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Board: Autoimmune Disorders 05-24-2015, 08:33 AM
Replies: 1
Views: 141
Posted By MSNik
Re: do I have both autoimmune disorders?

Its absolutely possible to have more than one autoimmune disorder. However, even though S'Jorgrns is sometimes associated with Lupus, it can be a standalone illness as well. If your testing positive...
Board: Autoimmune Disorders 05-24-2015, 08:32 AM
Replies: 2
Views: 150
Posted By MSNik
Re: Tattoo Reactions

I have several tatoos and have not had any problems like you describe. It sounds like you might be allergic to the ink which was used....Ive heard of that happening.
You really should see a...
Board: Cerebral Palsy 05-24-2015, 04:52 AM
Replies: 3
Views: 837
Posted By MSNik
Re: Hi! Going for an assessment soon - Botox injections?

My father has parkinsons disease. He has had botox injections several times, covered by insurance, for his muscle issues. He has found it to work really well. Unfortunately, it doesnt last more than...
Board: Arthritis 05-24-2015, 04:44 AM
Replies: 1
Views: 128
Posted By MSNik
Re: Low Dose Naltrexone for pain

Hi there. I take LDN for Multiple Sclerosis pain. This is a drug which is not FDA approved in the US for Multiple Sclerosis, but is widely used in Europe and Australia.
I find it helps!! However...
Board: Beauty & Cosmetics 05-24-2015, 04:36 AM
Replies: 1
Views: 103
Posted By MSNik
Re: Most days I do not feel like using my makeup...

Nerys,
I think that most women with chronic illnesses would agree with you. But, the bigger question is, are you depressed? or just lack the energy?

There are several types of tinted mositurizer,...
Board: Hospice 05-24-2015, 04:30 AM
Replies: 2
Views: 146
Posted By MSNik
Re: Taking a trip while dad is on home hospice

One of the levels of care for hospice is called Respite. Respite is for the caregiver. During this time, the hospice must provide a safe place (usually a nursing home or inpatient hospice unit) for...
Board: Multiple Sclerosis 05-24-2015, 04:23 AM
Replies: 7
Views: 156
Posted By MSNik
Re: Will pred work for PP/SPMS?

Feel better soon Mindi. Being sick on top of starting a new med, and having steriod infusion, is just as much fun as anything else I can think of having to do with MS...
(grin)
Once you feel...
Board: Multiple Sclerosis 05-24-2015, 04:21 AM
Replies: 9
Views: 269
Posted By MSNik
Re: just looking for information.

Let us know how you do with the steroids...that is a very low dose I assure you. Because you are taking them orally, and not thru the vein, its really nothing to take that much by mouth.
I hope it...
Board: Multiple Sclerosis 05-22-2015, 02:28 PM
Replies: 7
Views: 156
Posted By MSNik
Re: Will pred work for PP/SPMS?

Mindi111,
This is just my opinion based on what my neuro has told me, but yes, steroids are prescribed for PP/ or SP MS. The way the steroid works is not on the lesion, but on the nerves which are...
Board: Multiple Sclerosis 05-22-2015, 02:22 PM
Replies: 9
Views: 269
Posted By MSNik
Re: just looking for information.

Hi Drummer84,.
Its kind of strange that the doctor put you on oral steroids. The normal course of steroids for Multiple Sclerosis is IV therapy. You do 1000 mgs in an IV for either 3 or 5...
Board: Skin Problems 05-20-2015, 02:51 AM
Replies: 3
Views: 245
Posted By MSNik
Re: Best lotion for dry skin?

You could have sensitive skin, but more likely, its from shaving. Your taking off the very outside layer of skin when you shave. Make sure you are shaving with a good moisturizing shave cream, not...
Board: Skin Problems 05-20-2015, 02:47 AM
Replies: 1
Views: 105
Posted By MSNik
Re: Dent in thigh after hitting sharp edge of table

Ive had this....it took almost six months for it to completely go away. I bruised the muscle, and you very well may have too.
Unfortunately, it looks worse than it feels, which is equally as...
Board: Skin Problems 05-20-2015, 02:44 AM
Replies: 4
Views: 213
Posted By MSNik
Re: How long for surgery scar to heal?

Generally speaking, the outside of the scar will heal long before the inside will...it can take a month or longer for the entire incision to heal.
The suggestions made here are all good ones. Make...
Board: Multiple Sclerosis 05-19-2015, 02:41 AM
Replies: 11
Views: 475
Posted By MSNik
Re: Need Advice

Hello.
An Optomotrist cannot see your optic nerve. The only way to see the optic nerve is to dialate your pupils and to have the machinery to see behind the eye. Optomotrists do neither. They...
Board: Acne 05-17-2015, 04:56 AM
Replies: 3
Views: 311
Posted By MSNik
Re: Diet and Acne

Unfortunately, there is no way to know when your hormones will nomalize...for some people, its all over by the time they are 20- others have acne well into adulthood. Alot of it is also hereditary....
Board: Multiple Sclerosis 05-17-2015, 04:51 AM
Replies: 4
Views: 197
Posted By MSNik
Re: MS help

highandlow89,
Have you had any MRIs done? Lesions, are scars...the scars are from damage caused by the disease. MS is an autoimmune disease and it attacks the central nervous system, (eyes, spine...
Board: Multiple Sclerosis 05-17-2015, 04:47 AM
Replies: 10
Views: 230
Posted By MSNik
Re: Had some blood tests done

iCandace,
I agree. This could very well be from the meds you are taking for your thyroid. Keep watching the levels, your doctor may be doing some adjustments to your meds...please keep us posted!...
Board: Beauty & Cosmetics 05-16-2015, 03:54 AM
Replies: 1
Views: 316
Posted By MSNik
Re: Men's Oily Skin - help please

First of all, all products for women can be used for men. THey market "mens" products only because they put them in packaging which are more
"manly" - to market them to men...they are exactly the...
Board: Autoimmune Disorders 05-16-2015, 03:50 AM
Replies: 1
Views: 145
Posted By MSNik
Re: multiple autoimmune nightmare

Hi there. Im sorry you are going through so much. I DO think you need to consult another rheumy...not all of them are created alike! Sounds like its even possible that 18 years ago, you may have been...
Board: Multiple Sclerosis 05-16-2015, 03:46 AM
Replies: 10
Views: 840
Posted By MSNik
Re: new to Ms

Hi. When you refer to triggers, you are referring to things which can make MS flare up, right? Not causes for the initial onset of the disease? Triggers are things which can make your MS worse.
...
Board: Multiple Sclerosis 05-15-2015, 02:27 AM
Replies: 10
Views: 840
Posted By MSNik
Re: new to Ms

Hi welcome to the boards. Sorry to hear about your dx.

Lesions are scars....once damage is done, they turn into white masses which show up on the MRI. They dont grow. They dont get bigger. What...
Board: Acne 05-13-2015, 04:30 PM
Replies: 1
Views: 206
Posted By MSNik
Re: help :(

Hi there. sorry to hear you are having so many problems getting this under control. As you stated, milk/ dairy and gluten can contribute to acne- but so can things like not getting enough water, or...
Board: Acne 05-13-2015, 04:26 PM
Replies: 3
Views: 311
Posted By MSNik
Re: Diet and Acne

Gluten and Carbs affect everyone! You dont have to have a gluten intolerance or allergy to have it affect your skin. You are correct that sugars and dairy can contribute to breakouts, but so can...
Board: Multiple Sclerosis 05-13-2015, 04:22 PM
Replies: 4
Views: 197
Posted By MSNik
Re: Lemtrada- 1st course complete!

Hi and thank you for sharing your experience. Its very good information to know how the process goes- and to hear you feel pretty good after experiencing your first course!
I hope you continue to...
Board: Multiple Sclerosis 05-13-2015, 04:20 PM
Replies: 6
Views: 218
Posted By MSNik
Re: Optic Neuritis

Hi there. Ive had ON three times. The first time, I was on IV Steroids for a week- and my vision came back entirely. The second time I had ON I had a 3 day round of IV SM and ir came back again. Just...
Board: Brain & Nervous System Disorders 05-10-2015, 09:34 AM
Replies: 2
Views: 401
Posted By MSNik
Re: Anxiety, panic, weird thoughts

Hi are you seeing a doctor for this? Its a horrible way to live, feeling like you describe. What it is, is a panic attack. Why its lasting so long is something that you need to address with a...
Board: Exercise & Fitness 05-10-2015, 09:29 AM
Replies: 2
Views: 252
Posted By MSNik
Re: How to build up (very general)

I have been told the best and fastest way to increase muscle size is to do the same amount of reps, increasing the weights. My coach told me to do a ladder, starting with light weights and increasing...
Board: Multiple Sclerosis 05-10-2015, 09:24 AM
Replies: 3
Views: 194
Posted By MSNik
Re: Plegridy update - 3rd shot complete

Kingbaxter,
Im glad to hear this is easier for you to tolerate. This is NOT considered a new drug, its simply Rebif reformulated. Just like Avonex before it- this drug is now on the market for over...
Board: Multiple Sclerosis 05-10-2015, 09:20 AM
Replies: 6
Views: 274
Posted By MSNik
Re: Anyone else taking Nuvigil for fatigue

Gma5and2
I spoke with my own MS specialist about prendisone recently. Predisone is not a problem for people with any form of MS because it is not specific to MS- the drug is used to decrease...
Board: Beauty & Cosmetics 05-08-2015, 03:02 AM
Replies: 2
Views: 293
Posted By MSNik
Re: Semi permanent hair color recommendations

Have you tried hair chalk? Its semi permanent and it has no pneumonia in it...its a great way to get a LOOK without committing.
Board: Multiple Sclerosis 05-08-2015, 03:01 AM
Replies: 7
Views: 389
Posted By MSNik
Re: Severe pain... help please

Hi there. I just wanted to ask you since you said you have been to PT and it made it worse....how long did you go for? I know from personal experience that PT hurts. It can make things seem worse,...
Board: Multiple Sclerosis 05-08-2015, 02:53 AM
Replies: 4
Views: 254
Posted By MSNik
Re: Understanding

Hi there. Im also curious why you might think your husband has MS....dizziness is not a reason to think so. Many MSers never experience Vertigo at all.

If Vitamin D is the culprit- this is...
Board: Acne 05-05-2015, 06:00 PM
Replies: 1
Views: 236
Posted By MSNik
Re: My acne look worse at camera.. its my real image?

When you look in the mirror, you are seeing what other people see. When you look into a camera, you are seeing yourself pixelated. Also the lighting on a camera is awful...
Do not put much emphasis...
Board: Neurology 05-03-2015, 05:50 AM
Replies: 2
Views: 163
Posted By MSNik
Re: Burning legs arms & consentration

Olifants,
An MRI should be repeated on you because an MRI can change from month to month and its been almost 18 months since you had one.

The symptoms you describe could be from any number of...
Board: Autoimmune Disorders 05-03-2015, 05:47 AM
Replies: 2
Views: 205
Posted By MSNik
Re: Anyone with normal xray of the joints but abnormal MRI?

Since MRIs show so much more than an Xray can- its not unusual for an MRI to pick up things which an Xray wouldnt...
Most doctors, when they dont see anything on an Xray will automatically order an...
Board: Multiple Sclerosis 05-03-2015, 05:38 AM
Replies: 2
Views: 330
Posted By MSNik
Re: Odd symptoms

I have also had to train myself to "slow down". Fast movements, quick turns or even getting up quickly can cause me to lose my balance or get dizzy. As long as I take my time and move slower- Im...
Board: Multiple Sclerosis 05-02-2015, 04:24 PM
Replies: 7
Views: 670
Posted By MSNik
Re: Would like to share list of strange symptoms

Hi there. I agree, this does not sound like Reynauds. I was just dx with Reynauds this winter. And, I have MS. My doctor explained that Reynauds can be primary, or secondary. In my case, its...
Board: Acne 05-02-2015, 07:17 AM
Replies: 4
Views: 287
Posted By MSNik
Re: Acne Problem

First of all, no acne product works in a few days or even a few weeks.
You stated you have tried so many things in the past 3-4 months? You will need to give whatever you try at least 3 months of...
Board: Headaches & Migraines 05-01-2015, 03:30 AM
Replies: 2
Views: 287
Posted By MSNik
Re: Brain fog, neck pain, jaw pain, dizziness

Head pressure, neck pain and facial tingling. Have you thought about seeing a dentist? Specifically an oral surgeon? Just a thought, but my husband had TMJ of the jaw, and had very similar...
Board: Multiple Sclerosis 05-01-2015, 03:23 AM
Replies: 8
Views: 289
Posted By MSNik
Re: Clinical Studies of Guanabenz for Treatment of Multiple Sclerosis

The objective of this study is to find out if Guanabenz can protect myelin and thus reduce the symptoms of MS....because they have not yet found a way to replace damaged myelin, by protecting it from...
Board: Acne 04-30-2015, 04:52 AM
Replies: 1
Views: 233
Posted By MSNik
Re: Is accutane working?

Its working. Stay on it at least six months...youll start seeing the difference. Keep your doctors appts, youre doctor may want to increase the dosage after 3 months when he sees how you are...
Board: Acne 04-30-2015, 04:49 AM
Replies: 5
Views: 377
Posted By MSNik
Re: Photodynamic Therapy

Hey there. Sorry for the very long delay. My father passed away suddenly and Ive been off the boards for about ten days.

First of all, thats about the right price. I know that my office offered a...
Board: Acne 04-30-2015, 04:45 AM
Replies: 1
Views: 242
Posted By MSNik
Re: Accutane

Its very normal. You need to stay on it at least six months to start seeeing a difference. Good luck!!
Board: Acne 04-30-2015, 04:44 AM
Replies: 2
Views: 177
Posted By MSNik
Re: What do I do?

That shot you were given contains a steroid, which normally takes the inflammation down. If it didnt work in two shots, its something else and you DO need to see a plastic surgeon to have it removed....
Board: Acne 04-30-2015, 04:42 AM
Replies: 2
Views: 239
Posted By MSNik
Re: Acne gone after 22 years

Jayman,
Im not sure this is healthy...but I do know that if you eat most of your calories before going to bed, you will start seeing weight gain pretty soon. Dieticians and doctors alike advise...
Board: Acne 04-30-2015, 04:38 AM
Replies: 3
Views: 197
Posted By MSNik
Re: Saline self injections for acne scars

If you self inject, you are taking the chance that you will scar yourself silly. Please do not think about doing so....its not safe- and unless you have a doctor injecting you, the chances of you...
Board: Acne 04-30-2015, 04:35 AM
Replies: 4
Views: 237
Posted By MSNik
Re: Sunscreen with tan to cover acne

As far as hiding acne, a BB cream or any other cream, will help make the skin look better, but youll need to use sunscreen on the beach as well.....they do not contain sunscreen...you can use a...
Board: Acne 04-30-2015, 04:31 AM
Replies: 3
Views: 275
Posted By MSNik
Re: diane 35

Birthcontrol pills can take up to 6 months to really help. Its quite normal that when you change your hormones, that youre skin will break out at first. Stay on the Diane for a few more months, you...
Board: Multiple Sclerosis 04-30-2015, 04:29 AM
Replies: 2
Views: 215
Posted By MSNik
Re: MS and diet pills/B12 Injections

Hi there. I would not start any weight loss supplements without talking to your doctor. Weight loss supplements work by increasing your metabolism, which in turn may throw your MS into a frenzy......
Board: Multiple Sclerosis 04-30-2015, 04:26 AM
Replies: 4
Views: 176
Posted By MSNik
Re: Mild Obstructive Sleep Apnea

Thanks for the update. Although Sleep Apnea is probably not related to MS, it is treatable. Youre looking at adding a Cpap machine to your regiment to keep the O2 Sat high- but youll start feeling...
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