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Board: Fibromyalgia 10-22-2009, 02:36 PM
Replies: 9
Views: 1,568
Posted By elmhar
Goldy

Wow. You really had a quick response to the LDN. I've been on it since July '08 but it took about 6 mos for me to get up to speed with it, in part because I needed to start at a very low dose &...
Board: Fibromyalgia 10-22-2009, 10:11 AM
Replies: 4
Views: 718
Posted By elmhar
Ouch

Have you considered having the SIJD treated with nerve ablation, or having the joint surgically stabilized? Those options tend to be offered by neurologists or neurosurgeons.

It's possible that...
Board: Fibromyalgia 10-22-2009, 09:59 AM
Replies: 7
Views: 1,136
Posted By elmhar
Lea: Keep Lookin' Up

I'm sorry to hear that you've had to bear so much from such a young age.

To give you some hope -- there are people who have chipped away at their diagnoses & found ways to improve quality of life,...
Board: Fibromyalgia 10-20-2009, 06:37 PM
Replies: 4
Views: 961
Posted By elmhar
Snow Bunny

If these symptoms have arisen since you had your flu shot, please consider the possibility that what you are experiencing may be an adverse reaction. If so, it should be reported both to your PHP as...
Board: Fibromyalgia 10-20-2009, 05:42 PM
Replies: 8
Views: 1,003
Posted By elmhar
Kay

I believe it is possible that the improvement you are seeing is related to your decrease in diet soda consumption. If you wanted your own proof, you could reintroduce the artificial sugar for a few...
Board: Fibromyalgia 10-20-2009, 01:07 PM
Replies: 25
Views: 5,374
Posted By elmhar
Test Clarification: FREE

There are a number of different "T3" tests available -- most commonly, the "T3 Total" test. However, that is not the test that gives the most helpful info. The best test is called "Free T3" -- a...
Board: Thyroid Disorders 10-15-2009, 03:29 PM
Replies: 14
Views: 9,409
Posted By elmhar
SuperMom

Some of your symptoms sound like they might be related to low parathyroid function. You might want to research it & ask your doc to be tested.

Best wishes.
Board: Fibromyalgia 10-13-2009, 07:10 PM
Replies: 25
Views: 5,374
Posted By elmhar
Suppressing Substance P

An adequate level of ACTIVE thyroid hormone, aka "Free T3" is extremely impt for suppressing substance P.

Sub P acts like a megaphone for pain ... amplifying pain signals to the brain.

Many...
Board: Fibromyalgia 09-30-2009, 01:56 PM
Replies: 4
Views: 1,455
Posted By elmhar
Singin

Yes. My testosterone was very low. It's important to keep the level adequate to facilitate muscle repair. You also get quite an energy & mood boost from Mr. T. Also libido boost.

Low...
Board: Fibromyalgia 09-25-2009, 01:06 PM
Replies: 9
Views: 4,769
Posted By elmhar
Goldy/Adjustments

1) LDN is incompatible with opiate meds, as well as with opiate receptor agonists like Tramadol, as far as I know. Check with your compounding pharmacist.

2) Anyone who is very med sensitive...
Board: Fibromyalgia 09-24-2009, 01:30 PM
Replies: 9
Views: 4,769
Posted By elmhar
Re: Low Dose Naltrexone experiences please

Hi Goldy,

I used to be a regular on this forum, but stop in only occasionally these days.

I've had GREAT success with LDN. But then my FM is complicated by autoimmune issues (undifferentiated...
Board: Thyroid Disorders 05-27-2009, 08:52 AM
Replies: 3
Views: 567
Posted By elmhar
Re: Graves w/o thyroid?

I agree -- the antibodies are likely the determining factor. Plus symptoms.

When thyroid was removed, was RAI also done? Sometimes thyroid tissue migrates & not all can be visualized or be...
Board: Thyroid Disorders 05-21-2009, 01:37 PM
Replies: 4
Views: 929
Posted By elmhar
Re: Awful side effects?

Dan,

Is your calcium level being followed? Often the parathyroid glands are traumatized during TT, resulting in low calcium levels. Mscle spasms, headache & fatigue can be due to low blood...
Board: Thyroid Disorders 05-21-2009, 01:31 PM
Replies: 5
Views: 1,706
Posted By elmhar
Re: atenolol

Sharon -- are you also on thyroid meds?

Low blood iron can lead to tachycardia. The heart rate speeds up in an attempt to get more oxygen to the tissues. Have you had a hematocrit run recently?...
Board: Thyroid Disorders 05-21-2009, 01:16 PM
Replies: 8
Views: 4,883
Posted By elmhar
Re: low tsh - all other blood work normal?????

SK,

When you say all your other blood work came back normal, I'm assuming that you mean the rest of a chem panel?

Was TSH level the only thyroid-related test that was run?

TSH (Thyroid...
Board: Thyroid Disorders 05-20-2009, 10:27 AM
Replies: 5
Views: 960
Posted By elmhar
Re: Felt better after 1 dose of meds?

I wouldn't be so quick to assume. My experience over several yrs of thyroid supplementation is that with every dose change, I notice things very, very quickly -- usually within 45 min. I also...
Board: Thyroid Disorders 05-20-2009, 10:20 AM
Replies: 8
Views: 4,651
Posted By elmhar
Sv27

Reading through your history here, because I have an almost 19 yo who suffered a couple of relatively MINOR head traumas throughout childhood & adolescence. Severe fatigue, brain fog, impaired...
Board: Thyroid Disorders 05-09-2009, 01:55 PM
Replies: 6
Views: 8,672
Posted By elmhar
Re: Has anyone had bad reactions from almond butter?

Tigger,

There are a number of foods that are considered goitrogenic -- that is, they interfere somehow with thyroid function, either with the enzymes, or with iodine absorption. You've probably...
Board: Thyroid Disorders 05-09-2009, 01:44 PM
Replies: 3
Views: 5,797
Posted By elmhar
Tigger

PS lowers cortisol. Has your cortisol level been tested?

Cortisol is energizing when in the moderate range. At either extreme, too high or too low, and one feels low energy. High+++ cortisol,...
Board: Thyroid Disorders 05-02-2009, 09:49 AM
Replies: 1
Views: 663
Posted By elmhar
Re: Anyone ever try these herbs for adrenal support?

Sorry, haven't tried those herbs. Have you researched phosphatidylserine? (AKA "PS") -- It has a good track record for lowering cortisol.

If you are into herbals, I believe magnolia extract also...
Board: Thyroid Disorders 05-02-2009, 09:46 AM
Replies: 2
Views: 1,746
Posted By elmhar
Re: Am I Hypo, B12 Deficient, anything else?

Sandy,

Vitamin D deficiency hamstrings your thyroid as well as other glands on the HPA axis. Before getting into thyroid hormone supps, why not give supplementation with D3 a few months trial? ...
Board: Thyroid Disorders 05-02-2009, 09:36 AM
Replies: 4
Views: 2,276
Posted By elmhar
Re: Will a day with 2 levoxyl pills make me freak out?

Loralei,

Levoxyl is a T4 med. T4 is inactive thyroid hormone -- sort of a storage form. The body must convert it to T3, the active form, for it to be effective.

If you took a large dose of...
Board: Thyroid Disorders 04-29-2009, 10:17 AM
Replies: 2
Views: 1,407
Posted By elmhar
Re: I Stopped Taking My Thyroid Meds & I Feel A Lot Better

Vince, could you describe 'how' or 'what' feels better when you're off the T meds.

I agree that inadequate dosing can result in failure to feel better -- however I'm not sure it would explain...
Board: Thyroid Disorders 04-25-2009, 02:27 PM
Replies: 7
Views: 1,438
Posted By elmhar
Re: Pharmacy changed hypo medication manufacturer...concern???

If you have intolerances to certain dyes or fillers, it can make a difference as these do vary from mfctr to mfctr.

There is a % variation of active ingredient allowed by law for generics ......
Board: Thyroid Disorders 04-25-2009, 02:25 PM
Replies: 7
Views: 2,271
Posted By elmhar
Baby Steps --

Are really best with Cytomel. If I were in your shoes I would increase by one 5 mcg tab at a time -- perhaps even 1/2 a tab at a time.

One of the main problems with a sharp increase in Cytomel...
Board: Thyroid Disorders 04-24-2009, 11:00 AM
Replies: 3
Views: 1,280
Posted By elmhar
Re: calcium trebled-endo thinks symptoms coz of that,not thyroid!!!!!

JO --

I agree with MG's advice. Good, thorough stuff.

If at all possible, get your bloods drawn fasting around 8 a.m. That would be most useful for cortisol.

Not to take away from the...
Board: Thyroid Disorders 04-23-2009, 10:52 AM
Replies: 8
Views: 4,216
Posted By elmhar
Lori --

Let me say straight off, I do not have an answer to your question about how long it would take for the Synthroid to help reduce the thyroid antibody response in your body. For one thing, there's...
Board: Thyroid Disorders 04-22-2009, 10:43 AM
Replies: 8
Views: 4,216
Posted By elmhar
Re: hashimoto's and uticaria

Lori,

In your situation, I would go with the TT. I hope it helps your hives & eliminates the anaphylactic episodes. Please let us know how you do!

Best wishes.
Board: Thyroid Disorders 04-22-2009, 10:41 AM
Replies: 8
Views: 4,216
Posted By elmhar
Re: hashimoto's and uticaria

Lori,

Given your situation, I would probably opt for thyroidectomy.

In terms of "a lifetime of autoimmunity," -- well, you do have the T1DM going, but as far as thyroid, there are IMO worse...
Board: Thyroid Disorders 04-21-2009, 12:25 PM
Replies: 6
Views: 1,348
Posted By elmhar
Consider other hormonal factors.

GERD can be complex. Thyroid hormone can affect it, as can interaction of other hormones.

I am one of perhaps not so many people who develops GERD when Estrogen is low, or when Estrogen/Thyroid...
Board: Thyroid Disorders 04-21-2009, 12:18 PM
Replies: 5
Views: 1,529
Posted By elmhar
Re: Raised TSH

Also, low testosterone may hamper conversion of the inactive T4 to the active form of thyroid hormone, T3.

When you ck the labs, try to determine whether "free" levels of thyroid hormones were...
Board: General Health 04-21-2009, 10:53 AM
Replies: 1
Views: 682
Posted By elmhar
Re: What have you taken for adrenal support besides steroids?

If your cortisol is too high during the day, you don't want to take licorice. A compound in licorice prevents the natural breakdown of cortisol in the body -- therefore licorice might actually...
Board: Thyroid Disorders 04-21-2009, 10:33 AM
Replies: 8
Views: 4,216
Posted By elmhar
HashiHelp --

You may be right about the surgery. If the anaphylaxis is known to result from the thyroid antibodies, then I would also consider surgery, sooner rather than later, and taking out the entire thyroid...
Board: Thyroid Disorders 04-20-2009, 07:15 PM
Replies: 8
Views: 3,594
Posted By elmhar
Re: New here and feel terrible on thyroid meds

Jenne,

You might consider trying some L-carnitine. It's an amino acid that helps w/heart function, palps, etc. It also slows down the effect of the T meds on your heart.

You might also look...
Board: Thyroid Disorders 04-20-2009, 07:09 PM
Replies: 8
Views: 4,216
Posted By elmhar
Re: hashimoto's and uticaria

Mast cells in the skin release histamine in response to thyroid antibodies. I know it sounds weird, but those mast cells are sensitive to the ABs.

Try a good allergist/immunologist. A couple I...
Board: Fibromyalgia 01-26-2009, 12:51 PM
Replies: 4
Views: 3,989
Posted By elmhar
Re: What kind of magnesium is best?

Hi Sea Turtle,

The best form of magnesium is the one that works for you!

There are many different compounds of magnesium available as supplements: oxide, malate, aspartate, citrate, sulfate,...
Board: Fibromyalgia 01-26-2009, 12:40 PM
Replies: 4
Views: 1,298
Posted By elmhar
Take care with combinations

Some of the topicals for fibro include wintergreen oil, menthol, other salicylates. You have to take care not to use them over too large an area. Deaths have been reported. People vary in how able...
Board: Fibromyalgia 01-26-2009, 12:33 PM
Replies: 17
Views: 2,411
Posted By elmhar
Re: My Fibro is WORSE than yours

As others have said, one-upsmanship in search of recognition. Sad for more than one reason.

Sometimes these things are said in a joking way among friends, but you can usually tell by the...
Board: Fibromyalgia 01-26-2009, 12:24 PM
Replies: 13
Views: 11,347
Posted By elmhar
Re: Frequent urination

Tired Poet and others,

There is more info on the thread about bladder pain. Please carefully consider the possibility of acidic foods increasing your symptoms.

I have had mod. severe IC,...
Board: Gallbladder 01-26-2009, 12:17 PM
Replies: 10
Views: 4,100
Posted By elmhar
JanieLou

Hi there. First thing, take a deep breath. Cystitis issues are much more common than bladder cancer.

Second thing, consider carefully the post regarding food & beverage triggers for cystitis. ...
Board: Autism Spectrum 06-21-2008, 10:17 AM
Replies: 15
Views: 7,195
Posted By elmhar
Tendencies/Phases/Diagnoses

Hi Lynie,

It may be this is a phase of increased verbalization - without -reciprocation that your son will outgrow. Or, it may be a phase within a general tendency related to a) genetics b)...
Board: Autism Spectrum 06-21-2008, 09:56 AM
Replies: 7
Views: 3,122
Posted By elmhar
Something to Research -- Mellowfish

Hi Mellowfish,

Sorry to hear that your auditory sensitivity has been increasing. This is a very aggravating condition.

Are you familiar with the concept of the glutamate & GABA balance in the...
Board: Fibromyalgia 06-17-2008, 06:37 PM
Replies: 10
Views: 2,263
Posted By elmhar
Shay's Mom

I've had a similar problem with getting numb for dental work. I've gone to Canada to try newer anesthetics -- still not numb. Different dentists, different shot techniques -- still not numb. Never...
Board: Autism Spectrum 06-17-2008, 11:16 AM
Replies: 1
Views: 1,351
Posted By elmhar
Re: please help

Hi Sam,

Sorry to hear you're having such a difficult time with your son.

My first thought is, you might want to ck back with the prescribing doc on the Risperdal. Could be the dose or the...
Board: Fibromyalgia 06-17-2008, 10:39 AM
Replies: 1
Views: 395
Posted By elmhar
Exclamation Calling BetsyAnn

Hi BetsyAnn,

I am in the doghouse ... promised to look up something about LDN for you a yr. ago & still haven't done it. Just lost track.

FWIW, everything I've read recently about LDN...
Board: Thyroid Disorders 12-22-2007, 03:14 PM
Replies: 2
Views: 1,459
Posted By elmhar
Re: eye pain associated with hypothyroid

Hi JDN,

IMO, the best thing to do would be to have a thorough eye exam by an ophthalmologist. Be sure to explain your symptoms, even if they are occasional/temporary. And, be sure to mention...
Board: Thyroid Disorders 12-18-2007, 11:52 AM
Replies: 12
Views: 5,539
Posted By elmhar
Re: Hypo and Aging Facial Skin

HI Osteoblast,

I'm on 75 mcg. Levoxyl & 6 mcg SR (slow release) T3 (compounded). In summer I take only 3 mcg. of T3. This is for my thyroid.

I agree with what you said about Omega 3s, and I...
Board: Thyroid Disorders 12-17-2007, 09:03 PM
Replies: 12
Views: 5,539
Posted By elmhar
Re: Hypo and Aging Facial Skin

Hi Osteoblast,

I haven't had the official Sjogren's testing, however a number of docs, general & special, have mentioned the symptomology to me over the past 3 decades. In my mid-20s I was given...
Board: Thyroid Disorders 12-16-2007, 05:33 PM
Replies: 12
Views: 5,539
Posted By elmhar
Re: Hypo and Aging Facial Skin

Hi Osteo, I think we are sisters if not twins ...

8 yrs postmeno here at age 53. Undxd Hashi's for many yrs, early meno quite common in that scenario. Have multiple autoimmune issues, incl...
Board: Thyroid Disorders 12-16-2007, 05:19 PM
Replies: 9
Views: 3,275
Posted By elmhar
Re: Hypo and Hormone Therapy-Estradiol

Osteoblast,

The first hormone I tried during perimenopause was testosterone. I have been on it continuously now for many yrs. Not a patch or a pill, but rather a gel that I apply to my skin a...
Showing results 1 to 50 of 500

 








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