid Disorders 08-16-2012, 10:14 AM
Replies: 4
Views: 623
Posted By Spencer1
Re: When will hair loss stop with levrothyroxine?? UGG

jsmith222, may I ask what are your thyroid levels (TSH, Free T3, Free T4) and their ranges?

I think the hair loss will probably resolve when the levels are better, don't worry. Get your levels...
Board: Thyroid Disorders 08-15-2012, 08:43 PM
Replies: 5
Views: 1,596
Posted By Spencer1
Re: What would happen if a normal person was given 50 mcg Synthroid?

Hi, there. No just cause for alarm, I am not suggesting anyone take medication if they do not need it. I am simply asking how a "normal" person would respond to medication, since I have doctors...
Board: Thyroid Disorders 08-15-2012, 05:39 PM
Replies: 5
Views: 1,596
Posted By Spencer1
What would happen if a normal person was given 50 mcg Synthroid?

What would happen if a normal person was given 50 mcg Synthroid?

Would it turn them hypo because it would signal the pituitary to produce less? How would their reaction be different than someone...
Board: Thyroid Disorders 08-12-2012, 09:40 AM
Replies: 3
Views: 621
Posted By Spencer1
Re: Thyroiditis... what do you recommend?

I had a subacute thyroiditis diagnosed 08/01/10. I know the feeling, unfortunately.

Do you have pain in your throat?

What are your lab values and ranges (TSH, Free T3, Free T4)?
Board: Thyroid Disorders 08-11-2012, 03:06 PM
Replies: 27
Views: 5,328
Posted By Spencer1
Re: Retaining water weight on Synthroid - Anyone lose weight once optimized?

Yes, I have seen it and with all due respect, I am fairly healthy. Sitting on the couch, for two years, and unable to exercise does not lead to weight loss. It leads to weight gain. This is not...
Board: Thyroid Disorders 08-11-2012, 02:28 PM
Replies: 27
Views: 5,328
Posted By Spencer1
Re: Retaining water weight on Synthroid - Anyone lose weight once optimized?

Oh, goodness. That makes sense. All I know is I got up to almost 200 lbs on my small, little frame and that was really devastating. I cannot exercise. I want to, believe me, but it is against...
Board: Thyroid Disorders 08-11-2012, 01:55 PM
Replies: 27
Views: 5,328
Posted By Spencer1
Re: Retaining water weight on Synthroid - Anyone lose weight once optimized?

Thank you, everyone!

I just do not know what to do.

My temps are around 97.2, but in the past I have always been a reliable 98.6 kind of person. I did try the Acella, but after a week...
Board: Thyroid Disorders 08-09-2012, 07:07 PM
Replies: 27
Views: 5,328
Posted By Spencer1
Re: Retaining water weight on Synthroid - Anyone lose weight once optimized?

I would LOVE to do 10,000 steps a day. Unfortunately, my body does not want to do it. I have major problems doing anything remotely cardiovascular. Let me show you something. I had a subacute...
Board: Thyroid Disorders 08-09-2012, 06:47 PM
Replies: 27
Views: 5,328
Posted By Spencer1
Re: Retaining water weight on Synthroid - Anyone lose weight once optimized?

Well, I was on Synthroid 50 mcg for four months. I am now almost seven weeks OFF Synthroid.

Here were my labs before Synthroid, and then how they were after six weeks on 50 mcg Synthroid:

Labs...
Board: Thyroid Disorders 08-09-2012, 05:56 PM
Replies: 27
Views: 5,328
Posted By Spencer1
Re: Retaining water weight on Synthroid - Anyone lose weight once optimized?

azurre - thank you for letting me know! I was on Acella NP Thyroid. Maybe I should try it again? I tried 5 mcg Cytomel back in April. Boy, was that a mistake - it was horrible.

I just don't...
Board: Thyroid Disorders 08-09-2012, 05:23 PM
Replies: 27
Views: 5,328
Posted By Spencer1
Re: Retaining water weight on Synthroid - Anyone lose weight once optimized?

tryintosmile - thank you so much! Quick question - were you retaining the water BEFORE or AFTER you got on the Synthroid? Because for me, I was not retaining water UNTIL I got on the Synthroid...
Board: Thyroid Disorders 08-09-2012, 09:35 AM
Replies: 27
Views: 5,328
Posted By Spencer1
Board: Thyroid Disorders 08-08-2012, 04:23 PM
Replies: 27
Views: 5,328
Posted By Spencer1
Retaining water weight on Synthroid - Anyone lose weight once optimized?

Has anyone started to retain a lot of water on Synthroid, but lost the water weigh when optimized?
Board: Thyroid Disorders 07-31-2012, 03:48 PM
Replies: 61
Views: 16,106
Posted By Spencer1
Re: High Rt3 suffering hypo symptoms

nisreen1811, I am also interested in how Rohit456 is doing. Please let us all know if you read this and what worked or didn't work for you. Thank you! :)
Board: Thyroid Disorders 07-29-2012, 06:13 PM
Replies: 6
Views: 1,080
Posted By Spencer1
Re: Levothyroxine working on all but weight

Hey, there! Would it be possible to list your thyroid lab values and their ranges? TSH, Free T3, and Free T4 are most helpful!
Board: Thyroid Disorders 07-29-2012, 08:11 AM
Replies: 0
Views: 1,308
Posted By Spencer1
Should I get back on Synthroid Even if it Gives Me Higher Reverse T3?

I had a subacute (silent) thyroiditis. It follows a clinical course of hyper, normal, hypo, and then supposedly 80% recover to "normal" after 12-18 months.

I was diagnosed two years ago on...
Board: Thyroid Disorders 07-23-2012, 08:09 AM
Replies: 22
Views: 3,952
Posted By Spencer1
Re: Subacute thyroiditis

Thanks for posting all that! Man, I still cannot believe you went through this FOUR times!?! This is a complete nightmare.

What are your levels when you are feeling "great"?

How long did it...
Board: Thyroid Disorders 07-22-2012, 07:32 PM
Replies: 22
Views: 3,952
Posted By Spencer1
Re: Subacute thyroiditis

Oh my gosh, that sounds so awful.

(1) May I ask, how bad were your TSH numbers? How awful (high) did they get?

(2) Do you know your thyroid numbers and ranges (TSH, Ft3, Ft4) when you are...
Board: Thyroid Disorders 07-22-2012, 11:18 AM
Replies: 22
Views: 3,952
Posted By Spencer1
Re: Subacute thyroiditis

I have also had a subacute thyroiditis. I am in contact with a guy who is on his second.

A couple questions..

(1) Did you have the painless (silent) or painful thyroiditis? Or, did it come...
Board: Thyroid Disorders 07-19-2012, 01:48 PM
Replies: 3
Views: 607
Posted By Spencer1
Re: Thyroiditis help?

I had the exact same thing happen to me - thyroiditis! Which thyroiditis was is, did the doctor provide anymore info on this?

Maybe we should compare histories.

First off, what are your...
Board: Thyroid Disorders 07-19-2012, 01:23 PM
Replies: 2
Views: 996
Posted By Spencer1
Board: Thyroid Disorders 07-19-2012, 07:23 AM
Replies: 2
Views: 996
Posted By Spencer1
Please Help! Cannot tolerate T3 medication and when taking T4 there is weight gain?

What does it mean when a person cannot tolerate T3 medication and when they take T4, they get fatter?

I had a subacute thyroiditis a couple years ago. I don't feel like I am 100 percent...
Board: Thyroid Disorders 06-25-2012, 07:13 AM
Replies: 4
Views: 727
Posted By Spencer1
I feel like I'm FINALLY getting better! It's been 4 mo. since my last dosage increase

I feel like I'm FINALLY getting better!

It's been 4 mo. since my last dosage increase! Does it really take that long for symptoms to catch up with improved lab values? Wow. This stuff takes...
Board: Thyroid Disorders 06-20-2012, 05:53 PM
Replies: 1
Views: 865
Posted By Spencer1
Does anyone believe elevated RT3 means you are taking too much T4 medication?

Does anyone believe elevated RT3 means you are taking too much T4 medication?

Just curious if anyone agrees or disagrees on this.
Board: Thyroid Disorders 06-20-2012, 03:41 PM
Replies: 13
Views: 3,971
Posted By Spencer1
Re: Help w/my FREE T3 & T4 numbers from 12.15.11

Are you on any medicine at this point? Or, still you haven't been treated with thyroid hormone?
Board: Thyroid Disorders 06-20-2012, 03:39 PM
Replies: 13
Views: 3,971
Posted By Spencer1
Re: Help w/my FREE T3 & T4 numbers from 12.15.11

Sorry you're sick - please keep us updated. I am not better either.
Board: Thyroid Disorders 06-19-2012, 07:43 PM
Replies: 2
Views: 721
Posted By Spencer1
Are old lab tests still helpful to finding your sweet spot with thyroid medication?

I have TSH, Ft3, Ft4, etc levels from several years ago, long before I had thyroid problems and when I felt amazing.

(1) Are those old lab numbers a good reference for me personally?

(2) Is...
Board: Thyroid Disorders 06-19-2012, 05:12 PM
Replies: 13
Views: 3,971
Posted By Spencer1
Re: Help w/my FREE T3 & T4 numbers from 12.15.11

How are you doing now? We have similar issues? Are you better? What helped you?
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