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Board: Autoimmune Disorders 05-19-2015, 10:21 AM
Replies: 1
Views: 140
Posted By luca689
Re: Tattoo Reactions

I have a tattoo and have not had any problems with it. Have you seen a dermatologist?
Board: Autoimmune Disorders 04-21-2015, 10:17 AM
Replies: 2
Views: 239
Posted By luca689
Re: Dealing with Fatigue

ummm, Plaquenil is the first drug that one is normally put on with CREST. Most sclero experts believe early treatment is better than waiting til damage is done. Plaquenil actually has few side...
Board: Raynaud's Syndrome 03-02-2015, 11:15 AM
Replies: 5
Views: 348
Posted By luca689
Re: Blisters with Raynaud's Phenomenon

If you have Raynaud's you have a vascular problem. It may not be a very big problem but when capillaries constrict to cause Raynauds, or chillblains, it is a problem. I have Raynaud's secondary to...
Board: Raynaud's Syndrome 03-02-2015, 10:30 AM
Replies: 5
Views: 348
Posted By luca689
Re: Blisters with Raynaud's Phenomenon

Doesn't sound like Raynaud's but like chillblains. Raynaud's causes ulcers, not blisters. Stay warm with no constrictions on your toes, like a tight shoe or tight socks. You could prolly try some...
Board: Autoimmune Disorders 02-10-2015, 09:57 AM
Replies: 1
Views: 316
Posted By luca689
Re: Should I get more Blood tests? Dont know whats going on

you should have that autoimmune screening anyway. I know that in systemic scleraderma, the complement values are usually normal or slightly high, even.
Board: Raynaud's Syndrome 02-09-2015, 10:34 AM
Replies: 1
Views: 435
Posted By luca689
Re: autoimmune, does this sounds like raynauds?

It could be Raynaud's with ulcers. Try dressing in layers with gloves and warm wooly socks. Be careful of anything that restricts circulation like tight shoes or cuffs. I use gloves even in the...
Board: Lupus 02-05-2015, 06:16 AM
Replies: 42
Views: 4,388
Posted By luca689
Re: Good Complements?

In extreme cold, most people's reaction is to draw the blood away from the extremities, which is why the weather people always warn about dangerous cold as it can result in frostbite. Raynaud's is...
Board: Lupus 02-03-2015, 07:42 AM
Replies: 42
Views: 4,388
Posted By luca689
Re: Good Complements?

Yes you can have a messed up PFT for technical reasons, ie: the technician. I had one done recently and had a very nice tech who explained everything in advance of each test and very clearly...
Board: Autoimmune Disorders 02-03-2015, 07:18 AM
Replies: 12
Views: 446
Posted By luca689
Re: 5 year old health issues positive ANA

There are 3 main types of systemic scleroderma: The CREST or limited systemic variety - the "limited" bit refers only to where on the skin the hardening of scleroderma occurs. Diffuse systemic...
Board: Lupus 01-30-2015, 11:44 AM
Replies: 3
Views: 357
Posted By luca689
Re: symptoms

Telangiasticas is completely misspelled on my part. It is: Telangiectasias. They are also known as "spider veins or bites" Telangiectasias /tɛlˌæn.dʒiː.ɛkˈteɪ.zi.ə/ or angioectasias (also known as...
Board: Lupus 01-30-2015, 10:18 AM
Replies: 3
Views: 357
Posted By luca689
Re: symptoms

are the red dots telangiasticas? or pin dots like petechiae? or something else altogether? The telangiastica sort of rash is part of the UCTD constellation of symptoms and is considered mostly benign...
Board: Autoimmune Disorders 11-20-2014, 01:09 PM
Replies: 14
Views: 634
Posted By luca689
Re: ana levels

It does not sound like you have Raynaud's at all but I'm not a Dr., but Raynaud's is not due to the mechanics of pressure. It is due to vascular constriction caused by cold, temperature change, or...
Board: Autoimmune Disorders 11-20-2014, 10:36 AM
Replies: 14
Views: 634
Posted By luca689
Re: ana levels

Scleroderma isn't mostly fatal any more! And a "poor" lifestyle doesn't cause it. Nor do antibiotics or mold. It is thought that there may be a genetic component as well as an enviromental one, but...
Board: Autoimmune Disorders 11-03-2014, 10:12 AM
Replies: 1
Views: 612
Posted By luca689
Re: MCTD, chest rash

Makeup with a green base does the trick
Board: Lupus 10-07-2014, 07:45 AM
Replies: 27
Views: 3,103
Posted By luca689
Re: very confused

One finger IS good! And I was worried that you had sudden onset Raynaud's which would lean towards a sclero diagnosis in the setting of your particular antibody, but since that is not the case, that...
Board: Lupus 10-07-2014, 07:21 AM
Replies: 27
Views: 3,103
Posted By luca689
Re: very confused

I'm curious if any of your Dr's did a capillary nailfold test. That is a quick test to see if you have capillary dropout indicative of secondary rather than primary Raynaud's. And did you test...
Board: Lupus 10-01-2014, 12:50 PM
Replies: 27
Views: 3,103
Posted By luca689
Re: very confused

You usually need to be seen by an eye Dr every so often because of the plaquenil. Like everyone else has said, it takes a little while to work but it will help the fatigue and joint aches and pains!...
Board: Lupus 09-25-2014, 05:49 AM
Replies: 27
Views: 3,103
Posted By luca689
Re: very confused

Iowa1972, it is good that you are seeing a specialist as many rheumatologists aren't comfortable dealing with sclero patients, if you do indeed have it or are not up to date with it as they don't see...
Board: Lupus 09-24-2014, 06:01 AM
Replies: 27
Views: 3,103
Posted By luca689
Re: very confused

Hi Iowa1972! A positive SC70 doesn't always mean systemic scleroderma. It depends on your symptoms. You can be positive and never develop it. If however you are diagnosed with it early treatment is...
Board: Lupus 09-08-2014, 10:01 AM
Replies: 42
Views: 4,388
Posted By luca689
Re: Good Complements?

Not unusual at all. Every patient is different and it is good that the Dr is treating the patient as an individual.
Board: Lupus 09-02-2014, 10:11 AM
Replies: 5
Views: 1,500
Posted By luca689
Re: lupus and test results

Scleroderma is not diagnosed by ANA or pattern, but is diagnosed by new tests for specific antibodies. There are 9 or 10 now. and of course, symptoms
Board: High Cholesterol 07-18-2014, 09:58 AM
Replies: 6
Views: 3,008
Posted By luca689
Re: Are statins THAT dangerous?

I am on crestor myself. No particular side effects for me and in fact is beneficial for more than just lowering cholesterol. They appear to help prevent delamination, as it were, of blood vessel...
Board: Lupus 07-17-2014, 10:04 AM
Replies: 19
Views: 3,977
Posted By luca689
Re: Connective tissue disease or lupus?

There are 4 to 6 commonly run antibody tests as well as the rheumatoid arthritis one or two. They include the anti-RNP, Anti-SM, Scl-70 and others. Mine evolved to limited systemic scleroderma, but...
Board: Lupus 07-17-2014, 09:28 AM
Replies: 19
Views: 3,977
Posted By luca689
Re: Connective tissue disease or lupus?

I was originally diagnosed with undifferentiated connective tissue disease. It is a stand alone disease that may or may not develop further and is usually treated with plaquenil. It certainly helped...
Board: Autoimmune Disorders 07-09-2014, 10:17 AM
Replies: 2
Views: 916
Posted By luca689
Re: Do your ANA patterns change?

I have not had a pattern change but I have had my ANA drop to zero from 1:640, even though I have symptoms indicative of my diagnosis of Limited systemic scleroderma.
Board: Autoimmune Disorders 07-01-2014, 10:18 AM
Replies: 9
Views: 1,236
Posted By luca689
Re: Advice

Please be aware though, that many rheumatologists will not give you a few days course of steroids to see if it helps because in scleroderma patients, it can cause or exacerbate renal crisis.
Board: Diet & Nutrition 06-03-2014, 08:55 AM
Replies: 8
Views: 682
Posted By luca689
Re: Dairy free cheese..

There are many soy based cheese brands available now. Also many people can drink goat's milk and or sheep's milk without the distress of cow's milk and the same goes for cheeses
Board: Autoimmune Disorders 05-28-2014, 10:28 AM
Replies: 6
Views: 664
Posted By luca689
Re: Hi ... new here and don't have a dx yet.

I think Your Dr was absolutely correct in being sceptical. First off, having a specific gene does not mean you will come down with a disease. Second there are roughly 10 million of them in the human...
Board: Headaches & Migraines 05-19-2014, 07:00 AM
Replies: 4
Views: 600
Posted By luca689
Re: I think I Experienced an Ocular Migraine?

Knowing what it is is half the battle!
Board: Headaches & Migraines 05-16-2014, 09:46 AM
Replies: 4
Views: 600
Posted By luca689
Re: I think I Experienced an Ocular Migraine?

It does sound rather like a classic migraine with aura
Board: Sjögren's Syndrome 05-13-2014, 06:13 AM
Replies: 1
Views: 1,530
Posted By luca689
Re: Trouble swallowing

I always have something liquid at hand when I eat. But if your problem isn't just when you eat, it might be time to visit the Dr as dysphagia has a number of different causes, sjogren's being among...
Board: Autoimmune Disorders 05-09-2014, 11:07 AM
Replies: 2
Views: 622
Posted By luca689
Re: my first post, positive ana

My Dr would not consider that ana titre significant if there was no indication of inflammation and your fingers showed normal capillaries. Primary Raynaud's can cause a raised ANA as can being a...
Board: Arthritis 05-01-2014, 12:13 PM
Replies: 1
Rheumatoid Arthritis methotrexate question
Views: 668
Posted By luca689
Re: methotrexate question

I don't have RA but limited systemic scleroderma and I also have had elevated levels of igM. I have been on plaquenil for years (10+) and was also put on methotrexate within a few months of starting...
Board: Sjögren's Syndrome 03-25-2014, 09:33 AM
Replies: 2
Views: 444
Posted By luca689
Re: Psoriasis artritis/sjogren/cyclic oedema

Sometimes pilocarpine or evoxac help with vaginal dryness as well as mouth and eyes. They did for me. There are also OTC vaginal moisturizers that I use. Also please talk to your...
Board: Sleep Disorders 03-10-2014, 07:20 AM
Replies: 2
Views: 444
Posted By luca689
Re: Periodic Limb Movement Disorder

I too have PLMD and my sleep Dr said that anemia can bring it on or worsen it and so recommended that I keep my iron levels up. It has worked for me. I still occasionally have a bout of it here or...
Board: Infertility 03-03-2014, 08:43 AM
Replies: 1
Views: 412
Posted By luca689
Re: Can Methotrexate Make Women Infertile?

I have not read that it can cause infertility but can cause problems during pregnancy.
Board: Lupus 02-28-2014, 07:54 AM
Replies: 32
Views: 1,775
Posted By luca689
Re: Don't know which way to go

It's a good thing my Rheumatologist didn't have this attitude. Raynaud's certainly can be treated, both with non-medical and medication means. As to the 20/20 requirement for plaquenil, that's a new...
Board: Raynaud's Syndrome 02-26-2014, 11:58 AM
Replies: 3
Views: 4,020
Posted By luca689
Re: Anything to help nails?

Your nails may be dry from the weather and could use moisturizing. You also may have splitting and peeling from overwashing your hands or chemicals such as household cleaners. In that case break out...
Board: Autoimmune Disorders 02-06-2014, 08:24 AM
Replies: 20
Views: 1,277
Posted By luca689
Re: possible scleroderma

kataay17, lots of people with Raynaud's have that problem and use those little chemical packet warmers in addition to socks. In my case i only wear my own handmade wool socks to keep warm, LOL
Board: Autoimmune Disorders 02-06-2014, 08:19 AM
Replies: 20
Views: 1,277
Posted By luca689
Re: possible scleroderma

Rayon, the Dr may have been looking for arthritis type nodules or calcinosis. It is a good thing that your ESR rate is not elevated as that is one of the markers for inflammation. Has anyone done a...
Board: Autoimmune Disorders 02-06-2014, 07:56 AM
Replies: 20
Views: 1,277
Posted By luca689
Re: possible scleroderma

OK, take a deep breath and let it out slowly and take a moment to regroup. Anxiety can make a whole lot of things worse, especially your stomach. Until you see your gastro, take prudent precautions...
Board: Sjögren's Syndrome 02-05-2014, 10:41 AM
Replies: 3
Views: 480
Posted By luca689
Re: Suuuuper dry skin...need help!

I have secondary too. I use a national brand of body oil right after showering. I think it's the sesame oil that gets absorbed very nicely. I should think that any brand with it would work as well. A...
Board: Autoimmune Disorders 01-29-2014, 07:10 AM
Replies: 20
Views: 1,277
Posted By luca689
Re: possible scleroderma

CREST is NOT the only thing associated with the anticentromere pattern. It can appear with no disease state in low titres in relatives of AI patients or just because that is normal for an individual,...
Board: Autoimmune Disorders 01-28-2014, 07:30 AM
Replies: 20
Views: 1,277
Posted By luca689
Re: possible scleroderma

Though there are very rare cases of CREST or limited systemic sclero occurring without Raynaud's, more than 90% of sclero patients have Raynaud's, which often appears years before any other symptoms...
Board: Raynaud's Syndrome 01-27-2014, 10:38 AM
Replies: 3
Views: 4,092
Posted By luca689
Re: My toes are killing me

There may be a sore spot that gets worse and opens up on the skin as an ulcer. It may start out on the skin that way. Promoting good circulation is key to help the healing process and avoiding them...
Board: Autoimmune Disorders 01-27-2014, 09:27 AM
Replies: 20
Views: 1,277
Posted By luca689
Re: possible scleroderma

Hi there! What sort of sclero were you diagnosed with? I myself have limited systemic, often know as CREST. Do you have Raynaud's? Most Dr's won't diagnose based on labs alone because primary...
Board: Raynaud's Syndrome 01-27-2014, 09:16 AM
Replies: 3
Views: 4,092
Posted By luca689
Re: My toes are killing me

Make sure that an ulcer isn't forming at the tips. Those hurt like the dickens and take forever to heal. Make sure that your socks and shoes and boots are not constricting. You may also have...
Board: Raynaud's Syndrome 01-23-2014, 09:15 AM
Replies: 1
Views: 4,067
Posted By luca689
Re: Raynaud's spreading to other parts of the body

I have Raynaud's in both hands and feet. Do NOT wear anything tight around wrists or ankles or hands and feet that can compromise circulation. Even shoes. Stress can bring on attacks as well. Ummm,...
Board: Sjögren's Syndrome 01-20-2014, 09:23 AM
Replies: 1
Views: 484
Posted By luca689
Re: Rheumatologist

Primary Sjogren's has no other autoimmune disease associated with it and often has antibodies associated with it. Secondary Sjogren's occurs in the setting of another autoimmune disease such as...
Board: Sjögren's Syndrome 01-09-2014, 09:04 AM
Replies: 10
Views: 888
Posted By luca689
Re: internal organ damage

I, too, take both plaquenil and methotrexate and have done so for several years now. I initially had hairloss but once my condition stabilized and is not particularly active right at the moment, my...
Showing results 1 to 50 of 471

 








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