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Board: Polio 12-18-2009, 12:04 PM
Replies: 86
Views: 29,936
Posted By sue 5678
Re: I'm new here...

Thank you for all your words of encouragement...!
I did get on dissability on my first try Cher,so I am sure you will not have any trouble. I did not need a lawyer, so just hang in there and don't...
Board: Polio 12-16-2009, 03:32 PM
Replies: 86
Views: 29,936
Posted By sue 5678
Re: I'm new here...

Hello, everyone ! I have'nt been on for awhile but it's nice to know that there are quite a few of us out there! I do have pps. I am only 39. I got polio in 1970 at 2 mths old. I have managed to get...
Board: Polio 11-14-2009, 09:03 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

Glad to hear that Sandy is set up and hopefully will recover soon. I hope they treat her well... My husbands aunt is doing better ,since being transferred to another hospital. We can only hope and...
Board: Polio 11-12-2009, 11:06 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

It is sad about the medical industry, my husbands aunt is still in the hospital,really sick, but the one she was in wasn't doing nothing for her, so the family transferred her to another one, it's so...
Board: Polio 11-08-2009, 10:24 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

Hi Teresa! I know what you mean about it affecting your mind, it does certainly affect mine. I suffer a bit of anxiety, and nervessness, it has gotten better, but nonetheless I have to really work on...
Board: Polio 11-06-2009, 08:55 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

HI Teresa and Kanndogirl! I totally know how both of you feel. I too worry about falling down and not being able to get up, and it has happened manytimes already it my life time. Resting does do...
Board: Polio 11-04-2009, 06:19 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

Hi Teresa! I hope your doc. appt went well. Let me know how it went.
Just as i think i am feeling better WHAM! My left ankle (my good foot) was in such pain yesterday, I think i did too much on...
Board: Polio 10-31-2009, 10:46 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

HI Teresa how are yo u doing??? I am doing well, I went to the doc. and he was pleased to inform me that all my test came back negative!! I let him know that i was exercising with the wii, he said to...
Board: Polio 10-29-2009, 10:57 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

Hi Teresa! The view sure does seem lovely where you are at! Here in w. texas we don't have much of a view mostly dry flat land. The weather changes quite a bit. Today it is 40 degrees and rainy a...
Board: Polio 10-26-2009, 07:00 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

Hi Teresa! sounds like you had somewhat of an adventure! I am alot like you, i do not go out much, i never liked bars, my husband and i have been married almost 20 yrs, and have never gone to a dance...
Board: Polio 10-21-2009, 09:41 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

Hi Teresa, sleeping has really been so hard for me, I have been suffering for quite awhile. Here lately I have been sleeping in the guest room, for fear of waking my husband up with my moving alot....
Board: Polio 10-19-2009, 07:51 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

HI Teresa! I hope all is well! I am doing fine this morning a lil tired, I am having such a hard time sleeping, it has been this way for such a long time, it has become torture. When I do sleep my...
Board: Polio 10-19-2009, 07:48 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

Hi Sassy,I hope all is well for you. I am sorry for the pain that you go through, I am proud though when I learn how tough we all are, this illness was very seroius when we first got it, and still to...
Board: Polio 10-15-2009, 10:23 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

HI Teresa! I am feeling really good today, not as stiff as usual. I have 1 son who is a senior this year, he is a great kid, I suppose the Lord knew what he was doing when he gave him to me! He is a...
Board: Polio 10-14-2009, 10:40 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

Hi Teresa, how are you?
I do have a really small right foot, my heel is really little, and so is my ankle, and calve. My left foot is normal size but my calve appears to be larger than an average...
Board: Polio 10-13-2009, 11:18 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

Hi Teresa! It is very difficult for us to be social due to our illness, and it seems as if no one really understands how we feel. I really have to think on a day to day basis of what needs to be...
Board: Polio 10-11-2009, 10:42 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

Hi Teresa!
I hope you are feeling well today. It is cold outside where i am so, during this time, I have to stay indoors.. I wear a brace on my right leg, it is the weakest part of me, however I am...
Board: Polio 10-07-2009, 02:29 PM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

It's tough finding solutions to our pain isn't it? I feel like I am constantly trying to find something that works.
I take advils and lyrica daily, sometimes I need to take advil p.m to help me...
Board: Polio 10-05-2009, 08:42 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

Hi Teresa! How are you today, i had a nice weekend also, but I am still tired today, my husband is still home... he will be back at work tomorrow, maybe then i can get some rest. I do enjoy his...
Board: Polio 10-02-2009, 07:33 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

I hope you have a wonderful time, I can totally relate to how you feel. This weekend my husband finally has the weekend off, and he is really wanting to be out and about, as do I, however, I do worry...
Board: Polio 10-01-2009, 07:13 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

HI Rockman! Thank you for being my friend! I need someone who can relate to what we are going through....
I am in the process, of starting to sew, although i am concerned, I won't be able to press,...
Board: Polio 10-01-2009, 07:07 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

HI Sassy, it's nice to meet you! I totally understand your pain, I have good days and bad days, that sometimes last for days, and somtimes only 1 day, but i think that if we get plenty of rest, and...
Board: Polio 09-30-2009, 08:27 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

I am glad to hear you are happy, that gives me hope. I too, have a wonderful family, i have 1 son who is more than i could hope for, he is a senior in high school this year i am proud of him. I have...
Board: Polio 09-27-2009, 06:11 PM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

I recently was sent by my doctor, to get 5 test done, they are possible ailments, that i may have due to polio, they are arthritis , lupus, thyroid, and how much muscle damage i have. I don't think...
Board: Polio 09-24-2009, 05:04 PM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

I am the one who pretty much told my doc. that i thought i might have post.polio syndrome and we took it from there, now we are in the process of finding all that is wrong with me, due to having...
Board: Polio 09-21-2009, 09:24 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

I take lyrica also, and it does help, i do still do heat, and rest alot. i am getting to where in the near future i may need a scooter also there are days where it is so difficult to walk and move...
Board: Polio 09-18-2009, 08:52 AM
Replies: 66
Views: 22,803
Posted By sue 5678
Re: post-polio

I am sorry to hear about your pain. I too suffer from pain and weakness all over my body.
I wish i could be more help to you, but what i do is rest ALOT. when I am in pain, i find that lying down...
Board: Disabilities 09-16-2009, 06:38 AM
Replies: 9
Views: 4,900
Posted By sue 5678
Re: Got my back pay,,,

It is very confusing, although, the good thing is that my waiting time, was only a few months, i did have enough work credits, however, i think it was based soley on my husbands income, under ssi,...
Board: Disabilities 09-15-2009, 06:25 AM
Replies: 9
Views: 4,900
Posted By sue 5678
Got my back pay,,,

Well, i don't like to sound ungrateful, but i would like to share something with everyone... i did get awarded, ssdi within 7 months of applying, however i never received any information about back...
Board: Disabilities 09-07-2009, 08:49 AM
Replies: 12
Views: 6,204
Posted By sue 5678
Re: got my approval letter today

I am so happy for you!! It's a wonderful thing when we know it's almost over!
I did call the s.s to double check on my d.deposit info, so you might call them as well, it's better to be sure...
as...
Board: Disabilities 08-20-2009, 12:20 PM
Replies: 13
Views: 5,091
Posted By sue 5678
Re: What color is the envelope?

:)All mine came in white envelopes of all sizes. The gold ones where for paperwork to be sent in by us for function reports, etc.
My approval and denial letters where all white
Board: Disabilities 08-14-2009, 08:07 PM
Replies: 3
Views: 6,079
Posted By sue 5678
Does every one get back pay once approved for disability?

I just recently got approved for dissability, i still have'nt recieved my first benifit check, but i got a call to day from govt. asking me questions about vehicles, house payment my husbands check...
Board: Disabilities 08-08-2009, 08:25 AM
Replies: 5
Views: 7,168
Posted By sue 5678
Re: SSD Mental Exam Appt-What should I expect?

During a mental exam, they will ask you questions like: "do you know what day it is?" do you know who our president is"? "can you count backwards by 2's "? That sort of stuff, they will also ask you...
Board: Polio 07-28-2009, 07:37 AM
Replies: 3
Views: 3,919
Posted By sue 5678
Re: post polio and vitamins

thank you for your advice, i suppose we can only take one day at a time, and only do what we are able to do on any given day. I believe in the Lord, and I am grateful that i have made it this far. I...
Board: Disabilities 07-27-2009, 11:57 AM
Replies: 8
Views: 1,640
Posted By sue 5678
Re: I got approved!

Thanks everyone for your support and info! I will consider all of the advice given to me for my back pay. I guess the good thing is,, that i will be getting something for sure !
Thank you.;)
Board: Disabilities 07-25-2009, 09:39 AM
Replies: 8
Views: 1,640
Posted By sue 5678
I got approved!

I have been reading this message board for a long while, so I'd like to thank everyone, for sharing your stories. They are all so helpful to me.The good thing is that I am finially done with the...
Board: Polio 07-21-2009, 09:04 AM
Replies: 3
Views: 3,919
Posted By sue 5678
post polio and vitamins

hi, having post polio, i know that we must really have knowledge about our health and limitations, as i am discovering more about this illness, i know that our weight and nutrition have alot to do...
Board: Disabilities 07-03-2009, 12:39 PM
Replies: 4
Views: 2,521
Posted By sue 5678
Re: Put in for reconsideration now we have another function report is that a good sig

i too am in the middle of the reconsideration level.
I had to fill out another function report, my represenative filled it out for me. she stated that it's extremely important to fill it out...
Board: Disabilities 06-15-2009, 07:45 AM
Replies: 9
Views: 3,364
Posted By sue 5678
Re: SSD Dr. exam tomorrow

i also have an appt this week that s.s. scheduled. i am also nervous, as i am unsure what the doc. will want to see, they are going to evaluate my diagnoses of post polio syndrome and my back pain....
Board: Back Problems 05-26-2009, 08:13 AM
Replies: 4
Views: 630
Posted By sue 5678
Re: Pain Management

I too have sponylolisthesis, although i am unsure at what grade i am in, doc. has stated that it is severe.
To eleviate the pain that i go through, i do back and abdominal exercises at it really...
Board: Polio 04-21-2009, 08:34 AM
Replies: 0
Views: 2,984
Posted By sue 5678
elbow pain, causing fingers to be sore

having post polio is very difficult sometimes, due to so many people not understanding the condition we live with daily.
however I do have a question: has anyone ever experienced elbow pain, i ...
Board: Polio 01-12-2009, 02:18 PM
Replies: 2
Views: 4,690
Posted By sue 5678
Re: sugar cube 1963 , i got polio

from the best of my knowledge there are no specific test to determing pps. But the one my neurologist gave me was and EMG (nerve study) it determines how much nerve damage and muscle damage we have...
Board: Polio 01-04-2009, 12:13 PM
Replies: 0
Views: 3,076
Posted By sue 5678
Question just had lower spine xrays done

Hello, well yeah I just had back xrays done and the tech showed me the results, lower spine is dislocated, I don't know what the doc will recommend at this point has any one had back problems due to...
Board: Polio 12-29-2008, 03:43 PM
Replies: 6
Views: 5,312
Posted By sue 5678
Re: hello just diagnosed with pps

I have been having symptoms for a little over 2 years. Very suttle. then I started noticing that I would get tired quicker and more twitching along with falling more. It is still hard for me to accept
Board: Polio 12-27-2008, 06:44 PM
Replies: 6
Views: 5,312
Posted By sue 5678
Re: hello just diagnosed with pps

stem cell treatment? How would I find out more about that? So you think brunos book is depressing? how come? do you have pps? let me know how your doing
Board: Polio 12-25-2008, 03:02 PM
Replies: 6
Views: 5,312
Posted By sue 5678
Re: hello just diagnosed with pps

I hope all is well with you
Doctors here so far seem to be helping me. I hope it continues
Board: Polio 12-19-2008, 06:03 PM
Replies: 6
Views: 5,312
Posted By sue 5678
hello just diagnosed with pps

Hello i am new to this message board and I have just got diagnosed with pps. I am 38 years old and I am concerned with what the future may hold for me.
If any one could help me out I would really...
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