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Board: Fibromyalgia 05-06-2015, 08:41 AM
Replies: 5
Views: 382
Posted By bluelakelady
Re: Newly Diagnosed with Fibromyalgia

the itching part turned out to be related to sjogrens. the bugs under my skin were fibro. lotion solved the itching issue. go figure? giggle
peace,
bluelakelady
Board: Fibromyalgia 05-05-2015, 09:17 AM
Replies: 5
Views: 382
Posted By bluelakelady
Re: Newly Diagnosed with Fibromyalgia

I remember that phase. I rarely get it now. I think it lasted about 4 years of constantly looking to see what was there. then it was less and less. now it's gone. I have had fibro for 20+ years. it...
Board: Fibromyalgia 05-04-2015, 07:42 AM
Replies: 3
Views: 174
Posted By bluelakelady
Re: How to have hope?!!!

I had to chuckle. you sound like I did some 20 years ago. that's why I got a shrink. now I do have hope but it is for others. my kids, grandkids, friends, neighbors, the planet, things like that.
I...
Board: Fibromyalgia 05-03-2015, 09:12 AM
Replies: 2
Views: 242
Posted By bluelakelady
Re: new to the boards- epidural injections and some support

first welcome. second so sorry I missed this. I have had good and bad experiences with pain procedures. sometimes it works, sometimes it makes it worse and sometimes it does nothing. I have had at...
Board: Fibromyalgia 05-03-2015, 09:02 AM
Replies: 3
Views: 174
Posted By bluelakelady
Re: How to have hope?!!!

welcome back.
honestly I don't waste my energy on hope. I adapt to each day as it comes and if I am in bed for weeks on end so be it. I spend approximately 20 hours a day in bed. I have other issues...
Board: Fibromyalgia 05-02-2015, 08:29 AM
Replies: 4
Views: 246
Posted By bluelakelady
Re: Fibromyalgia and stress/trauma

hello and welcome,
I have been living with this for over 20 years now. stress was a huge trigger in the beginning so I got into therapy to learn how not to stress over stuff. I had a great teacher...
Board: Fibromyalgia 04-30-2015, 08:25 AM
Replies: 2
Views: 200
Posted By bluelakelady
Re: Going crazy, need to talk...

you are most welcome sweet pea. yea, it's the hardest part for me as well. of course I am old so I think it is somehow easier to accept. so much for 60 being the new 30. giggle.
I still adore my...
Board: Fibromyalgia 04-29-2015, 08:39 AM
Replies: 2
Views: 151
Posted By bluelakelady
Re: input needed plz

hello and welcome,
I would suggest you look up sjogrens and see if that fits your symptoms. I have it and what you describe is more like that than fibro, though you can have both. like me! giggle....
Board: Fibromyalgia 04-28-2015, 08:46 AM
Replies: 3
Views: 194
Posted By bluelakelady
Re: Chest Pain

hey girl!
nice to hear from you. bummer on the chest pain though. yea I get that too. I do have costo but sometimes it feels like a whale is sleeping on my chest. any difficulty drawing deep...
Board: Fibromyalgia 04-26-2015, 08:55 AM
Replies: 2
Views: 181
Posted By bluelakelady
Re: Calf cramping

hi,
it could be. suggest massage and heat. you may want to check with your doctor and be sure it is not restless leg syndrome. suggest you research that and see if it comes close to what you are...
Board: Fibromyalgia 04-20-2015, 09:41 AM
Replies: 1
Views: 225
Posted By bluelakelady
Re: Honestly no where else to turn

hi sweet pea,
I strongly suggest you get some help. for you, not mom. living with a person who is behaving like that is hard and having some tools for coping helps a great deal. a therapist will be...
Board: Fibromyalgia 04-17-2015, 09:48 AM
Replies: 5
Views: 357
Posted By bluelakelady
Re: Fibro Fatigue

hi stace,
thank you. it has been a journey of learning what works best for my body. I did have to stop working. now I don't even do the cooking or shopping. my brother does it. I taught him how when...
Board: Fibromyalgia 04-16-2015, 09:37 AM
Replies: 6
Views: 806
Posted By bluelakelady
Re: Increase in Symptoms

I am going to hope the test comes out negative. my doc told me the permanent plugs can't be removed. I will have to bug him some more about it. I just want the temporary ones. I do hope your teeth...
Board: Fibromyalgia 04-16-2015, 09:28 AM
Replies: 13
Views: 413
Posted By bluelakelady
Re: fibro and infections

sorry to take so long to answer your question. I was first diagnosed with fibro and then about 3 years later got to thinking there was more to it. it was a woman here on the boards that suggested I...
Board: Fibromyalgia 04-15-2015, 09:26 AM
Replies: 13
Views: 413
Posted By bluelakelady
Re: fibro and infections

hi,
I have those problems but it is due to another issue not fibromyalgia. I have sjogrens as well and that is my culprit when it comes to vaginal, bladder, mouth, ear and eye issues along with a...
Board: Fibromyalgia 04-15-2015, 09:16 AM
Replies: 5
Views: 357
Posted By bluelakelady
Re: Fibro Fatigue

hello,
I have had the fatigue for over 2 decades. I would suggest telling your doctor you want to take a sleeping pill. the deep intense fatigue is from not getting enough deep sleep at night. even...
Board: Fibromyalgia 04-15-2015, 09:06 AM
Replies: 6
Views: 806
Posted By bluelakelady
Re: Increase in Symptoms

be sure you research the blood tests to be done. there are 4. I am sorry I do not remember what they are. I took a slip of paper in with the 4 tests written down and just said do this, he did, I had...
Board: Fibromyalgia 03-19-2015, 09:12 AM
Replies: 12
Views: 667
Posted By bluelakelady
Re: Help?

hello and welcome Eric,
I have been doing this for almost 20 years. for myself its about attitude and how I see my reality. adapting is a wise idea. I limit my friends visits to what I can handle....
Board: Fibromyalgia 03-15-2015, 09:07 AM
Replies: 1
Views: 364
Posted By bluelakelady
Re: Let's talk about flares !

hi girl,
I have been way up and way down over the past 20 years. just two weeks ago I hit an up that lasted two weeks and I felt great. pain was a 3 at most. my brain was clear and worked. best of...
Board: Fibromyalgia 03-11-2015, 10:28 AM
Replies: 2
Views: 330
Posted By bluelakelady
Re: exhaustion

you are so funny. I am glad you are not quitting your exercises. to embrace is healthier than to fight or cave in. I am proud of you.
hugs and peace,
blue
Board: Fibromyalgia 03-04-2015, 10:23 AM
Replies: 3
Views: 358
Posted By bluelakelady
Re: Is it fibromyalgia??

hello and welcome,
I doubt the chiro set off fibro. it is possible his work has echoed badly in your body. it is unknown if it is hereditary. until it subsides I would not go back to the chiro for...
Board: Fibromyalgia 02-28-2015, 09:16 AM
Replies: 4
Views: 313
Posted By bluelakelady
Re: International travel tips

hello,
logic says get used to it first then go. why make life hell when you are there to have fun? get a note from your doctor to carry your own water with you. if you fly they will have to let you....
Board: Fibromyalgia 02-08-2015, 09:37 AM
Replies: 6
Views: 806
Posted By bluelakelady
Re: Increase in Symptoms

cipro made me feel the same way. I have sjogrens along with fibro. frequent uti's and itching (for me) are due to sjogrens. suggest you research and see if you want to take the blood test to be sure...
Board: Fibromyalgia 02-01-2015, 09:29 AM
Replies: 2
Views: 459
Posted By bluelakelady
Re: hello

I am so proud of you girl!! I remember all the reasons why you couldn't. I really am happy for you that you beat back the I can't and I can won!
doing my happy dance just for you!
peace,
blue
Board: Fibromyalgia 01-27-2015, 08:05 AM
Replies: 3
Views: 392
Posted By bluelakelady
Re: Neck pain

i am sorry you hurt. I have days when it attacks my neck. old injury there that fibro loves to mess with. any point in seeing your doc about this? by that I mean have you had all the tests, mri's and...
Board: Fibromyalgia 01-20-2015, 09:52 AM
Replies: 3
Views: 562
Posted By bluelakelady
Re: New here what helps the most?

hi,
swimming is lovely. I don't take meds for fibro. I found attitude to be my most powerful tool in dealing with fibro. I eat vegetarian. meat was a trigger for me. I only drink water except for my...
Board: Fibromyalgia 01-11-2015, 08:58 AM
Replies: 4
Views: 331
Posted By bluelakelady
Re: Thank you members

i am pleased you chose to come out and meet us all. thank you. we are a pretty good bunch of pain in the . . . where?? giggle.
peace,
bluelakelady
Board: Fibromyalgia 01-08-2015, 10:07 AM
Replies: 5
Views: 475
Posted By bluelakelady
Re: Tips for cold weather?

many of those things can be purchased online. I shop that way. noxicare is a good topical. lasts hours for me. also biofreeze, only don't put biofreeze on fresh out of a shower or you will freeze!...
Board: Fibromyalgia 01-06-2015, 09:32 AM
Replies: 2
Views: 347
Posted By bluelakelady
Re: acupuncture for fibro ?

hi,
I did it several years ago. the first 2 times went very well. I was not in a flare. the 3rd time I was in a flare and it was horrid. had to stop and get the needles out. my body started jerking...
Board: Fibromyalgia 01-02-2015, 10:37 AM
Replies: 3
Views: 458
Posted By bluelakelady
Re: fibro and pain and burning in right big toe

sounds like neuropathy flaring up. is there any swelling? that would be gout. if it were me, I would not bother the ER about it but would get in to doc asap for a work up and nerve conduction study. ...
Board: Fibromyalgia 01-02-2015, 10:30 AM
Replies: 2
Views: 354
Posted By bluelakelady
Re: after holiday fibro flare !

you know the rules girl, ya play, ya pay! I am happy you had a wonderful time getting so miserable, giggle. I doubt you are alone.
I don't do holidays so I get off easy. just the normal winter...
Board: Fibromyalgia 12-28-2014, 09:19 AM
Replies: 4
Views: 468
Posted By bluelakelady
Re: All OVER the place.

nothing like a good slap upside the head to realize a boss is not a friend. you can act like it but the bottom line is the person is your boss at work. I was a boss person and always reminded my...
Board: Fibromyalgia 12-27-2014, 10:45 AM
Replies: 4
Views: 468
Posted By bluelakelady
Re: All OVER the place.

you are not losing your mind. you are just changing again. when I went thru 'the change', giggle, I just wanted to run away, not be responsible nor in charge. with fibro thrown into the mix it gets...
Board: Fibromyalgia 12-21-2014, 09:33 AM
Replies: 3
Views: 469
Posted By bluelakelady
Re: Newbie

hello and welcome,
I have done both. they are helpful for many areas of the body. if that is not helpful perhaps a pain mgmt. doc may be useful.
of all the ones I have done massage is still my...
Board: Fibromyalgia 12-10-2014, 10:39 AM
Replies: 8
Views: 1,070
Posted By bluelakelady
Re: Let's talk meds...

hi and welcome,
plaquenil is an immunosuppressant. I was on it for sjogrens for a very short time. hated it. felt like my joy for living was just gone on that one. Lidoderm patches are great. slap...
Board: Fibromyalgia 12-05-2014, 10:19 AM
Replies: 5
Views: 691
Posted By bluelakelady
Re: Fibro and Menopause!

sweet potatoes. I ate one a day for a few years. I am past the hot flashes bit now. I still eat the sweet potatoes, tho not as often. use caution, some herbs may react to fibro and intensify meno...
Board: Fibromyalgia 11-25-2014, 09:06 AM
Replies: 4
Views: 678
Posted By bluelakelady
Re: Shaking in hands and legs

first suggestion would be to stop the Neurontin for a week and see if it stops. of course call your doc and let them know what you are up to. then do that with each med if you can. if meds are not...
Board: Fibromyalgia 11-24-2014, 10:18 AM
Replies: 8
Views: 637
Posted By bluelakelady
Re: Fibro and IBS

then my best would be to discuss the use of belladonna or donnatal. same basic thing. the other cramping where your legs are involved may need a rheumy or pain mgmt. doc to help you with that. with...
Board: Fibromyalgia 11-23-2014, 08:47 AM
Replies: 8
Views: 637
Posted By bluelakelady
Re: Fibro and IBS

hello and welcome,
did your doctor suggest you use miralax or the generic daily to get back on track? I also take belladonna and it stops the severe cramping. I do not feel it in my legs or anywhere...
Board: Fibromyalgia 11-21-2014, 09:46 AM
Replies: 9
Views: 955
Posted By bluelakelady
Re: Fybro & Costo

hi,
if you have fibro yes it does manifest in odd ways of pain all over and sometimes just one spot. for the last 4 days my left foot hurt like crazy. it's gone today. it takes time and getting used...
Board: Fibromyalgia 11-20-2014, 11:26 AM
Replies: 4
Views: 678
Posted By bluelakelady
Re: Shaking in hands and legs

hello and welcome!
is it a jerking or vibration sensation? is it visible or just inside you? can another person touch you and feel it too?
peace,
bluelakelady
Board: Fibromyalgia 11-19-2014, 09:38 AM
Replies: 4
Views: 584
Posted By bluelakelady
Re: Do any diagnosed with Fibromyalgia still drive a car

I still drive too. not a trailer though! way to go sib. it's different for each person. some days I feel fine to drive and others I do not so I ask my brother to drive me.
I started a new med...
Board: Fibromyalgia 11-13-2014, 10:26 AM
Replies: 12
Views: 1,502
Posted By bluelakelady
Re: New to fibromyalgia

if you are speaking to me I don't take savella or any other drug touted for fibro. they don't work for me and the negatives outweigh the positives. I take meds for sjogrens but they do nothing to...
Board: Fibromyalgia 11-11-2014, 10:03 AM
Replies: 1
Views: 379
Posted By bluelakelady
Re: And the Light Bulb Comes On

there is nothing wrong with you. you are doing things your way. the old lady on tv is doing things her way. let people care and have concern. let them think you are the one who should be laying abed....
Board: Fibromyalgia 11-01-2014, 09:55 AM
Replies: 2
Views: 297
Posted By bluelakelady
Re: memantine

I did some research yesterday and found nothing referring to fibromyalgia. it's for Alzheimer's. to me it seems a bit over the top for fibro. in the end it's your body and your choice what you try to...
Board: Fibromyalgia 10-25-2014, 09:22 AM
Replies: 1
Views: 627
Posted By bluelakelady
Re: Tired of the pain

sending you a big hug. sorry you had to give up the job. hope the emg gives you some answers.
hugs and peace,
blue
Board: Fibromyalgia 10-21-2014, 09:44 AM
Replies: 12
Views: 1,502
Posted By bluelakelady
Re: New to fibromyalgia

I hear you. I have primary sjogrens and it's a lot of work to maintain any balance. eye drops, ear drops, stuff for my urethra, heavy creams on my skin feel suffocating but if I don't my skin tears....
Board: Fibromyalgia 10-20-2014, 11:03 AM
Replies: 1
Views: 715
Posted By bluelakelady
Re: Newbie, I guess

hello and welcome,
I can't say yea or nay. I can say that I fired 17 rheumy docs before I found a decent one. got what I wanted from him and just go to my pcp for ongoing care. I have other issues...
Board: Fibromyalgia 10-20-2014, 10:50 AM
Replies: 12
Views: 1,502
Posted By bluelakelady
Re: New to fibromyalgia

have you seen an ENT for diagnostics on your ear? bravo on the depression group. you did not mention depression. it can really affect your body. I am so sorry you have to cope with that as well. I...
Board: Fibromyalgia 10-20-2014, 10:34 AM
Replies: 12
Views: 1,502
Posted By bluelakelady
Re: New to fibromyalgia

I meditate a lot. I breath in the good air and blow out the pain with my exhale. focusing on something other than the pain helps reduce the brains response to pain stimuli. as for fatigue, when it's...
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