It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....




Lightbulb

Search   Advanced Search
Showing results 1 to 50 of 71
Search took 0.07 seconds.
Search: Posts Made By: seekfind

Alternative to Searching: Try our message board index!
Board: Lyme Disease 10-05-2011, 07:30 AM
Replies: 1
Views: 886
Posted By seekfind
Re: Treatment for Lyme Disease

Hi Runningchick,

Congratulations on your diagnosis!

In my opinion (not a doctor) since you have chronic lyme, you should be on biaxin/plaquenil (or some other combo of abx which LLMDs...
Board: Multiple Sclerosis 05-03-2011, 01:58 PM
Replies: 9
Views: 3,251
Posted By seekfind
Re: Still Looking for a Diagnosis...MS?

I had a difficult time getting a diagnosis (ultimately Lyme, Bartonella and Babesiosis). I was thinking I may have MS as I had *all* of the symptoms.

One major symptom of mine was 'internal...
Board: Chronic Fatigue 05-03-2011, 11:39 AM
Replies: 6
Views: 7,347
Posted By seekfind
Re: Things that helped me with CFS. Is there anything that helped you?

For me, it didn't get better until the Lyme Disease was treated, with IV antibiotics. It took several months but I haven't had CFS since.
Board: Chronic Fatigue 05-03-2011, 11:32 AM
Replies: 2
Views: 981
Posted By seekfind
Re: Chronic Fatigue question

Do you have any other symptoms related to Lyme Disease? Maybe you can post over on the Lyme board.

Unfortunately the tests for Lyme are only 30% accurate. So you may have it and test negative....
Board: Bell's Palsy 05-03-2011, 11:09 AM
Replies: 11
Views: 8,736
Posted By seekfind
Re: Tingling in the face????

This thread is pretty old so I hope you get this reply. I have tingling face/lips/tongue (as well as hands and feet). I've been diagnosed with Lyme disease.

The tests for Lyme are only 30%...
Board: Lyme Disease 05-03-2011, 10:24 AM
Replies: 3
Views: 2,420
Posted By seekfind
Re: New to treatment, Starting IV Rocephin

Sorry for the late reply. I was on IV Rocephin back in 2009. I hope that it helped you.
Board: Lyme Disease 05-03-2011, 10:07 AM
Replies: 4
Views: 2,346
Posted By seekfind
Re: Lyme Disease? Or something else? What is wrong with me?!?

Everything you described were my first symptoms! Find a LLMD! The Lyme Disease Association has a doctor referral list (you just have to sign up to get it). Lyme doctors are the only doctors who can...
Board: Lyme Disease 05-03-2011, 09:54 AM
Replies: 3
Views: 1,967
Posted By seekfind
Re: Can lymes disease make you....

Most Lyme doctors don't take insurance. Maybe you have one in your area that does--if so--that's great!

Make sure to see a LLMD and not an infectious disease doc...you'll just get the run around...
Board: Lyme Disease 05-03-2011, 09:49 AM
Replies: 4
Views: 1,653
Posted By seekfind
Re: Need some advice. Feeling low (Lyme, MS?)

I am *not* an outdoorsy person--never been camping in my life and I got Lyme. It can happen to anyone.

It's everywhere now--every where that there are ticks--which is everywhere that there is...
Board: Lyme Disease 05-03-2011, 09:39 AM
Replies: 1
Views: 884
Posted By seekfind
Re: Many symptoms of Lyme... help!

I agree that it sounds like Lyme. I had all of those symptoms. And I became hypothyroid from Lyme as well.

As you know from experience, most doctors haven't a clue that those are actually Lyme...
Board: Lyme Disease 09-30-2009, 08:11 AM
Replies: 7
Views: 2,449
Posted By seekfind
Re: Surprised wasn't found earlier

You live in central new york and they weren't suspecting lyme? That is insane...sorry, it is.

But glad they found it and you're getting help!
Board: Lyme Disease 09-30-2009, 08:07 AM
Replies: 5
Views: 2,449
Posted By seekfind
Re: Desperate for a Diagnosis

It sounds exactly like Lyme.
Board: Bell's Palsy 09-30-2009, 08:02 AM
Replies: 5
Views: 5,523
Posted By seekfind
Re: Bell's palsy again...normal or continued infect

get tested for EBV, epstein barr virus, as well.
Board: Lyme Disease 09-30-2009, 08:00 AM
Replies: 3
Views: 2,655
Posted By seekfind
Re: Newly Diagnosed Lymes, former Ehrlichiosis

Those circular rashes are a definitive sign of Lyme (not Lymes, btw there's no "s") disease, called EM rashes.

sorry i didn't read that you did get a positive test. that is great (in a sense)!
...
Board: Lyme Disease 09-30-2009, 07:50 AM
Replies: 7
Views: 2,226
Posted By seekfind
Re: LLMD in twin cities?

The disease is Lyme disease (or Lyme) not Lymes. Thanks.
Board: Lyme Disease 09-30-2009, 07:48 AM
Replies: 2
Views: 1,609
Posted By seekfind
Re: Lyme for 1 1/2 years and getting worse

If these doctors are Lyme doctors please delete their names and send privately via PM. Thanks! We have to protect our doctors!!
Board: Anemia 09-30-2009, 07:44 AM
Replies: 10
Views: 30,271
Posted By seekfind
Re: Can anemia cause intense lower leg aches?

Also check with a neurologist. I have facial numbness, body jerks, fatigue, etc. and it's from neurological lyme disease.

there are a lot of things out there which can cause your symptoms.
Board: Chronic Fatigue 09-30-2009, 07:12 AM
Replies: 3
Views: 2,019
Posted By seekfind
Re: How is CFS diagnosed?

My chronic fatigue is due in part by Lyme disease but also Epstein Barr Virus.

The tests are terrible for Lyme (false negatives more than half the time). I'm not sure how good the testing for EBV...
Board: Chronic Fatigue 09-30-2009, 07:08 AM
Replies: 1
Views: 1,161
Posted By seekfind
Re: Doctor told me today

Yes. I have EBV.

I was prescribed Provigil recently but my insurance won't cover it. They only cover it for MS, alas. I haven't heard of the other medicine you mentioned.

Best wishes!
Board: Thyroid Disorders 09-30-2009, 06:34 AM
Replies: 5
Views: 914
Posted By seekfind
Re: overactive results but I have symptoms of underactive

I had a thyroid doctor tell me that the tests are trash. So it really has to be a clinical diagnosis.

If I were you I would get a second opinion before going on a medication that I may not need....
Board: West Nile Virus 09-30-2009, 06:21 AM
Replies: 4
Views: 12,149
Posted By seekfind
Re: West Nile infection?

I was quoting the CDC. I do undertand that it is fairly common but it's just that 99.8% of people have absolutely no symptoms with it.

So it is common but usually not debilitating.

By...
Board: Lupus 08-25-2009, 08:04 AM
Replies: 14
Views: 3,727
Posted By seekfind
Re: not quite diagnosed

Re: Ruling out Lyme Disease

Doctors usually run the standard tests for Lyme disease and rely on the results alone (without taking into account clinical symptoms).

Unfortunately, the...
Board: Lupus 08-20-2009, 11:56 AM
Replies: 14
Views: 3,727
Posted By seekfind
Re: not quite diagnosed

Rashes can also rule "in" Lyme Disease.

Circular rashes are fairly common with Lyme. They say that classically, it's a bulls-eye shape but I have heard recently that any circular rash can be...
Board: Brain Tumors 08-14-2009, 10:46 PM
Replies: 12
Views: 12,223
Posted By seekfind
Re: A very long and crazy medical mystery journey.

In many cases bacteria (like borrelia burgdorferi, in my case) and viruses (such as HIV) do not just "go away". They're actually extremely difficult to eradicate from the body.
Board: Brain Tumors 08-14-2009, 11:42 AM
Replies: 12
Views: 12,223
Posted By seekfind
Re: A very long and crazy medical mystery journey.

I also wanted to mention that I was tested for EBV and it showed past infection. That may have contributed to the *severe* fatigue.

I was also clinically diagnosed with the tick-born diseases...
Board: Brain Tumors 08-14-2009, 11:38 AM
Replies: 12
Views: 12,223
Posted By seekfind
Re: A very long and crazy medical mystery journey.

Strangley my journey has been very similar (except for the facial rash). The diagnosis was Lyme disease for me. My first test came back negative but my PCP insisted I get a second test due to my...
Board: Bell's Palsy 08-14-2009, 11:03 AM
Replies: 3
Views: 1,092
Posted By seekfind
Re: need advice,going nuts,

My thoughts (I'm not a doctor) are either food allergies (causing slow digestion and throat closing) or bell's palsy of the gut.
Board: Lupus 08-14-2009, 10:48 AM
Replies: 16
Views: 4,810
Posted By seekfind
Re: I don't know what this is, Please Help

A parasite (bacteria) which affects your brain and causes the symptoms you describe is borrelia burgdorferi.

I'm not a doctor but I have the same symptoms as you and that was the cause for me (of...
Board: Multiple Sclerosis 08-14-2009, 10:32 AM
Replies: 5
Views: 1,206
Posted By seekfind
Re: could use some advise

I have those symptoms. For me it's from Neurological Lyme Disease. It's epidemic in Massachusetts so you may want to investigate that avenue.
Board: Personality Disorder 08-14-2009, 10:23 AM
Replies: 6
Views: 4,173
Posted By seekfind
Re: Borderline, but I think I'm normal.

From what you've described of your behavior it certainly sounds like your psychiatrist is correct in his/her diagnosis.

If you can, continue working with your psychiatrist or find one who...
Board: Lyme Disease 06-02-2009, 04:28 PM
Replies: 5
Views: 2,006
Posted By seekfind
Re: Dr. said NO LYME...without a blood test!!???

You're in NJ--that's Lyme central! These doctors are deluded! Checking for Lupus? Ridiculous! The ignorance of most doctors really irks me.

It's important for you to know that you can test...
Board: Lyme Disease 06-02-2009, 04:17 PM
Replies: 7
Views: 5,664
Posted By seekfind
Re: Anything to Prevent Deer Ticks Except for Deet?

My LLMD said only *DEET* works. And he is a homeopathic/alternative doctor and said this---that those natural ones just aren't effective! DEET is the way to go!
Board: Lyme Disease 06-02-2009, 04:04 PM
Replies: 5
Views: 2,115
Posted By seekfind
Re: would appreciate help from your experience; orals or IV?

I have had neurological lyme undiagnosed for 10 years, diagnosed and treatment (oral abx and herbal) started in 2006. I started IV just March of this year and my symptoms have dramatically improved. ...
Board: Infectious Diseases 05-20-2009, 12:13 PM
Replies: 15
Views: 8,801
Posted By seekfind
Re: Dx with Fifths Disease but still suspect Lyme. Worth getting a 2nd opinion?

That's interesting that where you live doctors blame tick borne disease for everything. Where I live (MA) even though it's an endemic area, if you have a history of a tick bite they immediately...
Board: Brain Tumors 05-18-2009, 06:25 AM
Replies: 65
Views: 24,854
Posted By seekfind
Re: Scared I have a brain disease

This is exactly what doctors told me (with the same symptoms stated here). I was also misdiagnosed with IBS and told to meditate by alternative doctors (that I had anxiety?).

I did all of these...
Board: Lyme Disease 05-14-2009, 09:06 AM
Replies: 7
Views: 1,705
Posted By seekfind
Re: Started treatment today

Being 40 myself, I can tell you that muscle aches are not associated with being 40. Maybe if you're 70 or 80. But 40? No.

We have a tendency to dismiss our symptoms, to excuse them away. That's...
Board: Infectious Diseases 05-09-2009, 06:58 AM
Replies: 13
Views: 8,749
Posted By seekfind
Re: 10 year infection

Well if your PCP suspects Lyme, you should find yourself a Lyme doctor, who may or may not also be an Infectious Disease doctor.

Most IDs do not know much about Lyme at all, as strange as that...
Board: Brain Tumors 05-08-2009, 06:44 AM
Replies: 65
Views: 24,854
Posted By seekfind
Re: Scared I have a brain disease

I agree with Bethsheba (that it could be Lyme Disease). I have Lyme Disease (specifically "Neurological Lyme Disease"). And especially when you mentioned the "gurgling muscle" feeling, it made me...
Board: Infectious Diseases 05-07-2009, 06:34 AM
Replies: 15
Views: 8,801
Posted By seekfind
Re: Dx with Fifths Disease but still suspect Lyme. Worth getting a 2nd opinion?

Misdiagnosis is hell. I have been there, for ten years until I finally got the Lyme diagnosis. Seems like we're on opposite ends of the spectrum. I think you're an anomaly actually and most people...
Board: Infectious Diseases 05-06-2009, 07:11 AM
Replies: 13
Views: 8,749
Posted By seekfind
Re: 10 year infection

I do want to mention too, those urinary tract issues (which I also had)...the Lyme bacteria *loves* the bladder and it's very common to have those types of issues. I had many, many UTIs over the...
Board: Infectious Diseases 05-05-2009, 02:12 PM
Replies: 15
Views: 8,801
Posted By seekfind
Re: Dx with Fifths Disease but still suspect Lyme. Worth getting a 2nd opinion?

Well, I am on my 5th week of IV antibiotics for Lyme Disease and for the first time in SIX years I can go all day without having to take a nap. The lifting of the fatigue in such a short amount of...
Board: Infectious Diseases 05-01-2009, 06:09 AM
Replies: 13
Views: 8,749
Posted By seekfind
Re: 10 year infection

It was my Lyme doctor who stated that those random heart pains in an otherwise "healthy" person (one whose bloodwork comes back normal), while at the same time having rib and sternum soreness points...
Board: Infectious Diseases 04-30-2009, 01:59 PM
Replies: 13
Views: 8,749
Posted By seekfind
Re: 10 year infection

Your history sounds so much like mine!

I went ten years undiagnosed/misdiagnosed. My first Lyme test came back negative, as well. Fortunately for me I had an astute PCP who insisted on a second...
Board: Diet & Nutrition 03-31-2009, 06:53 AM
Replies: 12
Views: 10,379
Posted By seekfind
Re: Does selective wheat intolerance exist?

As mentioned previously, my wheat allergy stems from contracting Lyme Disease. So if this allergy came on suddenly for you (not born with it) you may want to consider the cause.

Given that even...
Board: Lyme Disease 03-10-2009, 07:22 AM
Replies: 17
Views: 3,508
Posted By seekfind
Re: I am so confused???

If your symptoms are worse on antibiotics it means you are herxing (Herxheimer reaction). The Ceftin is killing the bacteria and causing the worsening (flare up) of symptoms. It's very common to feel...
Board: Brain & Nervous System Disorders 03-06-2009, 07:40 AM
Replies: 14
Views: 6,787
Posted By seekfind
Re: Another dizzy person

Lyme tests are completely unreliable. And then you also have the CDC dictating how many bands you must have. The test is actually testing the antibodies that your immune system produces against the...
Board: Brain & Nervous System Disorders 03-04-2009, 09:17 AM
Replies: 14
Views: 6,787
Posted By seekfind
Re: Another dizzy person

Lyme disease tests are completely unreliable, though. So only a Lyme specialist can completely rule it out or diagnose you.

I have Lyme and my first test was negative and it was redone two months...
Board: Brain & Nervous System Disorders 02-15-2009, 09:16 PM
Replies: 14
Views: 6,787
Posted By seekfind
Re: Another dizzy person

I have had severe vertigo/dizziness for the last few days. It's really scary!

I myself have Lyme Disease and the symptoms you mention not having (hair falling out and twitches) did not start for...
Board: Brain & Nervous System Disorders 02-15-2009, 08:14 PM
Replies: 6
Views: 3,491
Posted By seekfind
Re: Cognitive Impairment, Chest and Stomach Knots

I have cognitive issues still (plus the heart issues and fatigue), because my Lyme doc closed his practice (long story but watch the documentary Under Our Skin to find out why Lyme doctors are...
Board: Diet & Nutrition 02-15-2009, 01:00 PM
Replies: 12
Views: 10,379
Posted By seekfind
Re: Does selective wheat intolerance exist?

I developed a severe wheat allergy (off the charts on the tests) due to Lyme disease, about 12 years ago now.

They tested me for celiac (twice) over this past decade and both times were negative....
Showing results 1 to 50 of 71

 








All times are GMT -7. The time now is 11:56 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2015 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!