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Board: Multiple Sclerosis 03-30-2013, 05:26 AM
Replies: 3
Views: 369
Posted By dogmum
Re: Still in LIMBO...

Gully, wishing you good luck at your appointment in Montreal. I hope they'll order you a new MRI and hopefully bring you closer to solving this for you.

I hope you enjoy the rest of your...
Board: Multiple Sclerosis 03-29-2013, 06:29 AM
Replies: 8
Views: 465
Posted By dogmum
Re: Been awhile..

Gully, I know just what you mean. Limbo is hard enough, but watching progression while not getting answers is even worse. I'll be thinking about you and hoping you get answers soon too and I'll look...
Board: Multiple Sclerosis 03-29-2013, 04:33 AM
Replies: 8
Views: 465
Posted By dogmum
Re: Been awhile..

Hi, Gully! Yes, I believe we did chat last year. How have you been?
Board: Multiple Sclerosis 03-24-2013, 06:54 AM
Replies: 8
Views: 465
Posted By dogmum
Re: Been awhile..

Thank you both! :) Nikki, I'm relieved to have answers finally. The MSologist was worth the transatlantic flight and all of his fees. And no, I'm not considering or planning to start any dmd at...
Board: Multiple Sclerosis 03-24-2013, 06:40 AM
Replies: 8
Views: 465
Posted By dogmum
Lightbulb Been awhile..

Hi fellow MSers and limbolanders alike. It's been awhile since I've been by and wanted to stop in and say hello.

Some of you may remember I came to the board about a year (maybe?) ago trying to...
Board: Multiple Sclerosis 08-08-2012, 08:02 AM
Replies: 26
Views: 4,531
Posted By dogmum
Re: Morning Symptoms

AW - Hang in there! Being in limbo and knowing something is wrong is trying and stressful, but answers will come. ((hugs))
Board: Multiple Sclerosis 08-01-2012, 08:21 AM
Replies: 14
Views: 1,097
Posted By dogmum
Re: Update... new MRIs, etc.

Very grateful for no changes, if the truth be told. I am disappointed not to have any answers, but have decided that it's better not getting answers than getting answers that mean things are...
Board: Multiple Sclerosis 07-31-2012, 01:11 AM
Replies: 14
Views: 1,097
Posted By dogmum
Re: Update... new MRIs, etc.

Nikki, I wish they had let me keep my pants. I wore soft yoga pants in the hope that they'd let me keep them on this time, but no such luck. Got to wear a nasty green little disposable gown that...
Board: Multiple Sclerosis 07-30-2012, 09:27 AM
Replies: 14
Views: 1,097
Posted By dogmum
Re: Update... new MRIs, etc.

Nikki - I have no idea why it should take hours, but it does. I was in by 1:30 and got out at 3:40. This was for brain and c-spine - no orbits, no t-spine. I can only assume that things are...
Board: Multiple Sclerosis 07-30-2012, 01:42 AM
Replies: 14
Views: 1,097
Posted By dogmum
Re: Update... new MRIs, etc.

It's "MRI-with-contrast" day! I'm trying to keep my nerves under control and not daring to hope for any answers, but still silently keeping my fingers crossed that I'll get some. The contrast is...
Board: Multiple Sclerosis 07-21-2012, 01:36 PM
Replies: 19
Views: 2,608
Posted By dogmum
Re: NHS neurologist waiting times?

That's why I'd head back to Emergency or call the doc. They might know of a faster and better way of getting you fixed up by then. Wishing you well...

Take care,
Board: Multiple Sclerosis 07-21-2012, 01:26 PM
Replies: 30
Views: 2,721
Posted By dogmum
Re: im ready to share... opinions wanted.

Nikki,
Obviously, you've got loads more experience than I do with this stuff so I can't offer any valuable opinion or advice, but I did want to let you know that I'll be thinking about you. I'm...
Board: Multiple Sclerosis 07-21-2012, 01:19 PM
Replies: 19
Views: 2,608
Posted By dogmum
Re: NHS neurologist waiting times?

Sorry to hear you've got the LP headache. I would still suggest going back to the hospital or at least phoning in to speak with the neuro who did it to talk about what's going on. He or she may...
Board: Multiple Sclerosis 07-19-2012, 07:30 AM
Replies: 4
Views: 389
Posted By dogmum
Re: So hopeful - seeing neuro-opth Friday!

Gully, you're in my prayers for safe travels and for getting those answers!

Wishing you well...
Board: Multiple Sclerosis 07-19-2012, 07:25 AM
Replies: 26
Views: 4,531
Posted By dogmum
Re: Morning Symptoms

Limboland does indeed suck, but as Jayhawk has said, the board certainly helps to bring us all together and ease the loneliness of it. I'm in a similar situation, that my neuros aren't willing to...
Board: Celiac Disease 07-10-2012, 02:11 AM
Replies: 0
Views: 1,688
Posted By dogmum
Duhring's Disease / Dermatitis Herpetiformis ?

Three and a half months ago I saw a dietitian who prescribed me a very low calorie intensely-gluten based diet. I have never done overly well with gluten, but she insisted so I tried. That same...
Board: Multiple Sclerosis 07-10-2012, 01:51 AM
Replies: 14
Views: 1,097
Posted By dogmum
Re: Update... new MRIs, etc.

Glad the heat has broken, Nikki! My parents have been sending me pictures of their thermometer and I've been thankful for my mountain air (even if we've been in the low 90s as well in the last few...
Board: Multiple Sclerosis 07-09-2012, 02:59 AM
Replies: 14
Views: 1,097
Posted By dogmum
Update... new MRIs, etc.

Hi, all! I've not posted for awhile and thought it was probably time for an update. I had about a 10 day mini-relapse in April with diplopia again, wore out the toes on some of my favorite shoes,...
Board: Multiple Sclerosis 07-09-2012, 01:11 AM
Replies: 8
Views: 1,503
Posted By dogmum
Re: Help! Double vision sucks

Jenny, double vision does totally suck. I'm still a rookie in all of this, but I had it once and it started in July and lasted until December last year and then again for about 15 days in April. I...
Board: Multiple Sclerosis 05-07-2012, 01:27 AM
Replies: 5
Views: 901
Posted By dogmum
Re: Here we go again!

Jayhawk, so far the transition lenses aren't helping me either, but I'm hoping that they will at least take the edge off eventually. As for the possibility of foot drop, I checked out a pair of...
Board: Multiple Sclerosis 05-03-2012, 06:29 AM
Replies: 5
Views: 901
Posted By dogmum
Here we go again!

Hi, all... Hope you're all having good days lately. I'm heading into what feels like relapse #2 and not sure how to handle it or who to tell so here I am hoping you can make suggestions for both the...
Board: Thyroid Disorders 05-03-2012, 06:06 AM
Replies: 2
Views: 797
Posted By dogmum
Re: Newbie needs some help with understanding results

Thanks for your reply. I do have the ranges somewhere, but can't seem to find them on the papers I have here.

Are there tests specifically for Hashimoto's? I may have already done them and not...
Board: Multiple Sclerosis 05-02-2012, 08:32 AM
Replies: 12
Views: 1,563
Posted By dogmum
Re: Limboland and a positive attitude - sometimes

Hi Peanut! I'm a fellow member of the limboland club and just wanted to say hi. I hope neither of us stay too long in limbo, but either way, it's good to hear from others in the same situation. :)
Board: Thyroid Disorders 05-02-2012, 06:34 AM
Replies: 2
Views: 797
Posted By dogmum
Question Newbie needs some help with understanding results

Hello. I've been trying to read through some threads and since there seem to be so many helpful and informed members here, I thought I'd ask about my results to get some ideas about what may be...
Board: Multiple Sclerosis 04-21-2012, 11:30 AM
Replies: 9
Views: 1,021
Posted By dogmum
Re: Need advice please

I personally would go with the suggestion to get a second opinion. Have a good chat with your family doctor and if they feel there is a reason for giving you the anti-anxiety drugs, I'd ask for a...
Board: Multiple Sclerosis 04-21-2012, 11:04 AM
Replies: 23
Views: 5,182
Posted By dogmum
Re: Does it sound like MS?

This is really interesting to me since it's quite similar to how my story goes. I, too, had a horrible case of mono about 12 years ago. Before having mono I never had any health issues at all and...
Board: Multiple Sclerosis 04-17-2012, 08:41 AM
Replies: 9
Views: 4,393
Posted By dogmum
Re: Please pass the herpes

Sorry you're dealing with both of these things together. I haven't heard of any possible connection between herpes virus and MS, but if you google epstein barr virus (EBV) and MS and you'll get...
Board: Multiple Sclerosis 04-17-2012, 08:01 AM
Replies: 23
Views: 6,538
Posted By dogmum
Re: Optic Neuritis as first MS symptom

Thank you for sharing. I do agree that the "normal" ranges are different from country to country. I am in Italy where the acceptable range is higher as well and I still came out in the upper end of...
Board: Multiple Sclerosis 04-16-2012, 01:26 AM
Replies: 3
Views: 1,004
Posted By dogmum
Re: PLEASE HELP!! possible MS??

Hi Christine.. and welcome! Jayhawk and Nikki have already given you some great advice. I just wanted to say hi and that I'm sorry that you're going through all of this. I'm in what they call...
Board: Multiple Sclerosis 04-14-2012, 11:47 PM
Replies: 23
Views: 6,538
Posted By dogmum
Re: Optic Neuritis as first MS symptom

Thanks for your suggestion. In my case, however, B12 was one of the first things my doctors checked. I know that B12 deficiency is one of the many MS mimics, but not the problem in my case.
Board: Multiple Sclerosis 04-12-2012, 07:44 AM
Replies: 13
Views: 1,669
Posted By dogmum
Re: Lesions

I did the full cardio workup and got the all clear, but when it hits and I can't breath and - in the worst episodes - I can't move my left arm, I do start to wonder. I have less issues with the ones...
Board: Multiple Sclerosis 04-09-2012, 05:45 AM
Replies: 2
Views: 470
Posted By dogmum
Re: Can some one please help me!

Sorry you're dealing with these unexplained health issues. Not knowing can be one of the hardest things to deal with when having health problems and not getting answers. I will say that your symptoms...
Board: Multiple Sclerosis 04-07-2012, 10:11 AM
Replies: 13
Views: 1,669
Posted By dogmum
Re: Lesions

Jayhawk, I can't imagine not telling someone they had cancer, when a lot of times, with the right treatment, it can go into complete remission. I'm glad that things are changing there and that...
Board: Multiple Sclerosis 04-07-2012, 01:14 AM
Replies: 23
Views: 5,182
Posted By dogmum
Re: Does it sound like MS?

Hi, sociallyskilled. Sorry to hear that you've had to deal with all of this for so long. It's difficult knowing something is wrong and not getting answers. I, too, had difficult climbing stairs...
Board: Multiple Sclerosis 04-06-2012, 07:40 AM
Replies: 13
Views: 1,669
Posted By dogmum
Thumbs up Re: Lesions

Counting yesterday's appointment, I now see two MS specialists and one regular neuro. I went looking for a second MSologist when I started to worry I was in a new attack (since Sunday) and my...
Board: Multiple Sclerosis 04-05-2012, 09:56 PM
Replies: 13
Views: 1,669
Posted By dogmum
Re: Lesions

Jayhawk, the more I look into this the more interesting I find the whole thing. I think you're right that MS should be possible to dx without imaging being necessary, and the more I read about it,...
Board: Multiple Sclerosis 04-05-2012, 08:19 PM
Replies: 13
Views: 1,669
Posted By dogmum
Lesions

Hi all... I had a good long chat with the local ms neuro yesterday. She said that they need 9 lesions to make a diagnosis. Isn't this true only in the case of no clinical attack and on the 2005...
Board: Multiple Sclerosis 03-27-2012, 06:15 AM
Replies: 2
Views: 1,415
Posted By dogmum
Re: Service Dog Breeds

Thanks, Jayhawk! This is a fabulous post and should be made a "sticky" in my opinion. Have you ever thought about blogging? You have so much good advice about many different aspects of life with...
Board: Multiple Sclerosis 03-26-2012, 07:13 AM
Replies: 10
Views: 1,235
Posted By dogmum
Re: Any runners?

Good advice, Jayhawk! Can I ask what small breeds you're thinking of?
Board: Multiple Sclerosis 03-26-2012, 06:39 AM
Replies: 10
Views: 1,302
Posted By dogmum
Re: MS Walk ~ does anyone do it?

Sounds like fun, Kenzi! I wish we had this kind of thing over here, but I've yet to hear of one. Mostly the MS society here just has fundraisers of asking people to send text messages that give...
Board: Multiple Sclerosis 03-26-2012, 12:29 AM
Replies: 10
Views: 1,235
Posted By dogmum
Re: Any runners?

Jayhawk, your dogs do sound wonderful! Since first hearing about them, I've encountered another MSer who uses an English Mastiff as well. Kudos on training them yourself!
Board: Multiple Sclerosis 03-25-2012, 06:17 AM
Replies: 10
Views: 1,235
Posted By dogmum
Re: Any runners?

I used to run a loooong time ago. I had to give it up because I just don't have the knees for it. I started rollerblading and LOVE it, but balance was a real issue last summer so... I started...
Board: Multiple Sclerosis 03-23-2012, 01:31 AM
Replies: 4
Views: 1,276
Posted By dogmum
Re: Guidance/ knowledge on demyelination please

So sorry you're going through all of this. Does your ophthalmologist suspect optic neuritis? Seeing a neuro-ophthalmologist is a good idea. My ophthalmologist was the first one to suggest ON and...
Board: Multiple Sclerosis 03-23-2012, 12:46 AM
Replies: 6
Views: 1,109
Posted By dogmum
Board: Multiple Sclerosis 03-23-2012, 12:45 AM
Replies: 6
Views: 1,109
Posted By dogmum
Re: limbo land update & 2 new symptoms

April 4th will be here before you know it, Kenzi, and I'm hoping it will be a good appointment for you. I get that vertigo-ish thing pretty often too and I know it can be annoying. I guess we...
Board: Multiple Sclerosis 03-16-2012, 12:16 AM
Replies: 10
Views: 1,177
Posted By dogmum
Re: I give up!

I'm so sorry to hear that they are still giving you the run around. Why not give yourself a week off from dealing with these people and then try again. It'll be worth it when you finally get your dx....
Board: Multiple Sclerosis 03-13-2012, 04:01 AM
Replies: 3
Views: 934
Posted By dogmum
Re: Had my very good Neuro appoint today

I've just started the paleo diet and have soooo much more energy. Nice to hear that it's working well for you too.

I actually didn't start it to help with "possible MS", but just for trying to...
Board: Multiple Sclerosis 03-07-2012, 08:28 AM
Replies: 2
Views: 1,528
Posted By dogmum
Re: Effect of MSG/other substances on MS Symptoms?

My mom had a brain tumor years ago and suffers horrible nerve pain and headaches that are exacerbated by eating MSG. It took her a year or so to figure out what it was, but when she started to avoid...
Board: Multiple Sclerosis 03-07-2012, 06:42 AM
Replies: 6
Views: 965
Posted By dogmum
Re: Myco-whats???

I would LOVE to get an answer that all of these issues were identified and curable! Who knows? :D
Board: Multiple Sclerosis 03-06-2012, 01:04 PM
Replies: 6
Views: 965
Posted By dogmum
Re: Myco-whats???

This is interesting.. think I'll ask my neuro about it at our next meeting. Thanks!
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